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Topic: Australian Sisters

Forum: Australians and New Zealanders Affected by Breast Cancer —

Australian health care, clinical trials, and life in general in the land down under.

Posted on: Dec 16, 2010 06:13AM

Trisha-Anne wrote:

Calling all Australian Sisters!

I'm in Canberra and have just done my second chemo treatment.  I'm have 3 cycles of FEC then will have 3 cycles of Taxotere and 12 months of Hercepten.

It might be nice to see how many of us are in Oz and if we aren't too far away from eachother try to organise a meeting.

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe Dx 9/17/2010, ILC, <1cm, Grade 1, ER+/PR+, HER2- Dx 9/17/2010, IDC, 2cm, Stage IIA, Grade 3, 1/6 nodes, ER+/PR+, HER2+ Dx 11/4/2015, IDC, Right, 2cm, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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Aug 14, 2018 04:47AM Lucy55 wrote:

(( Chrissy )) ..so sorry to hear your news .I hope you are back dancing with NED very soon .

traveltex..thanks for sharing your photos ..and congrats on your scholarship !!

Kanga ..great news on the scans and bloods !!!!!

Carol..hope you are feeling better , and all goes well with the chemo .

Trish ..great news that Bob is doing so well !

Hugs to all

Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/14/2014
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Aug 14, 2018 04:02PM AllyBee wrote:

Hello fellow Aussies,

Sorry if this is not the appropriate thread. I've recently been diagnosed stage IV and while I like my oncologist, I really want a second opinion to make sure I'm on the best treatment possible. I live in regional Qld and really only have access to two oncologists. I will be in Brisbane/Gold Coast in October and was hoping to arrange to meet with another oncologist while there.

Can anyone in Brisbane recommend a fantastic oncologist?

Dx 11/2016, IDC, Right, 1cm, Stage IIB, metastasized to brain/other, Grade 3, 2/13 nodes, ER-/PR-, HER2- Surgery 12/21/2016 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Dx 6/2018, IDC, Stage IV, metastasized to brain/other, ER-/PR-, HER2- Surgery 7/2/2018 Chemotherapy Carboplatin (Paraplatin), Gemzar (gemcitabine) Radiation Therapy Whole-breast: Breast, Lymph nodes Chemotherapy AC + T (Taxol)
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Aug 14, 2018 04:07PM chrissyb wrote:

Hi AllyBee, welcome! Sorry, can't recommend anyone in Brizzy as I live in country SA. Where are your mets? and what treatment has been recommended for you.

I'm a stage IV bone mets girl, progression dxd on Monday.

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Aug 14, 2018 04:54PM AllyBee wrote:

Hi Chrissy,

Sorry to hear about your progression, I hope your next treatment stops it in its tracks.

I had one brain met which I've had removed via crainiotmy and I still have one lymph node under my arm that shows on a pet scan.

I've started on carboplatin gemcitabine combo but have only done one treatment so far. My oncologist has said that if this chemo shrinks my lymph node we might remove it surgically. My lymph node was only 3mm x5mm, so I'm not really sure how much smaller they could expect it to get. I'm OK with it staying there for now so we can see if the chemo has any effect.

Ally

Dx 11/2016, IDC, Right, 1cm, Stage IIB, metastasized to brain/other, Grade 3, 2/13 nodes, ER-/PR-, HER2- Surgery 12/21/2016 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Dx 6/2018, IDC, Stage IV, metastasized to brain/other, ER-/PR-, HER2- Surgery 7/2/2018 Chemotherapy Carboplatin (Paraplatin), Gemzar (gemcitabine) Radiation Therapy Whole-breast: Breast, Lymph nodes Chemotherapy AC + T (Taxol)
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Aug 14, 2018 06:46PM - edited Aug 14, 2018 06:54PM by Wildplaces

Chrissy,

I am sorry to read about your progression - great instinct on your onc to check - you are in good hands there, let's hope Femara works swiftly.

Ally,

For a second opinion in Brisbane I would try A/Prof Nicole McCarthy, Wesley. She has access to a number of trials which would make it a reasonable person to access while keeping a good relationship with your current local oncologist.

I am on the GC. PM me if you have questions.

I read even if I don't always post - hugs to all,

😊🌷

Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/21/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Aug 14, 2018 07:24PM AllyBee wrote:

Thank you Wildplaces, that is exactly what I'm looking for. I'm in Mackay and our hospital doesn't have a trials program. While I feel like my oncologist does her best to look into trials for me, because it's not something she's involved with I worry I may miss out on something beneficial.

Thank you for your help 😊

Dx 11/2016, IDC, Right, 1cm, Stage IIB, metastasized to brain/other, Grade 3, 2/13 nodes, ER-/PR-, HER2- Surgery 12/21/2016 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Dx 6/2018, IDC, Stage IV, metastasized to brain/other, ER-/PR-, HER2- Surgery 7/2/2018 Chemotherapy Carboplatin (Paraplatin), Gemzar (gemcitabine) Radiation Therapy Whole-breast: Breast, Lymph nodes Chemotherapy AC + T (Taxol)
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Aug 16, 2018 08:21PM Delvzy wrote:

Chrissy what s bummer I hope that Letrozole kicks cancers butt soon.

Carol glad u are feeling better.

I feel a little nauseous on the chemo tablets I think I would prefer to go back on Extremestene but I am not sure if it caused the lung inflammation which caused the pneumonia, At least I didn't have this low grade nausea all the time

Dx 9/8/2008, DCIS, Stage 0, 0/4 nodes, ER+/PR+, HER2- Surgery 10/11/2008 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/23/2008 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex), Taxotere (docetaxel) Hormonal Therapy 3/1/2009 Dx 11/1/2016, Stage IV, metastasized to bone, ER+
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Aug 16, 2018 08:43PM aussie12 wrote:

Hi all

Chrissy sorry to hear your news, hopefully they can get it under control.

I've got my chemo pump on and have felt tired today, the pump is off tomorrow.

I'm looking forward to the sunny weekend to do my front garden, it's been looking crappy for ages. I've done heaps of weeding over the last few weeks so now I'm going to replant etc.

Carol

Dx 2/2/2012, DCIS, 5cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/16/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/13/2012 Surgery 3/7/2013 Reconstruction (left): Tissue expander placement
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Aug 16, 2018 09:27PM kyliet wrote:

Hi everyone,

Sorry I haven't popped in for awhile. My sister died, TIAs and heart, she was 55, so it has been difficult. Then my FIL had several heart attacks and is still in hospital, so things have been busy.

Chrissy, really sorry to hear of your progression, I hope you get some relief from your pain soon and your meds start working quickly.

Trish, I am glad your hubby is recovering, and congrats in the job.

Carol, wishing you a smoother next treatment (hugs)

Delvzy, I hope your new meds treat you well. A question: Are you allowed to drive on the oil?

Ally Bee, Lucy, Wild Places, and everyone else, sending hugs x

Kylie xxx

When life gives you a 100 reasons to cry, show life you have a 1000 reasons to smile. Mulitfocal, ECE, lymph. channel invasion, Chemo. RADs. Arimidex. Monthly Zoladex. Dx 11/11/2011, IDC, Left, 1cm, Stage IIA, Grade 1, 3/26 nodes, ER+/PR+, HER2-
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Aug 19, 2018 09:06PM aussie12 wrote:

Hi all

Kylie, sorry to hear about your sister, 55 is very young. I also hope that your FIL is improving.

Carol

Dx 2/2/2012, DCIS, 5cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/16/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/13/2012 Surgery 3/7/2013 Reconstruction (left): Tissue expander placement
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Sep 3, 2018 10:38AM Trisha-Anne wrote:

Hello everyone

It's been very quiet on here.

How is everyone?

I'm well, no major problems, and Bob is getting better each week. He's started going back to all his pre-operation activities.

Trish

xoxo

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe Dx 9/17/2010, ILC, <1cm, Grade 1, ER+/PR+, HER2- Dx 9/17/2010, IDC, 2cm, Stage IIA, Grade 3, 1/6 nodes, ER+/PR+, HER2+ Dx 11/4/2015, IDC, Right, 2cm, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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Sep 3, 2018 12:57PM AllyBee wrote:

Hi Trish,

Nothing much new to report for me, hoping for a good platelet levels on my blood test today so I can do chemo tomorrow. Feeling pretty healthy at the moment Smile

I'm glad you're doing well.

Trying to be more active on the boards instead of just stalking haha

Dx 11/2016, IDC, Right, 1cm, Stage IIB, metastasized to brain/other, Grade 3, 2/13 nodes, ER-/PR-, HER2- Surgery 12/21/2016 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Dx 6/2018, IDC, Stage IV, metastasized to brain/other, ER-/PR-, HER2- Surgery 7/2/2018 Chemotherapy Carboplatin (Paraplatin), Gemzar (gemcitabine) Radiation Therapy Whole-breast: Breast, Lymph nodes Chemotherapy AC + T (Taxol)
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Sep 3, 2018 02:24PM Delvzy wrote:

Hi Girls , Kylie so sorry sbout your sister 55 is very young. Chrissy I keep thinking of you and hope u are doing ok.

New meds or something making me extremely tired atm and I am sharing my phone with my 15 year ok'd don atm as the other iPhone got washed


Thinking of you all

Love Jude

Dx 9/8/2008, DCIS, Stage 0, 0/4 nodes, ER+/PR+, HER2- Surgery 10/11/2008 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/23/2008 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex), Taxotere (docetaxel) Hormonal Therapy 3/1/2009 Dx 11/1/2016, Stage IV, metastasized to bone, ER+
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Sep 3, 2018 07:52PM chrissyb wrote:

Hi all! I'm doing fine right now although the Femara se's are kicking in......damn it!....lol. Right now I am sitting in my niece's lounge on the Sunshine Coast.......can I say it's beautiful weather here?......well yes I can coz it is. 😁 It's been mid twenties since I arrived last Friday and I'm hoping it will stay much the same until I leave on Saturday. Yes,yes, I know, I haven't been home much this past month so I'm really looking forward to being home for a few weeks before both hubby and I head off to Tazzy for a week at the end of October. That will be the last bit of travelling around until March next year then we head over to England and Holland for seven weeks.

Trish, it's good to hear you are well and Bob is really getting back to where he was minus the hip pain.

AllyBee, goodluck with your chemo and I hope you stay feeling well.

Jude hope it's only the meds causing the tiredness and as your system gets used to them that it passes. Sorry, I did a grin to myself when I read that your son's phone got washed......hope it wasn't you who did the washing......lol.

Take care all!

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Sep 3, 2018 08:00PM Moderators wrote:

chrissyb, so glad that you are able to get rest, and have fun traveling. We were sorry to hear about any progression.

kyliet, you have our sympathies regarding your sister. Very young. We are so sorry!

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Sep 4, 2018 07:35AM mandymoo wrote:

hi Girls, sorry i have been missing in action a bit, but I find it easy to write positive things and I have trouble with negative things. But here goes...

I will be going on to Fulvestrant ( I think) next week as there is more progression again in my lungs and my spine. So this will be the third change of treatment for me this year. I preferred not to go on to Eribulin as my body is very tired from all the side effects from the previous chemotherapies and I asked for something that would not affect the abdominal gastro side of things.

I am still going to go on to the trial, but we want to wait until after Christmas as there will be so much toing and froing to the hospital and lots of stays as well. I agreed to that. The cancer appears to be slow growing and except for shortness of breath and some discomfort in my rib and shoulder blade area, I feel pretty good.... but in saying that, I am also sooo over it.

I am still very busy with my grand children and they are my distraction and my comfort. They love coming over for sleepovers and I have only refused them twice due to my fatigue.

Anyway, we must keep plodding along. There are lots of people much worse off.

I enjoy reading all your good news and I am so happy that Bob is going well and the same for you Trish, as you have had more than your bad luck and moved on.

Hugs and love to everyone. I really enjoy reading your posts and my heart goes out to you all, especially Kylie., my thoughts are with you...

Warm hugs

Mandy

"Don't give in to the disease" Dr Phil McGraw Dx 12/13/2006, IBC, 3cm, Stage IIIB, Grade 2, 11/22 nodes, ER+/PR+, HER2- Chemotherapy 12/28/2006 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 5/20/2007 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Dx 11/17/2012, IBC, Right, 3cm, Stage IV, metastasized to brain/bone/liver/lungs, Grade 2, 11/22 nodes, ER+/PR+, HER2- Chemotherapy 11/27/2012 Xeloda (capecitabine)
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Sep 4, 2018 11:07AM Trisha-Anne wrote:

Ally - great to hear from you, and that you are feeling well at the moment.

Jude, sorry your meds are making you tired, but I too had to laugh at washing the phone!

Chrissy - I know you are enjoying yourself ;-0

Mandy - ((((hugs)))) what more can I say - you are constantly in my thoughts, I'm so glad your grandkids are a comfort to you. Wish I was closer so I could just give you a big hug xoxoxo

Trish

xoxo

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe Dx 9/17/2010, ILC, <1cm, Grade 1, ER+/PR+, HER2- Dx 9/17/2010, IDC, 2cm, Stage IIA, Grade 3, 1/6 nodes, ER+/PR+, HER2+ Dx 11/4/2015, IDC, Right, 2cm, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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Sep 6, 2018 07:40PM Delvzy wrote:

$140 later iPhone survived and was repaired. Chrissy tiredness is from my bone marrow cancer cells causing hemoglobin and platelets to drop which is why I have 2-3 bags of blood every 5 weeks. Going on a South Pacific cruise on 23 Sept for a week so looking forward to warm weather

. Chrissy I desperately want to cruise Croatia and spend 2-3 days in Paris, Istanbul and Venice but I am scared of travelling such a long way and the pain and tiredness that goes with it

So glad u are doing well


Love to all Jude 😘


Dx 9/8/2008, DCIS, Stage 0, 0/4 nodes, ER+/PR+, HER2- Surgery 10/11/2008 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/23/2008 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex), Taxotere (docetaxel) Hormonal Therapy 3/1/2009 Dx 11/1/2016, Stage IV, metastasized to bone, ER+
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Sep 11, 2018 07:11PM chrissyb wrote:

Judy, travelling tires me as well so I miss out on some stuff. Your circumstance is a little different I know but I'm sure you would cope for a couple of weeks.

Well if it doesn't rain it pours. I has my appointment with the Opthamologist today and I am now booked in for cataract removal on 4th October.........thank you Femara. Left eye first then we'll see...(lol pun not intended)....how the right one adjusts as it's not as bad as the left but will need doing at some point. Other than that I'm meeting all my old side effect again, you know, head full of cotton wool and balance issues.....feeling a bit drunk without the pleasure....blah!.......dry skin......blah!......feet that feel like they have broken into a million shards of sharp glass.......you know, same ol' same ol'......lol. I will survive......well for a long time yet so I'd best get used to them.😁

Hoping you are all doing well.

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Sep 12, 2018 04:58AM Trisha-Anne wrote:

Chrissy I had cataracts done when I was in my late 40s. The Ophthalmologist was very surprised as that's fairly young to have cataracts, but my mum and dad both had theirs done in their 40s too, so as they say the apple didn't fall far from the tree.

I was extremely short sighted in my left eye - so bad I couldn't even see the chart, let alone read any letters on it, and the Ophthalmologist told me he couldn't bring that eye back to zero (20-20 vision) as my brain wouldn't cope with it. He was right, he brought it back to -2.5 and my brain had a very hard time coping with that change. A year later I had my right eye done, and that eye was slightly far sighted, which meant I didn't have to wear glasses all the time. There's no guarantee when they put the new lens in that you will have 20-20 vision, and once my right eye settled down, it was slightly short sighted, and now I have to wear glasses all the time.

I was not impressed - but it's not anyone's fault, just the way your body adjusts to the new foreign object in your eye! I'm only telling you this, in case you think you can throw your glasses away once you've had the op. You may very well be able to, but there's a chance you may not too, and anyone who tells you otherwise (ie the specialist) isn't being honest.

Trish

xoxo 

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe Dx 9/17/2010, ILC, <1cm, Grade 1, ER+/PR+, HER2- Dx 9/17/2010, IDC, 2cm, Stage IIA, Grade 3, 1/6 nodes, ER+/PR+, HER2+ Dx 11/4/2015, IDC, Right, 2cm, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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Sep 12, 2018 07:56AM chrissyb wrote:

Thanks Trish, I knew that. All I want from the surgery is to be able to see clearly with or without glasses.......right now the vision is very blurry and there is no more adjustment left for my glasses. I don't trust my vision for taking and editing my photos so haven't even completed my sister's wedding pics.......thank goodness she is patient and understanding.

The Opthamologist did tell me that I will still need glasses for reading and close work and that is fine as I've had glasses for that since I was fourteen but my distance vision should be better and way clearer. I was always long sighted.

Woke up this morning with the start of a whopping cold sore under my nose......bugger! I hate those things and I haven't had one for seems like forever but this one feels like it may make up for all the ones I missed......lol. Today will be a day of ointment application to the area to try to kill it off before it gets too bad.

Take care all.

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Sep 14, 2018 08:17PM Delvzy wrote:

gosh Chrissy u are going through the motions are you?? I am on a mild chemo tablet and so far it's going quite well with the marijuana oils.

Dx 9/8/2008, DCIS, Stage 0, 0/4 nodes, ER+/PR+, HER2- Surgery 10/11/2008 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/23/2008 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex), Taxotere (docetaxel) Hormonal Therapy 3/1/2009 Dx 11/1/2016, Stage IV, metastasized to bone, ER+

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