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Topic: Multiple Sclerosis and Breast Cancer

Forum: Breast Cancer with Another Diagnosis or Comorbidity — Meet others who have breast cancer but also have another health diagnosis/comorbidity such as diabetes, MS, bipolar disorder, HIV or AIDS, Parkinson's Disorder, schizophrenia, etc.

Posted on: Jan 24, 2009 11:33AM

wackyjackie wrote:

Ladies,

My sister is 46 years old and has just been diagnosed with dcis.  She's still having tests...e.g. MRI.  I'm look for anyone who has input on having both breast cancer and ms, as she now does.  Does chemo interfere? Do you take meds for ms?  Any information at all would be helpfu.  Thank you.

Hugs, Jackie

Dx 5/25/2007, IDC, 3cm, Stage IIB, 3/13 nodes, ER+/PR+, HER2-
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Aug 27, 2013 05:40PM Live2Laugh2Love wrote:

No, I hope next week that I can get some answers. I have one more test to go, and I hope he will tell me what he is thinking, if he does not know yet. My muscle in my back has been spasming, feels like a Charlie horse.

All we have to decide is what to do, with the time that is given to us. * Gandalf the Gray * Dx 4/20/2012, IDC, Right, 1cm, Grade 3, 0/6 nodes, ER+/PR+, HER2+ Surgery 5/7/2012 Mastectomy: Right; Reconstruction (left): Tissue expander placement Surgery 5/9/2012 Lumpectomy: Right Surgery 6/7/2012 Mastectomy: Right Targeted Therapy 7/4/2012 Herceptin (trastuzumab) Chemotherapy 7/4/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy 11/9/2012 Surgery 2/5/2013 Mastectomy: Left; Reconstruction (left): Tissue expander placement Surgery 4/25/2013 Reconstruction (left); Reconstruction (right)
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Aug 27, 2013 07:53PM - edited Aug 27, 2013 07:54PM by chef127

You have been through hell for the past year and a half with surgery after surgery, toxic treatment, and now hormonal treatment which in itself can be a challenge. I hope your experencing side effects from all you've been through, and not an MS Dx. You'll live with the unpredictable and often debilitating effects of MS for the rest of your life as well as BC.

Either way, we will be here for you.

xox........Maureen

Dx 8/2011, IDC, Left, 4cm, Stage IIIB, Grade 2, 1/8 nodes, ER+/PR+, HER2- Radiation Therapy 1/3/2012 Breast
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Aug 27, 2013 09:14PM chef127 wrote:

Live2Laugh2Love,

I'm sorry! I do not HOPE for anything. But s/e's of tx is better than MS

Dx 8/2011, IDC, Left, 4cm, Stage IIIB, Grade 2, 1/8 nodes, ER+/PR+, HER2- Radiation Therapy 1/3/2012 Breast
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Aug 28, 2013 02:26PM Live2Laugh2Love wrote:

What ever happens, I can handle what life throws at me. I have a good support system. It will all work out. 

Your mind is a GARDEN, your thoughts are the SEEDS, you can grow FLOWERS, or you can grow WEEDS.

All we have to decide is what to do, with the time that is given to us. * Gandalf the Gray * Dx 4/20/2012, IDC, Right, 1cm, Grade 3, 0/6 nodes, ER+/PR+, HER2+ Surgery 5/7/2012 Mastectomy: Right; Reconstruction (left): Tissue expander placement Surgery 5/9/2012 Lumpectomy: Right Surgery 6/7/2012 Mastectomy: Right Targeted Therapy 7/4/2012 Herceptin (trastuzumab) Chemotherapy 7/4/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy 11/9/2012 Surgery 2/5/2013 Mastectomy: Left; Reconstruction (left): Tissue expander placement Surgery 4/25/2013 Reconstruction (left); Reconstruction (right)
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Aug 28, 2013 08:10PM Beckers wrote:

You girls are so good! I need to pay you to do a life overhaul for me! I haven't given up my diet A&W root beer yet. I crave bubbles. Ha!

Diagnosed with bilateral or synchronous breast cancer Dx 3/2012, DCIS, <1cm, Stage 0, Grade 2, ER+/PR+ Dx 3/2012, IDC, 1cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 10/13/2012
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Aug 29, 2013 05:17AM - edited Aug 29, 2013 05:27AM by chef127

Beckers,

I ain't so goodInnocent I lived a life time of bad habits and they are not going to change over night. Baby steps. Pre BC I drank at least 12-20 cans of diet coke a week, now 2. I love the burning bubbles tooTongue Out Depriving yourself of all the things you've learned to love is stressful and IMO, harmful to the psychy. Like Live2Laugh says plant some seeds and grow flowers. I planted many seeds for others who needed my guidence and now its my turn to garden for me. Some grow and some are difficult to grow. Live2, i share your attitude, it is what it is and I can deal and I DO!

xox

Peace and Love....(leftover hippi here)

Dx 8/2011, IDC, Left, 4cm, Stage IIIB, Grade 2, 1/8 nodes, ER+/PR+, HER2- Radiation Therapy 1/3/2012 Breast
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Aug 29, 2013 11:56AM Live2Laugh2Love wrote:

We are strong woman, we have to be to endure cancer,and other illnesses. You don't need to change everything at once. You take baby steps, change one bad habit into a good habit. Then every 4 months do it again. Within a year you will be a new person. My dad has stage 4 cancer, its in his liver. He has a good attitude about it and we have gotten closer since we both have cancer. I truly understand whats he's going through. He is doing really good right now, he gets a shot every month and it has put it in remission. Smile 

Some of life's best lessons are learned at the worst times.Laughing

All we have to decide is what to do, with the time that is given to us. * Gandalf the Gray * Dx 4/20/2012, IDC, Right, 1cm, Grade 3, 0/6 nodes, ER+/PR+, HER2+ Surgery 5/7/2012 Mastectomy: Right; Reconstruction (left): Tissue expander placement Surgery 5/9/2012 Lumpectomy: Right Surgery 6/7/2012 Mastectomy: Right Targeted Therapy 7/4/2012 Herceptin (trastuzumab) Chemotherapy 7/4/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy 11/9/2012 Surgery 2/5/2013 Mastectomy: Left; Reconstruction (left): Tissue expander placement Surgery 4/25/2013 Reconstruction (left); Reconstruction (right)
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Aug 30, 2013 04:49AM chef127 wrote:

Live2Laugh2Love,

I'm sorry for your dad. My dad had asbestos related lung cancer and was treated so heavily with radiation it 'fried' his lung and heart. That was 30 yrs ago and things have changed w/tx. That was hard to watch. He would have done anything for another chance. Asked "why not a pig lung transplant." Did the disease give him strength? proberbly.

Reading here on BCO I'm in awe at the strength I feel from the women fighting this beast. We all fight in our own way but the fight mode is the same. I think even the weak fight and gain strength through the battle. I don't see much weakness here.

xox

Dx 8/2011, IDC, Left, 4cm, Stage IIIB, Grade 2, 1/8 nodes, ER+/PR+, HER2- Radiation Therapy 1/3/2012 Breast
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Sep 11, 2013 09:10AM - edited Sep 11, 2013 09:46AM by NewHopeAndrea

Strength and hope to you!   I am taking everything "one day at a time" as much as I can, except necessary planning and adult responsibilities of course.  Not my nature exactly, but something MS has ground into my thick head over the past 12 years. 

It took 6 months to make my MS diagnosis and my spinal tap was negative.  Don't know how much has changed in past 12 years but my impression is that it still is a diagnosis that is hard to make and requires many other possible causes of the symptoms to be excluded.   Maybe in some cases the spinal fluid or MRI are very clear.  I know my first MRI said lesions were "consistent with MS" but doctor did not conclude I had it until after 6 months of lots of different tests.  If you do get spinal tap, I suggest you ask them to "patch" the site to prevent leakage - which is apparently possible but in my case was not offered until 5 days into a spinal headache.  The ways of the medical world are often mysterious to me. 

There is some evidence that immunosuppressive drugs may increase cancer risk or be a problem if you are a cancer patient.  My neuro, who I believe is quite knowledgable, has taken me off Copaxone while having BC treatment. This is another soure of anxiety (will the MS get worse? Did the treatment cause my BC or would it impair my chances of remission from BC?) but I don't think conclusive answers are out there yet. 

Here is a a quote and link from an abstract of one study from 1338 MS patients: 

"Our findings indicate that cancer incidence is significantly lower in female MS patients than in the general population. Female MS patients treated with glatiramer acetate showed an elevated rate of breast cancer and all MS patients treated with beta-interferons showed an elevated risk of non-breast cancers though not statistically significant (p = 0.122 and 0.072, respectively). Further study is needed to assess possible associations between long-term exposure to the novel immunomodulatory treatments in MS and rate of cancer.

http://www.ncbi.nlm.nih.gov/pubmed/15754125

Chemotherapy 3/4/2013 AC + T (Taxol) Surgery 7/29/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement Surgery 9/3/2013 Reconstruction (left) Radiation Therapy 9/30/2013 Breast, Lymph nodes Dx 10/24/2014, IDC, Left, 4cm, Stage IV, metastasized to bone/other, Grade 3, 5/14 nodes, ER+/PR+, HER2- Chemotherapy 1/21/2016 Gemzar (gemcitabine)
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Sep 16, 2013 12:45PM Live2Laugh2Love wrote:

The doctor is thinking I have Fibromyalgia, so now more tests and see a doctor in Rheumatology.I was amazed how close the symtoms are to MS. Seeing doctors never end, I just go to the next doctor in line.

All we have to decide is what to do, with the time that is given to us. * Gandalf the Gray * Dx 4/20/2012, IDC, Right, 1cm, Grade 3, 0/6 nodes, ER+/PR+, HER2+ Surgery 5/7/2012 Mastectomy: Right; Reconstruction (left): Tissue expander placement Surgery 5/9/2012 Lumpectomy: Right Surgery 6/7/2012 Mastectomy: Right Targeted Therapy 7/4/2012 Herceptin (trastuzumab) Chemotherapy 7/4/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy 11/9/2012 Surgery 2/5/2013 Mastectomy: Left; Reconstruction (left): Tissue expander placement Surgery 4/25/2013 Reconstruction (left); Reconstruction (right)
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Sep 16, 2013 01:03PM chef127 wrote:

Live2Laugh2Love,

It's a never ending line-up for drs. I have 3 drs I see regularly and I want to try a tx for my MS, LDN but non of them is willing so I need to add a forth. How can a professional in the med community not be informed on all available tx's?

Fibromialgia, I don't know too much about it but I know there is a lot of pain with it and much available tx's. I think I mentioned that my MS is virtually PAIN FREE, but many MS'ers are in constant pain. Mine is all sensory.

I hope you get to the bottom of your pain and can begin a comprehensive tx.

xox...........Maureen

Dx 8/2011, IDC, Left, 4cm, Stage IIIB, Grade 2, 1/8 nodes, ER+/PR+, HER2- Radiation Therapy 1/3/2012 Breast
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Oct 16, 2013 09:09AM cdicapua wrote:

I was diagnosed with dcis and mudinis carcinoma. I am post menopausal, I was diagnosd with MS exzctly 2 yrs later I am on letrozole for 22 mos,

Cathy DiCapua Dx 9/4/2011, DCIS, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR-
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Oct 21, 2013 06:34AM cdicapua wrote:

My dx for ms was like yours it took 18 mos from the first MRI. They didn't do a spinal tap my neurologist said if I wasn't in a bout, it would show negative. My Ms is strange suttle changes, If the dr wasn't looking for back dx , she never would have seen the lesions. I wouldn't have thought my slight physical issues would mean anything more than a bad back. I am on Anonex Interferon beta 1a. I had BC first but I may have had ms for yrs prior to dx as both my neurologists and psychiatrist said I have had ms for a long time.I am emotionally ok in shock, shock will protect me until I am ready to really face dx of MS.

Cathy DiCapua Dx 9/4/2011, DCIS, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR-
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Oct 24, 2013 09:13AM Beckers wrote:

New Hope,

I always feared the Copaxone would cause cancer. I remember reading in the fine print something about "affecting the tumor surveillance system." Now, they want me to start taking one of the new oral meds. Frankly, I don't want to, however, I had MRI this summer and a lesion "lit up" indicating active disease going on. Ugh!

Cathy, were you recently diagnosed with MS. Sounds like you were since you are still in shock. It is a tough pill to swallow for sure. Hugs!

Diagnosed with bilateral or synchronous breast cancer Dx 3/2012, DCIS, <1cm, Stage 0, Grade 2, ER+/PR+ Dx 3/2012, IDC, 1cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 10/13/2012
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Nov 14, 2013 06:31AM chef127 wrote:

Hello Ladies,

Hope your all doing well. I did finally find a dr who rx's LDN, Low dose Naltrexone to treat MS. I wanted something that can help with the symptoms. I've been taking copaxone for a year and all my symptoms have progressed a bit, there is nothing to help me feel better so I'm putting my faith in the LDN which after only 3 weeks of the full dose(4.5mg) has helped with my bladder issues and some fatigue. It can take 4 months-1 year to to reach the full effects of the LDN so I am hopeful. It's non toxic and very inexpensive. It stops the progression??and is also used by many cancer patients b/c it slows the proliferation of ca cells and many other autoimmune disorders. It is a no brainer for me. It is an immune booster so its not compatible with the interferon drugs and most of the oral meds for MS b/c they suppress the immune sys, which is counter productive for cancer, but copaxone is OK. I may give up the Copax??

Research the LDN as a real tx for MS, cancer, fibro, etc. IMHO, it is an amazing drug.

Maureen xoxNerdy

Dx 8/2011, IDC, Left, 4cm, Stage IIIB, Grade 2, 1/8 nodes, ER+/PR+, HER2- Radiation Therapy 1/3/2012 Breast
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Nov 25, 2013 08:49PM Beckers wrote:

Good news Chef! Have you heard much about Tecfedera? My doctor prescribed it but it worries me.

Diagnosed with bilateral or synchronous breast cancer Dx 3/2012, DCIS, <1cm, Stage 0, Grade 2, ER+/PR+ Dx 3/2012, IDC, 1cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 10/13/2012
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Nov 26, 2013 05:06AM chef127 wrote:


hello Beckers,

Hope your doing well. I did go to a seminar about Tec. and I spoke to several people who are taking it and they seemed 'hopeful'.

The side effects are flushing and digestive issues and some are getting some relief from fatigue. One of the ingredients in it is a furniture preservativeSingingThat turned me off to Tec. It is fairly new so the long term s/e are unknown yet. It is an immuno suppressant. I personally feel the drug companies are willing to throw anything at us while we are scared and desperate! The cost is 5,000$ a month. The Tec is not for me.

Teva Pharm is working on a Once a month, slo-release Copaxone, It will be a year or 2. I'm ready to give up the Copaxone and stick to the LDN......IDK I'm scared and desperate! and a bit of a conspiracy theorist.

Stay safe and mobile xoxMaureen

Dx 8/2011, IDC, Left, 4cm, Stage IIIB, Grade 2, 1/8 nodes, ER+/PR+, HER2- Radiation Therapy 1/3/2012 Breast
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Jun 24, 2014 07:16PM cdicapua wrote:


I have breast cancer 2 yrs later I was diagnosed with MS, I take a weekly shot of Avonex Interferon beta 1a

Cathy DiCapua Dx 9/4/2011, DCIS, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR-
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Feb 1, 2016 10:14PM Tess53 wrote:

To the Lady with the sister with MS and DCIS..

She has my sympathy.. I was diagnosed after a 30+ trip thru nothing showing up enough so they said MS !! Finally I had a diagnosis that it wasn't all in my head..I'd been labeled me a chronic hypochondiac. Needless to say that DR was never mine again.. Then I started on the last 12 yr odesy of trying to afford Meds, get proper testing, finally showing YES there is Cognative damage it isn't that I am Lazy... I thought I can Deal with MS I can deal withhe attitudes, the little social worker after me telling the Neurologist that the last two meds something isn't working right,, nonsence I prescribed it you are just going to have to get used to it.. well when I was almost Blind in on eye I stopped taking one drug and stared getting my sight back, she pitched a hissy fit that I wasn't taking Meds as she thought I should .. Now, even the TV COMMERCIALS say LRICA can cause Vision Problems I could tell you that in 2004...

Then 2015 decided I needed a little strirring of the pot I was actually learning to manage some things without assistance.. and threw in a curve ball..I had a screening Mammogram about Halloween.. then they wouldn't read it waiting on my last one for comparison.. well 1st week of December they finally called.. I was in Florida attempting to talk My 82 yr old Dad thru his new diagnosis of Diabetic and new Pacemaker they had implanted.. No letter which I would have expected no they called my cell.. WE need you to comeback we need to repeat the mammogram..Lady I am in Florida 5 states away.. OH when is your vacation ending we'll set it up for when you get back.. Uhh NO I am 5 states away I'll deal with it when I get home.I am not on a Vacation, I haven't been on a Vacation since GRADE SCHOOL.. Penny-less people don't take vacations and MS is not a Cheap problem to have... Well we can set you up to have the mammogram done there.. NO YOU CAN'T I am not paying Out of Network fees like that!!

So I get Back Jan 5th I have a filling done because part of a tooth broke, and Jan 6th I had the SECOND mammogram..only one breast and in a circle to catch the one spot they wanted to see.. then oh need a ultra sound.. Need a Biopsy... WAIT WHAT Someone need to talk to me instead of chirping off orders that send techs scrambling.. This is very suspicious in Fact I'd almost bet it's cancer. Well then why don't we have it removed whole instead of opening it up.. No Biopsy is needed.. After 20 minutes I said FINE do it and let me off this Concrete slab I am laying..{felt like} office clerk: 2 days later another call I am calling to schedule your mastectomy... Well I guess that's your way of saying the biopsy showed something Oh they didn't call you I am sorry but yea it's not good.. so Surgeon consult.. he comes in and literally pats both breasts as if is expecting to find something the size of a walnut..it is 0.6 cm idiot you aren't going to feel it especially patting it like a toddlers head.. Well we'll just run a wire in there to guide it cut that spot out and you can head home and never think about cancer again... REALLY...What Cracker Jack Box did you get your degree out of?? No lymph-nodes they want to do over 2 weeks of radiation an intubated surgery and I am Like OH HECK NO.. No intubation I spent too many years as a HOME VENT NURSE taking care of people that go in for just a quick little thing.. that I am Surgeon HEAR ME ROAR.. screws up on and the person is on a vent for the rest of their life..

Then there is this little issue why I had the Physical back in October to begin with.. I have had major increase on some MS symptoms and some weird ones I haven't had with the MS..NO one has bothered to look at anything OH WE FOUND THIS MICROSCOPIC SPOT and you'll be right as rain in no time.. I see.. that explains the more then 35 pound weight loss, the hair coming out so instead of the Full head of Long hard I had it's now starting to get thin enough to see scalp if you look at it wrong.. why I am suddenly having coughing and almost chocking spells drinking water or saliva.. The surgeon made sure to note my high BP, my High Cholesterol that meds haven't dropped it in the slightest in 2 yrs..the touch of arthritis, and yea sometimes in the winter I get a little wheezy and while they say asthma it's treated by OTC meds.. but YOUR I am Fully sure you Billed me a Complete PRE SURGICAL EXAM.. wow this Dr is good.. he knows what my neck feels like as in no glands swollen or thyroid enlargement.. he could do that without touching my neck !! he's good..NOT MY abdomen is neither ridged nor do I flinch in pain.. he could tell all that thru my blue jeans AND MY LAST GASP AT SOMETHING TO KEEP ME FROM WALKING OUT OF THEM BUTTONED AND ZIPPED.. A bungee cord belt..

SO IF YOU HAVE MS and get a DCIS DIAGNOSIS, I Pray you are not anywhere near Lexington KY.. you'd think with as many Hospitals and a State So REAL PROUD OF ALL IT'S Med Schools.. we'd have good Care.. NOPE.. I'm going to talk to the VETERINARIAN that removed a small mass in our cat last year.. Needless to say, I am going to keep my micro spot, my DCIS and monitor it evey year and wait for it to show it's the cause..or that it's changed.. I am going to look for other issues..back to the hunt for what's really going on.. then I'll think about micro spot..

Tess Dx 1/7/2016, DCIS, Left, <1cm, Stage 0, Grade 1, 0/0 nodes, ER+/PR+, HER2+ Surgery 3/1/2016 Lumpectomy: Left
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Feb 1, 2016 10:26PM Tess53 wrote:

Been on Tecfidera for over a years after the 2014 MRI showed I was glowing all over... You are right the cost is horrendous, I didn't have issues taking it, but now with the DCIS DX this last month they need my Nuerologist permission to take it since some of what I have read is MS and Cancer can possibly be related.. due to the interferon's.. I am still trying to track that info down..

Tess Dx 1/7/2016, DCIS, Left, <1cm, Stage 0, Grade 1, 0/0 nodes, ER+/PR+, HER2+ Surgery 3/1/2016 Lumpectomy: Left
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Feb 2, 2016 04:35AM Moderators wrote:

Hi Tess53! Welcome to Breastcancer.org and thank you for sharing your story here with everybody! Pleas let us know if you need any help from us.

Sending big hugs your way!

The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Feb 6, 2016 07:20AM Beckers wrote:

Tess53. I have had MS for 18 years. Just back on Copaxone again. I always wondered about connection between MS drugs and BC. I had DCIS in left and IDC in right. You mentioned hair loss. Does that correlate with having breast cancer because my hair is suddenly doing the same. I was on Tecfidera. Not sure if that did it. Bad news is it's not growing back and I stopped it two months ago. I wish you the best. It is not a good situation we are in for sure. Heavy sigh...

Diagnosed with bilateral or synchronous breast cancer Dx 3/2012, DCIS, <1cm, Stage 0, Grade 2, ER+/PR+ Dx 3/2012, IDC, 1cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 10/13/2012
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Feb 6, 2016 09:35AM chef127 wrote:

Hey Tess,

Sorry your dealing with "cracker jack" docs. I suggest you find a BC specialist and facility. A 0.6cm DCIS is not so micro, still small but a watch and wait approach is your choice (a good one) but I'm pretty sure the advised scanning is every 6 months??? It MAY never grow and cause any issues but it is 'pre' cancer. Please invest in several bungee cords(your too funny). I should start wearing mine.

My surgeons wanted to lop off my breast, 2 BS's, but I did find a BS willing to try a LX, and it was a success. I researched a lot and felt comfortable making my own decisions, not letting the drs dictate my future. If I am wrong I have only myself to blame. I'm ok with that.

I've had MS for about 35 or more years. Dx'ed in 2001 and it was benign (lack of adverse events) so I did take copaxone daily for a short time, side effect free. I had my first real event 2009 which kicked my ass and left me unable to work. ALL the other DMD scare me as much as the MS. I currently on LDN and alpha lipoic acid. My neuro recently told me about a study on a Biotin study for MS, to see if it helps to regenerate the myelin covering the nerves. 300mg. daily. that's a lot. Gave me a headache so I cut back to 100mg daily. Who knows, but it is non toxic?

Techfidera does cause hair loss. I spoke to several people on it and they had the hair loss but they said it is growing back so maybe it takes time. It also puts you at risk for a brain infection called PML. They found several cases since it came to market. Not for me. It also compromise your immune system(white blood cells) Not good if your fighting cancer. I don't trust any of the DMD's x copaxone but that's just me. I have transitioned to SPMS, a slow decline in disabilty without relapses. MS really sucks BC pales in comparison.

I hope you can get a clearer picture of your DCIS and move on. You can PM me or ask any ?????'s.

Beckers, Good to see you. Sounds like your doing well. Hope the copaxone keeps the SPMS away! but if you live long enough it is inevitable(mostly) Such a happy thought.

Devil

xoxMaureen

Dx 8/2011, IDC, Left, 4cm, Stage IIIB, Grade 2, 1/8 nodes, ER+/PR+, HER2- Radiation Therapy 1/3/2012 Breast
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Feb 7, 2016 01:47PM Tess53 wrote:

Well the firm diagnosis of MS was finally made in 2004, that's after my dr, my dentist 4 visits each pain in the face and side of the head that felt like I had been slapped by a board.. then off to see a maxofacial surgeon he says not going to pull teeth looking for issue sending you to the Louisville Dental clinic speak with the head .. finally he says very nicely and I will always thank him, you don't have a focal neurological issue you have a global one, yoneed a brain MRI and sent me to a neurologist, then it's back to the pool of cracker jack box dr's.. cause it took an additional year to actually get that MRI and final Diagnosis after most of my adult life asking the dr's about my shoulder hurting..arm going numb and tingly.. or better yet being in the car for a less then hour long drive and squirming more then my kid did when he was a passenger. Because a leg or but cheek tried going numb or tingling depending on what bump in the road we hit.. My ex a beautiful soul would call me names and call me lazy when the house work wasn't done.. not to meantion I generally worked two jobs to support his Bass FISHER Glory days.. and guess who's fault it was when I was diagnosed and two yrs later the doctors refused to sign me ok'd to return to work.. So my using a bungee cord was amusing.. glad to give eveyone a laugh. Who do you know that can afford cancer?? who do you know that can't afford a co pay and skips dr's recommendations, because it would mean the food budjet would be gone.. Who pawned every bit of their jewlerly to pay for a divorce from a pychopath that threatened to cut her hand off for trying to leave for work wearing what he considered his ring.. I am not just broke I am underwater on everything.. So Laugh about the bugee cord ... he stated in the record that my abdomen wasn't ridgid or guarded when he had no clue because of that bungee cord..So go ahead laugh about the idiot dr that allowed a FULL EXAM Ficticious EXAM be incorperated into my PERM MEDICAL RECORD.. stop and think about that.. when I worked as a nurse if we made an error it was correctable.. now adays they hit enter and it's as if GOD said it and the data entry clerk was sitting at his feet.. those electronic records that EVERY coocoo for coco puffs can see except you..without id and verification and written I will only get one copy etc etc .. Considering I haven't bought new jeans in 20 yrs..when I suddenly lost 30 pounds and they would drop off my hips still buttoned and zipped.. and those were the pair I thought I'll never get in those again.. yea I fell back on what would cover my a&&. My hair has been thinning on top of my head since mid 30's periods stopped before 40, Hair anywhere else is basically gone except the chin where no woman want's to grow hair. I had been going grey in my 30's now I can't afford to color it so it's grown out I'd love to afford clothes that fit.. but I am actually MORE worried about why the sudden loss of weight.. why the loss of appitite, and the just let me lay down and I'll be fine and suddenly it's 4 am the next morning,..

WE ALL HAVE OUR conditions and our emotiions and our push buttons I didn't post what I did to make myself the but of jokes I did it to say that DR call it PRACTICING for a reason.. and you, mean nothing to them other then a payment on that car or kids college fund.. So such it up and become YOUR OWN BEST ADVOCATE cause no one else is going to do it for you..

Tess Dx 1/7/2016, DCIS, Left, <1cm, Stage 0, Grade 1, 0/0 nodes, ER+/PR+, HER2+ Surgery 3/1/2016 Lumpectomy: Left
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Aug 1, 2016 03:32AM - edited Aug 1, 2016 08:53AM by donnadd

So is this where the MS + BC people hang out? I posted on the "Breast Cancer with Another Diagnosis" forum which made sense since not every BC+MS lady is in this DCIS forum (I'm not - for my BC I'm active in the "Triple Negative Stage IV" forum) - MS crosses the borders to all BCs ThumbsDown. But I realize that this group is rooted here so I'm moving my post here and leaving a link there in case any other MSer gets lost there. So here's my post moved here:

So catching up here - I have MS since 1986 (I was 24 yo). I'm not going into all my MS symptoms here (this is a BC forum), just what applies.

I was treated with copaxone 1997-2010 (I'm not positive about years without looking it up). I had some flares over those years but mostly the problems were that I just slowed down. In 2010 I switched to Tysabri which I feel is a superior drug. No flares at all.

2015 - That's when the BC appeared. It seemed mild and was treated with a lumpectomy, CMF chemo and radiation. Tysabri was halted for chemo treatments. The oncologist chose CMF which I think was a milder treatment because of my MS. My MS is pretty stable (maybe cause of the Tysabri) but the cancer and chemo didn't seem to affect my MS (I'm always tired anyway...)

May 2016 - My cancer returned!! It metastasized!! Maybe it happened cause they gave me a lower chemo dose cause of the MS (?). So I'm off of Tysabri again (they give 3 treatments of steroids - over 3 month to let your body go down from the Tysabri easily). When I went for my MS steroids after my first chemo the MS nurse asked me how I was - I said - Here I'm great!! - Nothing like cancer to put things in perspective Singing.

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I do think that the MS caused or affected the BC. I don't know if I can point to a specific drug but my MS lifestyle really is involved. Some of the ways:

1- I'm not very active. I can only walk about 300 yards and not quickly so it's not exactly exercise. I can ride an exercise bike for about 20 minutes, but I really have to save my strength to do things like make supper so I don't do it often enough.

2- I don't have the energy to cook all those healthy things.

3- I never drink enough cause I'm afraid of not having a bathroom available.

4- I haven't worked in years and disability doesn't cover the costs of those health juices and things.

5 - Have you reached the MS-constipation stage? I'm sure I'm poisoning my body with constipation.

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After 30 years I'm OK with my MS (I have 5 kids - aged 15-27). I'm 54 yo and I sort of live the life of an 85 yo. I don't drive. I can't walk to the store myself. Going out must be planned. But I'm content with my MS-life. The slowdown has built up over 30 years so I don't expect to suddenly run a marathon. But I'm not sure if I have the energy to fight my BC.

Surgery 1/14/2015 Lumpectomy: Left Dx 1/15/2015, IDC, Left, Grade 3, ER-/PR-, HER2- Chemotherapy 3/1/2015 CMF Radiation Therapy 7/10/2015 3DCRT: Breast Dx 5/10/2016, IDC, Left, 5cm, Stage IV, metastasized to lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 6/13/2016 Adriamycin (doxorubicin) Chemotherapy 8/9/2016 Gemzar (gemcitabine) Chemotherapy 10/9/2016 Halaven (eribulin)
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Aug 29, 2017 09:17AM Libbyb_2017 wrote:

What a year this has been for me and I am reading the posts and glad I am not alone. In January 2017 I had a double mysectamy thinking how lucky I am to not get radiation or chemotherapy. I just take Tomaxifin. August 20th 2017 I get diagnosed with Multiple Sclerosis. This is scaring me more than having cancer. Is it because I haven't digested having had breast cancer or because the two diagnosis are so close together? I thought I accepted the breast cancer and I am having a hard time accepting the MS diagnosis. It was easier to tell people about breast cancer but this now it's hard to say out loud and I feel like I am in a medical nightmare. I am seeing a therapist but any suggestions on coping with this diagnosis so soon after the breast cancer?

Thank you,

Libby 39 yrs old from Washington state.

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Sep 27, 2018 10:22PM jocelynroxx wrote:

Hi wackyjackie-

I have been dealing with MS for about 5 years now, mostly by eating a strictly clean diet and exercising every day. I take copaxone 3x/week and supplement with a handful of nutrients. Much to my surprise, I was just diagnosed with DCIS this month and am in the process of scheduling surgery. It's a lot to take in right now, but I can update you as I go. I'm 45 and have taken care of my health all my life - no vices, no risks, no family history of either disease.

My core group of friends, family, and faith have given me unshakable peace about it all. God's gotta handle this one.

Best withes to your sister - she is not alone. ~Jocelyn

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Mar 10, 2019 08:30PM Irishlove wrote:

Hi folks that have MS and BC. I see this thread is dated, but thought I'd give it a try. Any input on a possible MS attack after a mastectomy is appreciated. I had non-stop migranes with auras, 5 days post surgery. The prep-nurse was kind enough to give me a heavy duty med to knock the migrane out of my system as I was being put under. I am now 11 days out from surgery and stuggling. My brain and face were totally numb. Actually I thought that might not be too bad of a sympton as I wasn't as upset mentally due to the numbness. Now my brain feels like it's on fire and I can barely hold my head up. The blurred vision (not optic neuritis) has cleared also. I can't take LDN for three more days, as I need pain meds to clear my system. Getting anxious to get back on it as I haven't had a MS attack in almost 3 yrs.

Surgery 2/27/2019 Lymph node removal: Sentinel; Mastectomy: Left Dx 3/14/2019, DCIS/IDC: Papillary, Left, 1cm, Stage 0, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 5/7/2019 Prophylactic mastectomy: Right
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Mar 10, 2019 08:48PM - edited Mar 10, 2019 08:50PM by beep7bop

I saw this and just thought I'd tell you I have MS, but I am waiting for biopsy results. will have them on Tuesday march 12 that when I see breast cancer doctor. dx MS 1999

Dx 3/11/2019, ILC/IDC, Both breasts, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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Mar 11, 2019 08:41PM Irishlove wrote:

Dear beep7bop, I hope that you have a good report tomorrow. I'll be thinking of you. MS can be quiet, then again it can be relentless at times.

Surgery 2/27/2019 Lymph node removal: Sentinel; Mastectomy: Left Dx 3/14/2019, DCIS/IDC: Papillary, Left, 1cm, Stage 0, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 5/7/2019 Prophylactic mastectomy: Right

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