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All TopicsForum: Australians and New Zealanders Affected by Breast Cancer → Topic: Kiwi ladies who need encouragment, but all welcome.

Topic: Kiwi ladies who need encouragment, but all welcome.

Forum: Australians and New Zealanders Affected by Breast Cancer —

Australian health care, clinical trials, and life in general in the land down under.

Posted on: May 27, 2012 10:10PM - edited May 27, 2012 10:12PM by midnight1327

midnight1327 wrote:

I did start a thread for kiwi ladies, and another lady suggested we start one  in the community support. this is just  an encouraging and support thread for any kiwi and anybody who needs support, and bring kiwi women together, so  do feel free to join in.

Dx 8/12/2011, IDC, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- Surgery 8/30/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/9/2011 Breast Hormonal Therapy 11/22/2011
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Jul 31, 2017 05:55PM Optimist52 wrote:

Hi Nikki, good to see your post. Sorry to hear the joint pain is worse on letrozole. I take Omega 3 capsules although my joint pain is fairly mild. My hands and wrists feel weaker and are sometimes painful. I've been lucky to tolerate cilazapril well apart from a mild cough now and then. What SEs did it give you? Fantastic that you've done the rehab and joined a gym.

I've worn contact lenses since I was 18 but now find my eyes are too dry on letrozole to wear them. They're also sore at times, will have to go to optometrist. Really sick of all these SEs! I'm actually enjoying this cold winter weather while everyone else complains about it!

My oldest boy turned 23 yesterday, can't believe how quickly the time has flown.


Second diagnosis PILC - Oncotype 22, isolated tumour cells in 2 nodes Dx 10/2003, ILC, Left, 1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 10/22/2003 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 1/2/2004 3DCRT: Breast Hormonal Therapy 3/2/2004 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 6/23/2015, ILC, Left, 4cm, Stage IIA, Grade 2, 0/9 nodes, ER+/PR+, HER2- Surgery 7/5/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left Hormonal Therapy 8/12/2015 Femara (letrozole)
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Jul 31, 2017 06:24PM Nik1966 wrote:

Michelle, it made me really short of breath, so I decided it was better the devil you know and have stuck with my other stuff I was on. I think I will give the Omega 3 a go, because I have to do something. I am loving the cold weather as well, although everyone else is hating it. I still use my gel mat to cool me down when I have one of those moments :-)

Dx 8/21/2014, ILC, Left, 6cm+, Stage IIIA, Grade 2, 9/12 nodes, ER+/PR+, HER2- Surgery 9/15/2014 Lymph node removal: Underarm/Axillary; Mastectomy: Left Chemotherapy 11/4/2014 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 3/16/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 4/7/2015 Aromasin (exemestane), Zoladex (goserelin) Surgery 8/14/2015 Prophylactic mastectomy: Right Surgery 1/20/2017 Prophylactic ovary removal
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Aug 7, 2017 02:29PM Kruise wrote:

Hi ladies...eeekkk I feel so guilty I haven't been on here again for ages. I was driving home yesterday and just had a random thought about Kt and that led to wondering how everyone was and knew I had to get my act together and catch up etc. I guess like most of you I have been flat tack working lately and not much time for anything else. I've still been looking after the little boy with cerebral palsy and my Ambulance work. I've even had to start doing night shift on the ambulance which is a bit tough but then the days are so long too so it's all becoming a blur. Still learning heaps though. I have some shifts coming up with an Intensive Care Paramedic as my crew partner so will really be stepping up my game then :)

My trips to Shanghai and Las Vegas were just wonderful. I so recommend getting away somewhere for a holiday if you can. Even planning something ahead gives you a boost. I want to do something special for my 50th next year but also want to include friends etc so will have to think about that one.

Nikki you have done so amazingly with your exercise. Certainly puts me to shame. Well done!! I'm sure it will help going into your knee surgery. I hope that goes well for you and you recover quickly so you don't lose all that fitness you've built up. I feel like I'm just getting older, achy and fatter! Lol.

Michelle sorry to hear your eyes are playing up. Maybe the optometrist can help with some special drops etc. Happy Belated Birthday to your son too! 23! My oldest is turning 25 next month. My daughter who is 23 just got engaged after 6 months (she's the one with the Anxiety issues etc) but her and her bf not planning the actual wedding till 2020. Thank goodness :). The other daughter (19) and son (13) are just happy at Uni and school and working hard.

Weather is a bit bleak here today with rain and low cloud but I'm just happy I have a day off and a chance to catch up with a few things. I really appreciate my days at home now as they are few and far between. It just highlights all the stuff around the place I've been neglecting though too! Lol.

I had my bc specialist check up plus ultrasound and mammo during mid July and all was good. Always such a relief. Next appt is with Oncology at Wellington Hospital in December again.

Hi Amusing, Helen, Donna and Kathleen and anyone else I've forgotten! Hopefully we can crank this up again for a while and catch up. Even if it's just to have a moan or vent or whatever. Or to complain about the prices at the Supermarket...but that's another story! Hehe

Take care everyoneXx

Age at dx 44yrs. Had Annual mammograms past 9 yrs as Mum dx 45yrs but felt lump myself. Micromets 2mm in the two sentinel nodes. Treated as TNBC but weakly PR+. Medullary type. BRCA1 & 2 negative. Dx 1/7/2013, IDC, Left, 1cm, Stage IIA, Grade 3, 2/8 nodes, ER-/PR+, HER2- Surgery 2/4/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 2/20/2013 Lymph node removal: Left, Underarm/Axillary Chemotherapy 3/27/2013 AC + T (Taxol) Radiation Therapy 9/30/2013 Breast Hormonal Therapy 12/30/2013
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Aug 19, 2017 07:47PM HelenWNZ wrote:

A big hello to everyone - I have been lurking around on the different topic sites but just dont seem to have a lot to add. The last few months have been spent ticking of treatment options and 1st year anniversary milestones. So thats something good I suppose. On the 11th of August I had my last Herceptin so boy has that been a long year as I had to take a 9 week break because of the chemo cocktail I was on. So now Im just on Letrozole. Im really not liking the side effects (dry blurry eyes, aching bones and dry nether regions ew) but hope they will ease up a bit now that the Herceptin is finished. My hair has grown back grey and curly and I have just had a real bad haircut so will look at another hairdresser I think. My nails have grown back but are really horrible. I have a final oncology appt then back to the surgeon. But enough of that stuff.........

On the home front things have been pretty good. My daughter had her 21st and for the girl who knows everything ...well she doesnt. She opted for a family meal out and we had a couple of surprise guests which blew her away. Boy it was hard keeping people hidden but we did and the look on her face when we all got together was priceless. She and I had booked to get another tattoo and again when more of the family turned up it was a pretty neat day. Not quite your spa day out but fun none the less and not too painful. So in the pace of 5 months I now have been inked twice - not bad for a very conservative 53 year old.

We have booked a family holiday - to UK and Europe for a month over Dec/Jan. Its 4 months away now so I am getting pretty optimist that this time we will make it. Last years Melbourne trip was cancelled due to my diagnosis so we thought we would go all out this time. The planning has been great and also means we can focus on somthing different for a change. Would dearly love to win lotto in the meantime for a wee boost of $$ but what the heck we have some bucket list things to do. My 12 year old says he wants to go the a cafe like thay have on Coronation street and get a cooked breakfast. We can certainly cross that one off the list lol.

I hope everyone is keeping well. Take Care

Helen


Helen W Dx 5/5/2016, DCIS/IDC, Left, 3cm, Stage IIIC, Grade 2, 18/22 nodes, ER+/PR+, HER2+ (IHC) Surgery 5/31/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left Chemotherapy 7/6/2016 Taxotere (docetaxel) Targeted Therapy 7/7/2016 Herceptin (trastuzumab) Chemotherapy 9/5/2016 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Radiation Therapy 11/19/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 1/5/2017 Femara (letrozole)
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Aug 19, 2017 10:57PM AmusingSoprano wrote:

That's great that you are getting to do a big family holiday now Helen and also that you have got through all of your main treatments.Will you wear a compression sleeve on your flights? I have a friend on Letrozole and she reports the same side effects as you and is not happy about it!

Good to hear that you had an unremarkable checkup Kruise. And now you have a wedding to look forward to :)

I've just had my first anniversary of diagnosis and my first mammogram since then. Not much fun on the lumpectomy side, especially as they had to do 2 extra pics of it because the scarring is close to the chest wall and so awkward to wrestle all the bits into view! Radiographer was happy with them though and after a second radiographer checks them, I'll go back to see my bs and hopefully my checkups will go from 3 monthly to six monthly.

I now have a teenager in the house -DS turned 13 last week. He's already 5'10" and in a size 13 shoe. Eek.

Hi to everyone else, hope you are all keeping warm and enjoying the lengthening of the days.

Christine

Dx: 08/04/16, DCIS Grade 3, comedonecrosis. Lumpectomy (left) 08/16/16, Re-excision 09/06/16 Dx 8/4/2016, DCIS, Left, 3cm, Stage 0, Grade 3, 0/1 nodes Surgery 8/15/2016 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 9/6/2016 Lumpectomy: Left Radiation Therapy 10/24/2016
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Aug 21, 2017 08:29PM Optimist52 wrote:

Hi to everyone, so great to read what you've been up to. And congrats on the one year milestones Helen and Christine. Your life sounds so busy Karen but really interesting. I had my annual BS checkup a couple of weeks ago, she's agreed that I will have a 6 monthly ultrasound and annual mammogram. Previously I was having an annual MRI too but not anymore because of the risks of the dye (gadolinium) to the brain and kidneys.

Helen how wonderful to be going on a trip to UK and Europe. Do you have any family there to stay with? Great to have a white Christmas. I've looked into booking houses on guesttoguest.com, it would certainly save a fortune on accommodation. You just have to make your house available too at some stage. Letrozole is a pain in the @&$% but I'm still taking it.

We have some daffodils growing in our front garden, spring is nearly here!

Second diagnosis PILC - Oncotype 22, isolated tumour cells in 2 nodes Dx 10/2003, ILC, Left, 1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 10/22/2003 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 1/2/2004 3DCRT: Breast Hormonal Therapy 3/2/2004 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 6/23/2015, ILC, Left, 4cm, Stage IIA, Grade 2, 0/9 nodes, ER+/PR+, HER2- Surgery 7/5/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left Hormonal Therapy 8/12/2015 Femara (letrozole)
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Aug 22, 2017 01:40AM katcar0001 wrote:

Hi everyone! I just noticed some activity on here--wide awake here in the middle of the night in Mexico, lol.

It's nice to read up on your family vacations, Kruise's daughter getting engaged, Helen's daughter's surprise birthday party, and all the rest of the news and "all clear" cancerversaries.

Nikki -- Sorry to hear of your SEs from Letrozole, but it's great you are continuing your exercise program. I did not end up on Letrozole but Anastrozole instead. My estrogen finally plummeted to <10, so no ovary surgery, yay! Not many SEs so far but have only taken about 40 pills. I am getting some chin pimples, though, so I wonder what is going on with hormones?! Will have to check them again in a month. Still have the dry eyes, though (boo). I think that's more an age/lack of estrogen issue.

Other than that, pretty uneventful--clear mammogram and ultrasound. Oh, I did get brackets on my teeth, so with pimples now I feel like a teenager again, haha.

We are returning to NZ in Dec. DB bought a de-commissioned church in the Wairau valley, and he will be doing some additions to it over the summer. I will be in NZ the fully 90 days allowed. We have to look into getting me registered as his common law partner so I can stay longer next time.

I hope we can get together again before you and your families go on your summer holidays. I imagine we will be in Auckland in Dec., although I think we are going to Australia for a week or so then.

Going to try to get back to sleep now...



"Do what's in front of you." (Juan Nieto). IDC left side, ER+/PR+/AR+. Oncotype 17, Ki-67 - 4%, MAPK1 and PIK3CA mutations. UMX 12/4/14, no chemo or rads. Tamoxifen 1/7/2015. Benign tumor removed from rt. side on 2/25/15. Dx 11/22/2014, IDC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 12/4/2014 Lymph node removal: Left, Sentinel; Mastectomy: Left Hormonal Therapy 1/7/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/23/2015 Lumpectomy: Right Surgery 8/3/2015 Reconstruction (left): Tissue expander placement Surgery 11/19/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Aug 25, 2017 08:57PM ShazzaKelly wrote:

Hi guys, sorry I haven't been around for ages, been busy with life and mostly ignoring cancer. I'm still doing well on the oral taxol trial. 80 weeks and still stable on it. I turned 50 on the 9th one of my goals when diagnosed Stage 4 was to get that far so I celebrated with a party and am off to Samoa tomorrow with a couple of girlfriends for a week.

Hope everyone is doing well. I will try and pop in more regularly

Shaz

Dx 6/15/1999, IDC, Right, 1cm, Stage IIA, Grade 2, ER+/PR+, HER2- Chemotherapy 8/19/1999 CMF Radiation Therapy 9/29/1999 Whole-breast: Breast, Lymph nodes Hormonal Therapy 1/30/2000 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/17/2007, IDC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2- Hormonal Therapy 4/28/2007 Zoladex (goserelin) Hormonal Therapy 4/1/2009 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 7/10/2013, IDC, 1cm, Stage IV, Grade 3, 7/9 nodes, mets, ER+/PR+, HER2- Chemotherapy 8/24/2013 Xeloda (capecitabine) Chemotherapy 9/16/2013 Taxol (paclitaxel)
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Aug 28, 2017 08:16PM Kruise wrote:

oh wow Shazza, Samoa that is wonderful! Hope you are having the absolute best time! And belated Happy 50th Birthday 🎂🎈🍾.

Kat the decommissioned Church project sounds interesting. What are the long term plans for it? Part of a vineyard or accommodation or just your little home-away-from-home? :) I hope you can end up organising more time to stay over here. Though Mexico sounds great where you're at now - probably a lot warmer than here right now.

Helen congrats on finishing herceptin and all that year of ghastliness. Your daughters surprise 21st sounded wonderful and so jealous of your trip booked to U.K.! Of course you will make it this time and all of you will have an awesome time. Onwards and upwards as we say!

Christine good to know you have made it through your cancerversary too! I can relate to your mammo ordeal. I had a lumpectomy also of my bc so they always seem to want to do more and last time I went they had upgraded to the 3D imaging machine so a lot longer in squashed position and it holds there and takes about 9 images in segments as it moves across. Sounds like your teenager is going to be a lot taller yet! My brother has size 13 feet and he's 6'5"...I'm 5'10" so I definitely reckon he's still growing :)

Michelle good that your checkup all good and the 6monthly ultrasound sounds good with the annual mammogram. It's amazing how fast those 6 months come around. Our daffodils at home haven't flowered yet but I've seen quite a few around the area. Plus the wee lambs of course. Somehow we always seem to get the worst weather in Springtime! We have just had rain, rain and more rain!

I'm at home again today and procrastinating on the jobs I need to do but better go get cracking on them. I have to empty out my car as it's going to the groomers tomorrow for a big clean and do some washing and tidying up. Always housework 😀

Hope everyone else is well. Take care x


Age at dx 44yrs. Had Annual mammograms past 9 yrs as Mum dx 45yrs but felt lump myself. Micromets 2mm in the two sentinel nodes. Treated as TNBC but weakly PR+. Medullary type. BRCA1 & 2 negative. Dx 1/7/2013, IDC, Left, 1cm, Stage IIA, Grade 3, 2/8 nodes, ER-/PR+, HER2- Surgery 2/4/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 2/20/2013 Lymph node removal: Left, Underarm/Axillary Chemotherapy 3/27/2013 AC + T (Taxol) Radiation Therapy 9/30/2013 Breast Hormonal Therapy 12/30/2013
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Oct 13, 2017 03:51PM Nik1966 wrote:

Well it's been awhile! I hope you are all doing well.

It's been quite an eventful few months with getting a wee holiday from the letrozole in late July due to horrible side effects - joints, hair, blood pressure, fatigue yada yada yada. Since going off it I have honestly felt wonderful, and according to my friends I look a lot better as well. The puffiness has gone from my face, I can fit my rings and have lost some weight. My BP is back down to a normal 120/80 from 180/160 ...... so big decision time. Sheridan Wilson wants me to be on SOMETHING as nothing isn't really a viable option, so I am going to give tamoxifen a go for a few months and see how I feel about it all, I can always go back on to Letrozole like Donna has done later on, or go on nothing and take my chances (?). Right now it's nice to feel like me for the first time in 2.5 years.

I had my new knee installed on the 7th September. Counties sent me to a private hospital to have it done and for that I am eternally grateful. What a ride that has been though, the recovery is very difficult and long. I was literally bruised from my upper thigh to my foot for 3 weeks. I am 5 weeks out and the bruises have fadeed. I am still not allowed to drive (it's my right knee). But I am not on crutches anymore and can generally get myself out to do the grocery shopping - although it takes a long time and is exhausting. I started back at work 2 weeks post op because I simply couldn't take any more time off. Thank goodness I work from home which gives me some leeway, because in between physio at Middlemore and doing my exercises every hour it's a full time job in itself.



Anyway enough about me ....... how are you all doing? I have missed you.

SillyHeart


Dx 8/21/2014, ILC, Left, 6cm+, Stage IIIA, Grade 2, 9/12 nodes, ER+/PR+, HER2- Surgery 9/15/2014 Lymph node removal: Underarm/Axillary; Mastectomy: Left Chemotherapy 11/4/2014 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 3/16/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 4/7/2015 Aromasin (exemestane), Zoladex (goserelin) Surgery 8/14/2015 Prophylactic mastectomy: Right Surgery 1/20/2017 Prophylactic ovary removal
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Oct 16, 2017 08:33PM Optimist52 wrote:

Hi Nikki, great to see your post. The recovery from your knee surgery sounds really slow and difficult, I feel for you. Did the AIs contribute to your knee problem or was it arthritis? You may have said before but I've forgotten. How great to be on a letrozole holiday, I would love one! It's such a bummer that these medications have so many awful side effects. I'm on two BP medications now, luckily they don't seem to have SEs for me except a very mild cough at night. I've found a supplement containing Biotin for my hair, it may be helping a little.

I'm trying to do more walking, I enjoy it when I get out however all the wind lately puts me off. How is everyone else?

Second diagnosis PILC - Oncotype 22, isolated tumour cells in 2 nodes Dx 10/2003, ILC, Left, 1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 10/22/2003 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 1/2/2004 3DCRT: Breast Hormonal Therapy 3/2/2004 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 6/23/2015, ILC, Left, 4cm, Stage IIA, Grade 2, 0/9 nodes, ER+/PR+, HER2- Surgery 7/5/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left Hormonal Therapy 8/12/2015 Femara (letrozole)
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Nov 2, 2017 04:58PM Kruise wrote:

Hi - nice to hear you are recovering from your surgery Nikki. That bruise is still massive! But glad to hear you are doing ok. I hope you find tamoxifen a better option. Lovely you got to enjoy the private hospital setting for the Op. I hope the shopping side gets less exhausting...is it online Christmas shopping then this year 😀😫

Hi To you too Michelle - if I lived closer I'd go out walking with you! I have done a couple lately but need to make it a more regular thing. We had about 6days in a row of glorious hot summer weather so I was getting hopeful it was going to be a goody but back to wind and rain today. My Dad gave me his boat so my Hubby and I even got to take that out on the water last Saturday which I loved.

Hey to everyone else. Hope you are all going ok! x

Ps pic of Mana Island and South Island in the background at nearly sunset

Age at dx 44yrs. Had Annual mammograms past 9 yrs as Mum dx 45yrs but felt lump myself. Micromets 2mm in the two sentinel nodes. Treated as TNBC but weakly PR+. Medullary type. BRCA1 & 2 negative. Dx 1/7/2013, IDC, Left, 1cm, Stage IIA, Grade 3, 2/8 nodes, ER-/PR+, HER2- Surgery 2/4/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 2/20/2013 Lymph node removal: Left, Underarm/Axillary Chemotherapy 3/27/2013 AC + T (Taxol) Radiation Therapy 9/30/2013 Breast Hormonal Therapy 12/30/2013

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