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Topic: finding bone mets

Forum: Australians and New Zealanders Affected by Breast Cancer —

Australian health care, clinical trials, and life in general in the land down under.

Posted on: Oct 5, 2017 03:24PM

pammiegr wrote:


I have just had a bone scan which didn't show any mets. I am wondering if I should push for an MRI. Is there anyone out there who has mets which didn't show up in a bone scan but did in MRI or other scan. I'm five years on from a grade three triple negative, which was a second cancer in the same breast. I have lower back pain which could be from the gym or could be from sudden loss of estrogen from ovaries removal or could be just a bad back. thanks in advance for any replies.

Dx 1993, 1cm node negative, lumpectomy, radiation. 2011 1cm triple negative same breast, mastectomy, pedicle tram flap recon.
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Oct 5, 2017 10:09PM Sandseasun wrote:

Hi Pammiegr

My bone mets were very clear on my bone scan. I take it that you had a tracer injected when you had your scan....? I understand your concern given the stories we read of undiagnosed mets.

Interestingly, when I had an MRI a few months after my bone mets dx (for other mets), the clarity of the bone mets was very similar to those identified in the tracer bone scan.

Reassurance and elimination of all possibilities is extremely important when one has endured any form of cancer. One can never be too 'careful'. I am fortunate to have an excellent GP who was and is super cautious and continues to test for everything. I hope you have diligent health carers.

My best wishes


Jane Dx 9/30/2011, ILC, Left, 5cm, Stage IIB, Grade 2, 14/28 nodes, ER+/PR+, HER2- Surgery 10/20/2011 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 11/27/2011 AC + T (Taxotere) Dx 11/28/2016, ILC, Stage IV, metastasized to bone/other Dx 3/20/2017, ILC, Stage IV, metastasized to other Chemotherapy 3/29/2017 Abraxane (albumin-bound or nab-paclitaxel) Hormonal Therapy 1/15/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 2/26/2018 Xeloda (capecitabine) Radiation Therapy Whole-breast: Breast, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Oct 29, 2017 02:56AM Leapfrog wrote:

Hi Pammiegr my bone mets showed up loud and clear on the two bone scans I've had. Have you discussed this with your oncologist?

Find your joy Dx 10/15/2016, ILC/IDC, Both breasts, 6cm+, Stage IV, metastasized to bone, Grade 3, 29/29 nodes, ER+/PR+, HER2- (IHC) Surgery 11/1/2016 Mastectomy: Left, Right Hormonal Therapy 12/10/2016 Femara (letrozole) Targeted Therapy 1/15/2017 Ibrance (palbociclib)
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Oct 29, 2017 07:54PM Falconer wrote:

I'm in the US, but I'm jumping on this thread to say thanks to Leapfrog and Jane for your replies. I had a bone scan last month for neck pain and a possible hemangioma (which is a benign tumor). The scan confirmed the hemangioma and plenty of arthritis. Like Pammie, I too find myself questioning the results. So thank you for clarifying. Much appreciated!
Strong is the new strong. Dx at 45. Onco 16. Monthly Lupron shots Nov. 2016-December 2017 Dx 7/2016, IDC, Left, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 7/2016, DCIS, Left, 5cm, Stage 0, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 5/30/2017 Reconstruction (left): DIEP flap Surgery Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Aromasin (exemestane), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 30, 2017 07:20PM kiwi322 wrote:

Thanks and sorry to hear you have mets Leapfrog. I'm just going to wait for three months and see if the pain gets worse. NZ does have a problem with late diagnosis of cancer and Australia seems to be a lot better so I was probably thinking too much about scans. A friend was diagnosed with secondaries in his bones from stomach cancer only when he became nearly paralysed and had been turned away from the hospital in Wellington several times without getting useful scans. He's written a book about it and is doing well despite the late diagnosis.

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Oct 30, 2017 07:33PM kiwi322 wrote:

Thanks. This is pammiegr but the replies might be turning up as kiwi33. Not sure. Reassuring to know. Sorry to hear about the people who have mets. I had the tracer thing and theat seemed to spot that one of my shoulders is stuffed but no mets. I might have done that by going to the gym like a crazy person to try to stave off more breast cancer and to try to reduce my weight because the plastic surgeons won't do anything for me in the public system because of my BMI. The bone scan obviously shows things. Interestingly when I was in the private health system in Wellington I was sent straight off for a CT/PET scan at the time of my second diagnosis and never had a bone scan. It was quite expensive because my insurance only covered half the cost and they are a $2000 plus scan. I have since been told in public hospitals in Wellington they only order about five CT/PET scans for women with breast cancer a year. I've also been told PET scans are not that useful for most breast cancers. So I couldn't work out if the doctors in private were essentially upselling to the more expensive scan or not or of public are under-doing it by only offering bone scans.

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