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Aug 1, 2019 02:42PM
Menopause at this age is no fun, but neither is stage 4 breast cancer. I've seemingly been dealt a rough hand but I'm doing really well. I'll take the hot flashes in this heat if it means it'll help :) I had both ovaries and tubes removed. Kept the uterus. Only reason why was because I didn't want a more complicated surgery. But I kinda wish I did away with it especially since I have been on tamoxifen.
So with pet, if you're pre menopausal, not quite menopausal, then PET can be unreliable , because the ovaries can show hyper metabolic uptake/light up, depending on where you are in your cycle. if you were completely menopausal, any hyper metabolic activity in the ovaries would be extremely concerning. Since you're in that in-between phase, you could get a false reading. Like it could light up and be benign, or it could be a cancerous process, but they wouldn't be able to distinguish between the two ( and you'd be no where closer to figuring out what you want to do regarding surgery or waiting). Does that make sense? Plus, PET doesn't distinguish tissues very well, which is why they usually do Pet/cts so they can compare. BUT CTs aren't good at diagnosing cysts ( well types of cysts) either, and it's not a typical imaging test for that/.
With Mri, it can show abnormal enhancement which would be suspicious, and certain characteristics on the MRI can diagnose just what kind of cyst it is most of the time ( with Ovarian cancer it can see malignancies but not the type),. My recent MRI before my surgery showed Hemorrhagic cysts , follicular cysts and a corpus lutum cyst based on their appearance on MRI. My US couldn't diagnose the Hemorrhagic one- it was labeled as "complex" on my US report .
8/17/2018, IDC, Left, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH)
9/17/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil)
2/25/2019 Mastectomy: Left, Right
4/28/2019 Whole-breast: Breast, Lymph nodes, Chest wall
Prophylactic ovary removal
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)