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All TopicsForum: Australians and New Zealanders Affected by Breast Cancer → Topic: Australian Sisters

Topic: Australian Sisters

Forum: Australians and New Zealanders Affected by Breast Cancer —

Australian health care, clinical trials, and life in general in the land down under.

Posted on: Dec 15, 2010 02:13PM

Trisha-Anne wrote:

Calling all Australian Sisters!

I'm in Canberra and have just done my second chemo treatment.  I'm have 3 cycles of FEC then will have 3 cycles of Taxotere and 12 months of Hercepten.

It might be nice to see how many of us are in Oz and if we aren't too far away from eachother try to organise a meeting.

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe Dx 9/17/2010, ILC, <1cm, Grade 1, ER+/PR+, HER2- Dx 9/17/2010, IDC, 2cm, Stage IIA, Grade 3, 1/6 nodes, ER+/PR+, HER2+ Dx 11/4/2015, IDC, Right, 2cm, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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Apr 12, 2017 07:26PM chrissyb wrote:

Hi Karen, because I'm a pensioner I only have to pay the gap which is about $40 so not so bad.

Oh! I just read you second post. That's great news and sure does take a load off your mind!

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Apr 12, 2017 08:36PM Trisha-Anne wrote:

Karen, it's good you are now covered, it's tough when you get these bills that you just can't afford!

I saw my oncologist on Monday morning, and thought he'd say, well done, see you in 12 months time. But no, I have to stay on 6 monthly visits, and have to have an ultrasound of my axillary lymph nodes done before I see him. I know he's keeping an eye on me. I know that the triple negative needs more surveillance, but I wanted to forget it all for 12 months damn it!! Ok, rant over, I'll be a good girl now lol.

Trish

xox

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe Dx 9/17/2010, ILC, <1cm, Grade 1, ER+/PR+, HER2- Dx 9/17/2010, IDC, 2cm, Stage IIA, Grade 3, 1/6 nodes, ER+/PR+, HER2+ Dx 11/4/2015, IDC, Right, 2cm, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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Apr 12, 2017 09:45PM Wildplaces wrote:

Karen,

I can be a bit of a warrior when it comes to medical bills - but unless you signed something on admission that states you are liable for all additional tests I would still be questioning that ultrasound bill.

It did not come from an ultrasonographer - they do not cannulate and their fees would never be that high - it's a consultant fee you are paying - so was it the consultant radiologist who did it ?? - in that case he/she should have introduced himself and consented you for his fee. Seriously - and no, 😉 I am not legal but medical of background...

If you can master the energy I would call and politely clarify whose bill you are paying - and let them know you were not financially consented - it might be enough for the secretary to reach some compromise with you.

It would be a dinner out for you - and at the risk of sounding mean - we can all do with a bit of light relief😊
Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/12/2016 Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/20/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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May 4, 2017 12:39PM Lucy55 wrote:

Its very quiet over here .!.just dropping in to say Hi ...bit of a relief weather wise the last couple of days with finally a drop in temperature !

Love to all x

Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/14/2014
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May 4, 2017 04:55PM chrissyb wrote:

How are you doing Lucy?

I'm doing fine although really busy this week preparing for the Antiques Fair which is this weekend. I'll be driving over to Walleroo later today to pick up my SIL as she comes to stay and help out for the weeken which is great. Keeping our fingers crossed that it's a very successful weekend with loads of people coming to town........oh, and spending their money......lol.

Love n hugs to all. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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May 8, 2017 04:07AM Tammy_M43 wrote:

Chrissy, was the Fair a success?


Dx 10/29/2012, ILC, 1cm, Stage IB, Grade 2, 1/5 nodes, ER+/PR+, HER2- Surgery 11/13/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 1/6/2013 Whole-breast: Breast, Lymph nodes Hormonal Therapy 2/3/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 8/24/2013 Femara (letrozole)
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May 8, 2017 04:39AM chrissyb wrote:

Hi girls!!

Yes Tammy, the fair was a great success!!! My weekend started on Friday when I did my usual shift at the station before driving 90 minutes to Walleroo to pick up my SIL and did my grocery shop while I was over there. Drove home just in time fir my otger SIL and her friend to arrive so needless to say it wasn't what you call an early night......lol.

Saturday began with me putting together a stroganoff in the slow cooker gefore hwading down to the shop. There were people everywhere!!! and I'm sure at some stage through the day they all came through the shop! Talk about b u s y!!! I think I must have walked miles coz my feet sure were telling me a story when we got home. All I can say is I looooove my slow cooker.......lol.......all I needed to do was cook some rice and dinner was done!.

Thankfully Sunday was a little quieter but overall we had a really successful fair.

Today I helped at a very important morning tea at the station. We had a big wig from Canberra and tge big wigs from the city come to the station to announce that Burra and Moonta, both mining towns that the cornish settled, mined and bought new mining technology to, were both now listed on the National Heritage list. We are all so excited about this as now it can begin the process for world listing!

Drove my SIL home this arvo and am now sitting in my jimjams utterly exhausted and just about ready for bed.......that is if I can get the energy to walk into the bedroom. .....lol.

Take it easy all!

Love n hugs. Chrissy


I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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May 8, 2017 04:58AM Tammy_M43 wrote:

Chrissy, great news on th Fair and the heritage listing!


Dx 10/29/2012, ILC, 1cm, Stage IB, Grade 2, 1/5 nodes, ER+/PR+, HER2- Surgery 11/13/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 1/6/2013 Whole-breast: Breast, Lymph nodes Hormonal Therapy 2/3/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 8/24/2013 Femara (letrozole)
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May 8, 2017 01:25PM Lucy55 wrote:

Chrissy sounds like a great weekend..hectic and fun ..but now you would definately need a rest !! You've given me an idea to cook a stroganoff in the slow cooker ..I use mine all the time for curries and shanks and legs of lamb etc ..but have never cooked a stroganoff in it .Do you have a special recipe or just make it up as you go ?

Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/14/2014
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May 8, 2017 06:28PM chrissyb wrote:

Lucy, my strogonoff is just beef strips, onions, loads of myshrooms, red wine, beef stock, pepper and salt. Cook on low for about six hour ot high for three to four. Then add sour cream with a little starch and serve over rice with dill pickle on top. Very yummy.

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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May 9, 2017 05:42AM aussie12 wrote:

Hi all

I had my mammogram 2 weeks ago and then saw the Oncologist yesterday for my yearly check up. It's been 5 years since my breast cancer diagnosis and luckily I got the all clear this time.

I have my CT next week for my Bowel cancer then I see the oncologist for the results for that. Then hopefully I can relax for the rest of the year.

Carol

Dx 2/2/2012, DCIS, 5cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/16/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/13/2012 Surgery 3/7/2013 Reconstruction (left): Tissue expander placement
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May 9, 2017 08:08AM chrissyb wrote:

Yay Carol!! Great news! One down, one to go......sure hope the good news keeps coming!

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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May 9, 2017 02:40PM Lucy55 wrote:

Carol..that's great news !

Chrissy ..thanks for recipe ..I'm definitely going to make it ..I love my slow cooker in the winter ..it's the second rainy day in a row here , so it may be just about time to pull it out again !

Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/14/2014
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May 10, 2017 03:45AM Delvzy wrote:

Hi girls it's great to see some Aussie girls back on the boards again I was getting a bit lonely reading the bone met boards. I don't quite connect with the girls there. I had my bloods done and got the results last week tumour markers are now normal at 27 hemoglobin and calcium which were both low are now normal, just need the all clear end of June for CT and bone scan. I guess having these kind of tests are my new normal . I hope your town gets its world heritage listing Chrissy and it's good to hear from Lucy and Carol and that you are both doing well. Chrissy roughly how much stock and red wine for the beef stroganoff? Judy x

Dx 9/8/2008, DCIS, Stage 0, 0/4 nodes, ER+/PR+, HER2- Surgery 10/10/2008 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/22/2008 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex), Taxotere (docetaxel) Hormonal Therapy 2/28/2009 Dx 11/1/2016, Stage IV, metastasized to bone, ER+
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May 10, 2017 05:38AM chrissyb wrote:

Hi Judy! Great to hear that your tests are giving good results. ......your meds are definitely doing their job. Hope you are feeling a whole lot more confident about the future.

I just put a single glass (200ml) of red wine and about the same for the stock. Because it slow cooks it creates extra moisture but if you find after a couple of hours you want a little more liquid, don't be afraid to adjust by adding a little more stock.

It's going to take more time and a lot of work to get a world listing but this at least is the first step. It took ten years to get this far so fingers crossed that the next one won't take that long.

Loce n hugs all. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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May 17, 2017 02:06AM KarenAus wrote:

I think I have been watching too many house reno shows. Was thinking, I have had plumbing fixed, then a broken internal wall. Found rot that was cut out of verandah and found more so whole verandah had to come off. Was then fumigated to make sure all rot was gone. Problems were found as happens with renovations. Now into the rebuild stage. Verandah rebuilt, walls fixed with problems of course. This has gone way over budget and time which happens with most renos. When it is all over hopfully I will have a lovely body to live in.

Thought Aussies would get this.


KarenAus

Dx 3/2015, IDC, Right, 4cm, Stage IA, Grade 2, 3/3 nodes, ER+, HER2- Surgery 6/12/2015 Lumpectomy: Right; Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left Surgery Lumpectomy: Right; Mastectomy: Left, Right Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole), Femara (letrozole) Hormonal Therapy Arimidex (anastrozole), Femara (letrozole)
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May 17, 2017 06:35AM chrissyb wrote:

Hahaha! Absolute love it Karen! Thanks for the share. I hope you have a beautiful body to live in too.

Love n hugs. Chrissy


I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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May 25, 2017 03:11AM Jestea wrote:

Hi all, ive been a long time reader of this group but never posted anything.

I sit in that very grey area where I havent got cancer but I have pre breast cancer (so not cancer free either...) I have been having follow up surveillance for almost 7 years with yearly mammograms/US/surgeon visits, with yearly MRI's the other 6 months.

I live rural/remote in QLD so have to fly almost 1000kms to have this testing done....

So ive just had my MRI today and there appears to be some major changes in the right breast (which is the troublesome one) The report states that I haved marked background parenchymal enhancements with rapid enhancement and predominantly persistent enhancement. When compared to '16 the enhancement is much greater on today's study. Also on the same side there is changes related to skin in the periareola region. There is also a intramammory node lying against the chest wall.

So do you ladies think I should be concerned in regards to these major changes or wait until my next set of testing in 6 months? Im hoping to speak to the surgeon on the phone about it but she is very hard to get into contact with...


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May 25, 2017 04:38AM chrissyb wrote:

Hi Jestea, it sounds like they are seeing changes campared to last year so a conversation with your doc is a really good idea. Your GP should be able to go through the results with you if you can't get hold of your surgeon.

These results may indicate nothing to worry about yet but you really do need the input from a qualified person. They may suggest a biopsy of the area in question or they may say there is not enough there for a biopsy. Which ever the case may be remember, that to worry about what may be is a waste of energy, it's much better to wait and worry when you have something to worry about.

Good luck with it all, please let us know how you get on.

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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May 25, 2017 10:54PM Jestea wrote:

Thank you Chrissy. Im flying home tomorrow so im going to try and schedule a phone consult for sometime next week.

Thank you once again and enjoy your weekend Nerdy

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May 29, 2017 05:52AM aussie12 wrote:

Hi all

I saw the Oncologist after my CT for my bowel cancer and have got the all clear which is great. I have to go back in 4 months again.

Carol

Dx 2/2/2012, DCIS, 5cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/16/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/13/2012 Surgery 3/7/2013 Reconstruction (left): Tissue expander placement
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May 29, 2017 06:50AM chrissyb wrote:

Yay Carol!! No matter how soon your next visit is, right now you got the all clear and that is super cool!!!

Keeping everything crossed that the good news just keeps on coming.

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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May 30, 2017 03:00AM Tammy_M43 wrote:

Great news Carol!!


Dx 10/29/2012, ILC, 1cm, Stage IB, Grade 2, 1/5 nodes, ER+/PR+, HER2- Surgery 11/13/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 1/6/2013 Whole-breast: Breast, Lymph nodes Hormonal Therapy 2/3/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 8/24/2013 Femara (letrozole)
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May 31, 2017 07:49PM Trisha-Anne wrote:

Yay Carol! So glad you have the all clear for everything.

Hello Jestea - I don't have any advice to add to Chrissy's - as usual she's spot on :-)

Delvzy - good to hear your TM are on the ok side - you've been in my thoughts xox

Sorry I've been quiet lately, I managed to get a really nasty cold that flattened me for a week, then when I thought I was starting to get better it turned into "walking pneumonia". I've had that once before, a few years ago - basically, we got to it before it got so bad I had to be hospitalised lol. I've been fairly sick, but starting to come out the other side now. I'm going into work for a few hours each day - I'm so tired, I can't do more than that at the moment. Luckily the people at my new job are all lovely and very caring, and keep urging me not to do too much.

Love to you all

Trish

xoxo

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe Dx 9/17/2010, ILC, <1cm, Grade 1, ER+/PR+, HER2- Dx 9/17/2010, IDC, 2cm, Stage IIA, Grade 3, 1/6 nodes, ER+/PR+, HER2+ Dx 11/4/2015, IDC, Right, 2cm, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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Jun 1, 2017 01:57AM Ginplius wrote:

Hello ladies!

I am new to all of this. Just today got my all breast cancer results which turned to be Tripple positive (ER-100%, PR-100%, Her2-9.6). 2 weeks ago I had surgery, 12mm tumor, surgical margin clear, lymph node is clear. However, the fact that it is her2 positive worries me. Is here a anyone her2 positive or tripple positive? What treatment was offered for you? Is worth doing mastectopy? How do you deal with fear of reacurrence? Did your onc do all body scans for you? How did you deal with all the emotions and work at the same time? Did you work full time during chemo and heptecin treatment? Any thoughts and experience sharing would be very appreciated! Thank you!

Gin

Dx 5/5/2017, ILC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (DUAL) Surgery 5/17/2017 Lumpectomy: Right; Lymph node removal Targeted Therapy 6/23/2017 Herceptin (trastuzumab) Chemotherapy 6/23/2017 Taxol (paclitaxel) Surgery Mastectomy: Left, Right Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jun 1, 2017 03:19AM Moderators wrote:

Hi Ginplius,

We want to send you a warm welcome to the BCO community forums.

Sorry that your circumstances brought you here but hopefully you will find the information and support here invaluable.

Others should be along soon to chime in and share their experiences with you.

In the meantime if there's any questions you have, feel free to contact us via private message.

Wishing you well,

The Mods.

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Jun 1, 2017 04:44AM chrissyb wrote:

Hi Gin, welcome to BCO and to this thread. So sorry that you have found the need to be here but very glad you have found a good place for support and information.

I don't have triple positive BC but do know many who do. The usual treatment is chemo with Herceptin with a hormone suppressant to follow. Whether you begin the treatment with a mastectomy or just a lumpectomy depends on what your doc recommends and what you want. Some choose the mastectomy over a lumpectomy but keeping in mind that mastectomy could lead to further surgery for reconstruction should you choose that.

The treatment with Herceptin (which is for the Her2+), is always given with one of the group of chemos known as the Taxanes, either Taxotare or Taxol. This is mixed with one or sometimes two other chemos, Adriamycin and or Cytoxin. As to how many treatments are given depends on what your onc feels is appropriate for your circumstance.

WE are all so different when it comes to how our bodies deal with the toxicity of the chemo.........some have been able to work throughout with just a few days off after treatment while others find that work is impossible. If you are working, my suggestion would be to have a chat with your boss and see if it is possible for you to work only on the days that you feel well or if you can take leave while you are going through active treatment. The worst side effects are going to come from the normal chemo as most people say that the Heceptin is pretty gentle in comparrison.

This journey is a marathon not a sprint and as such you need to just try taking things one day at a time. I know that those words seem impossible right now but if you are going to be able to deal with the range of emotions that you are and will be bombarded by this is what you really need to try to do.

When you asked about the scans, are you asking for when you are done with treatment as an ongoing screening or while you are doing treatment? When you were first diagnosed you would have had a heap of scans and bloods done.....these are for staging, ie to make sure that the cancer is just in the breast. The treatment of chemo is a systemic treatment so scans are not usually done during treatment. After treatment (chemo) is done, you will be monitored either by your onc or surgeon and of course your GP will be your first line should you have something suspicious happening.

Getting through the fear of recurrence can be a bit tricky and if you have difficulty with this as well as just dealing with the day to day of having cancer, please, don't be afraid to ask your doc (any one of them) for a referral to a good councilor who deals with people with cancer. This is available to you through the public system here in Australia.

Oh my gosh! I hope I've given you answers to some of your questions.........please feel free to continue to ask questions, either new ones or to clarify what I have said. We are all here for you as we were once right where you are right now and know what you are feeling.

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Jun 1, 2017 05:01AM Tammy_M43 wrote:

Hi Gin, Chrissy's our guru! You'll find the support you need here

Dx 10/29/2012, ILC, 1cm, Stage IB, Grade 2, 1/5 nodes, ER+/PR+, HER2- Surgery 11/13/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 1/6/2013 Whole-breast: Breast, Lymph nodes Hormonal Therapy 2/3/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 8/24/2013 Femara (letrozole)
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Jun 1, 2017 02:34PM Lucy55 wrote:

Carol..great news ..

Gin ..after diagnosis I had a few months of councilling at the Cancer Council in Brisbane ..it is free , and you can do your appointment s by telephone if you wish ..They will just phone you at a time that suits you ..

Ladies my 4 year old grandson has been ill for weeks ..they have done MRI and lumbar puncture ..he is on steroids , having IVig infusions, and other than saying they think he has some autoimmune disease , they don't know what it is ..For those who pray , I'd really appreciate some prayers for him ..

Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/14/2014
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Jun 1, 2017 03:10PM Ginplius wrote:

Thank you su much Mods for your warm welcome! :)

Gin


Dx 5/5/2017, ILC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (DUAL) Surgery 5/17/2017 Lumpectomy: Right; Lymph node removal Targeted Therapy 6/23/2017 Herceptin (trastuzumab) Chemotherapy 6/23/2017 Taxol (paclitaxel) Surgery Mastectomy: Left, Right Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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