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Topic: Mucinous carcinoma...anyone?

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Jan 15, 2017 04:15PM

tsp4406 wrote:

Hello! So I have just been diagnosed with this...rare, typically in 60-70 year old women, I am 41. I know it's a "good" rare, but I would LOVE to hear from anyone who has this.

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Jan 15, 2017 04:20PM BarredOwl wrote:

Hi tsp4406:

There is thread for members with mucinous carcinoma here that you may wish to join:

Topic: Mucinous Carcinoma of the breast:

https://community.breastcancer.org/forum/137/topics/733018?page=61

BarredOwl

Stage IA IDC, 9/2013 BMX. Right: IDC (1.5 mm, grade 2) with DCIS (5+ cm), 0/4 nodes, pN0. Left: DCIS (5+ cm), 0/1 node, pN0(i+).
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Jan 16, 2017 04:14PM heartfull wrote:

Hi there! I was also diagnosed with mucinous carcinoma in December 2016. The BS asked for an MRI to try to confirm the size of the mass in my right breast. They also found a small 1 cm mass in my left breast and getting a biopsy on that tomorrow. How are you doing with your diagnosis? What is the size of your mass?

Hugs!!

Dx 12/2016, IDC: Mucinous, Right, 4cm, Stage IIA, Grade 2, 0/3 nodes, ER+ Surgery 2/21/2017 Surgery Mastectomy
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Jan 17, 2017 09:30PM - edited Mar 19, 2017 08:20PM by obsolete

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Jan 18, 2017 10:56PM heartfull wrote:

My biopsy on my left breast came back today and it is IDC size 0.8 cm. I am in total disbelief! So hard to believe that there is cancer in both breasts, let alone two different kinds. I see the surgeon on Friday!

Thank you to anyone that has been through this!

Dx 12/2016, IDC: Mucinous, Right, 4cm, Stage IIA, Grade 2, 0/3 nodes, ER+ Surgery 2/21/2017 Surgery Mastectomy
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Jan 19, 2017 12:37AM - edited Mar 19, 2017 08:20PM by obsolete

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Jan 22, 2017 12:55AM heartfull wrote:

Hi and thank you so much for your msg. I saw the doctor & he is suggesting a double mastectomy due to both very dense breast tissue with lots of cysts. I sort of have accepted that, but worry about chemo if needed. He say she it's a Strong possibility due to the size...5 cm...just hard to believe

Dx 12/2016, IDC: Mucinous, Right, 4cm, Stage IIA, Grade 2, 0/3 nodes, ER+ Surgery 2/21/2017 Surgery Mastectomy
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Jan 22, 2017 08:16PM - edited Mar 19, 2017 08:19PM by obsolete

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Jan 23, 2017 12:18AM heartfull wrote:

Thank you so much for your reply! I have lots of questions and trying to educate myself as much as possible. Do they run the Oncotype assay before surgery or after surgery (after the final pathology results)? I will read more about that as well as mamaprint. A quick question about getting a second opinion opinion on the surgery path results...how do you go about that? Do I ask the breast surgeon or the oncologist?

In regard to chemo, super scary...were you able to avoid chemo? Did you have reconstruction after surgery? Sorry for so many questions, but my head is spinning! My next step is that the breast surgeon wants me to see the plastic surgeon on Tues to see if he thinks that there will be enough room for the expander (doing skin-sparing mastectomy) or does the mass need to be shrunk down via chemotherapy before surgery....yuk!

Thank you for your kindness and for your warmth. It's so nice to talk to you and any others that have been through this. Thank you so much and hugs back also!

Dx 12/2016, IDC: Mucinous, Right, 4cm, Stage IIA, Grade 2, 0/3 nodes, ER+ Surgery 2/21/2017 Surgery Mastectomy
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Jan 23, 2017 05:19PM - edited Mar 19, 2017 08:27PM by obsolete

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Jan 23, 2017 11:42PM heartfull wrote:

Thank you so much for your good information! I will definitely check further regarding the Oncotype and Mamaprint! I just don't want unnecessary or not helpful chemo! So happy to hear that you did not need chemo...that is wonderful!

I will keep you posted...going for an appointment tomorrow with the PS to determine if this mass on the right needs to be shrunk before surgery. I have lots of questions and appreciate your help so much! Thank you!! :)

Dx 12/2016, IDC: Mucinous, Right, 4cm, Stage IIA, Grade 2, 0/3 nodes, ER+ Surgery 2/21/2017 Surgery Mastectomy
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Jan 30, 2017 11:54PM heartfull wrote:

Update: The plastic surgeon says that he's good with going straight to surgery! Sooo...just waiting for my surgery date now! I'm nervous, but I'm ready!!

Dx 12/2016, IDC: Mucinous, Right, 4cm, Stage IIA, Grade 2, 0/3 nodes, ER+ Surgery 2/21/2017 Surgery Mastectomy

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