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Topic: Anybody from Belgium?

Forum: International, Non-English Speakers With Breast Cancer —

From our neighbors near and far whose first language isn't English.

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Posted on: Nov 30, 2015 02:01PM

Konakona wrote:

moving to brussels soon, I need to find an oncologis

Dx 11/24/2015, DCIS/IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Surgery 12/17/2015 Mastectomy: Left
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Nov 22, 2017 08:47AM Yaelle wrote:

I am ... but I suppose you found an oncologist by now :-)


Vivre ce n'est pas attendre que l'orage passe, c'est apprendre à danser sous la pluie. Dx 4/17/2015, IDC, Left, 6cm+, Stage IIA, Grade 3, 2/8 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 5/15/2015 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxol (paclitaxel) Surgery 11/18/2015 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 12/27/2015 Whole-breast: Breast Hormonal Therapy 3/4/2016 Femara (letrozole) Dx 10/27/2016, IDC, Left, 6cm+, Stage IV, metastasized to other, Grade 3, ER+/PR+, HER2- (FISH) Surgery 12/1/2016 Radiation Therapy 12/22/2016 External Hormonal Therapy 2/13/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 6/12/2017 Afinitor (everolimus) Hormonal Therapy 11/8/2017 Faslodex (fulvestrant) Targeted Therapy 12/17/2017 Ibrance (palbociclib) Chemotherapy 3/28/2018 Xeloda (capecitabine) Dx 5/26/2018, IDC, Both breasts, Stage IV, metastasized to other, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 6/5/2018 Halaven (eribulin) Chemotherapy 10/29/2018 Other Radiation Therapy 10/29/2018 Breast, Lymph nodes, Chest wall Chemotherapy 4/3/2019 Carboplatin (Paraplatin) Immunotherapy 6/19/2019
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Sep 13, 2020 04:07AM - edited Sep 13, 2020 04:11AM by Mountainlover

Bumping this in case any Belgium-based ladies were on the boards these days

Dx at 47, IDC/DCIS, tubular, multifocal Dx 6/10/2020, DCIS, Left, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/10/2020, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/13/2020 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 7/23/2020 Femara (letrozole)
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Nov 27, 2020 11:00AM - edited Nov 27, 2020 11:01AM by Konakona

Hi, I am in Brussel

Dx 11/24/2015, DCIS/IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Surgery 12/17/2015 Mastectomy: Left
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Nov 28, 2020 06:46AM Mountainlover wrote:

Hi, so am I. I see your treatment ended some time ago, but maybe we can "compare notes" if you like at some point. I found the Belgian approach to breast cancer surgery/treatment a bit hard to swallow at first, but I think I've found my niche now , fingers crossed.

Hope you're doing well in this Covid craziness! Best wishes

Dx at 47, IDC/DCIS, tubular, multifocal Dx 6/10/2020, DCIS, Left, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/10/2020, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/13/2020 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 7/23/2020 Femara (letrozole)
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Nov 28, 2020 03:21PM - edited Nov 28, 2020 03:26PM by Konakona

Hi, I am 5 years from diagnosis Chemo, Herceptin, double mastectomy and ovary removal.I am taking Aromasin with a few side effects by so far I can tollerate it.

It has been a crazy ride, a lot of complications with reconstruction surgeries but I am done, at least for now.


Dx 11/24/2015, DCIS/IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Surgery 12/17/2015 Mastectomy: Left
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Nov 30, 2020 07:06AM Mountainlover wrote:

Thanks for your reply! Did you have implant reconstruction by any chance? I am now with TE waiting for hospitals to "reopen" so as to complete reconstruction , but the approach used in my case seems to differ from what I've read in these boards and also from the usual approach in Italy. so I'd be curious to know about your experience (pre-pec / sub-pec, alloderm? Fat grafting? Before during or after exchange?).

I'm sorry you had complications but glad to hear that it's past for you !

Dx at 47, IDC/DCIS, tubular, multifocal Dx 6/10/2020, DCIS, Left, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/10/2020, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/13/2020 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 7/23/2020 Femara (letrozole)
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Nov 30, 2020 12:18PM Konakona wrote:

Yes, I had reconstruction with implants, sub-pec, fat grafting after exchange on one side.

I also tried the nipple reconstruction but it didn’t work, I’ll go for the nipple tattoo at some point.

What are they recommending in your case


Dx 11/24/2015, DCIS/IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Surgery 12/17/2015 Mastectomy: Left
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Dec 1, 2020 02:06PM Mountainlover wrote:

I had skin and nipple sparing UMX in July, with pre-pec TE, no alloderm. The TE has tabs "sewn" on the pectoral muscle. The PS team told me there would be fat grafting first (originally planned for October/November, now... who knows) and a few months later the exchange, with more fat grafting. I had not realised there would be 2 fat grafting sessions until the 4th post-op visit, not a nice discovery as I hoped to be done soon! Plus I don't have much fat to being with. I would have preferred to go ahead with the exchange and then a few months down the line decide if fat grafting was really needed. Reading these boards and speaking with one of the PT at the hospital I understand this is not only about aesthetics but also to repair and vascularise the skin (I have thin skin). I wonder if they consider prior fat grafting necessary as they went pre-pec without alloderm? Anyway, this is all theory as I'm afraid I'll be stuck with this TE for a long time!

When nipple reconstruction was still on the table for me the PS told me they would "pinch" (and turn?) the skin to create a nipple and then tattoo the area some time later. Did they use this method with you? They said tattoo would be done at the hospital.

Dx at 47, IDC/DCIS, tubular, multifocal Dx 6/10/2020, DCIS, Left, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/10/2020, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/13/2020 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 7/23/2020 Femara (letrozole)
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Dec 4, 2020 12:21PM Konakona wrote:

Yes, that’s the technique used for my nipple reconstruction but you have to know there’s a possibility of the nipple going flat after the surgery, if you search the forum for “failed nipple reconstruction “ you will see it’s not uncommon.

One of mine went completely flat and the other one is almost flat also, actually I regret having this surgery, it was no worth it.

The tatoo is to recreate the areola

Fat grafting is tricky because a high percentage is reabsorbed by the body so it usually takes s few grafts to achieve the desired result.


Dx 11/24/2015, DCIS/IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Surgery 12/17/2015 Mastectomy: Left

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