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Topic: Phyllodes Tumor-16 Years Old-Lots of Questions

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Jul 6, 2017 02:24PM

Rhylee123 wrote:

I know that a Phyllodes Breast Tumor is only to occur in women over the age of 40. But i found a lump 1 month after my 16th birthday. Doctors turned me away because it was the side of a pee at that time, I went back a month 2 months later and it grew to be over an inch, they then took an ultra sound and suggested surgery, 2 weeks after my surgery I went back to the hospital for my results to find I had a rare case of a Phyllodes. mine was Benign. to make sure the tumor didn't come back i went through another surgery to take out the roots. since I got it so young, what does that meen for me? Why did i get this so young? If its only suppose to occur in women between the ages of 40-50 going through menopause. I just dont understand how i got this tumor at 16. What causes this tumor? What gave me this tumor?

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Jul 6, 2017 02:52PM Moderators wrote:

Dear Rhylee,

Here is a link to another older topic on the boards that you might find interesting with regards to a 17 year old being diagnosed with a Phyllodes Tumor and here is some information on our main site about Phyllodes Tumors.They are rare but can occur at any age. You also may want to direct your questions to your doctor who may be able to offer you other resources to help you learn more. We are glad that you were able to get the care that you needed and that in your case your tumor was benign. As a rule we discourage young teens from posting because our community and the information we provide focuses on adults with breast cancer. Feel free to send us a PM if we can provide more resources. The Mods

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Jul 6, 2017 08:01PM knutter1 wrote:

phyllodes does not just affect women in their 40-50's unfortunately it affects many ages. I am a member of a support group for people that are diagnosed with phyllodes on Facebook and have seen several young girls. If I can help you in any way I would certainly be glad to

Living everyday to make a change for tomorrow! Dx 7/2008, 6cm+, 0/0 nodes
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Jul 6, 2017 08:10PM MinusTwo wrote:

Rhylee - I'm sorry for your diagnosis. I know the MODS have explained you need to be 18 years old to post on these threads. Please do talk to your Mom.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jul 11, 2017 12:34AM Rhylee123 wrote:

Hello, Yes i am now currently 18 years old. I just have questions because I never really understood it at the time when i was diagnosed.

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