Log in to post a reply
Sep 13, 2019 08:27PM
Sep 13, 2019 08:30PM
Hey ladies, just wanted to stop in and share some news. It's been a crazy crappy stressful summer and unfortunately I am now a new member of the MS club.....le sigh.
I did teach my Neurologist something though, at my appt last week. He wasn't aware of the fact you mentioned above, Jaycee -- MS can be triggered and exacerbated by lack of estrogen. He googled it on his computer right there in front of me and said, "Well hey would you look at that. You learn something new everyday.".
Anyway, I had a priro historical dx of "high risk for MS or probable MS" back in 2005. Followed by abnormal, slightly increasing lesions over a period of years from 2007-2011. My MRI's had been stable up until Jan 2019 but when I had new ones run in Aug, 15 new lesions showed up. Guess what's been going on in my body since this spring, ugggh limiting my estrogen of course with Tamoxifen and with Zoladex?! Go figure.
So, had a Spinal MRI done, thankfully that it is clear currently. No lesions there. Just the new ones getting to know the old ones as they hang out like xmas lights in my brain, the majority of the newest ones appearing in my Brainstem and Cerebellum.
I am a bit lost with how to navigate in this MS medical world....anyone have tips for a newbie? Did you all get a second opinon? Were there baseline tests that should be run to compare to later, like cognitive skills/motor skills/etc? I'm not really impressed with my current Neuro, but not sure where to even start.
Sounds like from a few of you, that your symptoms were aggravated by surgeries and cancer treatments. Did they die back down or stay that way after some healing? I just have no idea where to go from here.....
Is there a MS board like BCO? Any help is immensely appreciated my friends. Thanks in advance.
"Spoonie" who entered BC World @ 41. DXd w/MS & Thyroid Cancer @42. Treatment: LX/SLNB/RADs. Plan A: 5mg Tamox = 0 QOL. Plan B: OS/AI = Rare allergy to OS meds. Plan C: Only option left, Diet & Exercise. PS: Not a dr, just a Googler.
7/20/2018, IDC, Left, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH)
8/30/2018, DCIS, Left, 1cm, Stage 0, Grade 2
8/30/2018 Lumpectomy: Left; Lymph node removal: Left, Sentinel
10/1/2018 Whole-breast: Breast, Lymph nodes, Chest wall
3/30/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
7/2/2019 Zoladex (goserelin)