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All TopicsForum: Australians and New Zealanders Affected by Breast Cancer → Topic: Australian Sisters

Topic: Australian Sisters

Forum: Australians and New Zealanders Affected by Breast Cancer —

Australian health care, clinical trials, and life in general in the land down under.

Posted on: Dec 15, 2010 05:13PM

Trisha-Anne wrote:

Calling all Australian Sisters!

I'm in Canberra and have just done my second chemo treatment.  I'm have 3 cycles of FEC then will have 3 cycles of Taxotere and 12 months of Hercepten.

It might be nice to see how many of us are in Oz and if we aren't too far away from eachother try to organise a meeting.

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe Dx 9/17/2010, ILC, <1cm, Grade 1, ER+/PR+, HER2- Dx 9/17/2010, IDC, 2cm, Stage IIA, Grade 3, 1/6 nodes, ER+/PR+, HER2+ Dx 11/4/2015, IDC, Right, 2cm, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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Jun 20, 2018 08:09PM Trisha-Anne wrote:

Carol - lovely to hear from you, and I'm so happy you didn't have any problems this time.

Thank you all for your thoughts - Kanga - what a beautiful rose!

Hubby is home now. He's on anticoagulants and will be on them for at least six months, so he'll have to be careful not to cut himself. If he shows any signs of being unwell again, it's straight to the hospital - no arguments from him. I'm feeling a lot better now too. It really shook me up to know how close I came to losing him. Now I need to feed him up and get some meat back on his bones.
Trish

xoxo

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe Dx 9/17/2010, ILC, <1cm, Grade 1, ER+/PR+, HER2- Dx 9/17/2010, IDC, 2cm, Stage IIA, Grade 3, 1/6 nodes, ER+/PR+, HER2+ Dx 11/4/2015, IDC, Right, 2cm, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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Jun 21, 2018 08:05AM aussie12 wrote:

Yes Chrissy, the chemo in the pump is the same but I don't react to that. I was going to have 8 chemo's but now I'm having 10 as not having oxy. I'll see how I feel as I might be able to work for a few days as I'm not feeling too bad.

Carol

Dx 2/2/2012, DCIS, 5cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/16/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/13/2012 Surgery 3/7/2013 Reconstruction (left): Tissue expander placement
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Jun 21, 2018 06:22PM - edited Jun 22, 2018 05:23PM by Lucy55

Trish ..so sorry to hear about your Hubby ..hope he is improving ..

Carol ..so good that you didn't have trouble with the chemo ..

Chrissy... Nothing better than sitting around a crackling fire 🔥 with the family , on a freezing night , discussing an overseas trip !! My son did a trekking trip in Nepal and loved it !

Kanga ...What a beautiful rose ..

Mandy ..Hope your grand daughter is feeling better...So glad Ricky is O.K !!!!

Hugs to all

Edited coz of spelling mistakes !!!

Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/15/2014
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Jun 27, 2018 10:11PM mandymoo wrote:

Trish, I am so sorry about hubby, but I am glad that he is home now and hopefully on the road to recovery. What an ordeal, you must have been so worried. xxx


My grand daughter still doesn't have much energy but hopefully the whooping cough is at the end of its run. The specialist told her parents that it would take at least a year for her body to recover from Coeliac Disease as her body already had a lot of damage when she was first diagnosed just before Christmas. She also still sucks her 2 fingers when she is tired so if she has touched a crumb and not washed her hands, she gets glutened again. I have to look out for playdough, glue and everything else just in case any of the ingredients have gluten in them, who would have thought. I don't know why they call it gluten intolerance, it should be called gluten allergy.

Carol, good luck with your chemo, hugs.

Well, I am looking forward to seeing PINK on Wednesday 11 July. I am going alone and I am so looking forward to being in the moment. I think that she is awesome.

Olivia, my oldest grand daughter who has endless energy is coming over here next week with her class on an excursion and they are going to Granite Island and the Whale Centre, so I will be there to meet and greet them and accompany them. I hope its not raining though lol. I am glad that I can physically still do the walk but the soles of my feet will be burning afterwards thanks to Xeloda. It will be worth it though.

try to keep warm and healthy everyone

Hugz

Mandy xxxxx


"Don't give in to the disease" Dr Phil McGraw Dx 12/13/2006, IBC, 3cm, Stage IIIB, Grade 2, 11/22 nodes, ER+/PR+, HER2- Chemotherapy 12/28/2006 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 5/20/2007 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Dx 11/17/2012, IBC, Right, 3cm, Stage IV, metastasized to brain/bone/liver/lungs, Grade 2, 11/22 nodes, ER+/PR+, HER2- Chemotherapy 11/27/2012 Xeloda (capecitabine)
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Jul 5, 2018 09:34PM - edited Jul 5, 2018 09:37PM by mandymoo

hello everyone, I hope you are keeping warm....we had quite a blustery day yesterday with some big branches down and some heavy downpours. Except for the blustery wind, the weather today is nice sunshine, so it will be a lovely day to walk around Granite Island later and hopefully do some whale watching or eye a seal off now and again.

I saw my oncologist last Wednesday and we had a teleconference appointment as that saves me travelling to Adelaide. Looks like my tumour markers are climbing up again with a vengeance and except for severe abdominal cramping, I feel pretty good. So we will wait for the next cycle to complete and then he wants me to go on to a clinical trial for immunotherapy. I have decided to only take the Xeloda for 7 days instead of 14 as I don't know if that's what is causing all the abdominal pain, bloating, constipation even though i am taking lots of movicol. I want to give my body some rest too and so I will get my blood test done after the next 7 days of Xeloda to see whether it is working even a little bit. I am a bit apprehensive for the next step, but physically and mentally I still feel pretty good, so bring it on....the sooner the better. It's the waiting that I don't like.

I am going to see PINK next Wednesday so that will keep my mind off things. I got the last seat, so I will be going by myself much to my daughters disappointment and enjoy every moment..

warm hugz

Mandy xxx

"Don't give in to the disease" Dr Phil McGraw Dx 12/13/2006, IBC, 3cm, Stage IIIB, Grade 2, 11/22 nodes, ER+/PR+, HER2- Chemotherapy 12/28/2006 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 5/20/2007 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Dx 11/17/2012, IBC, Right, 3cm, Stage IV, metastasized to brain/bone/liver/lungs, Grade 2, 11/22 nodes, ER+/PR+, HER2- Chemotherapy 11/27/2012 Xeloda (capecitabine)
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Jul 6, 2018 01:45AM Kanga_Roo wrote:

Mandy, freezing over here at West Lakes too, had a huge wind gust/storm go through last night and the dog cried till we let her into bed with us... so feeling a bit sleep deprived today. The neighbours across the road have the tree doctor chopping down a big tree that must have blown over in the wind.

Bad news on your tumour markers, but good news on the immunotherapy - lots of good stuff happening in those trials.

Keep warm and reenergise ready forPINK - I’m jealous!

Hugs,

Jackie

Dx 1/24/2018, IDC, Left, 5cm, Stage IV, metastasized to liver, Grade 3, ER+/PR+, HER2- (IHC) Hormonal Therapy 2/11/2018 Femara (letrozole) Targeted Therapy 2/15/2018 Kisqali
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Jul 10, 2018 08:08AM aussie12 wrote:

Hi all

I'm going back to work next week, just part-time. Since I'm only having the one chemo now I don't have all the side effects so I have more energy. I will be glad to go back as I haven't worked since March.

My chemo now has been going well but I've still got 5 to go.

I hope that everyone is well.

Carol

Dx 2/2/2012, DCIS, 5cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/16/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/13/2012 Surgery 3/7/2013 Reconstruction (left): Tissue expander placement
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Jul 10, 2018 05:04PM Trisha-Anne wrote:

Hello everyone

Bugger Mandy - not great that you are going through all that discomfort. I hope you enjoyed Pink! I hope that the immunotherapy will have good results. There's lots of good things coming out about it at the moment. You are in my thoughts every day too. 

I think of all of you everyday, and wish for good health for you all. Don't know if it helps much, but at least you know I'm with you in spirit xoxo

Carol - great that you are going back to work, even if it's part time. Work can help normalise things a bit.

My DH is so much better now. He's still got a long way to go, but he's not coughing much at all, and the SOB is getting a lot better too. He's started going back to his daily things that he loves doing, but I think the dancing and choir will take a bit longer. He's also put on 3kg, so only 17 to go to be back to a healthy weight!

I'm doing well too. My contract at work has been extended for another 12 months, so that's good. We've had new floors laid in the living area (spotted gum) which has taken up a lot of my time. I had to pack everything up and DH wasn't able to help (which frustrated him no end) and I'm slowly getting everything back to normal. The floors look wonderful - we are so happy with them. I'll post a picture when I have time.

I'm also learning Polish! My mum was Polish, and I've been researching into her background and not able to find very much as most of the records from that time were destroyed  by the Nazis. So I decided to learn her language, she wouldn't let me speak it when I was young, she was frightened I'd grow up with an accent. I'm finding there are words that I remember though, which is lovely.

Well - that's all from me, my love to you all.
Trish

xoxo

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe Dx 9/17/2010, ILC, <1cm, Grade 1, ER+/PR+, HER2- Dx 9/17/2010, IDC, 2cm, Stage IIA, Grade 3, 1/6 nodes, ER+/PR+, HER2+ Dx 11/4/2015, IDC, Right, 2cm, Grade 3, 0/5 nodes, ER-/PR-, HER2-

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