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Topic: Australian Sisters

Forum: Australians and New Zealanders Affected by Breast Cancer —

Australian health care, clinical trials, and life in general in the land down under.

Posted on: Dec 15, 2010 04:13PM

Trisha-Anne wrote:

Calling all Australian Sisters!

I'm in Canberra and have just done my second chemo treatment.  I'm have 3 cycles of FEC then will have 3 cycles of Taxotere and 12 months of Hercepten.

It might be nice to see how many of us are in Oz and if we aren't too far away from eachother try to organise a meeting.

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe Dx 9/17/2010, ILC, <1cm, Grade 1, ER+/PR+, HER2- Dx 9/17/2010, IDC, 2cm, Stage IIA, Grade 3, 1/6 nodes, ER+/PR+, HER2+ Dx 11/4/2015, IDC, Right, 2cm, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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Oct 22, 2019 07:06PM chrissyb wrote:

Hi girls.......some sad news has just come to my attention. Our beautiful Judy Delves passed away on May 23. Not sure any of you were aware so thought I'd pass it on.

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Oct 22, 2019 07:31PM Lucy55 wrote:

Chrissy ..oh no ! So very sad to hear that ..what a beautiful lady ....please pass on condolences to her family if you are taking to them.
Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/14/2014
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Oct 25, 2019 08:59AM aussie12 wrote:

Hi all

That's sad news about Judy, I just looked back at some of her posts and remembered reading them before. She was depressed and not well at all, hopefully at peace now.

There's been a few people pass away on the bowel cancer site the past few weeks. One a man of only 37, very sad.

I see the Oncologist on Wednesday and have my 8th chemo. I'll see what he says about my treatment. I had my hair cut short and everyone has said how good that it looks and my rash has come back again on my face. The rash means the chemo is working which is good.

Carol

Dx 2/2/2012, DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/15/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/12/2012 Surgery 3/6/2013 Reconstruction (left): Tissue expander placement
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Oct 25, 2019 09:38AM chrissyb wrote:

Hi Carol, yes, sad news indeed about Judy.

Fingers crossed that you get good report from your onc on Wednesday. Post a pic of your short hair so we can all admire it.......it sounds great. Damn about that rash, but as you say, it means that your chemo is doing it's thing so not a bad thing, just annoying.

I have a busy week next week again, the never-ending roundabout of specialist appointments. I have a chest and abdomen CT on Monday to see if we can find what is causing me so much discomfort and down right pain in my side and under my ribs on the right hand side. Then in the afternoon I see the Neuro-opthamologist for some extra tests that my opthamologist wants done due to the swanoma I have. It will be an interesting visit.

On Wednesday it's back down to the city for my six month MRI on the swanoma to see if it's grown. I'll be interested to see as I have begun to get ear aches this last few weeks, then on Thursday I get to see the ENT Specialist to get the results. I'm hoping that the following week I can just stay home and put my feet up.

Take care all.

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Oct 29, 2019 06:08AM aussie12 wrote:

Dx 2/2/2012, DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/15/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/12/2012 Surgery 3/6/2013 Reconstruction (left): Tissue expander placement
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Oct 29, 2019 07:20AM chrissyb wrote:

Carol, your hair looks great short! Considering all that you are going through, it looks like you are hanging in there well.

I saw the Neoro-opthamologist yesterday......she ran some tests and explained exactly why my opthamologist had sent me to her.....lol......I had forgotten.....lol. apparently he is concerned that the BC may go to my eyes but she is thinking no probs but has ordered another big test at another facility. The order has been faxed through and now I wait to hear from them, which I'm told, can be up to two months. Looks like next years calendar is already filling up.

Also had my CT, and still no explanation of why I'm getting this pain.......the results were good actually, they told me that the Faslodex is actually working as I'm stable! Yay!! Can't get much better than that.

Tomorrow arvo is the MRI to check on the visitor in my head and Thursday is when I see the ENT to get the results.....talk about being over all the doctors appointments! I can honestly say, that I will be mighty please when it's just one a month again and I can get some quiet time at home. I have so many craft things started that I really need time to get them all finished.

Take care all.

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Oct 29, 2019 08:11AM aussie12 wrote:

Hi All

Chrissy I've never heard of it going to the eyes before. Congrats on the CT results and good luck with the MRI.

I see my Oncologist tomorrow then have my chemo. I'll ask how many more chemo's I'm going to have.

Carol

Dx 2/2/2012, DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/15/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/12/2012 Surgery 3/6/2013 Reconstruction (left): Tissue expander placement
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Oct 30, 2019 05:18AM Lucy55 wrote:

Aussie ..you look lovely !

Chrissy ..wonderful news that your stable ! Hope you get some time to rest soon ! Nothing worse than being stuck in the medical loop...ugh ...send us some pics of your crafts as you finish them.

I'm six weeks out from my mastectomy now ..and feel so much better this last week . So glad I finally did it ...I like being flat at home ..I just wear a sports bra with inserts ..and I pop a couple of knitted knockers in them if I'm going out .

Hugs to all..

Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/14/2014
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Dec 23, 2019 07:20AM aussie12 wrote:

Hi all

I had my 12th chemo today but without the pump for 48 hours so hopefully will feel alright for Christmas day. They were busy in there trying to get everyone done,

I just have to keep having chemo, my CT the other week came back ok and I'm having a PET scan in 8 weeks to get a better look.

Very quiet her lately I hope that everyone is ok.

Merry Christmas and a Happy New Year to everyone.

Carol


Dx 2/2/2012, DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/15/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/12/2012 Surgery 3/6/2013 Reconstruction (left): Tissue expander placement
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Dec 23, 2019 08:16AM - edited Dec 23, 2019 08:18AM by chrissyb

Hi Carol, glad you were able to get your chemo without the pump......Keeping my fingers crossed for you to be able to enjoy Christmas. Yay!!! on the stable CT results, here's hoping the PET says the same thing.

I'm hanging in there, stable again so the Faslodex is doing good things.......now if I could only get the breathing under control, I'd be a happy camper.....lol.....another words, there is no way I could do the hundred yard dash without being on my face after the first five. Still here, still hanging in there like everyone else, one day at a time.

My wish for all is that 2020 brings better days, easier treatments, and fabulous results. Merry Christmas and a happy and safe New Year. Love to you all,

Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Dec 23, 2019 05:50PM Lucy55 wrote:

Aussie ..Hope you have a great Christmas Day ..and great results when you have the PET scan .

Chrissy ..so great to hear you're stable again ..and hope they can sort your breathing out soon !

Just want to wish you all a very Merry Christmas 🎄, and a healthy , Happy New Year .🥂

Hugs to all



Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/14/2014
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Feb 11, 2020 06:20AM aussie12 wrote:

Hi all

It's been very quite in here. Hope that everyone had a great Christmas and New year.

I had my PET scan and everything is going well. I just have to keep having chemo. I'm finishing fulltime work this week as I'm getting too tired and with only working 1 week every fortnight it's not enough money. I applied for my Super and within about 6 weeks I have the money in the bank. I'm just going to work 10 hours a fortnight, it feels strange to finish work.

I will be going on a few holidays so am looking forward to it.

Hope that everyone is well.

Carol

Dx 2/2/2012, DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/15/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/12/2012 Surgery 3/6/2013 Reconstruction (left): Tissue expander placement
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20 hours ago Trisha-Anne wrote:

I'm not sure if anyone checks this page any more, but I'll repost here from the facebook group. I spoke to Chrissy yesterday and her daughter sent me a message with all the information. Chrissy isn't doing well.


Mum's condition since Friday was so poor she was unable to speak or comprehend what's going on so I'm assuming you haven't spoken since then. The renal failure has caused her to be confused, disoriented, weak, and just out of it, but with a very slight improvement in function since this morning she's more with it and had a FaceTime call with Dad which is great. She is also finally responding to the antibiotics so her pneumonia seems to be under control. They have also just moved her from icu back into the ward. But while she has shown some improvement she knows it's not enough, and she knows it's her time. So do we. What we're really hoping for is that we can get her well enough to come home so we can all be together.

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe Dx 9/17/2010, ILC, <1cm, Grade 1, ER+/PR+, HER2- Dx 9/17/2010, IDC, 2cm, Stage IIA, Grade 3, 1/6 nodes, ER+/PR+, HER2+ Dx 11/4/2015, IDC, Right, 2cm, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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16 hours ago Kanga_Roo wrote:

Trisha-Anne - devastating news to hear Chrissy is not doing well! I have this thread on my favourites, but it has been very quiet. I remember how supportive Chrissy and you all were when I caught up with you in Adelaide. I feel quite teary thinking about her. She has always been so kind and supportive of myself and others. I hope she regains enough health to return home to her family for whatever time she has left! Fcku cancer!😥

Jackie

Dx 1/24/2018, IDC, Left, 5cm, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 2/11/2018 Femara (letrozole) Targeted Therapy 2/15/2018 Kisqali
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16 hours ago Operahouse wrote:

Thanks for sharing. It's so sad to hear about Chrissy. She has made it for so many years. I can't imagine how many obstacles she has conquered. Wish her all the best for whatever time she has left. Sending her lots of love and prayers ❤️🙏🏻

Operahouse Dx 11/2018, IDC, Right, Stage IV, metastasized to liver/lungs, ER+/PR+, HER2- Targeted Therapy 12/29/2018 Kisqali Hormonal Therapy Femara (letrozole), Zoladex (goserelin)
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12 hours ago helenlouise wrote:

That is very sad news.

Thank you for sharing Trisha Anne.

Sending love and strength to Chrissy and her family.

2013 DCIS treatment lumpectomy x2 plus radiation. 2018 new IDC treatment Neo adjuvant chemotherapy. Surgery July 18. Radiation August through to October 2018. Xeloda till April 2019. Skin mets April 2019. More skin Mets October 2019. Dx 1/2013, DCIS, Left, <1cm, Stage 0, Grade 3, ER+/PR+ Surgery 2/3/2013 Lumpectomy: Left Surgery 2/10/2013 Lumpectomy: Left Radiation Therapy 3/1/2013 Whole-breast: Breast Dx 2/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/8 nodes, ER-/PR-, HER2- Chemotherapy 2/25/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 7/23/2018 Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 8/27/2018 Chemotherapy 8/29/2018 Xeloda (capecitabine) Dx 4/2/2019, IDC, Left, 2cm, Stage IIIC, Grade 3, 1/8 nodes, ER-/PR-, HER2- Dx 4/16/2019, IDC, Left, 2cm, Stage IV, metastasized to other, Grade 3, 1/8 nodes, ER-/PR-, HER2- (DUAL) Dx 3/2020, IDC, Left, Stage IV, metastasized to other, ER-/PR-, HER2+ (DUAL)

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