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Topic: MELANOMA---Need good stories!!!

Forum: Breast Cancer with Another Diagnosis or Comorbidity — Meet others who have breast cancer but also have another health diagnosis/comorbidity such as diabetes, MS, bipolar disorder, HIV or AIDS, Parkinson's Disorder, schizophrenia, etc.

Posted on: Apr 26, 2019 02:44PM

momand2kids wrote:

Dear community=

I am sitting in the dermatologists office because my skin biopsy earlier in the week has come back positive for melanoma-- they are about to do an excisional biopsy-send it out to lab, and do more if necessary-- of course he said it was small (less than .5 mm) and it is good we got it when we did (I noticed it) but I am still freaking out-- anyone have a good story about this????

Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)
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Apr 26, 2019 03:36PM wallycat wrote:

My BIL is at least 14 years out and no sign of recurrence.

My Derm was dx with it and she is 3 years out

Neighbor dx 2 years ago and doing fine.

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Apr 26, 2019 03:38PM santabarbarian wrote:

I had one 20 years ago, and another one DURING CHEMO! At which point I said, you might as well check my scalp!

pCR after neoadjuvant chemo Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/12/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy: Left Radiation Therapy 2/10/2019 Whole-breast: Breast, Lymph nodes
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Apr 26, 2019 05:47PM momand2kids wrote:

Santa

that is unbelievable I remember having my derm check out my head during chemo-but I would have lost my mind if they found something. The thing with this is that is was like a pink mosquito bite and no one thought it was anything, but I decided to insist that they look at it--even at the first biopsy, he was sure it was nothing. Today, his colleague did an excisional biopsy so she could see the depth--her response to my questions was "this is going to be fine-I am not worried and neither should you--the first biopsy shows no real mitosis-- and there is a 98% cure rate for this" I am just going to take her at her word--- this is cancer # 3--breast, 5 years later thyroid, and now 5 years later this... I am afraid to go for my next colonoscopy.

thanks for writing back- that was reassuring


Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)
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Apr 26, 2019 05:47PM momand2kids wrote:

Thanks Wally-- this is helpful to hear-- I think all the indicators are good...


Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)
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Apr 26, 2019 06:39PM momand2kids wrote:

so when I was complaining to my dermatologist about having had bc 10 years ago, thyroid cancer 5 years ago and now this..... his response was "someone is clearly looking out for you"..... which I know is probably true-- but boy I am just sort of undone by this. But then the follow up was " this will be fine-don't worry=98% cure rate" One thing my cancer experience has taught me is that they do not say these things lightly


Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)
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Apr 26, 2019 06:47PM Cowgirl13 wrote:

Mom, my sister had melanoma 40 years ago. All is well with her.

Be the kind of woman that when your feet hit the floor each morning the Devil says: 'Oh crap! She's up! Dx 5/28/2009, IDC, Left, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/16/2009 Chemotherapy 8/3/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/21/2009 Hormonal Therapy 2/22/2010 Arimidex (anastrozole)
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Apr 26, 2019 09:52PM sbelizabeth wrote:

My husband's college roomie had melanoma--twice--and he's doing great. Excision, sentinel node biopsy, and all was well. No chemo.

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Apr 26, 2019 10:12PM Krose53 wrote:

Hi, I know this must be worrisome. My dad had it 15 years ago and is totally fine. I just talked w a woman last night, who is 6 yrs out and everything is great with her. You'll do amazing.

Dx 11/16/2017, ILC/IDC, Both breasts, 1cm, Stage IIA, Grade 2, 2/5 nodes, ER+/PR+, HER2- Dx 11/16/2017, ILC/IDC, Both breasts, 1cm, Stage IIA, Grade 2, 2/5 nodes, ER+/PR+, HER2- Surgery 12/27/2017 Mastectomy: Left, Right Chemotherapy 1/22/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Apr 26, 2019 11:00PM Veeder14 wrote:

I'm 2 1/2 years out from atypical melanoma on my lower leg. Had a wide excision, and lymph nodes in upper leg removed, one positive. Getting follow up ultrasounds of my upper leg lymph nodes, and whole body Pet Scans. So far doing good. Make sure your care providers don't delay since Melanoma can spread quickly as it did with me.

Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/25/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 3/7/2018 Hormonal Therapy 2/28/2019 Hormonal Therapy
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Apr 27, 2019 07:03AM momand2kids wrote:

Thanks all--it is so heartwarming to know you are all out there- which is why this is so much easier than past cancers.. I know how to get the help I need!!!


Veeder- so true- and we are moving quickly-- even though the biopsy showed very slow cell mitosis--first little biopsy was on Tuesday, second yesterday and that will tell them if they have to go any deeper- all of which they will do on Wednesday-so less than 10 days. I am heartened by my prognosis and by your stories...

I should add that I saw this thing on my arm, looking like a bite- called derm-- sent pictures-- the first set were too blurry-- sent another set the next day- he said "come in" but not because he thought it was anything--just because he knows me, my history and the fact that I have a pretty good sense of what is going on in my body- and even as he was doing the biopsy he said I don't think this is anything--because, again, it had no pigment and did not look like a mole. He was totally surprised and I think relieved when the path came back with slow mitosis, etc....

So being a little neurotic occasionally pays off!

Thanks again-- I love my go-to community!!!


Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)
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Apr 27, 2019 07:58AM Rah2464 wrote:

My aunt had melanoma on a shoulder back in 1980 - they excised it and she has had no issues since then so 39 years!

Interestingly enough, when I met with the genetic counselor, I had no identified genetic predisposition for breast cancer. However, the fact that I had an aunt with "early onset" (she was 45) melanoma and an uncle with early onset prostate cancer (48), that indicated a higher risk for breast cancer. I found that very interesting. Wish I had known that sooner I might have pushed for MRI screening.


Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/26/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/26/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 27, 2019 08:49AM MaryScout wrote:

Hi There!

I have had 3 melanoma in-situs removed -- all on my feet and ankles. The main indicator for me was that the moles were changing. They didn't really look odd or jagged or anything. Boy, what we know now. I didn't ever use a tanning bed, but growing up, my parents would drop us off at the pool and we would play there all day. I have something called dysplastic nevi syndrome, so that means that my body makes lots of moles and that most all of them are atypical. As a result, I had a full-body series of photos done so that my docs can compare me to them, and that is such a peace of mind! If you have lots of moles, it might be something to consider. Unfortunately, my insurance didn't cover it, so it was about $400.

At first I was totally freaked out about it, but as so many things, my fear subsided a lot over time. Being proactive about it was really helpful. Now, I'm just super good about sunscreen. But that doesn't mean I hide indoors all the time. In fact, I'm a lover of scuba, so I still go! Actually, that's probably good that I'm diving, because I'm wearing a full wetsuit anyway. :) And ultimately, I figure that because I'm now vigilant about this, if anything else comes up, I will see it and catch it early.

At the time when I first was diagnosed, I treated myself to a nice sun hat by tilley. It's so cute and I get so many compliments about it!

If you ever want to talk or if you have any questions, feel free to get in touch!

Warmly,

Mary

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Apr 27, 2019 10:35AM momand2kids wrote:

Mary

thank you so much for your helpful advice about the scan and the tilley hat!!! I will ask the dermatologist next week when I go in for the final excision about the scan--- seems totally worth it--I have been having moles removed for 20 years!!! Even when I was pregnant! So it might be a good idea to get a scan.... I have had at least one on my foot as well--

I am fair- but was not in the sun too too much as a kid-and have been very vigilant-- I guess more vigilance is necessary.

Thanks again- your message was very reassuring


Rah-thanks for your response- I do think there are connections to all of these things, they just don't know yet how....

hugs to you all


Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)
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Apr 27, 2019 11:18AM momand2kids wrote:

Mary

thank you so much for your helpful advice about the scan and the tilley hat!!! I will ask the dermatologist next week when I go in for the final excision about the scan--- seems totally worth it--I have been having moles removed for 20 years!!! Even when I was pregnant! So it might be a good idea to get a scan.... I have had at least one on my foot as well--

I am fair- but was not in the sun too too much as a kid-and have been very vigilant-- I guess more vigilance is necessary.

Thanks again- your message was very reassuring


Rah-thanks for your response- I do think there are connections to all of these things, they just don't know yet how....

hugs to you all


Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)
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Apr 27, 2019 12:28PM Veeder14 wrote:

momand2kids,

Glad your doctors are on top of it. Mine was atypical and looked like a wart with no pigment. My doctor was surprised it was melanoma. I’m BRAC2 and that mutation makes me high risk for it, even more than being exposed to the sun. I’m piling on the sunscreen these days or wearing long pants and sleeves during the cooler weather. I’m sure you’ll be fine

Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/25/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 3/7/2018 Hormonal Therapy 2/28/2019 Hormonal Therapy
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Apr 27, 2019 01:07PM bella2013 wrote:

Six months after my BMX with DIEP Flap Reconstruction I was diagnosed with Melanoma and Basel cell carcinoma. I had the MOHS Procedure to remove the Melanoma and an excision to remove the Basel Cell. Margins came back clear for both. All is well.

I went in for a sonogram on my clavicular node. That came back fine but they discovered multiple nodes on my thyroid gland. Gotta have that examined next.

One day at a time...one cancer event at a time..

Diagnosed at 60 years old. Oncotype Score=14. Dx 12/4/2017, IDC, Left, 4cm, Stage IB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 1/3/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 2/21/2018 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy Arimidex (anastrozole)
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Apr 28, 2019 09:15AM momand2kids wrote:

Veeder,

same here-- my derm was not concerned at all when he first saw it. but I do feel like everyone is on top of it-- and I feel very much relieved by the doc review of the report and her instructions "you don't need to worry"...but of course I will, a little bit. We will know more tomorrow about what she needs to do on Wednesday. At least one lesson of breast cancer was "hurry up and wait"...


Bella, I am sorry about the nodules on your thyroid, but know that over 90% of them are benign. I like your mantra" one cancer event at a time".... that really resonated with me.


Thanks again all-I will keep you posted-but I am feeling pretty good about all this right now--fingers crossed.


Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)
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Apr 30, 2019 11:51AM momand2kids wrote:

Quick update-- going back in today for re-excision-- hopefully they can get good margins and I can be done!!! Keep thinking of dr. last words last week--"you have nothing to worry about-this will be fine"......


Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)
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May 1, 2019 08:24AM momand2kids wrote:

re-excision happened-- wide margins--pathology was good-- 98% cure rate--- I will take it!!!

Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)
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May 1, 2019 09:40AM sbelizabeth wrote:

Great news, momand2kids! Now heal up your incision and let this be in your rear-view mirror!

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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May 1, 2019 12:06PM MaryScout wrote:

Fantastic news!! So glad you got it early and took care of it. Way to go!

Yours,

Mary

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May 1, 2019 08:47PM gailmary wrote:

yep my dad had melanoma yrs ago. And breast cancer and esophageal cancer too. Died of something else!

Hood you csught it early. Good luck

Dx 11/25/2008, IDC, Left, 2cm, Stage IIA, Grade 1, 2/12 nodes, ER+/PR+, HER2- (IHC) Dx 4/13/2017, Stage IV, metastasized to bone Hormonal Therapy Faslodex (fulvestrant), Femara (letrozole) Radiation Therapy
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May 2, 2019 05:56AM Rah2464 wrote:

Woo - hoo ! Great news Momandtwo

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/26/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/26/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 3, 2019 02:34PM momand2kids wrote:

Thanks all- I seem to be healing well.. taking it easy-- overdid it at work on the first day.... but have pulled back a little.

Stitches come out on 5/23-- I had an initial biopsy, then a second one when she went in to see how far to go, then one more at the final excision. She told me there was no difference between the first and second biopsy-- all prognosticators were good-- adn the third one would just be about margins. The third pathology report just popped up on my portal-but I have decided that I don't need to read it. I can ask her about it when we meet on the 23rd. Her last words to me after the excision were "99% curable"... I am going with that!


Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)
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May 13, 2019 10:03AM momand2kids wrote:

Hi all,

got the call from doc- no further treatment necessary based on the 3rd pathology--just have to get the stitches out--- so grateful for that!! Off to buy UV-protective clothing!!!

Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)
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May 14, 2019 07:03AM Rah2464 wrote:

That is fabulous news !!!!

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/26/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/26/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 14, 2019 09:41AM momand2kids wrote:

Thanks Rah-- feeling relieved-- and grateful that I have managed to survive these low level cancers 3 times.... hoping there are no more!!


Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)
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May 22, 2019 02:47PM momand2kids wrote:

Hi all

going to get stitches out tomorrow-- I am curious if this melanoma puts me at greater risk for future melanoma (or basal, et). Also, they say the margins are clear and no further treatment is necessary-- with bc the oncotype kind of makes that choice. Anyone know if they have such a thing with melanoma? I appreciate the good prognosis, etc. but am a little nervous about no treatement.....


Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)
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May 22, 2019 06:30PM edj3 wrote:

Hi, late to this post. I was actually diagnosed with melanoma in August 2017 so well before this breast cancer dx. Mine was also in situ and had clear margins. So I'm on the 6 month exam plan for five years. My derm has removed a couple of questionable areas in the three follow up visits since the wide local area incision. One was nothing, one was abnormal but it's gone now anyway so that's all good. I'll be honest, the melanoma scares me more than this breast cancer. I feel like we get such good support w/ breast cancer but so many people are completely clueless about melanoma.

Dx 4/9/2019, DCIS, Left, <1cm, Stage 0, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 5/5/2019 Lumpectomy; Lymph node removal: Sentinel Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes
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May 22, 2019 08:10PM momand2kids wrote:

Hi

I was already on every 6 months for the past 20 years!!! had alot of things taken off over the years-- one basal, but nothing more-which is why this was such a shock to me and the derm. I do think the melanoma can be worse if not caught early. I am not sure if mine is in situ-all i know is I have clear margins-which I have to assume is the same as in breast cancer (a good thing!!) . I really don't have the mental energy to do alot of research ( I feel like I became a bc expert and really don't want to become an expert in another cancer).... I will see how it goes tomorrow. thanks


Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)

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