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Topic: Multiple Sclerosis and Breast Cancer

Forum: Breast Cancer with Another Diagnosis or Comorbidity — Meet others who have breast cancer but also have another health diagnosis/comorbidity such as diabetes, MS, bipolar disorder, HIV or AIDS, Parkinson's Disorder, schizophrenia, etc.

Posted on: Jan 24, 2009 01:33PM

wackyjackie wrote:

Ladies,

My sister is 46 years old and has just been diagnosed with dcis.  She's still having tests...e.g. MRI.  I'm look for anyone who has input on having both breast cancer and ms, as she now does.  Does chemo interfere? Do you take meds for ms?  Any information at all would be helpfu.  Thank you.

Hugs, Jackie

Dx 5/25/2007, IDC, 3cm, Stage IIB, 3/13 nodes, ER+/PR+, HER2-
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Aug 11, 2013 07:31PM chef127 wrote:

FATIGUE.............It is the#1 common complaint for MS. I'm good in the a.m. but around 2:00 I'm done. I hope you soon get answers about your symptoms. and I hope it is NOT MS. There doesn't seem to be much the drs can do for you, only put you on DMT's, Disease Modifying Treatments, to 'hopefully' slow down the progression, or put you on steroids during a relapse. A few years ago my neuro said "there's nothing else we can do for you.See ya in 6 months. Not very reassuring.

Good luck on the 15th........Maureenxox

Dx 8/2011, IDC, Left, 4cm, Stage IIIB, Grade 2, 1/8 nodes, ER+/PR+, HER2- Radiation Therapy 1/3/2012 Breast
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Aug 12, 2013 01:04AM Beckers wrote:

Boring....haha! I can't even get my dang MRI results. Guess I need to call again tomorrow.

Diagnosed with bilateral or synchronous breast cancer Dx 3/2012, DCIS, <1cm, Stage 0, Grade 2, ER+/PR+ Dx 3/2012, IDC, 1cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 10/13/2012
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Aug 12, 2013 01:01PM chef127 wrote:

Hi Beckers,

You can obtain a copy of the written report of your MRI from the hospital or imaging facility when it becomes available. But you'll have to decipher it yourself before you see your neuro. I had to pick up my report and films before my appt. with the neuro.

Dx 8/2011, IDC, Left, 4cm, Stage IIIB, Grade 2, 1/8 nodes, ER+/PR+, HER2- Radiation Therapy 1/3/2012 Breast
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Aug 13, 2013 01:24AM Beckers wrote:

Chef, I just made an appointment for Thur am.

Diagnosed with bilateral or synchronous breast cancer Dx 3/2012, DCIS, <1cm, Stage 0, Grade 2, ER+/PR+ Dx 3/2012, IDC, 1cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 10/13/2012
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Aug 15, 2013 11:30PM Beckers wrote:

Saw my neuro. I too had a flair lesion show up. He said blood brain barrier stays open about 30 days. Crazy. Are you all on meds? He recommended a new one that costs $55,000 a year. That's NUTS!!!!!!!!!!

Diagnosed with bilateral or synchronous breast cancer Dx 3/2012, DCIS, <1cm, Stage 0, Grade 2, ER+/PR+ Dx 3/2012, IDC, 1cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 10/13/2012
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Aug 16, 2013 07:46AM chef127 wrote:

Beckers,

I take copaxone at 5000$ a month. When I first was on it 6-7 years ago it was 1200$ a month. I recently went to a talk from shared solutions on MS and heat intolerance and it was a bore, NO real answers. I did ask about the high cost of the drugs and she said "RESEARCH".......for what? a cure that would put Teva in a financial decline? It's all BS, IMO. Be careful, some of the drugs for MS 'control' are pretty scary. I'm contemplating going without and trying LDN.

Sorry about the active lesion. I had many over the years w/o any ill effects. til now.

Dx 8/2011, IDC, Left, 4cm, Stage IIIB, Grade 2, 1/8 nodes, ER+/PR+, HER2- Radiation Therapy 1/3/2012 Breast
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Aug 16, 2013 11:17PM Beckers wrote:

Honestly Chef I'm scared to go back on and I'm scared not to. It's been many years for me and I don't want to push my luck. (I took Avonex and Copaxone in the early years.) This new med is called Tecfidera and it's oral. He said instead of weakening immune system it's protects the cells.

Diagnosed with bilateral or synchronous breast cancer Dx 3/2012, DCIS, <1cm, Stage 0, Grade 2, ER+/PR+ Dx 3/2012, IDC, 1cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 10/13/2012
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Aug 16, 2013 11:18PM Beckers wrote:

Chef, What's LDN?

Diagnosed with bilateral or synchronous breast cancer Dx 3/2012, DCIS, <1cm, Stage 0, Grade 2, ER+/PR+ Dx 3/2012, IDC, 1cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 10/13/2012
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Aug 17, 2013 08:30AM chef127 wrote:

Hi Beckers,

LDN is Low Dose Naltrexone. It claims to be a "cure-all" for so many conditions. Many MS'ers swear by it on disease control and diminishing sysmptoms??? Many cancer patients also take the LDN. The cost is approx 50$ a month via a compounding pharmacy. Its controversial b/c there is little profit to drs and big pharma. I want the right to at least try it.

The s/e's and cost of MS drugs are outragous. Makes me feel that I am being taken advantage of. I have NO s/e's w the copaxone except injection site reactions, but the cost.........

Anyway, research the LDN. You'll learn more than I can tell you. Did you check the s/e's of the oral Ticfidora..OMG. FU. NO THANX.

Dx 8/2011, IDC, Left, 4cm, Stage IIIB, Grade 2, 1/8 nodes, ER+/PR+, HER2- Radiation Therapy 1/3/2012 Breast
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Aug 17, 2013 09:21AM chef127 wrote:

Beckers,

I'm really sorry. I don't want to influence for or against ANY of the MS treatments or impose my beliefs on the pharma industry on you. Do we really need such severe drugs?????????????maybe. IDK.Damned if we do and damned if we don't. That is the bottom line.

Maureen...xox

Dx 8/2011, IDC, Left, 4cm, Stage IIIB, Grade 2, 1/8 nodes, ER+/PR+, HER2- Radiation Therapy 1/3/2012 Breast
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Aug 17, 2013 01:55PM Beckers wrote:

No worries Maureen. I share your feelings. That is why it is such a quandary. Damned if we do and damned if we don't is right. Heavy sigh...

Diagnosed with bilateral or synchronous breast cancer Dx 3/2012, DCIS, <1cm, Stage 0, Grade 2, ER+/PR+ Dx 3/2012, IDC, 1cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 10/13/2012
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Aug 17, 2013 02:07PM Beckers wrote:

I'm curious. Do you ever wonder or weigh it out in your head....

Die of BC vs. Ending up totally jacked up by MS (like Annette Funacello)

Hmmmmm

Diagnosed with bilateral or synchronous breast cancer Dx 3/2012, DCIS, <1cm, Stage 0, Grade 2, ER+/PR+ Dx 3/2012, IDC, 1cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 10/13/2012
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Aug 17, 2013 03:16PM chef127 wrote:

Annette F. started out with PPMS, and seemed to end up in a wheelchair soon after we heard about her MS. I grew up with A.F. and the Mickey Mouse Club. M I C..KEY..MOUSE. I loved her. So I don't like to compare myself to her. I have had MS for a LOOOOONG time, I think, in hind sight, since my teen years?????? It has been pretty B9 til 4 years ago and if I was properly treated I don't think I'd have the perm damage?? I went to NYC yesterday to visit my son and we took a walk for coffee (he walked and I gimped) and I said I was ready for a scooter. He pointed out that I was getting excersize and if I started to use a scooter I'd never get up and walk?

BC, for me, has been an easy journey b/c I refused all the treatments xcept surgery and rads.If I get mets that I cannot control, well, gimmee opium and slowly put me out of my misery.

Now that the question is in front of me, MS or BC, I simply cannot predict the future. They both suck. But the MS has impacted my life a lot harder than BC.

AND......your thoughts?

XOX...MaureenFrown

Dx 8/2011, IDC, Left, 4cm, Stage IIIB, Grade 2, 1/8 nodes, ER+/PR+, HER2- Radiation Therapy 1/3/2012 Breast
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Aug 21, 2013 12:59AM Beckers wrote:

Maureen, i am afraid of being where you are when I cross over to SPMS. I have been quite fortunate thus far. We both know after year 15, things change for some. I too was thought to be B9 but it's picking up some speed. I just haven't had my socks knocked off in awhile. What do you mean by saying you weren't properly treated??

Diagnosed with bilateral or synchronous breast cancer Dx 3/2012, DCIS, <1cm, Stage 0, Grade 2, ER+/PR+ Dx 3/2012, IDC, 1cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 10/13/2012
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Aug 22, 2013 02:05PM chef127 wrote:

Beckers,

Please don't assume that you will cross over to SPMS. Many never do.

When I had my last attack I went to the ER, not thinking it was an MSrelapse. They were clueless. By the time I called my neuro it was "too late" for steroids to stop the attack. DENIAL, I guess. If you feel an attack, see your neuro FIRST.

Dx 8/2011, IDC, Left, 4cm, Stage IIIB, Grade 2, 1/8 nodes, ER+/PR+, HER2- Radiation Therapy 1/3/2012 Breast
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Aug 22, 2013 08:35PM Beckers wrote:

I see. I would do the same. After so many years you just. Get used to it. It's always like, BAM! when it rears it's ugly head. Catches me off guard every time. ha!

Diagnosed with bilateral or synchronous breast cancer Dx 3/2012, DCIS, <1cm, Stage 0, Grade 2, ER+/PR+ Dx 3/2012, IDC, 1cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 10/13/2012
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Aug 22, 2013 08:59PM chef127 wrote:

Beckers,

I never really had a relapse that interfered with my very busy and active life. Maybe I was SPMS all along?? And then like you said "BAM".........................MS SUX.

How are you handling the Tamoxifen?

Dx 8/2011, IDC, Left, 4cm, Stage IIIB, Grade 2, 1/8 nodes, ER+/PR+, HER2- Radiation Therapy 1/3/2012 Breast
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Aug 22, 2013 09:29PM Beckers wrote:

To be honest, I have had a hard time on Tami Chef. I only take 1/2 the dose and it is better. I am considering switching to an AI now. Planned to do 50/50. How about you?

Diagnosed with bilateral or synchronous breast cancer Dx 3/2012, DCIS, <1cm, Stage 0, Grade 2, ER+/PR+ Dx 3/2012, IDC, 1cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 10/13/2012
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Aug 23, 2013 07:34AM chef127 wrote:

S

Beckers,

I'm sorry the tamox is kicking your ass. I chose to keep my hormones in tact for as long as I survive this beast so NO AI's for me. Hormones and MS are related. Pregnant women w/ MS do better b/c of the hormone changes in the 3rd trimester. I need to research this more. Stats say I'm increasing my risk for BC recurance but I won't play with my hormone level, and possibly hurt my MS control??????????????????????? If I read anything relevent I'll post about it.

xox...Maureen

Dx 8/2011, IDC, Left, 4cm, Stage IIIB, Grade 2, 1/8 nodes, ER+/PR+, HER2- Radiation Therapy 1/3/2012 Breast
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Aug 23, 2013 10:24PM Beckers wrote:

Interestingly Chef, I had oopherectomy in 08 and then took Estriodol (HRT) but they made me stop immediately upon BC diagnosis because I had bilateral BC that is >95% ER + (go figure with no ovaries!) please do let me know what you find out. My onc mentioned Tami could flare up MS. See what yours says. Thanks!

Diagnosed with bilateral or synchronous breast cancer Dx 3/2012, DCIS, <1cm, Stage 0, Grade 2, ER+/PR+ Dx 3/2012, IDC, 1cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 10/13/2012
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Aug 23, 2013 10:51PM chef127 wrote:

When I had that attack I was starting perimeno and my hormones were going nuts (unbalanced) coincidence??? I believe they are related. Thats also when my breast lump started to change---cancer.

Estrogene has a way of producing in your body w/o overies. Its necessary for female health, Aderenal glands, body fat, especially belly fat, the food you eat, enviornment, etc. Some good estro, some bad. Tamox has a different mechanism of action, it binds to the recepters acting like estro so the estro doesn't enter the receptors...something like that? The AI's kill off the estro.

I saw my neuro yesterday and he said hormones ARE related to MS, but he had no answer to why or how. He needs to do some research on the subject to catch up. Its called continuing education. idiot.lazy. I guess he feels that 4years of med school is enough.

Dx 8/2011, IDC, Left, 4cm, Stage IIIB, Grade 2, 1/8 nodes, ER+/PR+, HER2- Radiation Therapy 1/3/2012 Breast
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Aug 23, 2013 11:51PM Beckers wrote:

www.ncbi.nlm.nih.gov/pubmed/19...

Interesting article.

Diagnosed with bilateral or synchronous breast cancer Dx 3/2012, DCIS, <1cm, Stage 0, Grade 2, ER+/PR+ Dx 3/2012, IDC, 1cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 10/13/2012
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Aug 24, 2013 12:28AM - edited Aug 24, 2013 12:46AM by chef127

Interesting, yes but for me, NO thanx. I did hear about trials and tx's with chemo drugs for MS. It is thought that a strong immune sys will attack the host as in MS. A weak immune system will not fight cancer. Chemo does kill cancer cells while killing the immune sys making it MS 'friendly'. Is that effect on MS temporary? until the immune sys rebuilds? I want a strong immune sys to fight the cancer. I often wondered if the copaxone was a immuno suppressant making it bad for cancer but good for MS. Copaxone is an immuno modulater, what ever that means. I'm still confused. I hope I'm not confusing you too. That article mentioned several chemo drugs and tamox and arimidex. The later 2 drugs are not chemo drugs. soooooooooooo dah IDK.

Beckers, Isn't it past your bedtime? 4:30 a.m.

Dx 8/2011, IDC, Left, 4cm, Stage IIIB, Grade 2, 1/8 nodes, ER+/PR+, HER2- Radiation Therapy 1/3/2012 Breast
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Aug 24, 2013 01:28AM Beckers wrote:

No Chef, I am in Calif so it's 11:38, but I am going to bed here soon. I have also worried that Copaxone had a part to play with my immune system and BC. I remember reading in the insert something about the "tumor surveillance system." That bothered me at the time and I have reflected on that since BC diagnosis.

Diagnosed with bilateral or synchronous breast cancer Dx 3/2012, DCIS, <1cm, Stage 0, Grade 2, ER+/PR+ Dx 3/2012, IDC, 1cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 10/13/2012
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Aug 24, 2013 07:16AM chef127 wrote:

OOPS. I hope my brain starts going in the right direction! I went 3 hours ahead instead of 3 hours back in timeSurprised Is it MS or just old age? My family lives in So Cal so I'm well aware, sometimes.

I'm going to read the insert of 2 pages of fine print again for the copaxone. Its so hard to know, logicaly what the right thing to do is. The drs don't know, shared solutions doesn't, maybe the researchers know? Will they disclose that info? I am sooo suspicious of the large profits at 5,000$ a pop because of the high cost of research. Do they really want to lose that revenue b/c copax MAY cause of worsen CA?

My immune system is kicking ass according to blood work, so, so far no obvious supression. Can we treat both MS and BC simultainiously?? We deserve better answers but maybe NO ONE KNOWS. A dialoge here is all we have.

Dx 8/2011, IDC, Left, 4cm, Stage IIIB, Grade 2, 1/8 nodes, ER+/PR+, HER2- Radiation Therapy 1/3/2012 Breast
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Aug 26, 2013 11:19PM Live2Laugh2Love wrote:

If you want to know why everyone is getting cancer and other diseases read the book : Detox or Die  It's a book that you can't put down and it makes since of all of the sicknesses we are all getting.

It says the two main things that brings on the disease is pesticides and plastics. When you heat food up in a plastic container it leaches out in your food. All our food is covered in plastic and then it gets in our food making us full of plastic. Then the plastic makes our body's make more Estrogen giving us an over load of Estrogen.  Our whole entire world is set up to make us sick.  Another good book is : The PH Miracle  and : The China Experiment  Food can make us get better or make you sicker. My next Doctor appt. is Sept. 5th I hope I can get some answers.

All we have to decide is what to do, with the time that is given to us. * Gandalf the Gray * Dx 4/20/2012, IDC, Right, 1cm, Grade 3, 0/6 nodes, ER+/PR+, HER2+ Surgery 5/7/2012 Mastectomy: Right; Reconstruction (left): Tissue expander placement Surgery 5/9/2012 Lumpectomy: Right Surgery 6/7/2012 Mastectomy: Right Targeted Therapy 7/4/2012 Herceptin (trastuzumab) Chemotherapy 7/4/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy 11/9/2012 Surgery 2/5/2013 Mastectomy: Left; Reconstruction (left): Tissue expander placement Surgery 4/25/2013 Reconstruction (left); Reconstruction (right)
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Aug 26, 2013 11:29PM Beckers wrote:

Thanks Live2Laugh. I have started supplements that deliver mega antioxidants and totally believe it with respect to our foods. You see, I had ooph 4 years prior to bilateral highly ER+ BC. So....estrogen had to be coming from somewhere.

I look forward to hearing how MD appt goes. Let us know if you get any good info.

Night night.

Diagnosed with bilateral or synchronous breast cancer Dx 3/2012, DCIS, <1cm, Stage 0, Grade 2, ER+/PR+ Dx 3/2012, IDC, 1cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 10/13/2012
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Aug 27, 2013 10:17AM chef127 wrote:

We are surrounded by toxins and it has become almost impossible to avoid many of them. GMO's. plastcs. pestacides, parabens, BPA's, etc. I gave away my microwave, threw away all aluminum cooking vessels, got rid of all storage plastics, no carpeting, no bottled water, very little canned food, especially acidic food, even saran wrap and foil is bad. It's still not enough. We are still exposed to unatural estrogenes, the real poisin. I try to avoid as much as I can but unknowingly still consuming the crap that is all around. Buying organic and 'natural' cleaning products but it is expensive.

Antioxidents and a daily detox can lessen the effects of the toxins but the enviormental estro OMG its all over. It makes me wonder if those estros are responsible for the BC and not our natiral estro. Beckers, you got cancer after most of your hormones were treated with the ooph?? I take DIM which helps your body to metabalise estro and get rid of it. Who knows. Not my Drs. I also take a herbal anti estro from Dr Wong.

LivetoLaugh, do you know the author of that book? Did you know that aspartame, an artificial sweetener in most diet products can cause MS like sympt's? More f@@ing poisin. I still have an occasional diet coke. I still smoke, alot, so what is my point in staying healthy???

Dx 8/2011, IDC, Left, 4cm, Stage IIIB, Grade 2, 1/8 nodes, ER+/PR+, HER2- Radiation Therapy 1/3/2012 Breast
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Aug 27, 2013 05:17PM Live2Laugh2Love wrote:

Book : Detox or die   by: Sherry A. Rogers

Detox drink, every day : 1t. vitamin C powder, 300-600mg Lipoic Acid, 400-800 Glutathione

Yes, all of those sweeteners probably helped us get cancer, so I am over hauling my diet. Lots of fruits and veggies, very little meat and dairy. Almonds and sunflower seeds as treats. Its a work in progress. Not buying anymore boxed foods or cans. Even the PH of your drinking water can make a difference, I get Trace mineral drops at Good Earth and put a few drops in my water. It never hurts to improve our living habits, every little bit counts.

All we have to decide is what to do, with the time that is given to us. * Gandalf the Gray * Dx 4/20/2012, IDC, Right, 1cm, Grade 3, 0/6 nodes, ER+/PR+, HER2+ Surgery 5/7/2012 Mastectomy: Right; Reconstruction (left): Tissue expander placement Surgery 5/9/2012 Lumpectomy: Right Surgery 6/7/2012 Mastectomy: Right Targeted Therapy 7/4/2012 Herceptin (trastuzumab) Chemotherapy 7/4/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy 11/9/2012 Surgery 2/5/2013 Mastectomy: Left; Reconstruction (left): Tissue expander placement Surgery 4/25/2013 Reconstruction (left); Reconstruction (right)
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Aug 27, 2013 07:12PM chef127 wrote:

LivetoLaugh,

Did you get any answers yet about the MS testing?

Dx 8/2011, IDC, Left, 4cm, Stage IIIB, Grade 2, 1/8 nodes, ER+/PR+, HER2- Radiation Therapy 1/3/2012 Breast

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