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Aug 1, 2016 03:32AM
Aug 1, 2016 08:53AM
So is this where the MS + BC people hang out? I posted on the "Breast Cancer with Another Diagnosis" forum which made sense since not every BC+MS lady is in this DCIS forum (I'm not - for my BC I'm active in the "Triple Negative Stage IV" forum) - MS crosses the borders to all BCs . But I realize that this group is rooted here so I'm moving my post here and leaving a link there in case any other MSer gets lost there. So here's my post moved here:
So catching up here - I have MS since 1986 (I was 24 yo). I'm not going into all my MS symptoms here (this is a BC forum), just what applies.
I was treated with copaxone 1997-2010 (I'm not positive about years without looking it up). I had some flares over those years but mostly the problems were that I just slowed down. In 2010 I switched to Tysabri which I feel is a superior drug. No flares at all.
2015 - That's when the BC appeared. It seemed mild and was treated with a lumpectomy, CMF chemo and radiation. Tysabri was halted for chemo treatments. The oncologist chose CMF which I think was a milder treatment because of my MS. My MS is pretty stable (maybe cause of the Tysabri) but the cancer and chemo didn't seem to affect my MS (I'm always tired anyway...)
May 2016 - My cancer returned!! It metastasized!! Maybe it happened cause they gave me a lower chemo dose cause of the MS (?). So I'm off of Tysabri again (they give 3 treatments of steroids - over 3 month to let your body go down from the Tysabri easily). When I went for my MS steroids after my first chemo the MS nurse asked me how I was - I said - Here I'm great!! - Nothing like cancer to put things in perspective .
I do think that the MS caused or affected the BC. I don't know if I can point to a specific drug but my MS lifestyle really is involved. Some of the ways:
1- I'm not very active. I can only walk about 300 yards and not quickly so it's not exactly exercise. I can ride an exercise bike for about 20 minutes, but I really have to save my strength to do things like make supper so I don't do it often enough.
2- I don't have the energy to cook all those healthy things.
3- I never drink enough cause I'm afraid of not having a bathroom available.
4- I haven't worked in years and disability doesn't cover the costs of those health juices and things.
5 - Have you reached the MS-constipation stage? I'm sure I'm poisoning my body with constipation.
After 30 years I'm OK with my MS (I have 5 kids - aged 15-27). I'm 54 yo and I sort of live the life of an 85 yo. I don't drive. I can't walk to the store myself. Going out must be planned. But I'm content with my MS-life. The slowdown has built up over 30 years so I don't expect to suddenly run a marathon. But I'm not sure if I have the energy to fight my BC.
1/14/2015 Lumpectomy: Left
1/15/2015, IDC, Left, Grade 3, ER-/PR-, HER2-
7/10/2015 3DCRT: Breast
5/10/2016, IDC, Left, 5cm, Stage IV, metastasized to lungs, Grade 3, ER-/PR-, HER2-
6/13/2016 Adriamycin (doxorubicin)
8/9/2016 Gemzar (gemcitabine)
10/9/2016 Halaven (eribulin)