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Topic: Pelvic Floor Prolapse? Help!!

Forum: Breast Cancer with Another Diagnosis or Comorbidity — Meet others who have breast cancer but also have another health diagnosis/comorbidity such as diabetes, MS, bipolar disorder, HIV or AIDS, Parkinson's Disorder, schizophrenia, etc.

Posted on: Apr 22, 2020 11:07AM

gb2115 wrote:

I'm super discouraged. I feel like my body is literally falling apart. I was diagnosed with a rectocele (which had been going on I think for years, ever since I had my child) back in March. The colorectal doctor I saw set me up with pelvic floor PT, but I haven't been able to go yet. The appointment keeps getting pushed back because of Covid and other things. But I have it re-scheduled for next Tuesday--hopefully this appointment will actually happen this time. The doctor said it was worth a try to see if it helps. She also said it's likely the tamoxifen is making it all worse because of what it does hormonally.

Here's my stress---since I saw the doctor it now feels like my organs are falling out. They're not that I can see, I checked, lol. But it feels so terrible, and I'm so depressed about it. I want to be able to walk around and play with my daughter without things falling out of my lady parts...I usually do the walking DVDs and I'm afraid to do them, because I don't want to make it worse. But when I don't do my workouts, the rest of my body tightens up in misery.

Who else has gone through this? I desperately need some hope right now. I haven't been to the GYN about it (saw her for a normal visit a couple of months ago and she didn't say anything, and all of my problems were colorectal at the time). I did call them but they said since colorectal is following me already, to follow up with them. I called colorectal and said I was feeling vaginal pressure, and they said to continue on and try pelvic floor therapy. I figure I will see what the PT says next week.

I also wonder though, if part of what I'm feeling is just vaginal atrophy. Tamoxifen x 3 years, and the GYN did say she could tell I have irritation in there. And it feels so dry even though I'm not sure it is. It's weird. I saw "pressure" listed as a symptom of atrophy. I don't know.

If anyone has some encouragement, I could use it. None of my friends can related, and my husband is tired of hearing about these problems. He's a darling, but I think it freaks him out.

Dx IDC in Oct 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes, Lumpectomy + rads + tam. Age 38. 5/21 Dx IDC. 1.3 cm ER/PR+, Her2 -. Gr 2. 2/3 nodes positive. AC/T. Age 42
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Apr 22, 2020 12:24PM - edited Apr 22, 2020 12:28PM by flashlight

Hi gb2115, I am much older than you and postmenopausal, but I found my prolapse became much worse after starting Tamoxifen. I had always suffered with fibroids. The Tamoxifen gave me a thickened lining and made those fibroids grow enlarging my uterus. This gave me pelvic pressure. My Gyn referred me to a UroGyn and told me to use Replens vaginal moisturizer. This was because of the irritation from the prolapse. The UroGyn did the exam and I was at stage 3 out of 4 of cystocele. If I wanted to try a pessary I could, but my Gyn said that might put pressure on my bladder and it seldom worked for my stage. I ended up having a total vaginal hysterectomy with a prolapse repair this past Feb. It was the best decision for me. I had numerous fibroids by that time with the largest 3cm. When you are able I think a UroGyn would be the doctor to see. I never would of thought of this if my Gyn hadn't recommended it. I had a 4th degree tear after my daughter was born so I know that hurts! Best wishes.

Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR-, HER2- Dx DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast Surgery Lumpectomy: Left
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Apr 22, 2020 02:45PM gb2115 wrote:

Hi flashlight--thanks for the reply! I am kind of thinking someone will send me to UroGyn, especially with feeling the vaginal pressure. I am definitely looking forward to talking with the PT next week. What's hard is telling where the pressure is coming from. It could be from the rectocele, but then I wonder sometimes if my bladder is dropping. I just can't determine it. I keep checking thinking I'm going to see something crazy down there, but it looks ok. I've had a couple times over the past month where it's bad for a couple days, then gets better for like a week. It's bad yesterday and today and really hope it'll ease here soon.

I'm glad to hear your surgery has been a good experience. That sounds like an awful thing to go through.

Dx IDC in Oct 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes, Lumpectomy + rads + tam. Age 38. 5/21 Dx IDC. 1.3 cm ER/PR+, Her2 -. Gr 2. 2/3 nodes positive. AC/T. Age 42
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Apr 22, 2020 05:45PM flashlight wrote:

gb2115, My bladder had started to fall. One of the signs is urine retention. I can't tell you what a relief it is and the difference the surgery made for me. I did learn a lot about what is available and it is amazing. Who knew!? The UroGyn also takes care of rectocele and pelvic floor therapy. The best of luck to you.

Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR-, HER2- Dx DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast Surgery Lumpectomy: Left
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Apr 23, 2020 05:50AM gb2115 wrote:

My biggest problem is bowel movements. I go and am regular (and soft) TMI sorry, but I haven't been able to figure out how to go without pushing, and then I get the prolapse feeling if I do that too much.


Dx IDC in Oct 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes, Lumpectomy + rads + tam. Age 38. 5/21 Dx IDC. 1.3 cm ER/PR+, Her2 -. Gr 2. 2/3 nodes positive. AC/T. Age 42
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Apr 23, 2020 08:36AM flashlight wrote:

gb2115, My doctor said no straining, no pushing, after my hysterectomy for 8-12 weeks. Did your doctor recommend Miralax? The generic is less expensive. It does take 3 days, give or take to work, I was sent home with Colace too, but didn't need it after a week. My surgeon said only to stop it if you had very loose stools and then take it every other day. For me it was to prevent a prolapse and to not put a strain on the sutures. I just don't feel you are seeing the right doctor for your issue and it seems the colorectal doctor is brushing you off to PT. Where I went they did the therapy in the office including with Electrical stimulation for weaken muscles. Don't let it get worse like I did call your gyn and get a referral for a second opinion with a UroGyn. Hopefully they will start seeing patients soon.

Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR-, HER2- Dx DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast Surgery Lumpectomy: Left
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Apr 23, 2020 09:12AM gb2115 wrote:

I'm on benefiber and magnesium citrate. The stools are pretty soft, but it's like the muscles down there don't want to coordinate right. I guess I just don't understand how people have bowel movements without pushing...

Dx IDC in Oct 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes, Lumpectomy + rads + tam. Age 38. 5/21 Dx IDC. 1.3 cm ER/PR+, Her2 -. Gr 2. 2/3 nodes positive. AC/T. Age 42
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Apr 23, 2020 09:12AM Molly50 wrote:

👋, as someone who had pelvic floor repairs and later prolapsed again I can give you some advice. Until you can see the PT or urogyn try wearing compression shorts under your clothes. That helped take the pressure off so I could be active again. Also it sounds like atrophy is a big part of your problem. You can ask your MO if a small amount of estrogen vaginally is OK but most say no. I got mine to approve the use of Imvexxy because I was in so much pain. If not I found using KeyE vaginal vitamin E and coconut oil suppositories work well.

In the meantime, avoid squatting, lunges, heavy lifting and jumping. All of these stress your pelvic floor. I also would look for Michelle Kenway on YouTube for proper pelvic floor exercises.

Good luck with your appointment. It's tough during this pandemic.

54 years old. Chek2 mutation. Family history of BC. Oncotype Dx 13 Extensive LVI Dx 6/8/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 2/9 nodes, ER+/PR+, HER2- (FISH) Dx 7/29/2015, DCIS, Left, <1cm, Stage 0, Grade 2, ER+/PR+ Surgery 7/29/2015 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Surgery 9/4/2015 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 10/13/2015 Arimidex (anastrozole) Radiation Therapy 10/20/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 4/22/2016 Aromasin (exemestane) Surgery 7/22/2016 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 3/21/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Apr 23, 2020 02:08PM gb2115 wrote:

Thanks Molly50! Did you get a re-do on your repair or are you living with ongoing prolapse?

I would be ok with using the vaginal estrogen if it will help quality of life. I understand the risks being a cancer survivor, but it's hard to walk around being uncomfortable down there!

I don't do heavy exercise at all so no loss there. I have chronic joint pain...I do the leslie sansone DVDs and even tone those down a notch when needed. I haven't done any in awhile but would like to get back at it. I sit all day at work and like to try to move around a little. I have read don't do exercise that makes you feel the prolapse, but if you feel it constantly, then I guess you just don't do things that make it worse? Or maybe that's what the advice says...not to do things that make it worse. I don't remember. But being inactive can't be good, maybe unless things are literally falling out?!

I can try the compression shorts. I have a pair of little spandex shorts I could try!

Dx IDC in Oct 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes, Lumpectomy + rads + tam. Age 38. 5/21 Dx IDC. 1.3 cm ER/PR+, Her2 -. Gr 2. 2/3 nodes positive. AC/T. Age 42
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Apr 23, 2020 03:05PM flashlight wrote:

What great advice Molly50! My MO said she would prescribe a estrogen cream if I wanted. There are some good post about what is available. gb2115, The magnesium citrate is a laxative. I would ask your doctor if you should add fiber with a prolapse. Hope the compression shorts help you out!! Great suggestion.



Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR-, HER2- Dx DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast Surgery Lumpectomy: Left
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Apr 24, 2020 06:01AM gb2115 wrote:

I only take a small amount of mag citrate...but she has me on benefiber which has made a positive difference. A previous doctor had me try metamucil which was an awful experience!

Dx IDC in Oct 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes, Lumpectomy + rads + tam. Age 38. 5/21 Dx IDC. 1.3 cm ER/PR+, Her2 -. Gr 2. 2/3 nodes positive. AC/T. Age 42
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Apr 24, 2020 09:16PM Molly50 wrote:

Gb2115

I'm just living with the current prolapse. Once I got to the point where I wasn't in constant pain I learned to let others pick up heavy things and to not do exercise that puts pressure on my pelvic floor. The Imvexxy has been amazing. You use it every day for a short period of time and then twice per week. When I started it the atrophy was so bad that I couldn't even walk. I'm at the point where I only use it 2 or 3 times per month and use KeyE and coconut oil in between.

PM me if I don't answer if you have more questions. It's a tough part of breast cancer treatment and being a woman.

54 years old. Chek2 mutation. Family history of BC. Oncotype Dx 13 Extensive LVI Dx 6/8/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 2/9 nodes, ER+/PR+, HER2- (FISH) Dx 7/29/2015, DCIS, Left, <1cm, Stage 0, Grade 2, ER+/PR+ Surgery 7/29/2015 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Surgery 9/4/2015 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 10/13/2015 Arimidex (anastrozole) Radiation Therapy 10/20/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 4/22/2016 Aromasin (exemestane) Surgery 7/22/2016 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 3/21/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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May 6, 2020 03:36PM gb2115 wrote:

Hey Molly50--what were your atrophy symptoms? I had my PT pelvic exam this week and she said I have prolapse but it's really not that bad. I get pressure at the opening (like a tampon falling out), but there's nothing there falling out. I also feel very dry (even when it's not, if that makes sense), and it burns and stings. I'm so miserable. The only relief I can find so far is to put a hot washcloth down there. That takes the feeling away for a tiny bit. Even the kegels she told me to do sort of hurt (like at the vaginal opening). I'm going to talk with the PT tomorrow, but I'm really wondering if I have prolapse, but I'm really thinking I have atrophy going on as well. The PT recommended a moisturizer which I ordered.


Dx IDC in Oct 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes, Lumpectomy + rads + tam. Age 38. 5/21 Dx IDC. 1.3 cm ER/PR+, Her2 -. Gr 2. 2/3 nodes positive. AC/T. Age 42
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Jul 25, 2020 09:03AM Penny2012 wrote:

Hi, I'm in much the same boat. I have a rectocele and the tamoxifen making it a lot worse. Pressure when standing and walking, even laying down and pressure after bowel movement. Saw gynea in March and told to do pelvic floor exercises. I've got a phone appointment on Wednesday with colorectal surgeon. At me wits end with it all. Hope you can get some relief

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Jul 25, 2020 04:22PM Moderators wrote:

Welcome, Penny2012. We're so sorry you find yourself here, and we're sorry to hear about the issues you're having. We hope your appointment with the surgeon goes well and you can get some answers and a plan for relief.

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Nov 28, 2020 05:07PM maxiemama wrote:

I'm not sure my experience will offer any help. I've been on AI for almost five years now and my uterine prolapse occurred around the same time. I saw a PT who taught me how to do a correct Kegel and the Urogynecologist prescribed estrogen creme (oncologist approved) to help the vaginal tissue. I'd say that the area stabilized in the sense that my uterus didn't slide down as much for a few years. At that time I had tried using a pessary a couple years ago but it was painful to insert so I didn't continue. I regret not trying different types of pessaries with different sizes. In the past year though, I feel like Im battling a losing fight since the bladder is now bulging into the vaginal wall and after walking a few miles my uterus is prolapsed. Last week I saw a gyn who said my bladder in now prolapsed at grade 2 to 3 and to see a urogyn for pelvic floor repair and bladder surgery. Another roadblock. I know how frustrating it is to deal with this and Im not sure what options are out there for me except surgery. But if I had to do it all over again I would have been more diligent with the urogyn to get a comfortable pessary fitted and continue with the estrogen creme. Best of luck to you!

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Nov 28, 2020 08:55PM flashlight wrote:

Hi maxiemama, I had a total hysterectomy with prolapse repair this past Feb by an urogyn. It was the best decision and I feel so much better. As your prolapse gets worse it can make you retain urine which causes other issues. I went off Tamoxifen for about 7-weeks. The hardest part of the recovery was not bending or lifting for 6-weeks. Good luck to you.

Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR-, HER2- Dx DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast Surgery Lumpectomy: Left

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