Topic: Kiwi ladies who need encouragment, but all welcome.

Forum: Australians and New Zealanders Affected by Breast Cancer — Australian health care, clinical trials, and life in general in the land down under.

Posted on: May 27, 2012 10:10PM - edited May 27, 2012 10:12PM by midnight1327

Posted on: May 27, 2012 10:10PM - edited May 27, 2012 10:12PM by midnight1327

midnight1327 wrote:

I did start a thread for kiwi ladies, and another lady suggested we start one  in the community support. this is just  an encouraging and support thread for any kiwi and anybody who needs support, and bring kiwi women together, so  do feel free to join in.

Dx 8/12/2011, IDC, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- Surgery 8/30/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/9/2011 Breast Hormonal Therapy 11/22/2011
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Feb 4, 2014 04:22PM kt1966 wrote:

Yay for a new nipple! And for shorts & singlet in the pool :)

Hope you enjoy it Ange!

Midnight, I see from the Aussie thread you have to see your Rads Dr- I hope all is ok. Let us know how you get on.

Waitangi day tomorrow- hope you all have a good day :)

kt

Age at Diagnosis: 37 Dx 12/11/2003, ILC, 4cm, Stage IIIA, Grade 2, 4/10 nodes, ER+/PR+, HER2- Surgery 12/15/2003 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 2/24/2004 AC Hormonal Therapy 5/19/2004 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/25/2004 Hormonal Therapy 7/3/2011 Femara (letrozole), Zoladex (goserelin) Surgery 10/7/2013 Prophylactic mastectomy: Left Dx 7/9/2014, ILC, Stage IV, metastasized to bone/lungs, Grade 2, mets, ER+/PR+ Chemotherapy 7/14/2014 Xeloda (capecitabine) Chemotherapy 6/16/2015 Taxol (paclitaxel) Dx 7/8/2016, Stage IV, metastasized to brain/liver Radiation Therapy 7/18/2016 External: Brain Chemotherapy 8/29/2016 Navelbine (vinorelbine) Chemotherapy 10/18/2016 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex)
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Feb 4, 2014 06:39PM - edited Feb 4, 2014 11:16PM by midnight1327

HI KT , every thing is semi ok,  bone scan, just  wear and tear on joints. the other thing was they found from the surgery significant swelling in the womb  lining been results of tamoxifen, so now i am off it from today. had bloods taken to see if i am in the menopause, if so will go onto another medication, if its not,  they will have have to look into other remedys,  we spoke of a hysterectomy, i mean i dont need it at my age, i am not planning to multiply at my age, she did not pahoo it. but said, something i need to speak with gyney about. and that means a total  removal of the lot,  plus cervix. as i have diabetes because of the  hormone pills. but at least they can remove that. i was sort of panicking as it wa so quick she wanted to see me, like an urgency. it was  good though that i did. thanks KT.  it was lucky i checked mail, i dont ususally get til later in day, so have told them to call me on phone for urgent appointments as the mail is slow, they sent that monday.  and i just got an hour before i had to go. have a good day.

Dx 8/12/2011, IDC, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- Surgery 8/30/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/9/2011 Breast Hormonal Therapy 11/22/2011
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Feb 4, 2014 08:34PM - edited Feb 4, 2014 08:35PM by kt1966

Hi midnight.

Glad nothing major was wrong!

It must have been a rush to get to the appt! I've had letters turn up after appointments before- thats the drawback with rural delivery. Luckily I had a phone call the day before :)

I had the choice of hysterectomy/oopharectomy too, but decided on ovarian suppression with zoladex (and femara, an AI).

I hope your decisions and appointments with gynae go well ...

kt

Age at Diagnosis: 37 Dx 12/11/2003, ILC, 4cm, Stage IIIA, Grade 2, 4/10 nodes, ER+/PR+, HER2- Surgery 12/15/2003 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 2/24/2004 AC Hormonal Therapy 5/19/2004 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/25/2004 Hormonal Therapy 7/3/2011 Femara (letrozole), Zoladex (goserelin) Surgery 10/7/2013 Prophylactic mastectomy: Left Dx 7/9/2014, ILC, Stage IV, metastasized to bone/lungs, Grade 2, mets, ER+/PR+ Chemotherapy 7/14/2014 Xeloda (capecitabine) Chemotherapy 6/16/2015 Taxol (paclitaxel) Dx 7/8/2016, Stage IV, metastasized to brain/liver Radiation Therapy 7/18/2016 External: Brain Chemotherapy 8/29/2016 Navelbine (vinorelbine) Chemotherapy 10/18/2016 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex)
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Feb 4, 2014 08:56PM midnight1327 wrote:

Kt, thanks, what is that other thing you said, that one next to hysterectomy.  what is that procedure? i am going to have to weigh it all up and see and for anybody going on tamoxifen  or making a choice about it, please dont let this put you off, it does not always happen, i am just complicated due to many health issues. and what happens to me, may not  be an issue for you. so just  do what"s right for you.

Dx 8/12/2011, IDC, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- Surgery 8/30/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/9/2011 Breast Hormonal Therapy 11/22/2011
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Feb 4, 2014 09:05PM kt1966 wrote:

it's just a fancy word for having your ovaries out ;)

Hope the diabetes appts went well too. 

Cheers,

kt

Age at Diagnosis: 37 Dx 12/11/2003, ILC, 4cm, Stage IIIA, Grade 2, 4/10 nodes, ER+/PR+, HER2- Surgery 12/15/2003 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 2/24/2004 AC Hormonal Therapy 5/19/2004 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/25/2004 Hormonal Therapy 7/3/2011 Femara (letrozole), Zoladex (goserelin) Surgery 10/7/2013 Prophylactic mastectomy: Left Dx 7/9/2014, ILC, Stage IV, metastasized to bone/lungs, Grade 2, mets, ER+/PR+ Chemotherapy 7/14/2014 Xeloda (capecitabine) Chemotherapy 6/16/2015 Taxol (paclitaxel) Dx 7/8/2016, Stage IV, metastasized to brain/liver Radiation Therapy 7/18/2016 External: Brain Chemotherapy 8/29/2016 Navelbine (vinorelbine) Chemotherapy 10/18/2016 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex)
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Feb 5, 2014 12:36PM - edited Feb 5, 2014 12:45PM by JoTro

Update; results came back and thankfully the sentinal node was negative and clear 5mm margins. Phew, have had some pretty dark moments in the past week waiting...

Spoke to Onc nurse here in Blenheim and now I'm feeling a bit confused, she suggested I will probably have to have chemo as well as the definite radiation, my surgeon's letter came yesterday and he says chemo is not what he would recommend.  Is this nurse telling me things that are just pulled out of her head,  appointment is on the 25th with onc dr.  She also said radiation probably wont start until april as the Christchurch Onc dr only comes up here once a month and I will just miss out seeing him on his Feb visit. (I'm thinking I might try and go down there to see them rather than waiting around for the slow turning wheel and misinformation up here)

Had my fist day back at work yesterday - only for 2 hours!  Just going to ease myself back in slowly.  I found that work was an escape from this drama and worry when I was waiting for the diagnosis, now it is a distraction from the waiting.

My report also says the tumor was 18mm not 23mm as they thought on ultrasound.  It also says they found DCIS intermediate.  That was a surprise, but I'm thinking maybe it was what was inside the tumor??  Surgeon suggested tumor was larger than they thought but report says the opposite.  

Cheers, Jo

DX IDC Grade 2 Stage 1 19/12/13, LX 23/01/14, Chemo 4xTC 24/03/14, Rads 16 +4 23/06/14, Tamoxifen 5y+, Total Abdominal Hysterectomy 22/10/15 for excess growth caused by Tamoxifen, back on Tamoxifen :(
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Feb 5, 2014 02:13PM - edited Feb 5, 2014 02:23PM by midnight1327

Hi Jo, i had more a less the same DX as yours, except for  mine being left, and i was a grade 3, and they insisted that chemo would not make much difference so i opted not to have it, but that was my choice going from the info they  gave us, i had the rads and the hormone therapy, even tho they may have to change the meds for me,  but  you do whatis right for you. all i am saying  is the Onc told me they would  not be upset if  i did not have chemo, but would challenge any choice not to  have the hormone therapy, they brought out statistics showing me how little chemo would benefit me. but i am not here to influence you, you make sure you get that right for you. i had my husband with me at the time also, so he was able  help and steer me  in  right direction and made my choice easier.  ( p/s we were also shifting at the time, so having chemo and trying to shift would of been very hard) was bad enough doing the rads and shifting was very difficult  on its own. we ended up employing massey students to help us, esp for me in the house to pack.  anyway that is the past.  take care girl.

Dx 8/12/2011, IDC, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- Surgery 8/30/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/9/2011 Breast Hormonal Therapy 11/22/2011
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Feb 5, 2014 04:57PM Angstapp wrote:

Hi Jo,

Hey really glad the node was clear hun.

I had the same experience with the tumor size - ultrasound showed it was about 50mm but pathology showed it was in fact 27 and my smaller tumor 25mm - thank goodness!  It's good to hear that it is smaller than they anticipated.

The Oncologist doctor will certainly set you right with what is needed, I'm sure it's much the same as up here is Auckland - a group of 5 of them meet and discuss your case and come up with a treatment plan - it's not just one person making a decision, and then of course your own decision based on their recommendations.

Take care x

Dx 4/10/2013, IDC, 2cm, Stage IIA, Grade 3, 0/19 nodes, ER-/PR-, HER2- Surgery 5/5/2013 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Free TRAM flap Chemotherapy 6/11/2013 Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
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Feb 9, 2014 03:22PM - edited Feb 9, 2014 03:26PM by midnight1327

Found this when i opened up yahoo this morning to read news,  it has sparked out rage as they are saying  the common  cancer like breast cancer and postateare all something like a bad flu,  ok i admit this add is bring awareness for pancreatic cancer and it killed my Dad, but Breast cancer  is not a walk in the park either, it  kills and if you are lucky enough  to get it early and get a better survival rate, you are blessed, if your not and they get when its too advanced. Breast cancer is  as much of  a killer,it probably has better treatment options, i know that pancreatic hasntmany . you have to be real early to get a good chance with surgery, dad did not. he left it to long when he first  felt so unwell. but this has  caused huge  out rage in Britian.

Dx 8/12/2011, IDC, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- Surgery 8/30/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/9/2011 Breast Hormonal Therapy 11/22/2011
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Feb 11, 2014 01:16PM Kruise wrote:

hi midnight - yes I saw that on yahoo the other day too.

I don't feel outraged by it - really if you have been through any type of cancer or cancer treatment why waste energy on emotions like that! I think they originally were just trying to point out that cancers like pancreatic really have little options if not discovered early - whereas yes other cancers have more treatment options.

A friend of mine went through thyroid cancer treatment 8 years ago and has a strong bc link in her family. She has told me that she isn't doing mammograms and that if she found a lump she wouldn't do anything about it. She said she hasn't got the energy to fight cancer again. Not a view I'd take - but to each their own. I can understand her decision too even though it's not for me.

Well summer in Wellington sucks...has been raining past 5 days. I think I'm going to head back to Tauranga!!! Lol. Tim & I went to the rugby 7's this weekend gone and it was fun. We go every year - not for the booze party! Lol though we always dress up. Met Jonah Lomu and Tiki Tane. 

K xx

Age at dx 44yrs. Had Annual mammograms past 9 yrs as Mum dx 45yrs but felt lump myself. Micromets 2mm in the two sentinel nodes. Treated as TNBC but weakly PR+. Medullary type. BRCA1 & 2 negative. Dx 1/7/2013, IDC, Left, 1cm, Stage IIA, Grade 3, 2/8 nodes, ER-/PR+, HER2- Surgery 2/3/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 2/19/2013 Lymph node removal: Left, Underarm/Axillary Chemotherapy 3/26/2013 AC + T (Taxol) Radiation Therapy 9/29/2013 Breast Hormonal Therapy 12/29/2013

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