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Sep 3, 2018 07:35PM
hi Girls, sorry i have been missing in action a bit, but I find it easy to write positive things and I have trouble with negative things. But here goes...
I will be going on to Fulvestrant ( I think) next week as there is more progression again in my lungs and my spine. So this will be the third change of treatment for me this year. I preferred not to go on to Eribulin as my body is very tired from all the side effects from the previous chemotherapies and I asked for something that would not affect the abdominal gastro side of things.
I am still going to go on to the trial, but we want to wait until after Christmas as there will be so much toing and froing to the hospital and lots of stays as well. I agreed to that. The cancer appears to be slow growing and except for shortness of breath and some discomfort in my rib and shoulder blade area, I feel pretty good.... but in saying that, I am also sooo over it.
I am still very busy with my grand children and they are my distraction and my comfort. They love coming over for sleepovers and I have only refused them twice due to my fatigue.
Anyway, we must keep plodding along. There are lots of people much worse off.
I enjoy reading all your good news and I am so happy that Bob is going well and the same for you Trish, as you have had more than your bad luck and moved on.
Hugs and love to everyone. I really enjoy reading your posts and my heart goes out to you all, especially Kylie., my thoughts are with you...
"Don't give in to the disease" Dr Phil McGraw
12/13/2006, IBC, 3cm, Stage IIIB, Grade 2, 11/22 nodes, ER+/PR+, HER2-
12/29/2006 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
5/21/2007 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right
11/17/2012, IBC, Right, 3cm, Stage IV, metastasized to brain/bone/liver/lungs, Grade 2, 11/22 nodes, ER+/PR+, HER2-
11/28/2012 Xeloda (capecitabine)