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Topic: Has anyone here had a disasterous reconstruction?

Forum: Australians and New Zealanders Affected by Breast Cancer —

Australian health care, clinical trials, and life in general in the land down under.

Posted on: Apr 8, 2016 12:05AM

didevro wrote:

I'm wondering if anyone has had similar experiences to me. I had a double mastectomy 3 years ago, after finding that I had breast cancer again, for the third unrelated time. I was offered an immediate reconstruction with implants on both sides. I hadn't given much thought to having reconstruction at the time, but expected that they knew what they were doing. It was decided that, because I had no pec major muscle on my right side, and had previous quadrectomy, that a latimus dorsi flap would be performed, as well as an implant, on that side. It was decided to reduce the size of the left, which had a previous lumpectomy, to match the right side. As soon as I saw my ''reconstructions" I was shocked. It was quite obviously a complete mess even straight after surgery.

Now, three years down the track, things are much worse because I have capsular contraction on both sides. My chest looks unbelievably hideous, and when I show people, they are shocked. And I'm suffering pain. I have read that the risk of capsular contraction is much higher in radiated breasts with implants, and both mine have had radiation. I'm now hoping for double deip flap surgery to give me some semblance of breasts, but I cannot afford to have it done privately, so I'm having to wait on the public hospital list. So sick of it all.

3 unrelated breast cancers in 17 years. Dx 4/1996, IDC/IDC: Tubular, Right, 4cm, Stage IIA, Grade 2, 0/19 nodes, ER+/PR-, HER2- Surgery 5/8/1996 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Radiation Therapy 6/30/1996 Whole-breast: Breast, Lymph nodes Surgery 1/31/2008 Lumpectomy: Left; Lymph node removal: Left, Sentinel Dx 2/2008, IDC, Left, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR-, HER2- Radiation Therapy 2/29/2008 Whole-breast: Breast Dx 1/9/2013, IDC, Right, 2cm, Stage IIA, Grade 2, ER+/PR-, HER2- Surgery 3/6/2013 Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Saline implant; Reconstruction (right): Latissimus dorsi flap, Saline implant Dx 3/7/2013, IDC, Right, 3cm, Stage IIA, Grade 2, ER+/PR-, HER2- Dx 3/7/2013, IDC, Right, 1cm, Stage IIA, Grade 2, ER+/PR-, HER2- Chemotherapy 4/14/2013 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Hormonal Therapy 9/30/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 14, 2017 08:41AM Mona-01Australia wrote:

Hi Didevro,

I had a double prophylactic mastectomy using the Diep method in May2015 and it has been nothing but a mess from the word go. I am having a seventh surgery on the 20/04/17 to try and get some reasonable outcome , I wish i had chosen to have implants from the start if I had known what the outcome of failed diep surgery would have been. not only do I have two different shaped breasts one with implant that is hard as a rock but i also have my belly button not centered and my stomach which is still numb and bloated after nearly two years. My clothes dont fit around my stomach which is constantly uncomfortable. I feel that i have been let down by the surgeons and if this next surgery is not successful i dont know if I will pursue any further treatment.Disaterous well yes i would call mine that.

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