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Topic: Single Hormone Receptor Positive -> ER+/PR-/HER2-

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Sep 17, 2017 10:28AM

seemaryrock wrote:

Anyone else in this same boat? Would love input or sharing your experience. Feeling a little alone in this boat!

Married mother of 7-year-old son and 2-year-old daughter. Diagnosed at age 40. Mother had it 4 years ago and sister (46) was diagnosed 2 weeks after I was. Dx 7/19/2017, DCIS/IDC, Left, 1cm, Stage IIA, Grade 2, 2/15 nodes, ER+/PR+, HER2- Surgery 8/31/2017 Chemotherapy 10/16/2017 AC Radiation Therapy Whole-breast: Lymph nodes Surgery Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Posts 271 - 300 (383 total)

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Nov 14, 2018 09:38AM Meow13 wrote:

Thanks Anna, I seem to have found a reason to feel alittle better about the future.

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Nov 14, 2018 04:14PM wintersocks wrote:

Really? i would like to see this research. best news i've heard all day

Dx 2/20/2012, IDC, 6cm+, Stage IIIA, Grade 2, 4/11 nodes, ER+/PR-, HER2- Chemotherapy 3/22/2012 Doxil (doxorubicin), Taxotere (docetaxel) Surgery 8/28/2012 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Hormonal Therapy 9/9/2012 Femara (letrozole) Radiation Therapy 9/15/2012 Breast, Lymph nodes
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Dec 2, 2018 12:25AM HPFULL wrote:

I am ER+ 100% and PR- 0% and so curious as to what this means as far as aggressiveness of the tumo

Dx 10/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (FISH) Surgery 12/11/2018 Reconstruction (right) Hormonal Therapy 1/15/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Dec 2, 2018 02:05AM Meow13 wrote:

I was er 95% and pr 0%, my tumors were grade 1 and 2 both mitotic score 1 slow growing. I don't think there are enough of us to come to any conclusions on aggression with er and pr percentages alone.

Are you her2 negative?

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Dec 2, 2018 07:21AM - edited Dec 2, 2018 07:21AM by wintersocks

HPFULL/Meow13

I have the same as you 100% er and pr negative and her2 negative.

Is our cancer considered to be very unusual then?

Dx 2/20/2012, IDC, 6cm+, Stage IIIA, Grade 2, 4/11 nodes, ER+/PR-, HER2- Chemotherapy 3/22/2012 Doxil (doxorubicin), Taxotere (docetaxel) Surgery 8/28/2012 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Hormonal Therapy 9/9/2012 Femara (letrozole) Radiation Therapy 9/15/2012 Breast, Lymph nodes
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Dec 2, 2018 07:43AM nat_blue wrote:

I was pretty close >90% er+/0%pr and hr-. Our type seems to be a bit less common than er+/pr+ hr-, but I don't think it is rare so to speak. There still seems to be a good bit of controversy over the degree the absence of a pr receptor might change the outcome or increase the aggressiveness of the tumor.

Dx 4/20/2018, IDC, Right, <1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR-, HER2- (IHC) Radiation Therapy 5/17/2018 3DCRT: Breast Surgery 6/25/2018 Lumpectomy: Right; Lymph node removal: Sentinel
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Dec 2, 2018 10:43AM HPFULL wrote:

yes HER2 negativ

Dx 10/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (FISH) Surgery 12/11/2018 Reconstruction (right) Hormonal Therapy 1/15/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Dec 2, 2018 07:55PM Murfy wrote:

Approximately 35% of breast cancers are PR-, so not so rare! Most have high Oncotype scores, so are considered aggressive, although many are only grade1 or 2.

Dx at 62: Oncotype=52; Path (ER=99%, PR=0%, Ki67=55%) Dx 10/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER+/PR-, HER2- Surgery 11/14/2017 Mastectomy: Left Chemotherapy 1/13/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 3/31/2018 Aromasin (exemestane)
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Dec 3, 2018 03:08PM Rav wrote:

Since my diagnosis I have been reading every about BC and this thread is where I got the most useful information. Thank you everyone for sharing your knowledge.

I’m 100% ER+ (8/8) and PR negative (it’s written 3/8 and that it should be repeated during excision in order to confirm). These results are from core biopsy (FISH). HER is negative.

I want to ask the surgeon to have Oncotype and Mammaprint done, regardless of paying for the tests myself, but still not sure if I will succeed.

Thanks again for sharing your experiences. It helps a lot.

Dx DCIS/IDC, Stage IB, Grade 1, ER+, HER2-
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Dec 5, 2018 11:43AM PrincessButtercup wrote:

I just had my first follow-up mammogram post-surgery, and everything was clear. One year down, 4 to go!

Dx 11/15/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 12/4/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 1/21/2018 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/30/2018 Whole-breast: Breast Hormonal Therapy 6/10/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 5, 2018 12:00PM Murfy wrote:

That's great news Princess!!

Dx at 62: Oncotype=52; Path (ER=99%, PR=0%, Ki67=55%) Dx 10/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER+/PR-, HER2- Surgery 11/14/2017 Mastectomy: Left Chemotherapy 1/13/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 3/31/2018 Aromasin (exemestane)
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Dec 5, 2018 09:53PM HPFULL wrote:

That’s great news princess buttercup :

Dx 10/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (FISH) Surgery 12/11/2018 Reconstruction (right) Hormonal Therapy 1/15/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Dec 6, 2018 04:31AM bravepoint wrote:

Great news Princess! It's always such a relief to get the all clear.

Gail Radiation Therapy 4/17/2016 Whole-breast: Breast, Lymph nodes, Chest wall Dx 8/8/2016, IDC, Right, 1cm, Stage IIA, Grade 3, 1/5 nodes, ER+/PR-, HER2- Surgery 8/28/2016 Chemotherapy 10/6/2016 AC + T (Taxol)
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Dec 6, 2018 08:14AM PrincessButtercup wrote:

Thanks, all. It's good to get this done before the holidays. I wanted to hug the tech when she told me I was good to go for now.

Dx 11/15/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 12/4/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 1/21/2018 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/30/2018 Whole-breast: Breast Hormonal Therapy 6/10/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 9, 2018 03:45PM PatsyKB wrote:

Congratulations Princess Buttercup!

To digress: Isn’t it interesting how after diagnosis and treatment we tend to think in 6-month time increments (or I do)? My 6 mo mammo resulted in another biopsy (negative - whew). MO checkup this month. Then I’ll be looking toward March when I have a mammo and MRI. All I want to do is stave off a recurrence - just like all of you. The combination of Single Receptor plus, for me, the invasive nature of my cancer, keep me aware at all times of the possibility of recurrence even as I go about my life. It’s an interesting emotional tightrope we walk.

“Ring the bells (ring the bells) that still can ring Forget your perfect offering There is a crack in everything (there is a crack in everything) That's how the light gets in.” -Leonard Cohen Dx 4/10/2018, IDC, Right, <1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR-, HER2- (FISH) Surgery 5/7/2018 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 5/23/2018 Multi-catheter: Breast Hormonal Therapy 6/12/2018 Femara (letrozole) Surgery
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Dec 9, 2018 04:06PM PrincessButtercup wrote:

I wonder if I should be more concerned than I am. Also single-receptor positive here, IDC and Grade 3. My doctor has me on the once a year mammogram schedule. But I will see my MO in March and will ask then.

Dx 11/15/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 12/4/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 1/21/2018 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/30/2018 Whole-breast: Breast Hormonal Therapy 6/10/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 10, 2018 06:51AM bravepoint wrote:

Princess- I'm the same, single receptor positive, grade 3 and also 1/5 nodes. I only go for a mammogram once a year. I get checked by my Mos every 6 months on alternating schedule.

Gail Radiation Therapy 4/17/2016 Whole-breast: Breast, Lymph nodes, Chest wall Dx 8/8/2016, IDC, Right, 1cm, Stage IIA, Grade 3, 1/5 nodes, ER+/PR-, HER2- Surgery 8/28/2016 Chemotherapy 10/6/2016 AC + T (Taxol)
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Dec 10, 2018 07:31AM PatsyKB wrote:

I should have mentioned that I have been on 2x year screenings for many years due to high risk and many many biopsies. Mammogram/MRI on an alternating 6 month schedule.

I will say that my cancer was discernible ONLY by my MRI. Couldn’t be seen by mammo or ultrasound so in considering asking your doctors about adding MRI to the mix, this is worth mentioning. Mammo and ultrasound have missed other suspicious growths which, although not cancer, were more concerning than the garden variety benign bits.


“Ring the bells (ring the bells) that still can ring Forget your perfect offering There is a crack in everything (there is a crack in everything) That's how the light gets in.” -Leonard Cohen Dx 4/10/2018, IDC, Right, <1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR-, HER2- (FISH) Surgery 5/7/2018 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 5/23/2018 Multi-catheter: Breast Hormonal Therapy 6/12/2018 Femara (letrozole) Surgery
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Dec 10, 2018 08:59AM PrincessButtercup wrote:

Thank you Bravepoint and Patsy.

Dx 11/15/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 12/4/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 1/21/2018 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/30/2018 Whole-breast: Breast Hormonal Therapy 6/10/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 10, 2018 09:22AM Murfy wrote:

According to my Docs, a lumpectomy breast should be mammogrammed every 6 mos for 2 yrs. However, following mastectomy, the unaffected breast only once a year.

Dx at 62: Oncotype=52; Path (ER=99%, PR=0%, Ki67=55%) Dx 10/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER+/PR-, HER2- Surgery 11/14/2017 Mastectomy: Left Chemotherapy 1/13/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 3/31/2018 Aromasin (exemestane)
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Dec 10, 2018 01:18PM bravepoint wrote:

Murfy - Interesting....I had a lumpectomy and that was never suggested to me.

Gail Radiation Therapy 4/17/2016 Whole-breast: Breast, Lymph nodes, Chest wall Dx 8/8/2016, IDC, Right, 1cm, Stage IIA, Grade 3, 1/5 nodes, ER+/PR-, HER2- Surgery 8/28/2016 Chemotherapy 10/6/2016 AC + T (Taxol)
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Dec 10, 2018 03:52PM - edited Dec 10, 2018 03:52PM by Meow13

My imaging center used to mammogram my DIEP side as well as the real. Last year they stopped doing the non breast tissue side. My oncologist said makes sense. I believe the insurance company is making that decision.

Still does the MRI though.

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Dec 10, 2018 03:55PM Meow13 wrote:

I must say the technicians I don't think thought I had a simple mastectomy, they didn't really believe me when I told them. That always made me feel good that my plastic surgery was a good job.

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Dec 10, 2018 04:46PM - edited Dec 10, 2018 04:58PM by PrincessButtercup

My mammography center just sent me a letter saying that my results showed that I do not have dense breasts. This is completely opposite from what they told me last year. Can breast density change that quickly after chemo, radiation, tamoxifen and menopause?

(Edited to add tamoxifen to the mix! All of those things happened during this year.)


Dx 11/15/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 12/4/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 1/21/2018 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/30/2018 Whole-breast: Breast Hormonal Therapy 6/10/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 15, 2018 07:10PM HPFULL wrote:

I had surgery Tuesday and part of the pathology came back.....My results are different than initial biopsy patholgy. I am 98% ER+ and 40-50% PR + ( not sure why a range fot the PR and an exact % for ER. My initial ki67 was low Andy now it’s high. I was luminal a and now I am luminal b

Dx 10/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (FISH) Surgery 12/11/2018 Reconstruction (right) Hormonal Therapy 1/15/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Dec 15, 2018 08:41PM Meow13 wrote:

HPFULL, how did they determine you were luminal b? Ki-67 is very unpredictable hope they aren't basing conclusions on that. The worrisome part maybe a positive node.

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Dec 15, 2018 09:00PM HPFULL wrote:

the BS said the size made it luminal b. He said the 1 node did have cancer but not enough to count. I was told that my proliferation rate was high

Dx 10/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (FISH) Surgery 12/11/2018 Reconstruction (right) Hormonal Therapy 1/15/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Dec 15, 2018 09:09PM Meow13 wrote:

The size, ok. My mo said they don't classify luminal a vs b in their labs. He said what made mine dangerous was the total lack of progesterone receptors. Good luck and happy holidays.

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Dec 26, 2018 11:08AM PatsyKB wrote:

Hi all. Need responses ASAP I’m headed to my 6-mo checkup with my Medical Oncologist in an hour or so (December 26) Doing well on my letrozole and feeling great. BUT as a Single Receptor, I worry about distant recurrence and wonder what questions should I ask my MO about screenings and labs and other precautionary testing. I don’t want to wait for symptoms to appear before scanning for METs. Anyway what else should I be asking?








“Ring the bells (ring the bells) that still can ring Forget your perfect offering There is a crack in everything (there is a crack in everything) That's how the light gets in.” -Leonard Cohen Dx 4/10/2018, IDC, Right, <1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR-, HER2- (FISH) Surgery 5/7/2018 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 5/23/2018 Multi-catheter: Breast Hormonal Therapy 6/12/2018 Femara (letrozole) Surgery
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Dec 26, 2018 11:46AM DebAL wrote:

hey there Patsy. My MO follows the current guidelines. No tumor markers etc. Its a bit unsettling to not be "monitored" with labs but evidence doesnt support that doing so catches recurrence any earlier. I'm glad you are feeling well. Let us know how your appt goes. Happy New Year! Deb

Dx 1/22/2018, IDC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- (IHC) Surgery 2/11/2018 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 2/12/2018 Mastectomy: Left, Right Chemotherapy 4/2/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/13/2018 Arimidex (anastrozole) Surgery 8/8/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/19/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery

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