Join Us

We are 225,032 members in 83 forums discussing 163,852 topics.

Help with Abbreviations

Topic: Barrett's Esophagus

Forum: Breast Cancer with Another Diagnosis or Comorbidity — Meet others who have breast cancer but also have another health diagnosis/comorbidity such as diabetes, MS, bipolar disorder, HIV or AIDS, Parkinson's Disorder, schizophrenia, etc.

Posted on: Dec 28, 2016 08:06AM

KBeee wrote:

Anyone have Barrett's esophagus??? Wondering if BC increases the likelihood of it progressing, and wondering if chemo and radiation may have contributed?

I'll ask my GI doc these questions when he calls with biopsy results to let me know if dysplasia is present. I just had endoscopy yesterday, so I am still surprised; was not expecting to hear that he saw some areas of Barrett's.

If anyone had experience with this, please share any info you can. Thanks

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/25/2013 Mastectomy: Left, Right Chemotherapy 9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/22/2014 Reconstruction (left); Reconstruction (right) Surgery 1/28/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Surgery 2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Chemotherapy 3/30/2015 AC + T (Taxol) Radiation Therapy 8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
Log in to post a reply

Page 1 of 1 (24 results)

Posts 1 - 24 (24 total)

Log in to post a reply

Dec 28, 2016 10:53AM Moderators wrote:

Hi Kbeee!

While you wait for some others to respond, you may want to try using the Community search tool with the keywords "Barrett's esophagus" to find others who may have posted about this diagnosis as well. A quick look turns up at least 2 other members who you could reach out to via PM!

We hope this helps!

--The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
Log in to post a reply

Dec 28, 2016 11:13AM Hopeful82014 wrote:

Karen, I've not run across anything to suggest an association between BE and breast cancer. If chemo caused a good deal of heartburn it might contribute to it but generally the damage tends to occur over a longer period of time before causing the changes seen in BE. I hope you get good news from your biopsy - soon.

Dx IDC
Log in to post a reply

Dec 29, 2016 04:32AM - edited Dec 29, 2016 04:33AM by Pammac47

KBee

I did not have chemo induced Barretts' Esophagus as mine was diagnosed prior to BC, but am going for endoscopy tomorrow as have issues. I did notice an increase in heartburn even with prescription pantoprazole. At least during the chemo, don't know if this answers question but I do think the heartburn and acid reflux were worse during.

Pam

Chemotherapy 3/21/2016 AC + T (Taxol) Hormonal Therapy Femara (letrozole) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Dec 29, 2016 06:05AM Jelson wrote:

After BC - with radiation but without chemo - I developed silent reflux - and with 6 months of medication, changing how I breathed during exercise and monitoring my diet - I have been symptom free for several years. I never got to the point of Barrett's - but my ENT recommended Dr. Jamie Koufman's book Dropping Acid and her diet - basically avoiding acidic foods. I really think the trigger for me was my father in law's diagnosis of throat cancer and the most significant change I made was breathing out on exertion when I exercised - I had been doing the exact opposite. In any event, I found Dropping Acid to be a great read about reflux and how treatment modalities depend on the specialty treating it.

Dx 4/17/2009, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+
Log in to post a reply

Dec 31, 2016 06:43AM Pammac47 wrote:

I have done endoscopy, 2 biopsies, Barrett's is still present 1 biopsy from that area. I was prescribed a medication and given samples that worked with amazing results, Dexilant. However, my insurance said no. If you can get it, was the only thing that worked, good luck to you. Many people live with this condition and other than frequent endoscopes not much change.

Chemotherapy 3/21/2016 AC + T (Taxol) Hormonal Therapy Femara (letrozole) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Mar 27, 2018 02:55PM cowgal wrote:

Newly diagnosed with Barrett's Esophagus. Just wondering who all is dealing with this and found this old thread. I am wondering if it is related to my radiation?

Log in to post a reply

Mar 28, 2018 07:18AM bluepearl wrote:

Barrett's Esophagus is a pre-cancerous condition unrelated to breast cancer. It can now be corrected btw. Ask about that and/or do a search. Not everyone who has this condition ends up with throat cancer but it is a marker or risk factor....often related to GERDs and also check out, if you have GERDs , whether you also have an H.pylori infection in your stomach which can cause GERDs. That can be eliminated. I found keeping simple carbs out of my diet and keeping all carbs to 50grams a day, eliminated the GERDs problem. Acid isn't the problem. In fact, many people with GERDs have too alkaline stomach and using Apple Cider vinegar, which resembles the acidity of stomach acid, corrected it. You must be careful eliminating too much stomach acid as it interferes with absorption of vitamins etc. With any radiation treatment in that area, has a possibility of throat cancer.

Dx 1/6/2011, IDC, 1cm, Stage I, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 2/12/2011 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Dx 2/2013, IDC, <1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 3/10/2013 Lymph node removal: Right, Sentinel; Mastectomy: Right Hormonal Therapy 3/18/2013
Log in to post a reply

Mar 29, 2018 09:35AM cowgal wrote:

Thanks bluepearl. I was diagnosed with gastritis in addition to Barrett's Esophagus and I don't have the H. pylori bacteria. They are unsure what the cause of the gastritis is so I am going to have to get with my general practitioner to try to figure it out.

Log in to post a reply

Mar 30, 2018 07:13AM bluepearl wrote:

Inflammation is usually the cause of gastritis. You may want to take an H2 blocker like ranitidine so that your stomach lining can heal. You might want to explore the things most likely to cause gastritis...coffee, smoking, fatty food, alcohol etc. My GERDS was almost entirely due to simple carbs. One piece of pie and there it is. Two pieces of toast, and there it is. As soon as I went on a lower carb diet with NO simple carbs like sugar, white flour, white rice, starchy veggies, it disappeared. Sometimes when I had toast and jam for breakfast and went on my walk, I would get chest pains very similar to a heart attack...which is GERDs. Hope you do a lot of investigating!

Dx 1/6/2011, IDC, 1cm, Stage I, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 2/12/2011 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Dx 2/2013, IDC, <1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 3/10/2013 Lymph node removal: Right, Sentinel; Mastectomy: Right Hormonal Therapy 3/18/2013
Log in to post a reply

Mar 31, 2018 03:28PM cowgal wrote:

Yes, my surgeon put me on an H2 blocker twice a day. I am being very careful about what I eat and drink. I am trying to learn what I can.

Log in to post a reply

Apr 3, 2018 07:17AM bluepearl wrote:

H2 blocker will work.

Dx 1/6/2011, IDC, 1cm, Stage I, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 2/12/2011 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Dx 2/2013, IDC, <1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 3/10/2013 Lymph node removal: Right, Sentinel; Mastectomy: Right Hormonal Therapy 3/18/2013
Log in to post a reply

Apr 3, 2018 07:40AM SpecialK wrote:

I was a severe reflux-er, with a complicated hiatal hernia, about 13 years prior to breast cancer, and it had to be surgically corrected as none of the OTC or Rx meds at the time helped. Along with the usual acidic foods, alcohol, caffeine, fatty foods that slow digestion, etc., one of the surprises on the GERD diet to me was that both mint and chocolate are issues - I still have problems with super minty toothpaste and mouthwash, but the surgery fixed the problem for the most part. I have to be careful about portions (they used part of my stomach in the repair) and I will never be able to have a margarita - the combo of tequila and citrus is too much - but I can live with that, lol! I never had heartburn, or the classic symptoms of GERD or reflux, and was only diagnosed when I had a caustic antibiotic wash up into my esophagus while sleeping and ulcerate a section that left me unable to eat for 6 weeks. What I did have was esophageal spasms induced by stomach acid which was discovered by the diagnostic workup pre-surgery. The spasms felt like I was having a heart attack, and it was frustrating for a couple of years as they looked repeatedly at my heart and kept saying everything was fine.

BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
Log in to post a reply

Jun 14, 2018 03:41PM cowgal wrote:

Interesting SpecialK. What did you find for toothpaste that wasn't minty?

Bluepearl, I was incorrect. I was put on omeprazole, which is a ppi not a h2 blocker.

About 6 weeks ago, I got with my primary care doctor to try to find out what could be causing all of these issues and it turns out I have celiac disease. Hopefully, will be able to get some of this healed up. It doesn't sound like Barrett's esophagus can be cured but at least maybe I can keep it from getting worse I hope.


Log in to post a reply

Jun 14, 2018 04:29PM SpecialK wrote:

cowgal - I just did 23and Me testing - I had previously done Ancestry because I am adopted - wanted to confirm, participate in another database, and get the medical reports. I actually have the genetic variant for celiac as well. Have not discussed this with any of my docs yet and since I had eliminated gluten for the most part I have t had too many issues. On the toothpaste front I did use a natural one for a while that had less mint taste (Jason) but have lately been using a Crest HD product that has been ok

BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
Log in to post a reply

Jun 15, 2018 03:57AM NotVeryBrave wrote:

I just saw a GI yesterday and he mentioned that he would definitely want to do an endoscopy with my colonoscopy if I were on an AI. I think it was Arimidex that he mentioned by name that can cause BE.


TCHP x 6 with pCR. One year of Herceptin. DTI pre-pec surgery. Quit Tamoxifen after 3 months. Dx 11/21/2016, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 12/18/2016 Perjeta (pertuzumab) Targeted Therapy 12/19/2016 Herceptin (trastuzumab) Chemotherapy 12/19/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 5/8/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 9/8/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 6/25/2020 Evista (raloxifene)
Log in to post a reply

Jun 15, 2018 10:20AM cowgal wrote:

NotVeryBrave - That's very interesting. I was on tamoxifen for my first year and had to have a hysterectomy as a result of it so then was switched to Arimidex. I had bad problems with joints and they put me on Femara and I can't remember the other AI but I was on them for one year trying to improve the joint pain, which ended up causing both knees to have to be replaced.

SpecialK - If you ever do get tested for celiac, you will need to get back on gluten for quite a while or the test won't detect it. I am predominately Irish on both sides of my family and lo and behold, Irish are one of the groups Celiac is more common to.

Log in to post a reply

Jun 15, 2018 11:12AM - edited Jun 15, 2018 08:52PM by SpecialK

cowgal - I have Irish roots as well! I also have 8 of the 10 most common symptoms of celiac, not sure if I will pursue testing or just eliminate gluten and call it good. What have the medical recommendations been for yours?

BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
Log in to post a reply

Jun 15, 2018 06:47PM cowgal wrote:

SpecialK - Pretty much all I was told was that I had celiac and that I needed to give up wheat but it is more than that and currently I am still trying to figure it all out. Some celiacs require giving up other grains as well. Due to the damage that celiac does to your stomach from eating the gluten, many celiacs need to avoid dairy and once they have healed up, many can then eat dairy with no problems. Wheat is hidden in a lot of foods so you have to look out for that. I have found an app that I use on my phone that helps when I am shopping. Are you aware of being careful about cross contamination?

Log in to post a reply

Jun 15, 2018 08:55PM - edited Jun 15, 2018 08:55PM by SpecialK

cowgal - I don't eat bread or baked goods, follow the Virgin Diet which eliminates gluten and dairy. Much of what I eat is whole food so unprocessed mostly - this would make avoiding gluten, etc., much easier. What cross contamination do you mean - things I want to avoid, having contact with other things I'm eating?

BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
Log in to post a reply

Jun 16, 2018 01:55AM - edited Jun 16, 2018 01:56AM by cowgal

SpecialK - by cross contamination, I mean that the gluten free food is contaminated by gluten and that can happen in a number of different ways. For example, if you eat at a restaurant, if your gluten free meat is grilled on the same grill as something that contains gluten or they use the same spatula, it can contaminate your food and you get "glutened". After researching a little bit, I found that I had to clean my kitchen of gluten, which involved getting rid of some of my kitchen supplies, including bakeware that I could not be sure to get all the gluten out no matter how hard I cleaned. It is recommended that if you are in a household with gluten eaters that you have an area that is kept gluten free and that you have your own toaster, pans, etc. Some celiacs even have to make sure to use hair and skin care products that are gluten free, depending on their sensitivity.

Log in to post a reply

Jun 16, 2018 07:59AM SpecialK wrote:

cowgal - wow, that’s a lot, but it makes sense. The good news for me is that it’s just DH and I and I control the cooking and food - he just eats what I give him, lol! So if I have to be gluten free, he does too. I used to be a caterer and many years ago - before the advent of so much commercially available gluten free food - had to come up with a menu for a military promotion reception that was gluten free. I had a conversation with the mother-in-law of the promotee at the eventas she was the one with celiac, and she was explaining all about the gluten used in makeup, particularly mascara!

BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
Log in to post a reply

Jun 16, 2018 01:52PM cowgal wrote:

SpecialK - I am in the same situation at the house. DH doesn't have diabetes but is very carb sensitive so it works for how I need to eat now pretty well. Do you know what ingredient I need to look for in makeup and mascara? I assume that the ingredient won't be listed as gluten or wheat.

Log in to post a reply

Jun 16, 2018 02:34PM SpecialK wrote:

From what I can gather gluten doesn't really penetrate the skin topically - but there is that cross-contamination issue, and lotion and things you put on your lips apparently are more likely to be ingested. Here is a link with ingredients that may be in cosmetics to look for:

http://www.dummies.com/food-drink/special-diets/gluten-free/avoid-gluten-in-cosmetics-and-hair-and-skincare-products/

Conversely, here is some info about what cosmetics brands/items, do not contain gluten:

https://urbantastebud.com/gluten-free-makeup-and-cosmetics-list/

BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
Log in to post a reply

Jun 16, 2018 07:03PM cowgal wrote:

Thanks for the links. Something else you may already know but just in case is that if you have celiac, than prior to going off of gluten and getting your gut healed up, you basically were getting malnourished because you were not able to absorb the nutrients you were eating.

Page 1 of 1 (24 results)