Topic: Kiwi ladies who need encouragment, but all welcome.

Forum: Australians and New Zealanders Affected by Breast Cancer — Australian health care, clinical trials, and life in general in the land down under.

Posted on: May 27, 2012 10:10PM - edited May 27, 2012 10:12PM by midnight1327

Posted on: May 27, 2012 10:10PM - edited May 27, 2012 10:12PM by midnight1327

midnight1327 wrote:

I did start a thread for kiwi ladies, and another lady suggested we start one  in the community support. this is just  an encouraging and support thread for any kiwi and anybody who needs support, and bring kiwi women together, so  do feel free to join in.

Dx 8/12/2011, IDC, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- Surgery 8/30/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/9/2011 Breast Hormonal Therapy 11/22/2011
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May 29, 2012 03:44PM - edited May 29, 2012 03:55PM by midnight1327

That is cool news, yea i think we are united in our illnesses, we can be as a united group in here, thanks for doing that Trisha Ann. I love you ladies over there, i am hoping alot of kiwi women join, because i think and i am.  are quite reserved,  but they have an avenue and a support team between us all. according to stats, for a small country like ours here, seven women every day are diagnosed with BC, quite alot really.  I was actally quite blase about  when i was having my mamo,  i wont get that, attitude, and when they rang up and said, hey they had found something concerning, i had to get to reality pretty quick. I was more concerned about cervical cancer as i had problemd with polyups,  but breast cancer, no.  my great grandmother died of it at 52 many years ago, they did not have what we have today mamos etc, more a less on their own, so you never know and  as i was told further down the track. if i dd not do that mamogram, i would of been terminal by Christmas just gone, even tho tumour was  only 1.4cm, it was particuarly nasty, AT first i actually rang up about my pills enquiring whu they had been decreased and nurse asked me if i had followed up on mamo and no i had not, so with a big nudge, i did it and it paid off and she saved my life really as knowing me i would of put it off.  excuse the big story line, but that is how it was.  mamos do save you if done  early.

Dx 8/12/2011, IDC, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- Surgery 8/30/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/9/2011 Breast Hormonal Therapy 11/22/2011
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May 29, 2012 04:26PM kt1966 wrote:

Neat to see a specifically Australasian area!

I wonder how many kiwis (and Aussies) are aware of BCO? I know I only found it 8 years after my diagnosis when I was looking for answers about tumour markers as mine were going up. I'm glad I found it because its a great place to find info and support.

Midnight, your cat looks a lot like my older (12yrs) one- he has just a little less white on his front. Our new kitten is another ginga, but a mellow colour (not bright orange, not that the other one is...) with no white.

Looking forward to the long weekend, nice for the kids to have an extra day too :) 

Age at Diagnosis: 37 Dx 12/11/2003, ILC, 4cm, Stage IIIA, Grade 2, 4/10 nodes, ER+/PR+, HER2- Surgery 12/15/2003 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 2/24/2004 AC Hormonal Therapy 5/19/2004 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/25/2004 Hormonal Therapy 7/3/2011 Femara (letrozole), Zoladex (goserelin) Surgery 10/7/2013 Prophylactic mastectomy: Left Dx 7/9/2014, ILC, Stage IV, metastasized to bone/lungs, Grade 2, mets, ER+/PR+ Chemotherapy 7/14/2014 Xeloda (capecitabine) Chemotherapy 6/16/2015 Taxol (paclitaxel) Dx 7/8/2016, Stage IV, metastasized to brain/liver Radiation Therapy 7/18/2016 External: Brain Chemotherapy 8/29/2016 Navelbine (vinorelbine) Chemotherapy 10/18/2016 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex)
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May 29, 2012 05:01PM midnight1327 wrote:

No have not heard of that, interesting. i will check that out at some point.  that cat is named Sparky. he was actually dumped one easter weekend at last place we lived in. gorgeous little kitten and he is verbal, like he answers you back lol. and he  has got so fat, i think he goes to his  mates next door and flogs their food and then comes back eats here, Hubby says, typical teenagers, eat and sleep and  bugger off all day with his mates lol. he is lovely and fluffy and a god neck warmer if he stays put.  good to  c u

Dx 8/12/2011, IDC, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- Surgery 8/30/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/9/2011 Breast Hormonal Therapy 11/22/2011
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May 29, 2012 11:31PM Hils wrote:

Great to see we have finally got an Australasian thread even if we have not quite got the name we want yet. I came across BCO by accident but have found the information, encouragement and support brilliant. Without this forum I think I would have lost the plot over the last nine months. Great idea Midnight and hello to all of you 

Hils SNB and Partial MX 16th Dec 2011; UMX 6th Mar 2012 found <1cm IDC as well as the DCIS Dx 11/26/2011, DCIS, 6cm+, Stage 0, Grade 3, 0/3 nodes, ER+/PR+, HER2- Dx 2/16/2012, IDC, <1cm, Stage I, Grade 1, 0/0 nodes, ER+/PR+, HER2-
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May 29, 2012 11:46PM chrissyb wrote:

Hi Midnight!  Just thought I'd pop in and offer my encouragement to all.

Love n hugs.  Chrissy 

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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May 29, 2012 11:50PM Linda1966 wrote:

Hi all. Hils, the name was fixed a while ago. Its now the Australian and New Zealand Breast Cancer Survivors forum which is pretty sweet.

Dx 12/4/2008, DCIS, 6cm+, Stage 0, Grade 3, 1/18 nodes, ER+/PR-, HER2- Dx 12/4/2008, IDC, 1cm, Stage IB, Grade 2, 1/18 nodes, ER+/PR-, HER2- Surgery 12/14/2008 Lymph node removal: Left, Sentinel; Mastectomy: Left Surgery 12/18/2008 Lymph node removal: Left, Underarm/Axillary Chemotherapy 1/18/2009 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Hormonal Therapy 8/9/2009 Arimidex (anastrozole)
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May 30, 2012 12:04AM Hils wrote:

Hi Lyndal - sorry my statement re the name came from a previous post and I did not check the actual name of the group, long day at work thats my excuse ;) Great to see that we have a place to hang our hats, which is excellent

Hils SNB and Partial MX 16th Dec 2011; UMX 6th Mar 2012 found <1cm IDC as well as the DCIS Dx 11/26/2011, DCIS, 6cm+, Stage 0, Grade 3, 0/3 nodes, ER+/PR+, HER2- Dx 2/16/2012, IDC, <1cm, Stage I, Grade 1, 0/0 nodes, ER+/PR+, HER2-
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May 30, 2012 01:43AM midnight1327 wrote:

chrissy you come and join us when ever you want, lovely to see you, cheers.

Dx 8/12/2011, IDC, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- Surgery 8/30/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/9/2011 Breast Hormonal Therapy 11/22/2011
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May 30, 2012 02:41AM KiwiMum wrote:

Hi ladies
Another Kiwi here - based in Auckland. I'm just over a Year past diagnosis and surgery. I was a few weeks past my 40th when diagnosed.

I've had MX, 16 rounds of chemo, 25 x rads and finished up in Dec 2011. It's now 5 years of Tamox for me.

I've found BCO a great source of information and made some great US based friends.

It's nice to have a place for us ladies on this side of the world.

Nice to meet you all.

Dx 3/2/2011, IDC, 2cm, Stage IIIC, Grade 2, 12/24 nodes, ER+/PR+, HER2- Surgery 3/13/2011 Lymph node removal: Right; Mastectomy: Right Chemotherapy 4/18/2011 AC + T (Taxol) Radiation Therapy 10/24/2011 Breast, Lymph nodes Hormonal Therapy 10/31/2011 Surgery 1/31/2013 Reconstruction (right): DIEP flap Surgery 6/30/2013 Reconstruction (right): Nipple reconstruction Hormonal Therapy 10/16/2014 Aromasin (exemestane) Surgery Prophylactic ovary removal
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May 30, 2012 01:23PM Alyson wrote:

Great to see Kiwis finding this place.

I am in Auckland as well. Must get dressed as there is an invasion of family today and we are off the  Featherston tomorrow for a family wedding. It is also my sister's birthday tomorrow so must organise something for lunch today. This sister lives with us - difficult at times, well her family are but that's a long story.

Kiwi we have similar Dx I see. 

Big hugs especially to those still in treatment.

 

Here we go again. Dx 12/19/2006, IDC, 3cm, Stage IIIC, Grade 2, 23/24 nodes, ER+/PR+, HER2- Surgery 1/18/2007 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 2/22/2007 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxol (paclitaxel) Hormonal Therapy 8/9/2007 Femara (letrozole) Radiation Therapy 8/9/2007

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