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Topic: Anyone else with thyroid cancer too?

Forum: Breast Cancer with Another Diagnosis or Comorbidity — Meet others who have breast cancer but also have another health diagnosis/comorbidity such as diabetes, MS, bipolar disorder, HIV or AIDS, Parkinson's Disorder, schizophrenia, etc.

Posted on: Nov 11, 2013 03:06PM

MusicLover wrote:

When I met my oncologist for the first time I joked to his receptionist that I must have reached my expiration date. Well, I just found out that I have thyroid cancer too. I was so upset that I left his office without a copy of the biopsy report so I don't even know what type it is but I do know that he said it is not an aggressive kind. Ultimately, I guess this is not a big deal but I was certain that the biopsy was going to come back benign. I had found on the web that thyroid nodules benign or malignant come up as a hypermedabolic on PET scans but sure enough my parts are expiring one by one. I will find out more after Thanksgiving but they will probably take the nodule and the thyroid out. I looked up some information on the web about thyroid cancer and there is a relationship between the thyroid and the breasts, so I'm just curious if anyone else has had thyroid cancer too? Thanks for listening to my whining...Sad

As per PET scan, 3 or 4 nodules in the right breast, 2 of which were actually in the middle of my chest, the other 2 were side by side in the breast. Also DCIS in the left breast. Dx 9/23/2013, IDC, Right, 2cm, Stage IV, Grade 2, 1/0 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 10/9/2013 Femara (letrozole)
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Nov 25, 2018 06:30AM momand2kids wrote:

I may have responded to this before-- dx breast cancer in 2008-- lumpectomy, chemo, radiation, drugs then in 2014 dx with pappillary thyroid cancer-- tiny- but still needed to have thyroid removed and low dose of radioactive iodine-- everyone in the medical chain of this dx said there was no correlation between the 2--I wondered if not using thyroid shield for all of my mammograms for 15 year may have played into this... I have to admit, while I know that thyroid cancer is the most low level of the cancers and the prognosis was beyond excellent, I was just pissed after having gone thorugh so much with bc.

the follow up is an annual ultrasound, clinical visit and 2 blood draws per year to check levels. taking levothyroxine.... generally feel great- but literally never had a thyroid issue or questionable levels at any point before this.... the nodule was found after a ct scan for a cough I could not shake-which it turns out was the nodule creating an irriation--so I guess I was lucky. It is just so strange to have had cancer twice.... doesn't even feel possible to me. But, on the upside, I feel great- and I am thankful for all of the good health care I have received.....

Surgery was not difficult-one night in the hospital- and I tool a long time off- like 3 weeks (it was summer) and I really wanted to be well-rested before I went back to work. Probably could have gone back after a week.
Just another bump in the road.....

good luck

Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/25/2008 Lumpectomy: Right Chemotherapy 1/16/2009 Adriamycin (doxorubicin) Radiation Therapy 3/23/2009 Breast Hormonal Therapy 6/15/2009 Femara (letrozole)
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Nov 25, 2018 12:07PM TB90 wrote:

Thanks Momand2kids: I find myself living in two worlds right now. One where family and friends are devastated with my second cancer dx and one where I feel so thankful to have two such manageable cancers. I chose to spend as much time as possible in the latter but still get real pissed too.

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/18/2013 Mastectomy: Left Radiation Therapy 2/20/2014 Breast
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Nov 25, 2018 05:18PM marijen wrote:

I have two thyroid nodules being watched. They turned up on a pet scan after radiation. One is one cm but covered in calcification. The other has a lot of vascularity but only 4mm. My Endo says there is no correlation between thyroid cancer and BC, but I forget why. I have been told my thyroid is dead by one Endo, the other says it’s thinning. I am wondering if when thyroid is removed how high a dosage of levothyroxine do they put you on? At 75 mcg right now.

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Nov 25, 2018 07:58PM TB90 wrote:

Hi Marijen; My endo claims there is a correlation and my recent literature review support this also. But what is strange is that it does not necessarily relate to having radiation. I do not know the answer to dosages of Rx. But may know soon. Meet my endo tomorrow about treatment.

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/18/2013 Mastectomy: Left Radiation Therapy 2/20/2014 Breast
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Nov 25, 2018 08:27PM marijen wrote:

Thanks TB90, I’ll look forward to hear about your treatment. Do you by any chance have any pain in your neck? I do.

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Nov 30, 2018 08:06PM marijen wrote:

So thyroid doc today Asked him why I don’t get the full panel of thyroid tests and his reply - I don’tknow the answer to your questions. WTF?

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Nov 30, 2018 08:34PM TB90 wrote:

Marijen. Your dr should know. Do you have an option to get a second opinion. So frustrating! My endo wants me to have my thyroid removed. Meeting with the surgeon in the New Year. He was very reassuring about the outlook, but I worry about more radiation ( iodized radiation treatment) after radiation for BC. I will be glowing in the dark. Arghh

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/18/2013 Mastectomy: Left Radiation Therapy 2/20/2014 Breast
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Nov 30, 2018 08:41PM marijen wrote:

Yes TB I am perplexed by this. I told him I have so many symptoms of low thyroid and they are still there with my levothyroxine treatment. He says well they could be thyroid or something else. Come back in a year. So useless! I am thinking about seeing someone else. Endos are hard to cone by in my area.

I would not want my thyroid removed. Does that mean you have thyroid cancer for sure? Try to research as much as you can before the thyroid surgeon. I have an article from Cure mag I will find for you.

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Nov 30, 2018 08:53PM marijen wrote:

TB not sure if this will help you

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Nov 30, 2018 09:37PM TB90 wrote:

Marijen: Awesome article. I have two tirads 5 modules but came back indeterminate. As do one third. Wonder why such a high rate of uncertain for thyroid biopsies?? Endo feels I am very high risk still and wants thyroid removed. I would jump at this but he indicated that after thyroid removal, I will receive iodinized radiation. I do NOT want more shit in my body. Waiting for surgical consult in Nee Year. Your thoughts?

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/18/2013 Mastectomy: Left Radiation Therapy 2/20/2014 Breast
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Nov 30, 2018 10:17PM marijen wrote:

I think go real slow on this turn of events and definitely get a second opinion. Before I got BC I thought surgery was a piece of cake. Now I am leary of more damage to my body of any kind, radiation included. I really feel that doctors have little care for the after effects. That’s off of the top of my head. Maybe tomorrow I will have more to offer.

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Nov 30, 2018 11:13PM Law828 wrote:

My pet scans continue to lite-up in the thyroid area (both sides). My surgeon had said that she found more women coming up with thyroid cancer after breast cancer. So I keep getting ultra sounds and biopsy along with bloodwork and all comes out good.

Dx 7/1/2011, IDC, 2cm, Stage IIIA, Grade 2, 4/13 nodes, ER+/PR+, HER2- Dx 8/7/2013, IDC, 1cm, Stage IV, mets, ER+/PR+, HER2- Chemotherapy 10/1/2013 Ixempra (ixabepilone), Xeloda (capecitabine) Radiation Therapy Bone
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Dec 1, 2018 01:52PM - edited Dec 1, 2018 01:52PM by marijen

Hi Law, thanks for joining us. I did not know you can have more than one biopsy. Thx. TB, if it's indeterminate I would not want to have it removed unless it is certain and they have a very good argument. Why can't they just remove the nodules first and do a pathology? I wonder.

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Dec 1, 2018 05:16PM TB90 wrote:

they do not do lumpectomies on the thyroid. Too bad it's not an option. They do at times remove half the thyroid. I am going to look into all options as there is time and I certainly do not feel the sense of urgency I had with BC.

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/18/2013 Mastectomy: Left Radiation Therapy 2/20/2014 Breast
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Dec 2, 2018 09:16PM marijen wrote:

Surgery for thyroid cancer

There are a few different types of surgeries that may be used to treat thyroid cancer.

  • Lobectomy: For small, well differentiated tumors that have not spread beyond the thyroid gland, a lobectomy may sometimes be performed. In this type of thyroid cancer surgery, the lobe containing the cancer is removed, leaving the other healthy lobe behind. This can reduce the need to take thyroid hormone treatment after surgery, since a functioning part of the thyroid remains.
  • Thyroidectomy: In this procedure, most or all of the thyroid gland is removed by surgery (total, near-total or subtotal thyroidectomy). This type of surgery for thyroid cancer is used for most patients. However, because very little or no functioning thyroid tissue is left behind, patients will need to take daily thyroid hormone replacement pills afterwards.
  • Lymph node removal: When the surgeon suspects that the thyroid cancer cells have spread to nearby lymph nodes, they will remove the enlarged or suspicious nodes in order to remove as much of the cancer as possible. This thyroid cancer surgical procedure is usually performed at the same time as the surgery on the primary tumor.
Found at cancercenter.co
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Dec 11, 2018 11:21AM TB90 wrote:

Yes they do lobectomy but not lumpectomy. They do not simply take out the nodule with a margin, but half the thyroid. Going for a second opinion. Thanks for your response!

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/18/2013 Mastectomy: Left Radiation Therapy 2/20/2014 Breast
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Jan 9, 2019 05:48AM woodstock99 wrote:

I have a 3.24 nodule (have had since 2003 previously biopsied benign but was smaller) and had FNA last month which was indeterminate and Afirna test which was suspicious 50/50 benign or not. I have been on synthroid since 2008.

Endo sent me to surgeon who I saw yesterday and both recommend partial removal. I am so distraught and feel like I am falling down the rabbit hole.

I am about to hit my 3 year NED on Saturday and am so depressed about this and possibility of the “c” diagnosis and this process with this and another lifelong change.

Everything I read is so negative about what’s happens to you and i am terrified about RAI if needed. I feel poisoned and hard to stay positive.

I know about all the things surgeon didn’t tell me about post-bmx life and the pain and discomfort I still have and lymphedema risk and I fear same with this surgery.

Sorry just angry and upset right now and not even sure about the point of a second opinion. Anyone have this? And of course endo and surgeon say no connection between the two. 🥵🥵🥵

Thanks in advance.

1/12/16 BMX. Stage 1/DCIS.
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Jan 9, 2019 12:16PM ceanna wrote:

Woodstock, sorry for your need for surgery. Mine was in reverse order--first thyroidectomy, then BC almost 5 years later. Yes, I'm told also there is supposedly no connection between the two, just the incident percentages can overlap. No surgery is a pleasant walk in the park, but thyroid surgery is do-able. I don't know how medical advances have changed since 2010 when I had my total thyroid out (indeterminate FNB but turned out to be cancerous), but follow up RAI may depend on your pathology. I did have RAI and no problems with it. Since you are already on synthroid, that will not change--just probably the amount you take per day. Only your surgeon can address the lymph node issue and whether or not they will need to test or remove any for you--I did not have any taken out so no problem there for me. You may want another opinion before you decide, and double check the specialty areas of the surgeon--how many thyroidectomies do they do per year/month? You want someone with lots of experience! If you have any questions, please ask. All the best. Ceanna

Dx 2014, IDC, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Multi-catheter Surgery Lumpectomy: Right
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Jan 9, 2019 05:10PM TB90 wrote:

Woodstock: I completely get it. Especially the inability to dx cancer yet still recommending surgery. To be honest, the surgery does not scare me as much as the possibility of having RAI. Thyroid cancer is treatable, but the odds of another cancer, especially cancer of salivary glands goes way up. You did not have previous radiation as I had. RAI presents a real risk to me. And now I just discovered that after more than 6 weeks, my endo still has not requested surgeon consultation. I do believe this is doable but not what we want to do. I have been researching everything. Lots of questions for surgeon. If you can get away with just a partial thyroidectomy and nothing further, that will be terrific. Well, terrific compared to alternatives. Keep in touch. Sorry this is happening to both of us

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/18/2013 Mastectomy: Left Radiation Therapy 2/20/2014 Breast
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Feb 20, 2019 09:23PM marijen wrote:

November 9, 2018

Genetic Test Helps Identify Benign vs Malignant Thyroid Nodule

HealthDay News — A multigene genomic classifier (GC) test for thyroid nodules with indeterminate cytology shows high sensitivity and negative predictive value, according to a study published online Nov. 8 in JAMA Oncology.

David L. Steward, MD, from the University of Cincinnati Medical Center, and colleagues conducted a prospective study at 10 medical centers to determine the diagnostic accuracy of a GC test (ThyroSeq v3) for cytologically indeterminate thyroid nodules. A total of 256 patients with 286 nodules met the eligibility criteria; central pathology review was performed on 274 nodules.

The researchers found that 72% of the 286 nodules were benign, 24% were malignant, and 4% were noninvasive follicular thyroid neoplasms with papillary-like nuclei (NIFTP). Overall, 257 nodules (154 Bethesda III, 93 Bethesda IV, and 10 Bethesda V) had informative GC analysis; 61 and 39% were classified as negative and positive, respectively. The test demonstrated a 94% sensitivity and 82% specificity in Bethesda III and IV nodules. The negative predictive value was 97%, and the positive predictive value was 66% with a cancer/NIFTP prevalence of 28%. The 3% false-negative rate was comparable to that of benign cytology.

"Beyond simply differentiating benign and malignant nodules, the study shows that ThyroSeq also provides a detailed genetic profile of the positive nodules," Steward said in a statement. "ThyroSeq potentially allows physicians to employ a precision medicine approach, modifying treatment for each patient based on the mutations present."

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The University of Pittsburgh Medical Center granted CBLPath Inc. a license to market ThyroSeq for commercial use.

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