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Topic: Australian Sisters

Forum: Australians and New Zealanders Affected by Breast Cancer —

Australian health care, clinical trials, and life in general in the land down under.

Posted on: Dec 15, 2010 05:13PM

Trisha-Anne wrote:

Calling all Australian Sisters!

I'm in Canberra and have just done my second chemo treatment.  I'm have 3 cycles of FEC then will have 3 cycles of Taxotere and 12 months of Hercepten.

It might be nice to see how many of us are in Oz and if we aren't too far away from eachother try to organise a meeting.

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe Dx 9/17/2010, ILC, <1cm, Grade 1, ER+/PR+, HER2- Dx 9/17/2010, IDC, 2cm, Stage IIA, Grade 3, 1/6 nodes, ER+/PR+, HER2+ Dx 11/4/2015, IDC, Right, 2cm, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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May 17, 2020 04:33PM Lucy55 wrote:

Thinking and praying for Chrissy and Trish ..hugs

Surgery 8/26/2014 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/14/2014 Surgery
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May 21, 2020 03:17PM Lolalee wrote:

Same here Racy, haven’t heard from Trish, just hope the treatment plan goes well. All so bloody awful and unexpected.

Dx February 12 Lumpectomy March 12 DCIS Stage 0 Grade 3 HR-/PR-
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Jun 21, 2020 02:20AM Trisha-Anne wrote:

Hello everyone!

I've now done two rounds of chemo with the new immunotherapy drug. I'll have a scan in a week and a half to see if anything is happening.

I'm not sure if I posted exactly what we know now. So here goes, and if I have please forgive my chemo brain.

The cancer is a particularly nasty one and it's spread to my adrenal glands and if I did nothing I'd have maybe a couple of months. The new immunotherapy drug can only be administered with chemo. That combo may give me up to 12 months if I'm lucky, so I'm trying for lucky.

I'm feeling ok, the chemo is palliative, so not too hard on me. I'm really at peace with everything, just trying to get everything organised. I have lots of wonderful people around me, not the least who is my husband, my rock.

I'll let you all know what happens when I get the results of the scans.

Trish

xoxoox

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe Dx 9/17/2010, ILC, <1cm, Grade 1, ER+/PR+, HER2- Dx 9/17/2010, IDC, 2cm, Stage IIA, Grade 3, 1/6 nodes, ER+/PR+, HER2+ Dx 11/4/2015, IDC, Right, 2cm, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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Jun 21, 2020 04:30AM chrissyb wrote:

Yay, Trish......fingers crossed for great results with the scans. You know already that we have been chatting so all good.

I'm free again goils!! Yippeee me!!!!......Lol. back being tossed back n forth between my girls so the eldest can go back to work. I'm happy about that as it gives her a good sense of independence.

Feeling pretty good right now although I need to make sure that constipation stays away as that can also cause the nausea. I really hate nausea!

Hoping everyone is doing only good things.

Live n hugs, Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Jun 21, 2020 04:55AM Traii wrote:

I don't post much on this thread but I do read.

Been thinking of you both Trish & Chrissy

So happy to 'see' you both on here😁

All the best Trish for fabulous scan results 🤞I hope it gives you more than lucky with 12 months plus much more! 🤞

Chrissy glad you're feeling much better and yes, keep that constipation away! Nausea is a horrible feeling 😏

Take care

Stage IV 2nd Jan 2019 age 40 Dx 8/2012, IDC, 1cm, Grade 3, 2/10 nodes, ER+/PR+, HER2- Surgery 9/5/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Surgery 9/23/2012 Lymph node removal: Right, Underarm/Axillary Chemotherapy 10/30/2012 Taxotere (docetaxel) Chemotherapy 1/1/2013 CMF Surgery 7/4/2013 Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left); Reconstruction (right) Hormonal Therapy 2/24/2019 Femara (letrozole) Targeted Therapy Kisqali
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Jun 21, 2020 06:42AM Lucy55 wrote:

Trish and Chrissy ..so lovely to see you both post ! Think of you both everytime I come on here Xx

Surgery 8/26/2014 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/14/2014 Surgery
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Jun 21, 2020 09:04AM helenlouise wrote:

Thank you girls for updates. Sorry to hear the cancer is aggressive Trisha. Let’s hope the treatment gives you relief and time. Glad things are well for you Chrissy. I have been lucky again with clear PET so we decided to stop the chemo. Onward with herceptin and perjeta. Hope everyone is keeping warm with winter upon us and coping as well possible with COVID rules

Dx 1/2013, DCIS, Left, <1cm, Stage 0, Grade 3, ER+/PR+ Surgery 2/3/2013 Lumpectomy: Left Surgery 2/10/2013 Lumpectomy: Left Radiation Therapy 2/28/2013 Whole-breast: Breast Dx 2/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/8 nodes, ER-/PR-, HER2- Chemotherapy 2/24/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 7/23/2018 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 8/27/2018 Xeloda (capecitabine) Radiation Therapy 8/27/2018 Dx 4/2/2019, IDC, Left, 2cm, Stage IIIC, Grade 3, 1/8 nodes, ER-/PR-, HER2- Dx 4/16/2019, IDC, Left, 2cm, Stage IV, metastasized to other, Grade 3, 1/8 nodes, ER-/PR-, HER2- (DUAL) Dx 3/2020, IDC, Left, Stage IV, metastasized to other, ER-/PR-, HER2+ (DUAL) Targeted Therapy 3/18/2020 Herceptin (trastuzumab) Chemotherapy 3/18/2020 Taxol (paclitaxel) Targeted Therapy 3/19/2020 Perjeta (pertuzumab)
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Jul 14, 2020 06:50AM Lolalee wrote:

Thank you for the update, sorry the cancer is so aggressive Trish, so hard to understand this crazy disease.
It’s wonderful you have bounced back so well Chrissy.

Sending everyone good wishes with their treatment which must be hard with COVID social distancing and the extra precautions.


Dx February 12 Lumpectomy March 12 DCIS Stage 0 Grade 3 HR-/PR-
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Aug 18, 2020 09:07AM aussie12 wrote:

Hi all

I got a registered letter from the government today about breast implants. Hopefully everyone that has had implant surgery should get one. It seems that there is a risk of getting a rare cancer of the immune system (BIA-ALCL). If you have these symptoms, swelling, pain, a rash or lump or not sure go see your GP. It's rare so I don't want to panic anyone.

I hope that everyone is doing ok.

I'm still having chemo for my bowel cancer, had 26 chemo's so far, I will be on it for life. I was told a year ago that I only had 1 year to live but my Oncologist said that I'm doing well.

Carol


Dx 2/2/2012, DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/15/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/12/2012 Surgery 3/6/2013 Reconstruction (left): Tissue expander placement
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Aug 18, 2020 10:48PM chrissyb wrote:

Wow! 26 chemos! So glad you are doing well, Carol. Interesting re the implants, great info thanks.

Still here and feeling way better after four bags of whole blood given last week........apparently my levels were in the "how the hell are you functioning " levels.......lol.

Take care all.

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Aug 19, 2020 09:41AM aussie12 wrote:

Hi all

Great to hear from you Chrissy. 4 bags, that's a lot. I've had blood transfusions a couple of times before chemo but only 2 bags.

Carol

Dx 2/2/2012, DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/15/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/12/2012 Surgery 3/6/2013 Reconstruction (left): Tissue expander placement
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Oct 1, 2020 08:41AM aussie12 wrote:

Hi all

Just wondering how everyone is ? Very quite here.

My last CT 2 weeks ago was good, the bowel cancer hasn't got worse. I'm up to my 30th chemo next week.

I still haven't gone back to work and will probably quit son anyway.

Carol

Dx 2/2/2012, DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/15/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/12/2012 Surgery 3/6/2013 Reconstruction (left): Tissue expander placement
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Nov 16, 2020 07:18AM aussie12 wrote:

Hi all

Not many people post on here anymore so I thought that I'd let you all know the sad news from yesterday.

Trish passed away yesterday from her cancer. She started this thread in 2010. It's very sad news. I met her in Canberra when we had our get together.

Carol

Dx 2/2/2012, DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/15/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/12/2012 Surgery 3/6/2013 Reconstruction (left): Tissue expander placement
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Nov 16, 2020 03:52PM Traii wrote:

oh Carol that is such sad news. May Trish rest peacefully. Thoughts are with her family and friends at this sad time.

Stage IV 2nd Jan 2019 age 40 Dx 8/2012, IDC, 1cm, Grade 3, 2/10 nodes, ER+/PR+, HER2- Surgery 9/5/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Surgery 9/23/2012 Lymph node removal: Right, Underarm/Axillary Chemotherapy 10/30/2012 Taxotere (docetaxel) Chemotherapy 1/1/2013 CMF Surgery 7/4/2013 Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left); Reconstruction (right) Hormonal Therapy 2/24/2019 Femara (letrozole) Targeted Therapy Kisqali
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Nov 16, 2020 05:20PM Kanga_Roo wrote:

Trish was a beautiful lady who cared about others. I met her at the Adelaide get together, and she, along with Chrissy and others, comforted me shortly after my diagnosis. I’m thinking of her today, her friends family, and community, who must be devastated by her passing.

Dx 1/24/2018, IDC, Left, 5cm, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 2/11/2018 Femara (letrozole) Targeted Therapy 2/15/2018 Kisqali
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Nov 17, 2020 06:49AM helenlouise wrote:

Hi Carol,

Thank you for letting us know about Trisha. How very sad.

Dx 1/2013, DCIS, Left, <1cm, Stage 0, Grade 3, ER+/PR+ Surgery 2/3/2013 Lumpectomy: Left Surgery 2/10/2013 Lumpectomy: Left Radiation Therapy 2/28/2013 Whole-breast: Breast Dx 2/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/8 nodes, ER-/PR-, HER2- Chemotherapy 2/24/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 7/23/2018 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 8/27/2018 Xeloda (capecitabine) Radiation Therapy 8/27/2018 Dx 4/2/2019, IDC, Left, 2cm, Stage IIIC, Grade 3, 1/8 nodes, ER-/PR-, HER2- Dx 4/16/2019, IDC, Left, 2cm, Stage IV, metastasized to other, Grade 3, 1/8 nodes, ER-/PR-, HER2- (DUAL) Dx 3/2020, IDC, Left, Stage IV, metastasized to other, ER-/PR-, HER2+ (DUAL) Targeted Therapy 3/18/2020 Herceptin (trastuzumab) Chemotherapy 3/18/2020 Taxol (paclitaxel) Targeted Therapy 3/19/2020 Perjeta (pertuzumab)
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Dec 27, 2020 07:48AM aussie12 wrote:

Hi all

Some sad news again. Christine Bout (Chrissy) passed away on Wednesday 23. She was at home with her family.

What a horrible year for this site. 3 ladies that I met in Canberra, Ally, Trish and now Chrissy have all passed away.

Hope that everyone has a good New Year.

Carol

Dx 2/2/2012, DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/15/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 5/12/2012 Surgery 3/6/2013 Reconstruction (left): Tissue expander placement
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Dec 28, 2020 07:29AM helenlouise wrote:

Very sad news indeed. Thank you for your New Years wishes and to you and your family a happy, healthy and safe 2021.

Dx 1/2013, DCIS, Left, <1cm, Stage 0, Grade 3, ER+/PR+ Surgery 2/3/2013 Lumpectomy: Left Surgery 2/10/2013 Lumpectomy: Left Radiation Therapy 2/28/2013 Whole-breast: Breast Dx 2/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/8 nodes, ER-/PR-, HER2- Chemotherapy 2/24/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 7/23/2018 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 8/27/2018 Xeloda (capecitabine) Radiation Therapy 8/27/2018 Dx 4/2/2019, IDC, Left, 2cm, Stage IIIC, Grade 3, 1/8 nodes, ER-/PR-, HER2- Dx 4/16/2019, IDC, Left, 2cm, Stage IV, metastasized to other, Grade 3, 1/8 nodes, ER-/PR-, HER2- (DUAL) Dx 3/2020, IDC, Left, Stage IV, metastasized to other, ER-/PR-, HER2+ (DUAL) Targeted Therapy 3/18/2020 Herceptin (trastuzumab) Chemotherapy 3/18/2020 Taxol (paclitaxel) Targeted Therapy 3/19/2020 Perjeta (pertuzumab)
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Dec 29, 2020 05:31AM Traii wrote:

Such sad news about Chrissy. She was a wealth of knowledge to this site whilst fighting her own battle. She will be missed by all.

May Chrissy rest in peace, pain free and fly with the angels along side Trish & Ally.

Thanks for letting us know Carol. Let's hope 2021 is a Happy, healthy & safe new year for us all x

Stage IV 2nd Jan 2019 age 40 Dx 8/2012, IDC, 1cm, Grade 3, 2/10 nodes, ER+/PR+, HER2- Surgery 9/5/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Surgery 9/23/2012 Lymph node removal: Right, Underarm/Axillary Chemotherapy 10/30/2012 Taxotere (docetaxel) Chemotherapy 1/1/2013 CMF Surgery 7/4/2013 Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left); Reconstruction (right) Hormonal Therapy 2/24/2019 Femara (letrozole) Targeted Therapy Kisqali
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Dec 31, 2020 10:03PM Operahouse wrote:

Very sad. She had fought for so long. Rest in peace, Chrissy ❤️

Operahouse Dx 11/2018, IDC, Right, Stage IV, metastasized to liver/lungs, ER+/PR+, HER2- Targeted Therapy 12/30/2018 Kisqali Hormonal Therapy Femara (letrozole), Zoladex (goserelin)
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Feb 17, 2021 11:46AM Lucy55 wrote:

Hi Ladies

I haven't been on this thread for quite a while..and very sad to read about Trish and Chrissy

Two beautiful ladies..so sad .


Surgery 8/26/2014 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/14/2014 Surgery
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Mar 10, 2021 02:32PM Newnorm wrote:

Hi, does anyone have a recommendation for a good Onc in Sydney? Mine keeps me waiting at every appointment. Yesterday for a noon appointment I was still waiting at 1.15pm. I appreciate people are busy but that’s not acceptable. Any recommendations welcome. Thanks

Dx 12/23/2016, IDC, Left, 6cm+, Stage IIIB, Grade 2, 6/17 nodes, ER+/PR+, HER2- Chemotherapy 1/6/2017 AC + T (Taxol) Hormonal Therapy 7/27/2017 Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 7/28/2017 Lymph node removal: Left; Mastectomy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall

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