Aug 20, 2021 02:42PM Cancerlotterywinner wrote:
Did you find more information? I was just diagnosed and will be seeing a medical and radiation oncologist.
My pathology shows that my tumor shows adenoid cystic like areas. I will be having Next Generation Sequencing done to help classify my tumor. My tumor is low/intermediate grade carcinoma and is not typical of a Triple Negative cancer.
I also have Lynch Syndrome. My dad's brother and sister had breast cancer. I'm not sure what type of breast cancer they had but they were in Lynch Syndrome research studies so I'm hoping I'll be able to find out. They and my dad have passed away.
I've found information on cancer.net, adenoid cystic carcinoma research foundation, adenoid cystic carcinoma organization international, GARD, Dana Fiber, John Hopkins, MD Anderson.