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Topic: Anyone else with thyroid cancer too?

Forum: Breast Cancer with Another Diagnosis or Comorbidity — Meet others who have breast cancer but also have another health diagnosis/comorbidity such as diabetes, MS, bipolar disorder, HIV or AIDS, Parkinson's Disorder, schizophrenia, etc.

Posted on: Nov 11, 2013 06:06PM

MusicLover wrote:

When I met my oncologist for the first time I joked to his receptionist that I must have reached my expiration date. Well, I just found out that I have thyroid cancer too. I was so upset that I left his office without a copy of the biopsy report so I don't even know what type it is but I do know that he said it is not an aggressive kind. Ultimately, I guess this is not a big deal but I was certain that the biopsy was going to come back benign. I had found on the web that thyroid nodules benign or malignant come up as a hypermedabolic on PET scans but sure enough my parts are expiring one by one. I will find out more after Thanksgiving but they will probably take the nodule and the thyroid out. I looked up some information on the web about thyroid cancer and there is a relationship between the thyroid and the breasts, so I'm just curious if anyone else has had thyroid cancer too? Thanks for listening to my whining...Sad

As per PET scan, 3 or 4 nodules in the right breast, 2 of which were actually in the middle of my chest, the other 2 were side by side in the breast. Also DCIS in the left breast. Dx 9/23/2013, IDC, Right, 2cm, Stage IV, Grade 2, 1/0 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 10/10/2013 Femara (letrozole)
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Nov 25, 2018 09:30AM momand2kids wrote:

I may have responded to this before-- dx breast cancer in 2008-- lumpectomy, chemo, radiation, drugs then in 2014 dx with pappillary thyroid cancer-- tiny- but still needed to have thyroid removed and low dose of radioactive iodine-- everyone in the medical chain of this dx said there was no correlation between the 2--I wondered if not using thyroid shield for all of my mammograms for 15 year may have played into this... I have to admit, while I know that thyroid cancer is the most low level of the cancers and the prognosis was beyond excellent, I was just pissed after having gone thorugh so much with bc.


the follow up is an annual ultrasound, clinical visit and 2 blood draws per year to check levels. taking levothyroxine.... generally feel great- but literally never had a thyroid issue or questionable levels at any point before this.... the nodule was found after a ct scan for a cough I could not shake-which it turns out was the nodule creating an irriation--so I guess I was lucky. It is just so strange to have had cancer twice.... doesn't even feel possible to me. But, on the upside, I feel great- and I am thankful for all of the good health care I have received.....

Surgery was not difficult-one night in the hospital- and I tool a long time off- like 3 weeks (it was summer) and I really wanted to be well-rested before I went back to work. Probably could have gone back after a week.
Just another bump in the road.....

good luck

Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)
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Nov 25, 2018 03:07PM TB90 wrote:

Thanks Momand2kids: I find myself living in two worlds right now. One where family and friends are devastated with my second cancer dx and one where I feel so thankful to have two such manageable cancers. I chose to spend as much time as possible in the latter but still get real pissed too.

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/18/2013 Mastectomy: Left Radiation Therapy 2/20/2014 Breast
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Nov 25, 2018 08:18PM marijen wrote:

I have two thyroid nodules being watched. They turned up on a pet scan after radiation. One is one cm but covered in calcification. The other has a lot of vascularity but only 4mm. My Endo says there is no correlation between thyroid cancer and BC, but I forget why. I have been told my thyroid is dead by one Endo, the other says it’s thinning. I am wondering if when thyroid is removed how high a dosage of levothyroxine do they put you on? At 75 mcg right now.


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Nov 25, 2018 10:58PM TB90 wrote:

Hi Marijen; My endo claims there is a correlation and my recent literature review support this also. But what is strange is that it does not necessarily relate to having radiation. I do not know the answer to dosages of Rx. But may know soon. Meet my endo tomorrow about treatment.

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/18/2013 Mastectomy: Left Radiation Therapy 2/20/2014 Breast
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Nov 25, 2018 11:27PM marijen wrote:

Thanks TB90, I’ll look forward to hear about your treatment. Do you by any chance have any pain in your neck? I do.


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Nov 30, 2018 11:06PM marijen wrote:

So thyroid doc today Asked him why I don’t get the full panel of thyroid tests and his reply - I don’tknow the answer to your questions. WTF?

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Nov 30, 2018 11:34PM TB90 wrote:

Marijen. Your dr should know. Do you have an option to get a second opinion. So frustrating! My endo wants me to have my thyroid removed. Meeting with the surgeon in the New Year. He was very reassuring about the outlook, but I worry about more radiation ( iodized radiation treatment) after radiation for BC. I will be glowing in the dark. Arghh

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/18/2013 Mastectomy: Left Radiation Therapy 2/20/2014 Breast
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Nov 30, 2018 11:41PM marijen wrote:

Yes TB I am perplexed by this. I told him I have so many symptoms of low thyroid and they are still there with my levothyroxine treatment. He says well they could be thyroid or something else. Come back in a year. So useless! I am thinking about seeing someone else. Endos are hard to cone by in my area.

I would not want my thyroid removed. Does that mean you have thyroid cancer for sure? Try to research as much as you can before the thyroid surgeon. I have an article from Cure mag I will find for you.

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Nov 30, 2018 11:53PM marijen wrote:

TB not sure if this will help you
https://www.curetoday.com/publications/cure/2018/s...


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Dec 1, 2018 12:37AM TB90 wrote:

Marijen: Awesome article. I have two tirads 5 modules but came back indeterminate. As do one third. Wonder why such a high rate of uncertain for thyroid biopsies?? Endo feels I am very high risk still and wants thyroid removed. I would jump at this but he indicated that after thyroid removal, I will receive iodinized radiation. I do NOT want more shit in my body. Waiting for surgical consult in Nee Year. Your thoughts?

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/18/2013 Mastectomy: Left Radiation Therapy 2/20/2014 Breast
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Dec 1, 2018 01:17AM marijen wrote:

I think go real slow on this turn of events and definitely get a second opinion. Before I got BC I thought surgery was a piece of cake. Now I am leary of more damage to my body of any kind, radiation included. I really feel that doctors have little care for the after effects. That’s off of the top of my head. Maybe tomorrow I will have more to offer.


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Dec 1, 2018 02:13AM Law828 wrote:

My pet scans continue to lite-up in the thyroid area (both sides). My surgeon had said that she found more women coming up with thyroid cancer after breast cancer. So I keep getting ultra sounds and biopsy along with bloodwork and all comes out good.

Dx 7/1/2011, IDC, 2cm, Stage IIIA, Grade 2, 4/13 nodes, ER+/PR+, HER2- Dx 8/7/2013, IDC, 1cm, Stage IV, mets, ER+/PR+, HER2- Chemotherapy 10/2/2013 Ixempra (ixabepilone), Xeloda (capecitabine) Radiation Therapy Bone
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Dec 1, 2018 04:52PM - edited Dec 1, 2018 04:52PM by marijen

Hi Law, thanks for joining us. I did not know you can have more than one biopsy. Thx. TB, if it's indeterminate I would not want to have it removed unless it is certain and they have a very good argument. Why can't they just remove the nodules first and do a pathology? I wonder.


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Dec 1, 2018 08:16PM TB90 wrote:

they do not do lumpectomies on the thyroid. Too bad it's not an option. They do at times remove half the thyroid. I am going to look into all options as there is time and I certainly do not feel the sense of urgency I had with BC.

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/18/2013 Mastectomy: Left Radiation Therapy 2/20/2014 Breast
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Dec 3, 2018 12:16AM marijen wrote:

Surgery for thyroid cancer

There are a few different types of surgeries that may be used to treat thyroid cancer.

  • Lobectomy: For small, well differentiated tumors that have not spread beyond the thyroid gland, a lobectomy may sometimes be performed. In this type of thyroid cancer surgery, the lobe containing the cancer is removed, leaving the other healthy lobe behind. This can reduce the need to take thyroid hormone treatment after surgery, since a functioning part of the thyroid remains.
  • Thyroidectomy: In this procedure, most or all of the thyroid gland is removed by surgery (total, near-total or subtotal thyroidectomy). This type of surgery for thyroid cancer is used for most patients. However, because very little or no functioning thyroid tissue is left behind, patients will need to take daily thyroid hormone replacement pills afterwards.
  • Lymph node removal: When the surgeon suspects that the thyroid cancer cells have spread to nearby lymph nodes, they will remove the enlarged or suspicious nodes in order to remove as much of the cancer as possible. This thyroid cancer surgical procedure is usually performed at the same time as the surgery on the primary tumor.
Found at cancercenter.co
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Dec 11, 2018 02:21PM TB90 wrote:

Yes they do lobectomy but not lumpectomy. They do not simply take out the nodule with a margin, but half the thyroid. Going for a second opinion. Thanks for your response!

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/18/2013 Mastectomy: Left Radiation Therapy 2/20/2014 Breast
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Jan 9, 2019 08:48AM woodstock99 wrote:

I have a 3.24 nodule (have had since 2003 previously biopsied benign but was smaller) and had FNA last month which was indeterminate and Afirna test which was suspicious 50/50 benign or not. I have been on synthroid since 2008.

Endo sent me to surgeon who I saw yesterday and both recommend partial removal. I am so distraught and feel like I am falling down the rabbit hole.

I am about to hit my 3 year NED on Saturday and am so depressed about this and possibility of the “c” diagnosis and this process with this and another lifelong change.

Everything I read is so negative about what’s happens to you and i am terrified about RAI if needed. I feel poisoned and hard to stay positive.

I know about all the things surgeon didn’t tell me about post-bmx life and the pain and discomfort I still have and lymphedema risk and I fear same with this surgery.

Sorry just angry and upset right now and not even sure about the point of a second opinion. Anyone have this? And of course endo and surgeon say no connection between the two. 🥵🥵🥵

Thanks in advance.

1/12/16 BMX. Stage 1/DCIS.
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Jan 9, 2019 03:16PM ceanna wrote:

Woodstock, sorry for your need for surgery. Mine was in reverse order--first thyroidectomy, then BC almost 5 years later. Yes, I'm told also there is supposedly no connection between the two, just the incident percentages can overlap. No surgery is a pleasant walk in the park, but thyroid surgery is do-able. I don't know how medical advances have changed since 2010 when I had my total thyroid out (indeterminate FNB but turned out to be cancerous), but follow up RAI may depend on your pathology. I did have RAI and no problems with it. Since you are already on synthroid, that will not change--just probably the amount you take per day. Only your surgeon can address the lymph node issue and whether or not they will need to test or remove any for you--I did not have any taken out so no problem there for me. You may want another opinion before you decide, and double check the specialty areas of the surgeon--how many thyroidectomies do they do per year/month? You want someone with lots of experience! If you have any questions, please ask. All the best. Ceanna

Dx 2014, IDC, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Multi-catheter Surgery Lumpectomy: Right
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Jan 9, 2019 08:10PM TB90 wrote:

Woodstock: I completely get it. Especially the inability to dx cancer yet still recommending surgery. To be honest, the surgery does not scare me as much as the possibility of having RAI. Thyroid cancer is treatable, but the odds of another cancer, especially cancer of salivary glands goes way up. You did not have previous radiation as I had. RAI presents a real risk to me. And now I just discovered that after more than 6 weeks, my endo still has not requested surgeon consultation. I do believe this is doable but not what we want to do. I have been researching everything. Lots of questions for surgeon. If you can get away with just a partial thyroidectomy and nothing further, that will be terrific. Well, terrific compared to alternatives. Keep in touch. Sorry this is happening to both of us

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/18/2013 Mastectomy: Left Radiation Therapy 2/20/2014 Breast
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Feb 21, 2019 12:23AM marijen wrote:

November 9, 2018

Genetic Test Helps Identify Benign vs Malignant Thyroid Nodule

HealthDay News — A multigene genomic classifier (GC) test for thyroid nodules with indeterminate cytology shows high sensitivity and negative predictive value, according to a study published online Nov. 8 in JAMA Oncology.

David L. Steward, MD, from the University of Cincinnati Medical Center, and colleagues conducted a prospective study at 10 medical centers to determine the diagnostic accuracy of a GC test (ThyroSeq v3) for cytologically indeterminate thyroid nodules. A total of 256 patients with 286 nodules met the eligibility criteria; central pathology review was performed on 274 nodules.

The researchers found that 72% of the 286 nodules were benign, 24% were malignant, and 4% were noninvasive follicular thyroid neoplasms with papillary-like nuclei (NIFTP). Overall, 257 nodules (154 Bethesda III, 93 Bethesda IV, and 10 Bethesda V) had informative GC analysis; 61 and 39% were classified as negative and positive, respectively. The test demonstrated a 94% sensitivity and 82% specificity in Bethesda III and IV nodules. The negative predictive value was 97%, and the positive predictive value was 66% with a cancer/NIFTP prevalence of 28%. The 3% false-negative rate was comparable to that of benign cytology.

"Beyond simply differentiating benign and malignant nodules, the study shows that ThyroSeq also provides a detailed genetic profile of the positive nodules," Steward said in a statement. "ThyroSeq potentially allows physicians to employ a precision medicine approach, modifying treatment for each patient based on the mutations present."

Related Articles

The University of Pittsburgh Medical Center granted CBLPath Inc. a license to market ThyroSeq for commercial use.

Abstract/Full Text

TOPICS:

ENDOCRINOLO

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Mar 24, 2019 11:37PM Rondeezee wrote:

Good Evening All,

I was diagnosed with IDC/DCIS in Mar 2018 and was subsequently had a bilateral mastectomy and DIEP flap reconstruction. I am ER/PR+ and HER-. No node involvement and I am currently on Letrozole. I have recovered remarkably well but I have recently challenged with lab results, in particular, my blood calcium level has been 10.4 for the past 9 months. My pre op work up included a full PET/ CT and there was no evidence of metastasis, but’s it did reveal an enlarged lobe on my left thyroid but no FDG uptake. Fast forward to last week, I went to see an endocrinologist and he ordered a thyroid ultrasoundand blood work. The ultrasound resulted two nodules, 2.8cm and 2.4cm. The largest nodule was rated TRads 2 and the smaller nodule was rated TRads 5 and is described as being in the mid left thyroid gland, 2.4 x 2.3 x 2.0 cm in size, mixed cystic and solid, hypoechoic, taller than wide, smoothly marginated, with a small internal echogenic focus. I am so scared that this is thyroid cancer and I am freaking out! Scheduling a FNA biopsy on tomorrow. Has anyone had a similar ultrasound report and it turned out not to be cancer? Need to hear about good outcomes.

Thank you.

Dx 3/28/2018, DCIS/IDC, Left, 2cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 8/16/2018 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Mar 24, 2019 11:52PM TB90 wrote:

Rondeezee: You have almost the exact dx I had except I had a Tirads 4 and a Tirads 5. After biopsying both, the results were indeterminate and the other was benign. Thyroid is perhaps the only biopsy that cannot determine malignancy. Almost one third of the biopsies are indeterminant. Both my endocrinologist and surgeon still highly recommended a full thyroidectomy. I had it four weeks ago. The results were benign. So yes, it definitely can be benign. I am in synthetic hormones and I cannot tell any difference at all. The surgery was easy. I wish I still had my thyroid, but I am so relieved to not have cancer or any SE's, that I dare not complain. Even if it is cancer, thyroid cancer has one of the highest cure rates. So breath and take one step at a time. Ask any other questions. I just went through this and researched it to death. You will be fine.

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/18/2013 Mastectomy: Left Radiation Therapy 2/20/2014 Breast
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Mar 25, 2019 12:38AM - edited Mar 25, 2019 12:47AM by Rondeezee

TB90: Thank you so much for your response.Your words are reassuring. I was just feeling like I was ready to move on with life and this happened. I hate this disease and the PTSD it causes. 2018 was a rough year for me and after going through BC treatment, I have so many fun things planned for this spring and summer to include getting married in Cancun in June. Trying to wear a straight face but it is so hard. I have not told my fiancé about my latest ordeal because I don't want him to worry. The ultrasound term that is most worrisome to me is “taller than wider". It is the exact description used to describe my BC nodule and it turned out to be cancer. Please keep me in prayer

Dx 3/28/2018, DCIS/IDC, Left, 2cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 8/16/2018 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Mar 25, 2019 01:30PM ceanna wrote:

Rondeezee, maybe by now you've had the biopsy and waiting for results. Unfortunately, like TB90 said, the results are often indeterminate. Mine were, and I had thyroid surgery in 2010. Only your endocrinologist can help you determine what to do from results.

I'm wondering, though, because you mention high blood calcium test results if your endo has looked in possible parathyroid problems. Everyone has four parathyroid glands behind the thyroid and they regulate calcium levels. Thyroid and parathyroid are located in the same area but totally separate. I, too, went for years with higher than normal calcium levels, and also erratic PTH levels (parathyroid hormone). Please ask your endo about this and see if that could be the reasons behind the nodules. Parathyroid problems are rarely cancerous and after having one of my parathyroids removed last summer, I have had normal calcium levels.


Dx 2014, IDC, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Multi-catheter Surgery Lumpectomy: Right
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Mar 25, 2019 04:25PM Rondeezee wrote:

Hi Ceanna,


Thank you for your response. My endocrinology work was focused on the parathyroid and the thyroid nodule just popped. My labs were drawn last Tuesday but I’ve yet to receive the results. Interesting that my ultrasound report did not reference anything about my parathyroids

Dx 3/28/2018, DCIS/IDC, Left, 2cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 8/16/2018 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Mar 25, 2019 08:13PM ceanna wrote:

Rondeezee, hope you get results soon and can uncover the cause of the nodule. I remember with parathyroid problems, they don't always show on an ultrasound because they are behind or embedded in the thyroid. Years after my thyroid was removed, a nodule showed in that area which turned out to be a parathyroid adenoma. Don't let them ignore the high calcium levels though. I had an endo who ignored my high levels for a few years and I ended up with osteopenia and minor kidney test problems. I've had both thyroid and parathyroid surgery--8 years apart with BC in-between! You might be interested in reading one of the threads focusing on parathyroid and calcium questions https://community.breastcancer.org/forum/96/topics/784308 Please let us know how your biopsy turns out and all the best for test results.

Dx 2014, IDC, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Multi-catheter Surgery Lumpectomy: Right
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Mar 25, 2019 09:41PM TB90 wrote:

My ultrasound results scored a 9 for the Tirads 5 which basically guaranteed it would be cancer. But it wasn't. After having had BC, I just could not bear another. My endocrinologist made it out to be nothing like BC and assured me if it was, he would deal with it and I had nothing to worry about. It isn't quite that simple or easy, but your treatment, if cancer, will not be urgent and you will not die from this. Plan your wedding and know you have a beautiful future ahead with your partner. There will be no need to interrupt your plans and no need to worry either your partner or yourself. Please stay in touch here. Together, we will support you through this.

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/18/2013 Mastectomy: Left Radiation Therapy 2/20/2014 Breast
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Mar 25, 2019 09:45PM TB90 wrote:

Parathyroids should be left in place even after thyroidectomy and are really a separate entity from thyroid nodules and issues. They can cause symptoms but not related to nodules. The greatest risk is that they can be damaged by surgery. All four of mine remained intact. And no post surgery SE's as a result.

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/18/2013 Mastectomy: Left Radiation Therapy 2/20/2014 Breast
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Mar 26, 2019 01:36AM Rondeezee wrote:

TB90: My ultrasound report scored 9 as well and this is why I am so scared. When I spoke with my endocrinologist, he didn’t sound too alarmed and tried to console me by stating that 90% of thyroid nodules are benign, but given my history of BC, he thought that the nodule should be biopsied. After reading through the description of the nodule, the most concerning feature is “taller than wider”. My exam lasted all of 15 minutes and I kept telling myself “if it is glaring cancer, the radiologist will come in to the exam room to examine my thyroid to make sure that the images were clear and not questionable”. This is exactly what happened when I was being worked up for BC.

I called to schedule my FNA today, and was told that the interventionist had to review my ultrasound then I would be called to schedule an appointment. I am feeling much better today and the reassurance I am getting from you and Ceanna is very comforting. I will remain in touch to let you know how things are progressing and I will also apprise you of the results of my biopsy. I am hoping for the best, but bracing for the worst, and I know that if I have to, I will climb this hill just like I’ve had to climb many others

Dx 3/28/2018, DCIS/IDC, Left, 2cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 8/16/2018 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Mar 26, 2019 01:43AM Rondeezee wrote:

Ceanna: thank you for the referral to the boards that talk about parathyroid and calcium. I had my first dexascan last year and it did result osteopenia in my left hip and lower spine. Last year, was the first time my labs resulted elevated blood calcium. Prior to that, my labs resulted low Vitamin D, which subsequently resolved after taking supplements. Once I know what’s going on with my thyroid, I will be interested in learning what my endocrinologist will recommend to further protect my bones as I am currently taking Letrozole.

Dx 3/28/2018, DCIS/IDC, Left, 2cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 8/16/2018 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap

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