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Topic: Invasive Papillary Breast Carcinoma under age 30

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Jan 24, 2018 03:53PM

gabrielapoes wrote:


I'm a 28 year old Brazilian girl recently diagnosed with an Invasive Papillary Breast Carcinoma. I am aware how rare this type is, specially for younger woman. I'm looking for other people who have or had the same as me and we maybe could exchange experiences and information. Right now I'm recovering from surgery and soon starting my treatment.


Gabriela Poester.

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Jan 25, 2018 05:47AM Moderators wrote:

Dear Gabriela, welcome to We hate the reason you had to join us, but glad you did!

Till you get responses here from others, we would recommend you to make use of our search button on the left and type in "papillary" as your search term (without the quotes) to find others who may have posted about this diagnosis as well. Hope this helps!

Also, we've noticed you registered with a username that could very likely be very similar to your actual name. For security and privacy reasons, we'd highly suggest you edit your ID to be a bit more anonymous and remove you last name from your post. To edit your username you have to go your Settings, scroll down to Username and click on Edit. See our HELP section for information on: How do I edit my content?

Let us know if you need help with all this, we're here for you!

Wishing you a quick and smooth recovery!

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Jun 8, 2018 04:11PM Saved_by_grace wrote:

Hi Gabriela- I also have invasive papillary breast cancer. I am not young like you - I am 56. I hope you are doing well . I had a bilateral mastectomy may 17 with direct over the muscle implants . Because one of my tumors was over 3 cm it was close to my skin and I did not have clear margins. So , have radiation soon. Luckily , the tumor was a mm shy of requiring chemo! Start ai inhibitor one of the theas days .

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Jun 17, 2018 06:16AM - edited Jun 17, 2018 06:18AM by obsolete

Hello! So sorry that you both find yourselves here. Also my apologies for the late response. There are very few of us here with Invasive Papillary Carcinoma. It is hoped that you are both improving after your surgeries.

Gabriela, it's disturbing to me that such young women are being diagnosed. I wish you lots of healing and better health..

SavedByGrace, Just curious, did your tumor have Oncotype or Mammaprint or similar genome testing for guidance in determining the need for any chemo? If so, what was your score, if you don't mind? My Invasive Papillary with IDC & Mucinous Carcinoma scored 8 on Oncotype.

Papillary tumors, including Invasive, can also be heterogenous and a combination of Invasive Papillary with Solid Papillary Carcinoma, for example (like mine), which tends to be nuclear sub-type Luminal B. Most Papillary tumors in labs test as Luminal A phenotype. Please ask your medical team.

Did your Invasive Papillary tumors exhibit any conventional IDC cells near or along the periphery of your Invasive Papillary tumors?

You might possibly need to get a 2nd opinions on the pathology to get these answers, because any conventional IDC cells would trump your Invasive Papillary tumors and require the same repeat clinical testing.

Please visit the following link on Papillary Carcinoma.

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