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Topic: Single Hormone Receptor Positive -> ER+/PR-/HER2-

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Sep 17, 2017 12:28PM

seemaryrock wrote:

Anyone else in this same boat? Would love input or sharing your experience. Feeling a little alone in this boat!

Married mother of 7-year-old son and 2-year-old daughter. Diagnosed at age 40. Mother had it 4 years ago and sister (46) was diagnosed 2 weeks after I was. Dx 7/19/2017, DCIS/IDC, Left, 1cm, Stage IIA, Grade 2, 2/15 nodes, ER+/PR+, HER2- Surgery 8/31/2017 Chemotherapy 10/16/2017 AC Radiation Therapy Whole-breast: Lymph nodes Surgery Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Posts 361 - 373 (373 total)

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Mar 15, 2019 02:45PM - edited Mar 16, 2019 05:40PM by wanderweg

congratulations Patsy! Personally, I am going to count one year from the date I had my mastectomy. I figure that's when they removed the cancer, and I have no way of knowing if there was any residual cancer that the chemotherapy got.

weakly ER+, TNBC on oncotype Dx 5/10/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR-, HER2- Surgery 6/10/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/6/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 8/30/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 15, 2019 08:23PM moth wrote:

Congrats Patsy! Like wanderweg I count from the surgery date so I'm 15 months out. (at least i'm assuming that when wanderweg typed 'mistake' it was an autocorrect for mastectomy ;) )

Dx at 50; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, very weakly ER+, being treated as TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast
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Mar 15, 2019 11:10PM PatsyKB wrote:

Thanks, wanderweg and moth - I'll consider May 7 my anniversary date. It's my surgery date

“Ring the bells (ring the bells) that still can ring Forget your perfect offering There is a crack in everything (there is a crack in everything) That's how the light gets in.” -Leonard Cohen Dx 4/10/2018, IDC, Right, <1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR-, HER2- (FISH) Surgery 5/7/2018 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 5/23/2018 Multi-catheter: Breast Hormonal Therapy 6/12/2018 Femara (letrozole) Surgery
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Mar 15, 2019 11:43PM Meow13 wrote:

Celebrate PatsyKB!

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Mar 16, 2019 08:07AM DebAL wrote:

hey patsy, great news! I also consider surgery date. I remember us going through all this at the same time. It's hard to believe it's been a year. Glad you are doing well!. I remember your saying "Onward!"

Dx 1/22/2018, IDC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- (IHC) Surgery 2/11/2018 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 2/12/2018 Mastectomy: Left, Right Chemotherapy 4/1/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/13/2018 Arimidex (anastrozole) Surgery 8/8/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/19/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery
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Mar 16, 2019 01:21PM Murfy wrote:

Onward and upward, indeed! Congrats! Had my one-year chemoversary last week and have never felt better. According to my insurance person, I can get a long-term care policy after 2-year remission which started on day of surgery. Looking forward to reaching THAT date!

Dx at 62: Oncotype=52; Path (ER=99%, PR=0%, Ki67=55%) Dx 10/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER+/PR-, HER2- Surgery 11/13/2017 Mastectomy: Left Chemotherapy 1/12/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 3/31/2018 Aromasin (exemestane)
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Mar 16, 2019 02:14PM PatsyKB wrote:

Oh, thank you all for your good wishes. We need to celebrate everything we can in this life, don’t we?

Murfy, I love the “chemoversary” - the more celebrations the better, so 1st surgiversary on May 7 for me and 1st BrachyRadiation-versary on May 30. That ought to do it.

DebAL it was good to hear from you. Yes, I remember our parallel experiences.

I haven’t dropped into BreastCancer.org in awhile but I need to do so more regularly.

Onward!

“Ring the bells (ring the bells) that still can ring Forget your perfect offering There is a crack in everything (there is a crack in everything) That's how the light gets in.” -Leonard Cohen Dx 4/10/2018, IDC, Right, <1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR-, HER2- (FISH) Surgery 5/7/2018 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 5/23/2018 Multi-catheter: Breast Hormonal Therapy 6/12/2018 Femara (letrozole) Surgery
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Mar 16, 2019 05:41PM wanderweg wrote:

moth - I was dictating that on my ipad and didn't go back and spell check. My ipad and phone both have a deep aversion to the word mastectomy! As do I. ;-)

weakly ER+, TNBC on oncotype Dx 5/10/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR-, HER2- Surgery 6/10/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/6/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 8/30/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 29, 2019 04:04PM - edited Mar 29, 2019 04:38PM by Caitpow88

hi ladies! I can use as much advice as I can get! I was diagnosed October 2018 with ER + IDC, 4/14 positive nodes. Er on core biopsy was 30% and then decreased to 5% when retested. Ki 99% ! I have done AC and have completed #8 of abraxane (I had an allergic reaction to taxol). I am 30 now and have a 2 year old son.. I have had a lot of issues and really just want to make sure I am doing everything I need to do!

Dx 10/2018, IDC, Right, 2cm, Stage IIIA, Grade 3, 4/14 nodes, ER+/PR-, HER2- Surgery 10/15/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 11/5/2018 AC + T (Taxol)
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Mar 29, 2019 07:29PM ruthbru wrote:

I sounds like you are following your doctor's treatment recommendations, which is the smartest thing to do. It might not be a bad idea to have them test the ER one more time, just so they have a better handle on the percent. I was only 'mildly positive' (11-25%......I don't think tests were as precise then as now) but was recommended to take an anti-hormonal for 5 years; so you will probably want to ask about that. Best of luck!!

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Mar 29, 2019 11:58PM Murfy wrote:

Cait, it sounds like your tumor tissue might be heterogeneous for ER with different levels of ER in different parts of the tumor. Your Ki looks high. What was your PR level?


Dx at 62: Oncotype=52; Path (ER=99%, PR=0%, Ki67=55%) Dx 10/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER+/PR-, HER2- Surgery 11/13/2017 Mastectomy: Left Chemotherapy 1/12/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 3/31/2018 Aromasin (exemestane)
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Mar 30, 2019 09:50AM Caitpow88 wrote:

My PR was 0 both times! I had a lumpectomy but I am currently waiting on biopsy results of a bead sized lump that was about 3 fingers above my scar :( I am devastated.

Dx 10/2018, IDC, Right, 2cm, Stage IIIA, Grade 3, 4/14 nodes, ER+/PR-, HER2- Surgery 10/15/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 11/5/2018 AC + T (Taxol)
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Apr 14, 2019 09:35PM rrshannon wrote:

Cait hope you received your biopsy results and are doing good.

I have my bilateral mastectomy and they will be testing some lymph nodes tomorrow and will be anxiously waiting for the final biopsy results. I always hate the waiting game.


BRCA Negative. Dx 7/2/2003, ILC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 7/11/2003 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 7/23/2003 AC Radiation Therapy 10/30/2003 Dx 12/11/2018, IDC, Right, 2cm, Grade 2, ER+/PR-, HER2- (FISH) Chemotherapy 1/17/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/15/2019 Lymph node removal: Right; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement

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