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May 26, 2013 06:06PM
My first diagnosis with Fibromyalgia was in 1990 it was so bad I had infiltration injections into spine. Most medication didn't help until I was put on Lyrica. I also have arthritis and took Enbrel injections 50mg twice a week. Fibro was secondary after I had osteoporosis and multiple fractures. I have tried everything around the world going to specialist etc. When I got BC, surgery, chemo and Nuelasta shots it was human torture. Here is what has worked for me for pain with Fibro while on BC treatment. First Cytoxan helps the pain overall with my arthritis and SE from hormone and other chemo's. I use Volteran cream and LMX cream that I rub into pressure points and where there is muscle pain. Also Lidoderm Patches for pain work if you can take adhesives, I can't. You can cut Lidoderm Patches and put them all over your body for 12 hours on 12 hours off. Aslo I have a jacuzzi bath when things get really bad I go into such, listen to Dr Andrew Wiel's "Sound Body Sound Mind" that works on redirecting thought patterns for relaxing, drink green tea, then after rub on Volteran and LMX and wear a loose night gown. Chemo has hightened my nerves and situation but you have to keep trying other things that can possibly work for you. Cytoxan is given to me because it has helped my nerve, joint and muscle pain so that I don't need a lot of other drugs. I have Vasculitis also. I've been given morphine but my stomach can't take such and I'm vomiting for three days afterwards. Fibro is a real disease, I've been diagnosed at Stanford, Cleveland Clinic and other major medical hospitals for such. It is usually a secondary disease with an underlying cause. For the lady who had major burning and red skin, two months ago such happened to me, I was on fire, and my LE arm turned so red, went to emergency room and then was hospitalized and skin and node removal showed Lupus. Now did the chemo and other treatments bring on such?
What I have found through the years are all of these are autoimmune responses, allergies are such. I often wonder in the BC triggered these? I've been told that people who have such severe autoimmune diseases don't usually get cancer, the autoimmune cells eat off and kill cancer genes. For this reason I'm in a number of genetic studies with me giving blood and tissue for research for doctors to understand cancer in such patients with many autoimmune diseases.
I'm don't know if your doctors told you this but if you were taking Enbrel or other such medications then you cannot have radiation therapy for infections could set in so quickly. Only surgery and chemo along with hormone therapies. I have found that most hormone therapy has caused flares and allergic reactions so I have to have Cytoxan to counteract such. This is what works for me. But any of you ladies experiencing such should talk at length with your Oncologist about SE's and pain.
Hope this helped any of you?
12/3/2009, IDC, 3cm, Stage IIIB, Grade 3, 6/12 nodes, ER+/PR+
3/25/2010 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left
4/13/2010 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
10/26/2010 Femara (letrozole)
12/12/2012, IDC, Stage IV, Grade 3, mets, ER+/PR+
1/29/2013, IDC, 2cm, Stage IV, Grade 3, 6/9 nodes
2/16/2013, IDC, Stage IV, Grade 3, mets, ER+/PR+
2/27/2013 Faslodex (fulvestrant)
4/1/2013 Cytoxan (cyclophosphamide), Xeloda (capecitabine)
6/18/2014 Doxil (doxorubicin)
9/24/2014 Abraxane (albumin-bound or nab-paclitaxel)