Topic: Kiwi ladies who need encouragment, but all welcome.

Forum: Australians and New Zealanders Affected by Breast Cancer — Australian health care, clinical trials, and life in general in the land down under.

Posted on: May 27, 2012 10:10PM - edited May 27, 2012 10:12PM by midnight1327

Posted on: May 27, 2012 10:10PM - edited May 27, 2012 10:12PM by midnight1327

midnight1327 wrote:

I did start a thread for kiwi ladies, and another lady suggested we start one  in the community support. this is just  an encouraging and support thread for any kiwi and anybody who needs support, and bring kiwi women together, so  do feel free to join in.

Dx 8/12/2011, IDC, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- Surgery 8/30/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/9/2011 Breast Hormonal Therapy 11/22/2011
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Feb 12, 2014 09:53PM woodyhollow wrote:

Hello ladies, well it has been a little while...sounds like you are all doing well. So good Jo that you don't have anything in your nodes! Don't listen to the nurse, listen to your onc and then you decide what is best for you, it's your body.

I've been back at work for the last week and a half where it is still a battle as far as seating is concerned, but I'm standing my ground - pretty tough as they're starting to put the pressure on now...

Yes it is strange to have now finished with active treatment, but I really feel I'm over it, like it's dealt with therefore I don't feel worried. I have started the Tamoxifen a couple of days ago and so far it has made me constipated:(

Dx 5/9/2013, ILC, 1cm, Stage II, Grade 2, 3/21 nodes, ER+/PR+, HER2- Surgery 6/30/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Free TRAM flap Chemotherapy 8/13/2013 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
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Feb 13, 2014 12:29AM Kruise wrote:

hey Woody - I started a thread at the beginning of the year called 'bringing in 2014 with tamoxifen' - come join us!! It's under hormonal therapies etc so hopefully you can find it. I'll look out for your post :-)

Well I went for my first ever photography session last week. I decided I wanted to have some pics to leave my kids if anything ever happened and to show how one can survive all this. She let me have one pic - but I get the rest in a couple weeks. So here I am girls - 5 months post chemo, 2 months post radiation and still trying to work out who I am and where I am at - 

Age at dx 44yrs. Had Annual mammograms past 9 yrs as Mum dx 45yrs but felt lump myself. Micromets 2mm in the two sentinel nodes. Treated as TNBC but weakly PR+. Medullary type. BRCA1 & 2 negative. Dx 1/7/2013, IDC, Left, 1cm, Stage IIA, Grade 3, 2/8 nodes, ER-/PR+, HER2- Surgery 2/3/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 2/19/2013 Lymph node removal: Left, Underarm/Axillary Chemotherapy 3/26/2013 AC + T (Taxol) Radiation Therapy 9/29/2013 Breast Hormonal Therapy 12/29/2013
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Feb 13, 2014 02:17AM Angstapp wrote:

You look gorgeous!!!!!  Beautiful photo xox

Dx 4/10/2013, IDC, 2cm, Stage IIA, Grade 3, 0/19 nodes, ER-/PR-, HER2- Surgery 5/5/2013 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Free TRAM flap Chemotherapy 6/11/2013 Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
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Feb 13, 2014 12:20PM ShazzaKelly wrote:

Kruise you look absolutely stunning. I take a terrible photo so jealous Smile

I've been busy with work and treatment but have dropped down to 4 days a week to try and relieve some of my fatigue. I had taxol no 22 on Tuesday  2 more treatments in this cycle, then scans to decide what's next. Hopefully we will just carry on.

Hope everyone is going well and that you manage to resolve those work issues Woody without things getting anymore stressful. Good on you for standing your ground.

Dx 6/15/1999, IDC, Right, 1cm, Stage IIA, Grade 2, ER+/PR+, HER2- Chemotherapy 8/18/1999 CMF Radiation Therapy 9/29/1999 Whole breast: Breast, Lymph nodes Hormonal Therapy 1/30/2000 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/17/2007, IDC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2- Hormonal Therapy 4/28/2007 Zoladex (goserelin) Hormonal Therapy 4/1/2009 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 7/10/2013, IDC, 1cm, Stage IV, Grade 3, 7/9 nodes, mets, ER+/PR+, HER2- Chemotherapy 8/24/2013 Xeloda (capecitabine) Chemotherapy 9/16/2013 Taxol (paclitaxel)
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Feb 13, 2014 03:11PM kt1966 wrote:

Hi all,

Great photo Kruise :)

Hope your scans go well Shazza, glad you've dropped down to 4 days with work.

Woody- I hope work settles down for you and that your body gets used to the Tamox...

Good luck with the onc appt, Jo. Great you had clear nodes & margins.

Hope everyone else is well.

I'm just doing the usual stuff. Thinking about maybe doing the Tongariro crossing sometime, so better get a bit fitter! Good to have an incentive to exercise :)

kt

Age at Diagnosis: 37 Dx 12/11/2003, ILC, 4cm, Stage IIIA, Grade 2, 4/10 nodes, ER+/PR+, HER2- Surgery 12/15/2003 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 2/24/2004 AC Hormonal Therapy 5/19/2004 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/25/2004 Hormonal Therapy 7/3/2011 Femara (letrozole), Zoladex (goserelin) Surgery 10/7/2013 Prophylactic mastectomy: Left Dx 7/9/2014, ILC, Stage IV, metastasized to bone/lungs, Grade 2, mets, ER+/PR+ Chemotherapy 7/14/2014 Xeloda (capecitabine) Chemotherapy 6/16/2015 Taxol (paclitaxel) Dx 7/8/2016, Stage IV, metastasized to brain/liver Radiation Therapy 7/18/2016 External: Brain Chemotherapy 8/29/2016 Navelbine (vinorelbine) Chemotherapy 10/18/2016 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex)
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Feb 14, 2014 12:41AM woodyhollow wrote:

What a fantastic photo Kruise, you look beautiful!! What a good idea to have professional ones done.

thanks for all your words of encouragement... definitely standing my ground at work, but it's not fun and I just can't believe that after all the things I've battled through the past year, that I've now got to battle for a healthy workplace too - how do these people sleep ar night? 

The good news is that it's going to be a lovely weekend, hope to go to the beach, havent had a swim in the sea this summer yet. Also hoping to finally do some work with my horse, she just getting fat in the paddock (bit like me really).

I'll have look for your thread Kruise..another strange thing is the tip of one of my fingers feels a bit numb, is that a late side effect of the chemo??

Dx 5/9/2013, ILC, 1cm, Stage II, Grade 2, 3/21 nodes, ER+/PR+, HER2- Surgery 6/30/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Free TRAM flap Chemotherapy 8/13/2013 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
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Feb 14, 2014 01:04AM midnight1327 wrote:

wow kruise, you are a stunner, Absolutely gorgeous photo. i was down your way today,  and on way home went and paddles our feet in beach at the esplanade and it was so yummy, that water, we were in petone getting some trade me stuff. and then  got caught in traffic almost up to Waikanae, thene we saw where there was an important footy game, hence the traffic in levin, crusaders i think, playing, ????.

 hello everybody. big hugs


 

Dx 8/12/2011, IDC, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- Surgery 8/30/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/9/2011 Breast Hormonal Therapy 11/22/2011
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Feb 14, 2014 07:21AM Kruise wrote:

Thanks everyone .... Yes I am really pleased I got the photos taken. Can definitely recommend to all!  Not quite how I look on an every day basis ...lol...I'm not really a lots of make-up etc type. 

Ahhhh so you were in Petone Midnight - that's about a 10 min drive from where I am. It is nice also the esplanade on a good day - and it did turn out quite hot and sunny yesterday. I believe it was a Hurricanes/Crusaders game in Levin - just a friendly tho - the Super 15 comp starts officially next weekend. I can imagine the traffic in Levin as it would be a popular game.

Shazzakelly - I hope shorter 4 day week helps with your fatigue. You're amazing with 22 taxols done so far. So glad it's been doable for you and hope the scans/tests in the next couple weeks go well. 

Kt - friends of mine are doing the Tongariro crossing next weekend - I know my fitness wouldn't be anywhere near good enough yet to do it - but it does look an amazing thing to do (as long as Tongariro keeps behaving itself!!). There are some lovely walks in the South Island I'd like to do too - esp around Abel Tasman. Must get fitter!! 

Woody I see you've posted on the Tamox thread - I'll go check that out now.

Love to all

K x

Age at dx 44yrs. Had Annual mammograms past 9 yrs as Mum dx 45yrs but felt lump myself. Micromets 2mm in the two sentinel nodes. Treated as TNBC but weakly PR+. Medullary type. BRCA1 & 2 negative. Dx 1/7/2013, IDC, Left, 1cm, Stage IIA, Grade 3, 2/8 nodes, ER-/PR+, HER2- Surgery 2/3/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 2/19/2013 Lymph node removal: Left, Underarm/Axillary Chemotherapy 3/26/2013 AC + T (Taxol) Radiation Therapy 9/29/2013 Breast Hormonal Therapy 12/29/2013
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Feb 17, 2014 12:12AM KiwiCatMom wrote:

Hi All,

New to this thread, but on the discussion boards off and on for quite a long time.  Just passed my one year diagnosis with Stage IV BC.  Bit of a roller coaster year it's been!  Kruise - your picture is fantastic!

I live in Otaki and work in Wellington.  I've been in the Wellington/Kapiti area for almost four years after 18 months in Christchurch.  Originally from the US, married to a Kiwi guy.  

Very nice to connect with some Kiwi women!

Terre

Dx 9/25/2006, IDC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+, HER2- Surgery 10/18/2006 Lumpectomy: Left Hormonal Therapy 12/9/2006 Radiation Therapy 12/14/2006 Breast Dx 2/9/2013, IDC, Stage IV, ER+/PR+, HER2- Hormonal Therapy 2/18/2013 Femara (letrozole) Radiation Therapy 2/18/2013 Bone
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Feb 17, 2014 01:32AM - edited Feb 17, 2014 01:33AM by Alyson

Hi Terre welcome to our little group but it is growing. What part of the US are you from? There are some others from Wellington.

Had my mammo today and alls well. Hard to believe its 7 years.

Hugs to all.

Here we go again. Dx 12/19/2006, IDC, 3cm, Stage IIIC, Grade 2, 23/24 nodes, ER+/PR+, HER2- Surgery 1/18/2007 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 2/22/2007 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxol (paclitaxel) Hormonal Therapy 8/9/2007 Femara (letrozole) Radiation Therapy 8/9/2007

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