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Topic: Australian Sisters

Forum: Australians and New Zealanders Affected by Breast Cancer —

Australian health care, clinical trials, and life in general in the land down under.

Posted on: Dec 15, 2010 04:13PM

Trisha-Anne wrote:

Calling all Australian Sisters!

I'm in Canberra and have just done my second chemo treatment.  I'm have 3 cycles of FEC then will have 3 cycles of Taxotere and 12 months of Hercepten.

It might be nice to see how many of us are in Oz and if we aren't too far away from eachother try to organise a meeting.

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe Dx 9/17/2010, ILC, <1cm, Grade 1, ER+/PR+, HER2- Dx 9/17/2010, IDC, 2cm, Stage IIA, Grade 3, 1/6 nodes, ER+/PR+, HER2+ Dx 11/4/2015, IDC, Right, 2cm, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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Feb 19, 2019 06:38PM Wildplaces wrote:

Chrissy,

You know best but lung specialist and afinitor...I think mTor inhibitors can cause a non interstitial pneumonitis.

Does not sound like you were on it for that long but then again you did gethorrid mouth sores - its all about membranes.

Dont listen to me I am ad libing but ...worth a question.

Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/21/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Feb 19, 2019 08:09PM - edited Feb 19, 2019 08:10PM by chrissyb

Thanks Wildplaces. I've had this breathlessness for a long time but seemed to get worse with the Affinitor.

I saw the onc yesterday and it has been decided no more of either the Affinitor or the Aromasin. Beside the mouth sores from the Affinitor the Aromasin has really messed with my balance and hearing, so much so that I'm using a stick to stay on my feet and still wobble like a drunkard. He has ordered an MRI to make sure there is nothing untoward but also said no rush, after we get back from overseas is just fine so I have an appointment for that on the 29th April and then see him on the 30th April. We will at that time finally decide which line of treatment to follow but it looks like it may be Xeloda. Anyway, no treatment while I'm away and I'm cool with that, at least I will be able to enjoy.......lol.

Carol, hope things are picking up for you and the normal rhythms of your like are being restored.

Judy, how are you faring? I've got everything crossed that you are on the up side of things.

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Feb 19, 2019 08:14PM chrissyb wrote:

Operahouse, thanks for the thought and I only wish I could exercise, even walking is difficult particularly when there is a slight rise I the path. I'm not just short of breath, I gasp as if I'd run a marathon.😁 Good on you for being able to walk that far.

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Feb 20, 2019 04:58AM Delvzy wrote:

Hi Girls I have been reading along and enjoying everyone's stories . I am on day 3 of chemo and I am sleeping a lot which is making me depressed?.

Chrissy not long now , all The best to the other girls.

Does anyone know whether it is better to have the cancer tn the brain lining or the brain itself ? Since I have had thebohone call te cancer in my brain lining I have lost the plot and don't want to get out of bed


Dx 9/8/2008, DCIS, Stage 0, 0/4 nodes, ER+/PR+, HER2- Surgery 10/10/2008 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/22/2008 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex), Taxotere (docetaxel) Hormonal Therapy 2/28/2009 Dx 11/1/2016, Stage IV, metastasized to bone, ER+
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Feb 20, 2019 05:46AM - edited Feb 20, 2019 05:46AM by Wildplaces

Chrissy - no surprise there, you have it covered. Enjoy your travel - it sounds great! 😊

Delvzy - WBR should have both running, and now ....dealing with IV chemo - you are in my thoughts and prayers. It sounds like you are getting some tough and aggressive treatment, its ok to loose the plot a little.

I reslly liked the photo you posted.

Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/21/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Feb 21, 2019 04:26AM Delvzy wrote:

Thanks wildplaces at least I am saving on hairdresser gees

Dx 9/8/2008, DCIS, Stage 0, 0/4 nodes, ER+/PR+, HER2- Surgery 10/10/2008 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/22/2008 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex), Taxotere (docetaxel) Hormonal Therapy 2/28/2009 Dx 11/1/2016, Stage IV, metastasized to bone, ER+
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Feb 21, 2019 03:20PM Trisha-Anne wrote:

Judy it's great to hear from you. Sleeping while on chemo is pretty normal, your body needs the rest. Remember - one day at a time, and sometimes it's just one hour at a time. You are in my thoughts.

Wildplaces, thanks for the thoughts, I'm a lot better now. Still have a huge lump on my forehead, and I mean huge. It's been three weeks, and I know there wasn't a fracture or break, so not sure how long it will take for the lump to go down, I forgot to ask my dr!

Chrissy - when do you leave?

Trish

xoxo

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe Dx 9/17/2010, ILC, <1cm, Grade 1, ER+/PR+, HER2- Dx 9/17/2010, IDC, 2cm, Stage IIA, Grade 3, 1/6 nodes, ER+/PR+, HER2+ Dx 11/4/2015, IDC, Right, 2cm, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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Feb 21, 2019 07:11PM chrissyb wrote:

Trish, we leave next Friday........in a weeks time at this time, we will be making our way through security at Adelaide airport. Not long now but still lots of bits and pieces to complete. I guess the excitement will hit as I board the plane as right now my head is going in ten different directions.. .. lol.

Wow! I can't believe you still have a huge lump.......must have ended up a huge hematoma for it to take this long (and longer) to go down.

Judy, as Trish said one day at a time, one hour at a time. You know we are all here for when you want to have a grump about it all. Sending the warmest but gentlest (((((((hugs))))))))) I can muster.

Take care all!

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Feb 21, 2019 11:57PM SuefromSydney wrote:

Chrissyb I love that moment when you sit back in the plane and realise there is nothing more you can do, just get on with the trip. I am praying for enough puff for you to enjoy everything you want to do, in sparkling sunshine. And absolutely no events of medical interest.

Trish, what a bummer - hope your bump soon disappears.

Delvzy, you are a legend. Sorry it is such a hard time for you. The not getting out of bed is sometimes a sign of depression. Your body and mind metaphorically pulling the doona over the head. Which is justified, but a waste of your good time. It would be lovely if we could all live in a village so we could help each other.

Dx 7/2018, IDC, Right, 2cm, Stage IIIA, 4/24 nodes, ER+/PR+, HER2- Chemotherapy 9/11/2018 AC + T (Taxotere) Radiation Therapy Whole-breast: Breast Surgery Lumpectomy; Lymph node removal: Underarm/Axillary
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Feb 25, 2019 05:36PM Trisha-Anne wrote:

Chrissy - enjoy yourself!

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe Dx 9/17/2010, ILC, <1cm, Grade 1, ER+/PR+, HER2- Dx 9/17/2010, IDC, 2cm, Stage IIA, Grade 3, 1/6 nodes, ER+/PR+, HER2+ Dx 11/4/2015, IDC, Right, 2cm, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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Feb 25, 2019 11:55PM chrissyb wrote:

Thanks Trish.

Yes, just one day to go before we are out of Burra and two days before we are winging it across the world.😁

I have been busy making a padded pouch to carry my camera and lenses so I'm not weighed down with a second bag......it turned out pretty near perfect if I may say so myself and fits perfectly in the new bag I bought myself. The bag is reasonably large but can be used as a hand bag, a cross body bag or a back pack so extremely versatile and large enough to carry all the essentials without having to dig for them.

Arie, the darling man, has decided to share his cold.......I did tell him it wasn't necessary but he has insisted so right now I'm dry coughing with a runny nose and no real energy.. .......hope it clears a bit before lift off......lol. I still have a list of things I would like to get done before we leave but I'm beginning to doubt that they will happen........never mind, I'm sure we'll all survive.........it's just me being a little OCD......😂

Take care all you lovelies.

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Feb 26, 2019 12:03AM Lucy55 wrote:

Chrissy ..have a wonderful holiday !!!!

Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/14/2014
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Feb 26, 2019 02:51AM Delvzy wrote:

Chrissy have a wonderful time and take care

Dx 9/8/2008, DCIS, Stage 0, 0/4 nodes, ER+/PR+, HER2- Surgery 10/10/2008 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/22/2008 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex), Taxotere (docetaxel) Hormonal Therapy 2/28/2009 Dx 11/1/2016, Stage IV, metastasized to bone, ER+
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Feb 27, 2019 07:22AM aussie12 wrote:

Hi all

Chrissy hope that you have a great holiday.

Carol

Dx 2/2/2012, DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/16/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/13/2012 Surgery 3/7/2013 Reconstruction (left): Tissue expander placement
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Feb 28, 2019 07:25AM chrissyb wrote:

Thanks girls for all your well wishes. I'm sitting here at my youngest daughter's, it is almost midnight. She and my hubby are sound asleep, but as you can tell, I'm wide awake. I still have crap going through my head re the things I have packed and what, if anything, I have forgotten, about the time we need to be at the airport etc, etc........I think you have all done this at some time or other.......lol.

Yep, after months of waiting for this time to arrive it is finally here........in the morning, once we get to the airport and we are in the boarding lounge, I think I will relax and start to enjoy.

Take it easy all and stay as well as possible.

Love n hugs. Chrissy ❤

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Feb 28, 2019 07:54PM chrissyb wrote:

Hi girls! The day has arrived.......we are off! Presently sitting in the boarding lounge after spending time having coffee with my girls before entering the International section of the airport.

I can't wait to get on board and settled so I can finally relax and rest........not a good night last night, about two hours sleep and that only because of pure exhaustion.

Pic taken of daughters with parents. Eldest, Camille behind me and youngest, Mareike behind her dad.......yes, DD1 has a sense of humor hence the rabbit ears.....lol.

Next stop, Hong Kong.

Love n hugs all! Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Feb 28, 2019 11:17PM Kanga_Roo wrote:

Chrissy, I can feel your excitement! Hope you get a bit of sleep on the plane, it is such a long journey - keep sending the pics love them!

Holiday hugs and safe travels,

Jackie

Dx 1/24/2018, IDC, Left, 5cm, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 2/11/2018 Femara (letrozole) Targeted Therapy 2/15/2018 Kisqali
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Mar 1, 2019 04:43AM Lucy55 wrote:

Chrissy ..gorgeous family photo .I can see the excitement and love ..have fun 🤗




Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/14/2014
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Mar 1, 2019 04:44AM Lucy55 wrote:

Chrissy ..gorgeous family photo .I can see the excitement and love ..have fun 🤗




Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/14/2014
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Mar 2, 2019 04:31PM chrissyb wrote:

Hi girls, we are in Manchester UK! Snapped from our room window, ManU Soccer Stadium........awesome!!!


Didn't get to see this afternoon's match as it was sold out but hey, at least we tried.......lol.

Catch you all later.

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Mar 2, 2019 05:38PM SuefromSydney wrote:

Lol. If you open the window you should hear them, Chrissy

Dx 7/2018, IDC, Right, 2cm, Stage IIIA, 4/24 nodes, ER+/PR+, HER2- Chemotherapy 9/11/2018 AC + T (Taxotere) Radiation Therapy Whole-breast: Breast Surgery Lumpectomy; Lymph node removal: Underarm/Axillary
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Mar 2, 2019 05:45PM chrissyb wrote:

Sue, we had intended to do that but unfortunately we both fell asleep and missed the bloomin lot.😂🤣😂🤣

Age, unfortunately, caught up with us today.😪

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Mar 2, 2019 05:47PM chrissyb wrote:

Sue, we had intended to do that but unfortunately we both fell asleep and missed the bloomin lot.😂🤣😂🤣

Age, unfortunately, caught up with us today.😪

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Mar 2, 2019 10:11PM SuefromSydney wrote:

I just have to say it, Chrissy, that’s yer bloomin lot:-

Dx 7/2018, IDC, Right, 2cm, Stage IIIA, 4/24 nodes, ER+/PR+, HER2- Chemotherapy 9/11/2018 AC + T (Taxotere) Radiation Therapy Whole-breast: Breast Surgery Lumpectomy; Lymph node removal: Underarm/Axillary
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Mar 3, 2019 11:06AM Lucy55 wrote:

Chrissy .Sorry you missed the game !! Great photo ( hope there's lots more to come :-) )..

Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/14/2014
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Mar 4, 2019 04:01AM Delvzy wrote:

great pi

Dx 9/8/2008, DCIS, Stage 0, 0/4 nodes, ER+/PR+, HER2- Surgery 10/10/2008 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/22/2008 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex), Taxotere (docetaxel) Hormonal Therapy 2/28/2009 Dx 11/1/2016, Stage IV, metastasized to bone, ER+
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Mar 4, 2019 02:42PM Trisha-Anne wrote:

Chrissy - yes age will do that lol!!

I have good news! I have my genetic testing back and am negative for BRCA1 and 2 and also for PALB2 and another one, I think ATM? Anyway - this means I don't have to have my ovaries removed. The genetic counsellor told me I could have another faulty gene that they don't know about yet - or I'm just "unlucky" to have had three different breast cancers. I'm just relieved I don't have to have another op!

Trish

xoxo 

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe Dx 9/17/2010, ILC, <1cm, Grade 1, ER+/PR+, HER2- Dx 9/17/2010, IDC, 2cm, Stage IIA, Grade 3, 1/6 nodes, ER+/PR+, HER2+ Dx 11/4/2015, IDC, Right, 2cm, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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Mar 4, 2019 05:58PM SuefromSydney wrote:

Trisha that’s great news. Lovely to have some positive results (or negative, good negative) and no complications to look forward to.

Dx 7/2018, IDC, Right, 2cm, Stage IIIA, 4/24 nodes, ER+/PR+, HER2- Chemotherapy 9/11/2018 AC + T (Taxotere) Radiation Therapy Whole-breast: Breast Surgery Lumpectomy; Lymph node removal: Underarm/Axillary
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Mar 4, 2019 06:25PM Kanga_Roo wrote:

Trisha, so happy to hear your good news! An excellent start to the year!

Dx 1/24/2018, IDC, Left, 5cm, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 2/11/2018 Femara (letrozole) Targeted Therapy 2/15/2018 Kisqali
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Mar 5, 2019 12:44AM chrissyb wrote:

Wow Trish!! That is fantastic news!!! So happy for you.

We picked up the care and headed for York yesterday, had to go see the Minster.......it was awesome! And I mean that literally.......lol. Such a wonderful place to be able to explore.


We stayed at Harrogate last night and are heading into the Yorkshire Dales today.

Stay well all.

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-

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