I'm super discouraged. I feel like my body is literally falling apart. I was diagnosed with a rectocele (which had been going on I think for years, ever since I had my child) back in March. The colorectal doctor I saw set me up with pelvic floor PT, but I haven't been able to go yet. The appointment keeps getting pushed back because of Covid and other things. But I have it re-scheduled for next Tuesday--hopefully this appointment will actually happen this time. The doctor said it was worth a try to see if it helps. She also said it's likely the tamoxifen is making it all worse because of what it does hormonally.
Here's my stress---since I saw the doctor it now feels like my organs are falling out. They're not that I can see, I checked, lol. But it feels so terrible, and I'm so depressed about it. I want to be able to walk around and play with my daughter without things falling out of my lady parts...I usually do the walking DVDs and I'm afraid to do them, because I don't want to make it worse. But when I don't do my workouts, the rest of my body tightens up in misery.
Who else has gone through this? I desperately need some hope right now. I haven't been to the GYN about it (saw her for a normal visit a couple of months ago and she didn't say anything, and all of my problems were colorectal at the time). I did call them but they said since colorectal is following me already, to follow up with them. I called colorectal and said I was feeling vaginal pressure, and they said to continue on and try pelvic floor therapy. I figure I will see what the PT says next week.
I also wonder though, if part of what I'm feeling is just vaginal atrophy. Tamoxifen x 3 years, and the GYN did say she could tell I have irritation in there. And it feels so dry even though I'm not sure it is. It's weird. I saw "pressure" listed as a symptom of atrophy. I don't know.
If anyone has some encouragement, I could use it. None of my friends can related, and my husband is tired of hearing about these problems. He's a darling, but I think it freaks him out.
Dx IDC in Oct 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes, Lumpectomy + rads + tam. Age 38. 5/21 Dx IDC. 1.3 cm ER/PR+, Her2 -. Gr 2. 2/3 nodes positive. AC/T. Age 42
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