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Topic: Single Hormone Receptor Positive -> ER-/PR+/HER2-

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Aug 21, 2018 09:56AM

loveMom65 wrote:

Calling all folks with ER- / PR+. Please share you treatment stories, your age ,grade and stage of cancer.

My mother was diagnosed with ER- (0%) PR+(40%) and HER2 -

Her treatment plan:

AC+T

Tamoxifen (5years).

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May 9, 2020 11:27PM katej128 wrote:

I’m ER-/PR+(3%)/HER2- finished with lumpectomy surgery, chemo and radiation. Decided against hormone therapy since my hormone receptor % is so low. Not sure if that’s a smart call or not but the list of possible side effects with Arimidex is long for only a chance it could help. Thoughts?

Dx 10/21/2019, IDC, Left, 1cm, Stage IB, Grade 3, 0/2 nodes, ER-/PR+, HER2- (IHC) Surgery 11/19/2019 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 12/29/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/13/2020 Whole-breast: Breast
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Jun 29, 2020 06:46PM dundonian wrote:

I'm 67 and was recently diagnosed IDC stage 1, grade 3, ER-/PR+/HER2- MammaPrint - High Risk. katiej128 and lovemom65, you are the only two people I can find with the same type. One oncologist I saw said he didn't think there was such a thing as ER-/PR+ and that he would treat like triple negative. Another plans to treat with Taxotere + Cyclophosphamide, then radiation, then hormone therapy.

My late husband died from brain cancer (glioblastoma) and I swore I would never go through chemo & radiation if I ever got cancer. So my initial reaction, before all the pathology results came back, was I would skip all standard treatment and only do alternative therapy (nutrition, supplements etc.) However, after learning how aggressive my cancer is, I'm reconsidering.

Any input would be appreciated. Thanks!

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Jun 30, 2020 10:18PM loveMom65 wrote:

Hi dundonian & katej128,

Sorry to see you on this board. Apologies for the delayed response as I missed seeing the topic notifications.

My mom was diagnosed when she was 65. The original post was on her behalf. She was treated as triple negative for the chemo (AC + Taxol - need to double check that) after lumpectomy, underwent radiation after chemo and is getting Femara for her slight positive. The intent of the drs was to go after the cancer aggressively with the chemo and also address the hormone aspect. So far she seems to be doing alright.

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Jul 1, 2020 09:59AM katej128 wrote:

I’m so sorry to hear about your husband. That must have been rough. I hope you choose to follow the treatment plan. It is definitely doable and since you are early stage, no reason you won’t completely get rid of it. ER-/PR+ is a real type. Interesting that they recommend hormone therapy which does nothing for true triple negative cases. So they must recognize that the PR positively is real and you are not triple negative. TC was fairly easy with little side effects so long as they give you the steroids starting a day before each cycle and anti nausea meds prior.

I’m here for you and please take care and keep me posted.

Dx 10/21/2019, IDC, Left, 1cm, Stage IB, Grade 3, 0/2 nodes, ER-/PR+, HER2- (IHC) Surgery 11/19/2019 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 12/29/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/13/2020 Whole-breast: Breast

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