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Aug 12, 2019 11:35AM
Aug 12, 2019 11:38AM
Maybe a Cardiologist is called for more than a Neuro in that case? Sounds like you have good questions on the list for your PCP. Hopefully he can give you some answers. It definitely seems like there should be a specific someone in charge for this new syndrome if repeat labs confirm it. Waiting is just the worst. Sept for you Im sure seems like forever. Hang in there.
As for me, it seems like most people (rare bit it happens) that are allergic to Zoladex are allergic to Lupron and other hormone antagonists. If my MO wants to try another they'll have to test it first on me via labs etc. No way I'm going through another horror story month to "try it". It was just a nightmare.
This is what I looked like for most of July after the Zoladex. On left is after 36 hrs of Prednisone and on right is without prednisone, the day I was turned away from my MOs office and saw my PCP.
My MO refused to help me even though their drug caused this. They deny Im allergic. How can they say Im not? Either way they didn't help me when I presented to their office looking like this and with my timeline. They sent me away. It was awful. Not sure if I will be going back to her. Will see what Immunilogist says.
I'm glad your thyroid nodule turned out benign and that because of that they discovered the breast cancer. Small miracles right? Sometimes they do happen. I'm hoping mine will be benign too but I have 2 siblings with thyroid cancer, i hae hypothyroidism already & my ultrasound shows it as solid & hypoechoic. Not great but still possible it can be benign. Will have answers in Sept or Oct hopefully, my fingers are crossed a cancellation or two gets me in sooner for the consult & then they can do the FNB.
"Spoonie" who entered BC World @ 41. DXd w/MS & Thyroid Cancer @42. Treatment: LX/SLNB/RADs. Plan A: 5mg Tamox = 0 QOL. Plan B: OS/AI = Rare allergy to OS meds. Plan C: Only option left, Diet & Exercise. PS: Not a dr, just a Googler.
7/20/2018, IDC, Left, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH)
8/30/2018, DCIS, Left, 1cm, Stage 0, Grade 2
8/30/2018 Lumpectomy: Left; Lymph node removal: Left, Sentinel
10/1/2018 Whole-breast: Breast, Lymph nodes, Chest wall
3/30/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
7/2/2019 Zoladex (goserelin)