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Topic: Kiwi ladies who need encouragment, but all welcome.

Forum: Australians and New Zealanders Affected by Breast Cancer — Australian health care, clinical trials, and life in general in the land down under.

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Posted on: May 27, 2012 10:10PM - edited May 27, 2012 10:12PM by midnight1327

Posted on: May 27, 2012 10:10PM - edited May 27, 2012 10:12PM by midnight1327

midnight1327 wrote:

I did start a thread for kiwi ladies, and another lady suggested we start one  in the community support. this is just  an encouraging and support thread for any kiwi and anybody who needs support, and bring kiwi women together, so  do feel free to join in.

Dx 8/12/2011, IDC, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- Surgery 8/30/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/9/2011 Breast Hormonal Therapy 11/22/2011
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Feb 17, 2014 02:36AM Kruise wrote:

hi Terre

Welcome to our Kiwi thread :-)

We might have crossed paths unbeknown to us at Wellington hospital last year. I felt like I lived there! So sorry to hear about your stage IV diagnosis - if you feel like sharing anything with us - we're here to give our support. Sounds like you are doing well so far at any rate - so hope that is the case (and for many, many years to come). 

Where abouts in the US were you from originally? Not that I know many areas - I lived in Lake Tahoe for a couple months and travelled to Reno and down through California but there is a whole lot more to see :-). Oh my partner and I did Hawaii last year too after my chemo finished. That was lovely. 

Anyway - no doubt the other lovely ladies here will say Hi shortly. 

Hope everyone is doing well.

K x

Age at dx 44yrs. Had Annual mammograms past 9 yrs as Mum dx 45yrs but felt lump myself. Micromets 2mm in the two sentinel nodes. Treated as TNBC but weakly PR+. Medullary type. BRCA1 & 2 negative. Dx 1/7/2013, IDC, Left, 1cm, Stage IIA, Grade 3, 2/8 nodes, ER-/PR+, HER2- Surgery 2/3/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 2/19/2013 Lymph node removal: Left, Underarm/Axillary Chemotherapy 3/26/2013 AC + T (Taxol) Radiation Therapy 9/29/2013 Breast Hormonal Therapy 12/29/2013
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Feb 17, 2014 11:24AM shazzakelly wrote:

hi Terre, 

I'm Stage 4 as well, was diagnosed in August on my birthday. So I guess I'll never forget the date. I'm up in Auckland but I think there are lots of us down your way.

I'm off to Taxol number 23 this morning so had better rattle my daggs. Just wanted to welcome you.

Oh and how many cats are you mother too? I'm a vet nurse and we have 3 permanent cats at home and often lots of foster kittens. Especially this time of the year SillyHeart

Dx 6/15/1999, IDC, Right, 1cm, Stage IIA, Grade 2, ER+/PR+, HER2- Chemotherapy 8/18/1999 CMF Radiation Therapy 9/29/1999 Whole breast: Breast, Lymph nodes Hormonal Therapy 1/30/2000 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/17/2007, IDC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2- Hormonal Therapy 4/28/2007 Zoladex (goserelin) Hormonal Therapy 4/1/2009 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 7/10/2013, IDC, 1cm, Stage IV, Grade 3, 7/9 nodes, mets, ER+/PR+, HER2- Chemotherapy 8/24/2013 Xeloda (capecitabine) Chemotherapy 9/16/2013 Taxol (paclitaxel)
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Feb 17, 2014 03:37PM Moiralf wrote:

HI Tere,

I'm 6 years out from stage 4 so veteran in some ways but reasonably new to doing chemos.

I'm in Dunedin now but spent 30 years in Palm nth after I got married.

Don't post here a lot but always read and keep up to date.

Welcome to the kiwi board.

Moira

Moiralf Dx 11/16/2007, IDC, 3cm, Stage IV, 9/13 nodes, mets, ER+/PR+, HER2-
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Feb 18, 2014 03:17AM Jennt28 wrote:

Hey Moira - I have to ask... You didn't spend your school years in Auckland did you? My best friend from intermediate had the same name as you :-)

Jenn

Jennt28 jennt28.wordpress.com/ - 3 x FEC, 11x weekly Taxol, 12 months Herceptin (end March 2013), 12 days rads (quit), BMX with recon, Tamoxifen Dx 12/1/2011, IDC, 2cm, Stage IIA, Grade 3, 1/2 nodes, ER+/PR+, HER2+ Surgery 12/6/2011 Lumpectomy: Right; Lymph node removal: Right, Sentinel Hormonal Therapy 8/1/2012 Surgery 9/27/2012 Lymph node removal: Right, Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Surgery 1/27/2014 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction Hormonal Therapy 3/9/2014 Femara (letrozole)
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Feb 18, 2014 04:43AM Moiralf wrote:

Hi Jenn,

Sorry, went to school in Balclutha,, South Otago. Many many years ago.

Funny how that often happens in a small country like NZ.

Moira

Moiralf Dx 11/16/2007, IDC, 3cm, Stage IV, 9/13 nodes, mets, ER+/PR+, HER2-
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Feb 18, 2014 05:48AM - edited Feb 18, 2014 05:49AM by midnight1327

Hi  tere, welcome to the thread. you have cats too, yea we got a few. We in  Palmerston North,  about an hour and twenty from you. Nice to seeyou  on the boards, not nice  that  you are stage 1V.

Shazza, hey just reading you are a vet nurse,  we have a cat that is pure white, i just noticed tht her ears are getting sunburnt and one has a very tiny burn on it, do the vets have a sun  cream that you can put on the ears or does the normal chemist stuff  do the trick that we can use. we need to do something fast as she will have a nasty mess.  yes we have a few cats. i luv em.  hugs annette.

Dx 8/12/2011, IDC, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- Surgery 8/30/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/9/2011 Breast Hormonal Therapy 11/22/2011
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Feb 18, 2014 04:24PM shazzakelly wrote:

hi, Midnight. Yes you can get sun screen for animals at the vets. We sell one called filta cream but there are several out there. Unfortunately white cats are very prone to skin cancer on there ears and nose so keep an eye on that. 

Dx 6/15/1999, IDC, Right, 1cm, Stage IIA, Grade 2, ER+/PR+, HER2- Chemotherapy 8/18/1999 CMF Radiation Therapy 9/29/1999 Whole breast: Breast, Lymph nodes Hormonal Therapy 1/30/2000 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/17/2007, IDC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2- Hormonal Therapy 4/28/2007 Zoladex (goserelin) Hormonal Therapy 4/1/2009 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 7/10/2013, IDC, 1cm, Stage IV, Grade 3, 7/9 nodes, mets, ER+/PR+, HER2- Chemotherapy 8/24/2013 Xeloda (capecitabine) Chemotherapy 9/16/2013 Taxol (paclitaxel)
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Feb 18, 2014 04:42PM - edited Feb 18, 2014 04:45PM by midnight1327

Thanks Shazza. hubby called around and got one this morning called filta clear from aniwell, now i have to find missie, she hopefully around close, she not keen about her face been touched and always squirms and backs  up and wriggles around, we have two white ones, but bubba sleeps in shaded areas.  and missie likes the hot sun. i shall get tiger to, as he has dryish looking  tips on his ears and a white nose, he is a  ginger boy, ( lol fatty) man he can eat. thankyou for that Shaz

Dx 8/12/2011, IDC, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- Surgery 8/30/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/9/2011 Breast Hormonal Therapy 11/22/2011
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Feb 23, 2014 03:08PM kiwikid wrote:

hi everyone

Well its been ages since I've been on here and I've just gotten up to date with all of your posts. Welcome to the new girls!

Ange there was something I wanted to tell you but I've now forgotten it (chemo brain).

Re bras... I found that the ambra brand which they sell at farmers were the softest of all the sports bra type. It is quite wide under the armpits and has a racer back with thin straps. There are no pressure points which is good for me as I have very sensitive ribs.

Re tamoxifen side effects... I have been on it almost a year and in the last few months I have stacked on the weight. In September last year I was diagnosed with a dvt in my left arm which they think they can attribute to surgery in April and tamoxifen. Hmmm. I now inject myself daily with clexane, a blood thinner, to help the clot resolve. I feared they would take me off tamoxifen but that has not been the case. The benefits of tamoxifen are greater than the risk of clotting, so they say.

I hope you are all feeling good and loving this weather.

Xx Holly

Age 34 Dx 11/14/2012, IDC, 1cm, Stage IB, Grade 1, 1/4 nodes, ER+/PR+, HER2- Surgery 11/21/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Chemotherapy 12/29/2012 AC Hormonal Therapy 3/25/2013 Surgery 4/14/2013 Mastectomy: Left; Reconstruction (left)
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Feb 25, 2014 03:12AM - edited Feb 25, 2014 03:20AM by Angstapp

This Post was deleted by Angstapp.
Dx 4/10/2013, IDC, 2cm, Stage IIA, Grade 3, 0/19 nodes, ER-/PR-, HER2- Surgery 5/5/2013 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Free TRAM flap Chemotherapy 6/11/2013 Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)

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