Topic: Kiwi ladies who need encouragment, but all welcome.

May 31, 2012 07:47PM - edited May 31, 2012 10:19PM by midnight1327

Jun 4, 2012 06:20AM Kiakaha wrote:

Hi kt1966 the second Zometa for me had hardley any side effects. The first was very simalar to your experience. Drunk heaps of water the days leading up to the infusion and took some Panadol just before, seemed to do the trick. Good luck this time :)
Just moved into a new/old house for a fresh start down here in chch. Love it........ It's going to be a cold week :)

Jun 4, 2012 07:01PM Hils wrote:

Hope the new house Kiakaha is a warm one as the cold snap is going to be snapping at our heals this week (Brrrrrrr). Hope the treatments you are all having goes smoothly and that the weather in the GC is warm and sunny for you Kate. Had a brilliant time in Rotovegas ans I thought I would share the sunshine with you all

Jun 8, 2012 06:53AM Rainenz wrote:

Hi All

I have just found this section of the forum. I am just coming up to 6 years from my 2nd dx and am finally getting myself sorted after having a disasterous time when my bi-lateral reconstructions failed competely 2 years ago. It will be nice to get to know some ladies closer to home. I'm in Palmy Nth

Jun 9, 2012 12:43AM midnight1327 wrote:

Hi Rae, thought i would come back and have a look and see if anybody had posted on the site. This is a forum for us Kiwis and Australian ladies combind. I go on to their australian sisters one and they are a lovely bunch to talk to and very knowlegable and very supportive. so feel free to come and talkk to us all. A few of the girls got the moderators to give us a seperate forum for us down here, Australian and NZ.  I am from  Palmy North too, so we in the same town. hope to see you back soon.

Jun 10, 2012 05:05AM Kiakaha wrote:

Thanks everyone, the house is going great apart from a leak...... The snow was lovely and the kids had heaps of fun.... Really magic watching the snow through the window in front of the fire :) kt966 good luck with the zometa, hope it goes ok. Hi Rowan47, what part of chch do u live in. Hope your home is ok. Maybe we should catch up for a coffee .
Take care everyone xx

Jun 11, 2012 12:23AM Rainenz wrote:

Got the phone call I have been waiting for.  I go in next tue for reconstruction round 2 on Wed. I will be having a Lat dorsi this time and only getting one side done at a time.  I am really excited to be finally getting this done but very nervious and anxous at the same time after all the problems last time. So please say a prayer for me and keep fingers crossed all goes to plan this time.

Jun 11, 2012 12:28AM Hils wrote:

Rainenz will be thinking of you for next Tuesday, will definately be hoping that everything goes smoothly for you. Big hugs

Jun 13, 2012 06:36PM kt1966 wrote:

Hi girls,

Not too much going on here! Hope your recon goes well next week Rainenz. I admire you for doing it- I'm too wussy. (I do hate being lop-sided tho)

I hope everyone is keeping warm. Its cold enough up here in the northern bit of the NI! We had a frost, brrr- I can't imagine snow- our houses are too cold!

I had a lovely time in Aus with my hubby. Shame the weather wasn't better, so much for winter sun, it was overcast, cool & showery. Better luck next time hopefully. Anyways have a good day  wherever you are

Jun 13, 2012 09:09PM midnight1327 wrote:

Hope you are ok Rae. hope everything went smoothly, Take care. XXX

Jun 14, 2012 12:35AM Hils wrote:

Hope the bowel scan for your sister Alyson went well

Visited my BS today and got a pleasant surprise, was expecting my last fill of my TE and then a possible date for exchange. It transpires that when they popped in my TE they gave me a Silicon / saline one (news to me 3 months after the op) and they do not have to remove it, all they have to do is remove the detachable port. Still need an op and as my port has been problematic to find they will do the final fill at the same time as the op.

Was offered a nipple reconstruction and a lift to my droopy foob to match my perky foob. But have to say the negatives out way the positives. Plus I dont think I will be doing any nude modelling etc in the near future so who cares, in clothes no one is the wiser.

Hope everyone stays warm over these next few chilly days

Jun 14, 2012 06:14PM - edited Jun 14, 2012 06:15PM by kt1966

Hey Musical. Did you have to go private to get your prophy mastectomy? I'd really quite like to do that too, but any time I mention it, its like 'you don't need to do that...'. Actually, it would be nice to be flat & not worry about whats going on in the remaining breast (my last BC didn't show on mammo).

Alyson, hope your sister's appointment went well.

I'm sitting here with our kitten on my lap, sound asleep for once- not racing around being a loon- and there is so much to do but she's so warm I don't want to move!

I think I'm a bit tired- it was a race to get the kids to school because I didn't wake up till 7:50, the alarm was too quiet! 

(edited for spelling) 

Jun 14, 2012 07:42PM kt1966 wrote:

Hils, just read your post- sounds like the op will be less invasive at least. Are you happy with the results? When is that last fill?

I have actually moved and done some work- haven't been sitting here all this time! But I like to pop back between jobs if I'm at home to check the  forum (does that make it an addiction?).

Have fun rounding up sheep midnight, sounds like good fresh air and exercise. I've got to drench the sheep & goats today- but we only have 2 of each, so not a hard job- the goats are easy, the sheep not so much. 

Have a good day all. 

Jun 14, 2012 08:52PM Musical wrote:

Just got back from town, Im checking in.

Hi kt, no I didnt have to go private. I had Prophy 11 months after the cancer side, which was almost 3 years ago. I'd tried various things, like the prosthesis, which did weigh a lot and I found the bras just dig into my shoulder which was REALLY aggravating. Also I didnt like the deep itching and stuff going on deep within my shoulder from the surgery and bras digging in making it worse. Even now my shoulder is still partially numb along with areas under arm and with some woman this can continue for the rest of our lives. Then I starting feeling lumpiness going on in my 'good' side and I thought blow this. I really dont want to do mammograms again and again, I dont want the back ache and the constant dramas.  After weighing it all up I dont have one bit of regret. Just remember with cancer, every choice you have to make is ALWAYS without fail, the lesser of 2 evils, doesnt matter what you do. 

I think every woman should be given the right to to make her own decision about this. The only caution I would give is that as long as she thinks it through very carefully. Once its gone its gone. So the things I took into account was how my hubby felt, how old Iam, how big I am, how much drama its going to cause if I do keep it, including but not limited to the chance of a new primary. Going from memory ( I might be wrong) I dont think you get mets in opposite side. Also your staging and what other measures (treatments) youve taken all come into it. Indeed you can see why its very much a personal decision with all the variables.

All that said, when I did my thinking and made my decision, I put it to my surgeon. When I did, I was very definite in what I wanted and there was absolutely NO wavering. I showed him my note book describing the pros and cons. Now, all this aside, I know a lot can change just in a matter of a couple of years. It could be in your situ that they have too much of a waiting list I dont know. It would be interesting to find out thats for sure. So, if youve really thought this through, and decided its right for you, then I would press my case. Anyway, who is it thats telling you "you dont need to do this" how  do they know?

I was the same kt, in that I had a mammo around 1 month before I found my lump which was extremely deep and more to the center of my chest. It didnt show on Mamm.

The good part for me is I've always liked to sometimes lie on my tummy and its no probs now whereas B4 it would hurt. I just love the fact I dont have the same weight to carry around. Its quite an 'adventure' discovering what are good options for foobies and what suits you. It can be quite a challenge for some woman, again, every ones different, so this needs thought as well. If you are ther type that is really particular about how they feel and look, then that adventure has a few more challenges. Theres a great forum that deals with all this and theres heaps of choices and ideas. I think this is the one below.

Living Without Reconstruction After a Mastectomy

Hey is that a goat in your pik with the horse. We really like goats, they are sooooo so naughty  but have personality plus. Had one for years and talk about get some laughs! 

 Hi midnite,  Yes it is good to see all the info here, and theres much that is very interesting from a research point of view, that is significant for everybody. On the other hand,  just like other countries have their own 'flavour' I reckon that us girls and guys downunder have our own unique flavour as well. Things like language nuances and suchlike. Ive found it quite challenging sometimes to 'get' what some girls are talking about because of these differences. As such, I find our own area is a good thing.

 Musical

Jun 15, 2012 01:15AM midnight1327 wrote:

Just got back home after chasing those DAM sheep, the little buggers found every flaming loop hole to take off across the paddock and out from where they were supposed to be going, my hubby is hoarse and i am sore as i tripped over a few times over on uneven ground and am very glad i had fifty acreas of paddock to swear in and nobody could have me up for bad language. they  were so naughty, ten of them decided to be a pain in the A, my ribs ache and so does  my back. We finally got them into yards for  there crutching tomorrow and in three weeks guess where they off to, YEP,  the works. there is about 180 and only ten of them decided they were not going to oblidge and  man i am so over this sheep chasing bussiness. i am now warming up and will have a hot drink. have a good weekend everybody.