All Topics → Forum: Breast Cancer with Another Diagnosis or Comorbidity → Topic: Anyone here with another primary cancer diagnosis??
Posted on: Mar 22, 2014 02:49PM
Anyone here with another primary cancer diagnosis?? Testing to see if I do right now. :(
Posts 151 - 180 (257 total)
Sep 8, 2017 08:53PM Traveltext wrote:
Judi, I trust your team can get the new tumors under control. Where are you being treated?
Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.
Oct 5, 2017 09:14PM Jenpinc wrote:
Hi- 39 yo and new to this community and this world! Just dx with BC 10 days ago. Was told it was small and really early. Went to BS and she said it's not early and it's not small and spread to axilla. Stage IIB. Was missed 2 years ago on US. Went for genetic testing and MRI. Showed masses on the other breast and lung. Ignoring breast masses since already opted for BMX. CT scan confirmed lung mass so went for lung biopsy today and the doc said does not follow the pattern of mets - phew - looks like second primary lung ca. Yikes. Don't know for sure but prepared for it to be positive. In this alternate universe I now live in I am relieved. I mean what a whirlwind of a week. I am finding strength in my kids but not easy! Anyone have similar situation? Was treatment more complicated? Was treatment concurrent or one first? Any advice/support appreciated. Can't believe how life can change so fast
Oct 5, 2017 09:47PM - edited Oct 6, 2017 12:24AM by lekker
Hi Jenpinc. I hope someone who had synchronous (at the same time) primaries comes along soon to support you. This thread (fortunately) isn't that active. There is a lung cancer - not Mets thread and you could search for that. My primaries were 12 years apart so metachronous. I'm sure it's extremely stressful waiting for the lung pathology so you can create a treatment plan. If it does turn out to be breast mets, there is a lot of support on the Stage IV boards. Please come back here and let us know your results
Oct 6, 2017 12:20AM pboi wrote:
Hi jenpinc...almost 3 years ago I was diagnosed at age 43 with stage IIA BC, I had a BMX and after that chemo. Halfway through chemo I started having a lot of bone pain and a PET revealed a thyroid nodule, which after biopsy confirmed to be thyroid cancer. Treatment for me wasn't more complicated but staggered with the priority given to what was most important first. For me that meant finishing chemo for BC. Then I had a thyroidectomy, and after that radiation for my BC, and when that was done radioactive iodine tx for my thyroid. I have 3 young kids too, and treatments were tough, but I was determined to fight! I am 2 years post treatment now and doing great.
Oct 6, 2017 05:24AM 2FUN wrote:
hi jenpinc, sorry you need to join us. I was dx with BC 9/16, had lumpectomy. While recovering complained to my PCP s nurse that I was having stupid perimenopause syymtoms. ( I was 54 and still having periods, tho inconsistently). She encouraged me to go to gyn. Long story short, I had biopsy and dx of endometrial CA. In the mean time the IDC that was removed was found to also have DCIS throughout the sample. I had hysterectomy in jan, them UMX in march. Scans I had revealed a mass on my kidney and thyroid. Kidney seems to be ok, Weare watching that. Thyroid was removed at the same time I had BC reconstruction in july. That was benign. Yeah, it happens and stinks. You will get through this. Only thing I wish I had done differently is get/accept help earlier in the process. I waited for help until I had surgery, where I could have used help for the kids, meals ocassionally when going thru the diagnosis phase. I'm pulling for you!
Oct 6, 2017 06:33PM GreenEyes81 wrote:
I was dx with idc in July. Had an MRI on a lump on my foot a week ago and am now scheduled for a biopsy on Wednesday to confirm if b9 or not. I am done with BC treatment other than if I decide to take Tomoxifin. It just feels like its never ending.
From tons of research, I can't imagine it is met's....so thinking a new sarcoma more likly if not b9.
Oct 8, 2017 03:05PM Pessa wrote:
3 years after I completed tx for BC ( BMX and chemo) I was diagnosed with primary lung cancer. Lobe removed. One year later ( one year ago) a new primary lung cancer was diagnosed. I had a second lobe of my lung removed. We are watching a nodule that has been very slowly growing over a couple of years. No intervention needed at this point. I am still working full time, taking care of my 2 sons, who have moved back home (20 and23) and leading a normal life, though exerting myself physically is a bit difficult.
Oct 9, 2017 09:09PM Jenpinc wrote:
Hi all- just came from oncologist. Was diagnosed with primary lung cancer in addition to the breast cancer. Also found a suspicious lymph node mid chest which needs to be biopsied and if positive will determine if originating from breast or lung making either cancer stage 3. He said breast would be a better scenario. They also found a nodule on my adrenal gland. Need a PETscan for that after next biopsy. Need a special hospital to do that and if needs to be biopsied it is very tricky. My goodness this snowball won't stop. Since all are on the right side and I am so young and they seemed to onset together, the onc said I am one of the rarest cases he has dealt with, even as head of oncology at a reputable hospital. Not so comforting. Tomorrow I am going to a holistic dentist to get root canal teeth removed as this seems to be a cause of cancer and on the same side it seems too coincidental. Changed my lifestyle completely. Went to plant based diet and a ton of supplements to reverse these beasts. Now more testing waiting and praying. I wish I could just move forward with healing. But that seems a while away yet.
Oct 9, 2017 11:50PM Pessa wrote:
Jenpinc, so sorry to hear of the lung cancer, on top of the BC. Hoping the lymph node turns out to be benign. You are dealing with so much!
Interesting about the root canal connection. I have had several on both sides. My BC and lung cancers were all on the right, however a melanoma I had 24 years ago was on the left. I guess no pattern there......
Wishing you well and hoped for outcomes on your ucoming procedures.
Oct 10, 2017 11:40AM lekker wrote:
Jenpinc - so sorry to hear about the lung cancer. You’re dealing with so much! I hope the lymph node and adrenal nodule are benign. In the midst of this turmoil, has anyone spoken to you about genetic counseling? I only ask because certain genetic causes of cancer can affect treatment decisions. I hope you get some good news soon.
Oct 10, 2017 12:34PM Jenpinc wrote:
Hi lekker, I have done genetic counseling for the breast and they are checking on what other genetic tests might be needed for the lung or what can be covered off from the original panel. That was definitely a topic for discussion. Results are pending.
Pessa besides the lobe removals was there any other tx for the lung cancer? Hoping the surgery will be enough but I guess it depends on the lymph node. Sorry to hear you had to deal with so much but gives me hope that you are well
Oct 11, 2017 02:17AM Pessa wrote:
Both lung cancers were stage 1, the first one was 1B, the second was 1A, so the only treatments were surgeries (difference was tumor size). Both were non-small cell. The lymph nodes that the surgeon removed were negative. You are correct that further treatment beyond surgery, would be based on lymph node status. I really do feel well except for getting short of breath with activities. I can do everything but it takes me 2-3 times as long. I do want to let you know that the lung surgeries were much more difficult than the mastectomies (I had 2 separate surgeries for the mastectomies), however I have fully recovered from all surgeries.
Wishing you well. Keep us updated
Oct 12, 2017 09:51AM Yoxter123 wrote:
Traveltext Brisbane ..sorry for delay in replying being treated on GC ...however may be looking for recommendations for Brisbane ? Recent Onc ordered CT for ongoing hip pain ,raised markers etc came back reporting a confirmed solid lesion on R kidney op site .. Neoplasm ... Total freak from me so soon from last surgery ...demanded second opinion from second surgeon and radiology consult .... Report- simple cyst close to original op margin ...wow how do I learn to return to trust people reading my scans ?? I pray that second opinions are correct !!
Also due to see geneticist in two weeks ...... Start the hunt for family patterns and hopefully more genetic testing .... Thru my research I have as have others found some connections between breast cancer,kidney cancer,thyroid cancer and endometrial in some people suffering from more than one cancer primary ....interestingly enough they have also been watching closely a couple of nodules on my left lung.
To everyone on this page ...we are all informing each other of similar cancer experiences and it certainly makes me feel better to know I am not alone !!
Wishing you all well and any genetic testing results I will definitely post on here....information is power
Oct 15, 2017 08:37PM Jenpinc wrote:
Dec 1, 2017 01:47AM mightymon wrote:
I was diagnosed with stage II IDC in 2010, stage IV ovarian cancer in October 2016, and just last month diagnosed with Acute myeloid leukaemia!! This one is therapy related from the BC treatment I had back in 2010.
I also had Li-Fraumeni syndrome with TP 53 mutation (the killer gene) So this explain why I keep having cancer.
Dec 1, 2017 10:26PM lekker wrote:
Wow mightymon- what a story! How’s your treatment for the AML going? Are you currently receiving treatment for the ovarian cancer too?
Dec 2, 2017 06:21AM 2FUN wrote:
mightymon. How did yu find out about the syndrome/genetic mutation? Please keep us posted and hand in there! (Hugs)
I got good news yesterday that my kidney cyst is still the same, a year later. Yay, but still don't know why I'm still having UTI s constantly. Having colonoscopy as soon as I get on the list. May be months she said. After 4 surgeries in I months I am hoping there is nothing else. Do yu all get tired of thinking positively?
Dec 2, 2017 11:26AM lekker wrote:
2fun - you’ve been through so much. Do you have access to a counselor or therapist or someone who can try to help you process everything? Good to hear the kidney cyst hasn’t changed. Have you ever had a colonoscopy before (forgive me if you’ve mentioned it and I missed it)? The worst part is the prep but it’s manageable. Maybe you can get on a cancellation list so you won’t have to wait so long? Please keep us posted
Dec 2, 2017 03:05PM 2FUN wrote:
lekker. I'm doing ok mentally, just wish I had more energy to buy healthy food and cook. I've been buying healthy salads and kale cakes from our fancy supermarket. Makes whole foods look like a corner market. Thanks for the sympathy. Sometimes you just need validation of your cancer reality!
Dec 2, 2017 10:05PM mightymon wrote:
Hi lekker, I finished my chemo for Ovarian cancer in Feb this year and the scan show NED so I'm not on any treatment for this. Just a 4 monthly blood test which pick up my low white blood cell, Dr order the bone marrow biopsy and the rest is history. This AML is therapy related from the breast cancer treatment I had back in 2010 so I will have to have a non intensive treatment for this (trying to control than cure it) which I happy with.
Dec 2, 2017 10:18PM mightymon wrote:
Hi 2Fun, I had the genetic test and was negative for BRCA gene but positive for the TP53 mutation. Good to hear about your kidney cyst. I also had colonoscopy and find the whole experience was not bad at all. I actually very amaze by what I can see!! lol.
Dec 3, 2017 06:14PM lekker wrote:
I get what you mean about the colonoscopy potentially finding yet another problem 2FUN. The only good part about it is if they do find a polyp, they cut it out - often before it has grown into a full blown invasive tumor. But it would be lovely not to have another invasive test, right
Dec 3, 2017 10:16PM - edited Dec 4, 2017 04:41AM by 2FUN
totally, and I ve been having bowel and bladder problems, on and off. Not sure how much to chalk up to AI side effects, or how much to worry. Trying not to worry, that take too much energy for me!
Dec 4, 2017 08:18PM lekker wrote:
I had one significant episode of bleeding with a bowel movement. It was clearly not just a “little blood on the paper” kind of thing. I had new insurance so I met with a primary care Dr the next day. She found a little blood when she inserted a finger (sorry for the TMI but I’m not shy after all of that). The next step at my HMO was to see a surgeon (for some reason they do the initial scopes before GI does a full blown colonoscopy). He didn’t see any blood with the tiny anuscope so he scheduled a flexible sigmoidoscopy. As soon as that scope went in, he saw the polyp so it was on to GI. I never had another bad episode of bleeding while all of the testing was happeningso I’m lucky that my doctors didn’t just brush it off because I was only 30.
Dec 5, 2017 07:02PM chronicpain wrote:
Oct 6, 2017 01:20AM pboi wrote:
"Hi jenpinc...almost 3 years ago I was diagnosed at age 43 with stage IIA BC, I had a BMX and after that chemo. Halfway through chemo I started having a lot of bone pain and a PET revealed a thyroid nodule, which after biopsy confirmed to be thyroid cancer. Treatment for me wasn't more complicated but staggered with the priority given to what was most important first. For me that meant finishing chemo for BC. Then I had a thyroidectomy, and after that radiation for my BC, and when that was done radioactive iodine tx for my thyroid. I have 3 young kids too, and treatments were tough, but I was determined to fight! I am 2 years post treatment now and doing great."
Just found this thread. Pboi, did your docs determine that your thyroid cancer (was it papillary?) had anything to do with your complaint of bone pain? If yes, i.e., the pain would have been due to mets to bones, and you would have needed much more than thyroidectomy and I131 to the thyroid. Most thyroid cancers do not hurt unless they are huge in the neck, or are metastasized (not common) and are easily curable, way easier to handle than BC. You were also on arimidex for a year at the time, per your signature, which causes bone and joint pain in 25-40% of women, so maybe that was the cause of the pain.
Here, if the arimidex caused bone pain, it is ironically a good thing it did, because otherwise the PET would probably not have been done and the thyroid cancer dx would have been delayed and not incidentally discovered
I am glad you are doing well.