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Apr 28, 2019 02:27PM
Ella - I've had Lyme (co-infections/immune issues) for most of my life, since I was a teenager. Then was dx last year with BC. Didn't have chemo, but have suffered terribly through RADs and the SEs from it. (Fibrosis, Breast Lymphedema, Rib Dysfunction, and now severely low WBC) I go in for an Abdominal CAT Scan this week. They are concerned about my organs.
Sorry you have this all going on, on top of the BC. It really isn't fair. I hope you are managing so far.
As to your questions, there isn't a test currently that can ever tell us when all of the Lyme bacteria is gone. So, unfortunately we just don't know. I have no idea the effects of Chemo on spirochetes, but I'm sure it can't be helpful to them.
It's been 6 months since RADs finished, and I'm still dealing with pain/SEs daily. I go to PT and Acupuncture weekly. Also have to do PT (LMD massage/compression/etc) at home for 45 mins daily plus at least 6-8 hours of compression to manage my symps. The hormonal treatments haven't been great (Tamoxifen 5mgs daily). Lots of SEs. But I knew going into this, like you mentioned, having tons of health issues things would get rougher before better.
I'm hopeful that next year this time, I'll have made alot more progress.
How are things with you now?
"Spoonie" who entered BC World @ 41. DXd w/MS & Thyroid Cancer @42. Treatment: LX/SLNB/RADs. Plan A: 5mg Tamox = 0 QOL. Plan B: OS/AI = Rare allergy to OS meds. Plan C: Only option left, Diet & Exercise. PS: Not a dr, just a Googler.
7/20/2018, IDC, Left, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH)
8/30/2018, DCIS, Left, 1cm, Stage 0, Grade 2
8/30/2018 Lumpectomy: Left; Lymph node removal: Left, Sentinel
10/1/2018 Whole-breast: Breast, Lymph nodes, Chest wall
3/30/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
7/2/2019 Zoladex (goserelin)