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Topic: Australian Sisters

Forum: Australians and New Zealanders Affected by Breast Cancer —

Australian health care, clinical trials, and life in general in the land down under.

Posted on: Dec 15, 2010 03:13PM

Trisha-Anne wrote:

Calling all Australian Sisters!

I'm in Canberra and have just done my second chemo treatment.  I'm have 3 cycles of FEC then will have 3 cycles of Taxotere and 12 months of Hercepten.

It might be nice to see how many of us are in Oz and if we aren't too far away from eachother try to organise a meeting.

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe Dx 9/17/2010, ILC, <1cm, Grade 1, ER+/PR+, HER2- Dx 9/17/2010, IDC, 2cm, Stage IIA, Grade 3, 1/6 nodes, ER+/PR+, HER2+ Dx 11/4/2015, IDC, Right, 2cm, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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Jul 15, 2019 06:44AM chrissyb wrote:

Oh Carol, if it's not one thing for you it's another. The one thing I can assure you is that you will feel so much better after the transfusion and a days delay for your chemo is neither here nor there.

Hoping you will feel better soon.

I head back to the city tomorrow for my second lot of the Faslodex loading........hoping the se's stay the same.

Love n hugs all. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Jul 15, 2019 07:01AM aussie12 wrote:

Best of luck for tomorrow Chrissy.

Dx 2/2/2012, DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/15/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/12/2012 Surgery 3/6/2013 Reconstruction (left): Tissue expander placement
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Jul 17, 2019 08:01AM aussie12 wrote:

Hi all

I've had 3 blood transfusions and my chemotherapy, I still have the chemotherapy pump on until Friday. I feel better but still feeling tired. I have my next chemotherapy in 2 weeks.

Carol

Dx 2/2/2012, DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/15/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/12/2012 Surgery 3/6/2013 Reconstruction (left): Tissue expander placement
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Jul 17, 2019 08:09AM chrissyb wrote:

Carol, take it easy lovely, your body is going through a lot right now so give yourself a little while to recover. Good that you've had your chemo. Why have they left the chemo pump in? Maybe because you are having your next treatment in a couple of weeks. Hang in there and be kind to yourself.

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Jul 17, 2019 11:14PM aussie12 wrote:

Chrissy the pump has a chemotherapy drug in it which is attached to my port. It takes 48 hours to go through then I go back to the hospital Friday and they take it off.

Carol

Dx 2/2/2012, DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/15/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/12/2012 Surgery 3/6/2013 Reconstruction (left): Tissue expander placement
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Jul 18, 2019 03:59AM chrissyb wrote:

Wow Carol! 48 hours sure is a long time.....I'm guessing it's pretty potent so goes through slowly so as not to completely you off your feet. Hoping you are feeling okay.

Had my second Faslodex on Tuesday and so far not feeling any real side effects at all this time......no headache, no belly ache, no runny nose, no real aches or pains just a little fatigue but not enough to gripe about! All in all I'm a pretty happy camper.

Love n hugs all. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Jul 22, 2019 07:15AM aussie12 wrote:

Hi all

Chrissy that's good news for you.

So now I have a rash all over my chest and face from the chemo. They said that it may happen. It's not itchy but doesn't look too good. I had a blood test today which came back good for the haemoglobin level.

The Nurse rang up about my blood test and I told her about the rash and I will have to go to the hospital tomorrow and get some tablets as she said that you have to be careful as if it gets worse it could delay treatment.

I've also had diarreha today so I seem to be getting everything with this chemo.

Carol

Dx 2/2/2012, DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/15/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/12/2012 Surgery 3/6/2013 Reconstruction (left): Tissue expander placement
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Jul 22, 2019 09:36AM chrissyb wrote:

Damn, Carol, you don't seem to be able to take a trick lately. Sure hope those tabs work in sorting that rash......they will probably be a steroid so I hope you don't have any problems with them. Hope you are keeping a good supply of Imodeum on hand to help with the diarreah......it's such a pain. Great news on your bloods as least something went right for you.😁

I'm still feeling fine and other than feet and ankles swelling, no other se's have shown themselves......really happy but wondering if they are going to be different each time........lol.......that would really make treatment interesting.😂

Got to take hubby down for a colonoscopy on Thursday as he got a positive result from his poo test. He's a bit concerned about it but I keep telling him that there are a lot of false positives with these tests and he needed to look at it more as a question mark which tells him he needs to follow up with further testing. Ho hum, Thursday will tell if anything is there but keeping my fingers crossed for him.

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Jul 23, 2019 06:04AM aussie12 wrote:

Hi all

I've started the tablets so hopefully soon the rash will clear, I have to stay on the tablets the whole time that I'm on chemo. I'm going back to work tomorrow so will see how I go, I'm trying to avoid going on Centrelink again. If I can work 1 week a fortnight I should be all right until I decide what I'm doing.

Chrissy glad your hubby did the test and although a colonoscopy isn't nice at least he will know for sure what is going on. Tell him Good Luck.

Carol

Dx 2/2/2012, DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/15/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/12/2012 Surgery 3/6/2013 Reconstruction (left): Tissue expander placement
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Jul 23, 2019 06:28AM chrissyb wrote:

Carol, hope the tablets help the problem rash if not fix it. Hope your return to work doesn't knock you too flat.......yes, Centrelink can be a pain but at least it's something and, as an alternative to forcing your self to work, a good back stop.

Hope you do well.

Live n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Aug 8, 2019 10:49AM chrissyb wrote:

Hi,Carol........just checking on you. Hope you are doing well.

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Aug 9, 2019 07:35AM aussie12 wrote:

Hi Chrissy

I've had my second chemo last week and that went ok. I still have the rash but it's not as bad but now I have sore hands. My skin is cracking and peeling and just holding my bag today I got cuts on my fingers. I've been back at work this week and only have the weekend left to work.

I saw my Oncologist yesterday and he said to keep having chemo for the next 6 weeks and then see him again and maybe have CT. He also said that the rash is supposed to mean that the chemo is working well.

How are you going Chrissy?

Carol

Dx 2/2/2012, DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/15/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/12/2012 Surgery 3/6/2013 Reconstruction (left): Tissue expander placement
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Aug 9, 2019 10:24AM chrissyb wrote:

Carol, glad the rash is feeling a little better. Bugger about your hands though, they sound terribly sore. Glad your onc feels that the chemo is working well.

I'm doing fine, had my third Faslodex last week and am now on a monthly schedule. Not many se's this time round really, just tiredness.......maybe I'm tolerating it well. Caught up with my daughter in law on Tuesday, it was lovely to catch up with her but I have a feeling that she has shared her cold as today I've been coughing and spluttering and had a nose that just won't stop running. Sure sounds like a cold starting to me.....lol. Oh well, I guess it's to be expected as it is still winter.

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Aug 11, 2019 07:10AM helenlouise wrote:

Chrissy, take care there is lots of flu around this year and whilst your in treatment it would not be good to go untreated. I was diagnosed with influenza A last month and my GP put me on tamiflu. Think I put my back out coughing and sneezing and still have a cough.

Best wishes. Helen

2013 DCIS treatment lumpectomy x2 plus radiation. 2018 new IDC treatment Neo adjuvant chemotherapy. Surgery July 18. Radiation August through to October 2018. Xeloda till April 2019. Skin mets April 2019. Dx 1/2013, DCIS, Left, <1cm, Stage 0, Grade 3, ER+/PR+ Surgery 2/3/2013 Lumpectomy: Left Surgery 2/10/2013 Lumpectomy: Left Radiation Therapy 3/1/2013 Whole-breast: Breast Dx 2/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/8 nodes, ER-/PR-, HER2- Chemotherapy 2/25/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 7/23/2018 Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 8/28/2018 Chemotherapy 8/29/2018 Xeloda (capecitabine) Dx 4/2/2019, IDC, Left, 2cm, Stage IIIC, Grade 3, 1/8 nodes, ER-/PR-, HER2- Dx 4/16/2019, IDC, Left, 2cm, Stage IV, metastasized to other, Grade 3, 1/8 nodes, ER-/PR-, HER2- (DUAL)
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Aug 11, 2019 07:31AM chrissyb wrote:

Hi Helen, thanks for the advice. I'm feeling pretty good really, I don't think it's any more than the sniffles as nothing has developed further.......thank goodness.😁

My GP is a fair hike from where I live so he gave me Tamiflu to keep on hand should I need it.

Oh my gosh!! You must have been coughing hard to put your back out.......hopefully the Tamiflu is working and the hard coughing and sneezing has subsided.

My mouth has been sore for four days already, I have developed a huge ulcer that is right on the inner edge of my top lip extending upward toward my nose. Because it has been that long without any healing, I'm guessing it may be my body letting me know it's not happy. I'll watch and wait, hopefully it will improve soon and it is just an ordinary ulcer.

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Aug 12, 2019 06:28AM helenlouise wrote:

oh dear Chrissy, sore mouth as well. Hope you feel better soon.

Xx

2013 DCIS treatment lumpectomy x2 plus radiation. 2018 new IDC treatment Neo adjuvant chemotherapy. Surgery July 18. Radiation August through to October 2018. Xeloda till April 2019. Skin mets April 2019. Dx 1/2013, DCIS, Left, <1cm, Stage 0, Grade 3, ER+/PR+ Surgery 2/3/2013 Lumpectomy: Left Surgery 2/10/2013 Lumpectomy: Left Radiation Therapy 3/1/2013 Whole-breast: Breast Dx 2/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/8 nodes, ER-/PR-, HER2- Chemotherapy 2/25/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 7/23/2018 Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 8/28/2018 Chemotherapy 8/29/2018 Xeloda (capecitabine) Dx 4/2/2019, IDC, Left, 2cm, Stage IIIC, Grade 3, 1/8 nodes, ER-/PR-, HER2- Dx 4/16/2019, IDC, Left, 2cm, Stage IV, metastasized to other, Grade 3, 1/8 nodes, ER-/PR-, HER2- (DUAL)

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