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Topic: PANCREATIC IPMN

Forum: Breast Cancer with Another Diagnosis or Comorbidity — Meet others who have breast cancer but also have another health diagnosis/comorbidity such as diabetes, MS, bipolar disorder, HIV or AIDS, Parkinson's Disorder, schizophrenia, etc.

Posted on: Oct 15, 2017 08:52AM

Cathytoo wrote:

Two years ago when I was diagnosed with TN breast cancer, a CT scan found an 8mm side branch IPMN. At the time I did a lot of research and felt safe enough to wait until my breast cancer treatment was finished. Today I am two years past my TN diagnosis and have had an abdominal ultrasound just to see if the IPMN is still there. It is there, same size and determined stable. I know that I need further testing because these things are considered pre-cancerous, although low risk. Anyone having to deal with this issue?

Dx 10/13/2015, IDC, Right, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR-, HER2- Chemotherapy 1/18/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jan 16, 2019 08:12PM - edited Feb 17, 2019 01:20PM by mammalou

Just got a referral from my oncologist for a pancreatic ipmn. My oncologist compared it to dci of the beast. Kinda scary in the pancreas

DX 12/2018 ADH right breast Dx 1/11/2011, IDC, Left, 3cm, Stage IIIB, Grade 2, 1/9 nodes, ER+/PR-, HER2- (FISH) Surgery 1/11/2011 Lumpectomy: Left Chemotherapy 3/2/2011 AC Surgery 5/13/2011 Mastectomy: Left; Reconstruction (left): Tissue expander placement Radiation Therapy 6/16/2011 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 7/29/2011 Arimidex (anastrozole), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 6/13/2012 Reconstruction (left): Silicone implant Surgery 6/26/2013 Reconstruction (left): DIEP flap
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Jan 16, 2019 10:00PM Kittykat9876 wrote:

I'm going in for an ultrasound and biopsy of a main duct IPMN tomorrrow, no one has told me anything so I've scared myself silly with Dr Google.

Surgery 5/23/2013 Lumpectomy Dx 10/31/2017, Left, 6cm+, Stage IV, metastasized to bone/lungs/other, Grade 3, 2/22 nodes Chemotherapy 1/28/2021 Navelbine (vinorelbine) Hormonal Therapy Targeted Therapy Afinitor (everolimus) Radiation Therapy External: Bone
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Jan 16, 2019 10:07PM Kittykat9876 wrote:

Can I ask, did you have any symptoms or was it picked up on a routine ct scan, that's how they found mine.

Surgery 5/23/2013 Lumpectomy Dx 10/31/2017, Left, 6cm+, Stage IV, metastasized to bone/lungs/other, Grade 3, 2/22 nodes Chemotherapy 1/28/2021 Navelbine (vinorelbine) Hormonal Therapy Targeted Therapy Afinitor (everolimus) Radiation Therapy External: Bone
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Jan 16, 2019 10:23PM mammalou wrote:

Mine was found incidentally during an MRI for my liver. Mine is 1 cm. My oncologist is doing a referral to a specialist for this. How big is yours?

DX 12/2018 ADH right breast Dx 1/11/2011, IDC, Left, 3cm, Stage IIIB, Grade 2, 1/9 nodes, ER+/PR-, HER2- (FISH) Surgery 1/11/2011 Lumpectomy: Left Chemotherapy 3/2/2011 AC Surgery 5/13/2011 Mastectomy: Left; Reconstruction (left): Tissue expander placement Radiation Therapy 6/16/2011 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 7/29/2011 Arimidex (anastrozole), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 6/13/2012 Reconstruction (left): Silicone implant Surgery 6/26/2013 Reconstruction (left): DIEP flap
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Jan 16, 2019 10:37PM - edited Jan 16, 2019 10:38PM by Kittykat9876

mine is 8mm, funnily enough it's been there for almost a year and they've only just now decided to do something about it, now every time I get a tummy ache or back pain, even though my back has given me heck for 20yrs or more, I think the worst. From what I've read even if its benign they want to take it out which scares the heck out of me.

Surgery 5/23/2013 Lumpectomy Dx 10/31/2017, Left, 6cm+, Stage IV, metastasized to bone/lungs/other, Grade 3, 2/22 nodes Chemotherapy 1/28/2021 Navelbine (vinorelbine) Hormonal Therapy Targeted Therapy Afinitor (everolimus) Radiation Therapy External: Bone
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Jan 21, 2019 11:55AM mammalou wrote:

Kittykat987. Did you have the ultrasound and biopsy of your ipmn? Just wondering how it went.

DX 12/2018 ADH right breast Dx 1/11/2011, IDC, Left, 3cm, Stage IIIB, Grade 2, 1/9 nodes, ER+/PR-, HER2- (FISH) Surgery 1/11/2011 Lumpectomy: Left Chemotherapy 3/2/2011 AC Surgery 5/13/2011 Mastectomy: Left; Reconstruction (left): Tissue expander placement Radiation Therapy 6/16/2011 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 7/29/2011 Arimidex (anastrozole), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 6/13/2012 Reconstruction (left): Silicone implant Surgery 6/26/2013 Reconstruction (left): DIEP flap
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Jan 21, 2019 12:38PM Kittykat9876 wrote:

Yes mammalou I did, I was given the all clear, it's not blocking anything and it's not malignant, so I'm really pleased about that, have you had your appointment with the specialist yet?


Surgery 5/23/2013 Lumpectomy Dx 10/31/2017, Left, 6cm+, Stage IV, metastasized to bone/lungs/other, Grade 3, 2/22 nodes Chemotherapy 1/28/2021 Navelbine (vinorelbine) Hormonal Therapy Targeted Therapy Afinitor (everolimus) Radiation Therapy External: Bone
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Jan 21, 2019 12:46PM - edited Feb 3, 2019 01:50PM by mammalou

I'm happy to hear that you got the all clear. I'm pretty sure mine will be fine too, but no appointment yet. Still waiting. So, are they able to diagnose it with an ultrasound?

DX 12/2018 ADH right breast Dx 1/11/2011, IDC, Left, 3cm, Stage IIIB, Grade 2, 1/9 nodes, ER+/PR-, HER2- (FISH) Surgery 1/11/2011 Lumpectomy: Left Chemotherapy 3/2/2011 AC Surgery 5/13/2011 Mastectomy: Left; Reconstruction (left): Tissue expander placement Radiation Therapy 6/16/2011 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 7/29/2011 Arimidex (anastrozole), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 6/13/2012 Reconstruction (left): Silicone implant Surgery 6/26/2013 Reconstruction (left): DIEP flap
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Jan 21, 2019 09:50PM Kittykat9876 wrote:

apparently the endoscopic ultrasound where they put a camera down your throat can see it better than just a normal ultrasound or ct scan, it's really painless, they give you sedation instead of full anesthetic as it only takes 15 mins, I didn't remember or feel a thing and you don't feel as bad when you wake up.

Surgery 5/23/2013 Lumpectomy Dx 10/31/2017, Left, 6cm+, Stage IV, metastasized to bone/lungs/other, Grade 3, 2/22 nodes Chemotherapy 1/28/2021 Navelbine (vinorelbine) Hormonal Therapy Targeted Therapy Afinitor (everolimus) Radiation Therapy External: Bone
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Feb 3, 2019 01:55PM mammalou wrote:

Kittykat9876. Can you tell me when they decide to do and ultrasound vs. just mrcp mri surveillance? I finally got my appointment for 2/15. I have to admit this ipmn is worrying me! Not so much for what it is now, but the fact that it could turn into pancreatic cancer. I just went thu 2 months of tests to see if I had a new cancer in my other breast ( turned out to be adh only) and it didn’t worry me as much as this. Uggg

DX 12/2018 ADH right breast Dx 1/11/2011, IDC, Left, 3cm, Stage IIIB, Grade 2, 1/9 nodes, ER+/PR-, HER2- (FISH) Surgery 1/11/2011 Lumpectomy: Left Chemotherapy 3/2/2011 AC Surgery 5/13/2011 Mastectomy: Left; Reconstruction (left): Tissue expander placement Radiation Therapy 6/16/2011 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 7/29/2011 Arimidex (anastrozole), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 6/13/2012 Reconstruction (left): Silicone implant Surgery 6/26/2013 Reconstruction (left): DIEP flap

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