We are 223,501 members in 82 forums discussing 157,287 topics.

Help with Abbreviations

Topic: Question about Thyroid Issues

Forum: Breast Cancer with Another Diagnosis or Comorbidity — Meet others who have breast cancer but also have another health diagnosis/comorbidity such as diabetes, MS, bipolar disorder, HIV or AIDS, Parkinson's Disorder, schizophrenia, etc.

Posted on: Oct 7, 2019 01:26PM

Lexica wrote:

I have a question for those who have been through thyroid cancer or have issues with their thyroid. My MO sent me to endocrinology to get my thyroid checked because it looked enlarged. I didn't report this to him until after he had mentioned it, but that general area had been causing me discomfort for the previous couple weeks. Three weeks later (no more discomfort in that area) I saw endocrinology and the physician confirmed after the exam that it was enlarged. US was negative. They did say it looked enlarged, but nothing looked suspicious. I heard this twice before with breast cancer and it was wrong. They did thyroid bloodwork, as well and everything came back normal - should I push for additional screening, or just let it go? They are recommending that I get thyroid tests done regularly... maybe that will be enough.

Diagnosed at 34. 2 years of Ibrance via PALLAS trial (ends 4/2019) Dx 7/2017, IDC, Left, Stage IIIC, Grade 2, ER+/PR+, HER2- (IHC) Surgery 12/15/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Dx 12/27/2017, DCIS/IDC, Left, 6cm+, Stage IIIA, Grade 3, 5/11 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 1/16/2018 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Aromasin (exemestane) Chemotherapy AC + T (Taxol)
Log in to post a reply

Page 1 of 1 (6 results)

Posts 1 - 6 (6 total)

Log in to post a reply

Oct 7, 2019 08:09PM Yogatyme wrote:

Lexica, I have been hypothyroid for about 15 yrs. My levels will be stable for a long time and then seemingly go wonky for no apparent reason, so it’s a sneaky little gland. It sounds like having regular checks may be all you need to do, particularly if you don’t feel any lumps on your thyroid nor have swollen lymph nodes in your neck. I have 2 friends who have had thyroid cancer and they both had swollen lymph nodes as a primary symptom. I can certainly understand your concern with your history of misdiagnosis and if you continue to worry, it’s worth an appointment for evaluation. Take good care.

Yogatyme Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/13/2019 Mastectomy: Left, Right
Log in to post a reply

Oct 7, 2019 08:54PM ceanna wrote:

Sounds like you are doing what you can to ID enlarged thyroid issue. Just keep having doctors check periodically and let them know asap if you feel any new symptoms. All the best, and please let us know how you're doing. Ceanna

Dx 2014, IDC, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Multi-catheter Surgery Lumpectomy: Right
Log in to post a reply

Oct 7, 2019 09:46PM GlobalGal wrote:

I had Hashimoto's, a multinodular goiter, was a little hypothyroid, and took Synthroid for about 15 years.

I had a thyroid ultrasound in 2017 and fine needle biopsy, which was clear.

However, by November 2018, the ultrasound showed one of the nodules had an irregular edge, which I could see on the screen myself. The fine needle biopsy showed papillary thyroid cancer, so I had a complete thyroidectomy-- with 3 central neck lymph nodes removed too.

The pathology report confirmed papillary thyroid cancer, but the neck lymph nodes showed metastatic breast cancer.

The ENT surgeon, endocrinologist, and breast cancer surgeon, all very experienced physicians, had never seen a case like this, nor had their colleagues at other hospitals in our large city.

So far, they have not located the original site of the breast cancer despite every test under the sun.

I am scheduled for another PET scan this month.

In the meantime, as there is nothing to surgically remove, or radiate, or treat with chemo, I am taking Anastrozole.


De novo stage IV metastatic breast cancer with metastases to 3 central lymph nodes in neck following complete thyroidectomy for papillary thyroid cancer WITH NO PRIMARY BREAST CANCER IDENTIFIED and NO OTHER METS (so far) Dx 3/20/2019, Stage IV, metastasized to other, ER+/PR+ Hormonal Therapy 6/4/2019
Log in to post a reply

Oct 8, 2019 01:27AM rrshannon wrote:

After a Pet Scan for growths on my cervix 5 years ago my Thyroid lit up. My blood work had always been normal, though TSH was always on the border or low. I had been followed for 5 years with annual ultrasounds and after 3 biopsies and the largest nodules that always cam back benign. I was told I had thyroiditis and that is why the PET Scan lit up. After seeing a new endocronologist I had a thyroidectomy in July and there was a 1.1cm tumors in my 3.6cm nodule along with multiple cancerous spots on the left side. They then took the right side which had only benign growths. Follow up is important but if something continues to grow there is a chance that the needle biopsy is not always getting the right cells.




BRCA Negative. Dx 7/2/2003, ILC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 7/10/2003 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 7/23/2003 AC Radiation Therapy 10/30/2003 Dx 12/11/2018, IDC, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR-, HER2- (FISH) Chemotherapy 1/16/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/15/2019 Lymph node removal: Right; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right) Hormonal Therapy 5/9/2019 Femara (letrozole) Surgery 6/16/2019 Reconstruction (right): Tissue expander placement Surgery 9/22/2019 Reconstruction (left): Fat grafting, Saline implant; Reconstruction (right): Fat grafting, Saline implant
Log in to post a reply

Oct 8, 2019 09:49AM Lexica wrote:

Thank you all for your responses!

Diagnosed at 34. 2 years of Ibrance via PALLAS trial (ends 4/2019) Dx 7/2017, IDC, Left, Stage IIIC, Grade 2, ER+/PR+, HER2- (IHC) Surgery 12/15/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Dx 12/27/2017, DCIS/IDC, Left, 6cm+, Stage IIIA, Grade 3, 5/11 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 1/16/2018 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Aromasin (exemestane) Chemotherapy AC + T (Taxol)
Log in to post a reply

Oct 8, 2019 01:35PM Spoonie77 wrote:

I'm going through something similar. Hope you find answers sooner than later.

There is something promising in the works about finding Thyroid Cancer it seems:

https://www.sciencedaily.com/releases/2019/10/191007153441.htm

"Using a technology called mass spectrometry imaging, the new metabolic thyroid test identifies metabolites produced by cancerous cells that act as a kind of diagnostic fingerprint. The researchers worked on identifying these diagnostic metabolic fingerprints for over two years using 178 patient tissues before starting a pilot clinical study. During the clinical study, 68 new patients were tested, nearly a third of whom had received inconclusive FNA results. The new metabolic thyroid test returned a false positive only about 1 time in 10 and could have prevented 17 patients in the study from undergoing unnecessary surgeries.

The improved accuracy would prevent unnecessary surgeries, many of which lead patients to need hormone replacement therapy for the rest of their lives or to have to cope with other consequences of having all or part of their thyroid removed."

Life long "Spoonie" that entered BC World @ 41. DXd @ 42 w/MS. Treatment: LX/SLNB/RADs. Plan A: 5mg Tamox = 0 QOL. Plan B: OS/AI = Rare allergy to OS meds. Plan C: Only option left, Diet & Exercise. PS: Not a dr, just an avid Googler. Dx 7/20/2018, IDC, Left, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Dx 8/30/2018, DCIS, Left, 1cm, Stage 0, Grade 2 Surgery 8/30/2018 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/1/2018 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 3/30/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 7/2/2019 Zoladex (goserelin)

Page 1 of 1 (6 results)