Join Us

We are 218,061 members in 84 forums discussing 160,867 topics.

Help with Abbreviations

Topic: Anyone out there with Occult Amorphic Metastatic?

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Jul 4, 2017 04:02PM

Lita57 wrote:

I was Dx'd last year with Stage 4 Occult Amorphic IDC, and was wondering if there was anyone else out there like me. My invasive cancer doesn't show up on any mammogram. They did nine during my biopsy, and couldn't find it. They had to do a dye-infused CT and use that to find enough breast tissue to biopsy. They also biopsied a swollen node.

RO said it's not uncommon. Many more women are getting this form, and it can start metastacizing when it's only Stage 1. That's why you can't feel it or see it easily in a mammo. It sends evil little tumor cells out into the body, and those growing tumors are detected first after they start invading other structures (as mine were, in my spine with accompanying nerve compression and fractures).

Mine didn't waste any time either. It's also in my liver, pancreas, adrenals, bladder, colon, abdominal wall, pelvic bones, hips, ribs, and adjacent muscles.

I'm currently on Xeloda. How's everyone else doing?

Stage IV De Novo, Occult, Amorphic. New Brain Mets Aug 2017. Now on Gemzar and Zometa. Dragged into an arranged marriage with Mr. Cancer that I didn't agree to, and divorce is forbidden. Grateful for however many GOOD days I have left. Dx 4/14/2016, IDC, Left, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Radiation Therapy 4/26/2016 External: Bone Targeted Therapy 5/14/2016 Chemotherapy 5/21/2016 Xeloda (capecitabine) Radiation Therapy 4/19/2017 External: Bone Dx 8/23/2017, IDC, 5cm, Stage IV, metastasized to brain, Grade 3, ER+/PR+, HER2- Radiation Therapy 9/5/2017 External: Brain Chemotherapy 10/10/2017 Taxol (paclitaxel)
Log in to post a reply

Page 1 of 1 (1 results)

Posts 1 (1 total)

Log in to post a reply

Aug 4, 2017 02:58PM marijen wrote:

Occult primaries are less than 1% of the BC cases. I have one. I'm at IIA. Thanks Lita for your information. Better to be forewarned and forearmed.

Page 1 of 1 (1 results)