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Topic: Multiple health issues, disagreeing doctors

Forum: Breast Cancer with Another Diagnosis or Comorbidity — Meet others who have breast cancer but also have another health diagnosis/comorbidity such as diabetes, MS, bipolar disorder, HIV or AIDS, Parkinson's Disorder, schizophrenia, etc.

Posted on: Jul 30, 2020 03:17AM

RbZebra wrote:

Hi. My cancer is 1b er/pr+ her2-. Diagnosed December 2016. Had a mastectomy w/3 lymph nodes out. Been on tamoxifen until I had a stroke 1/2020. My multiple health issues ( CIDP, Ms, dysautonomia, PFO aka hole in the heart all before the cancer). My question is: how many of you have had your treatment stopped because of some major side effect? I'm only 47 years old. My doctor's are all arguing about the tamoxifen. My oncologist and neurologist are afraid I'll have a major stroke on the tamoxifen. My primary care doctor and cardiologist say the first 2 r wrong. Any similar experiences out there?

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Jul 30, 2020 05:07AM flashlight wrote:

RbZebra, I don't have a similar experience but, I wouldn't take the chance. Are you on any blood thinners? Is that why your cardio doctor is not concerned about a blood clot? Are you on other medications that have the side effect of a blood clot?

Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/26/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 1/27/2019 Whole-breast: Breast, Lymph nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 30, 2020 07:41AM RbZebra wrote:

I'm on blood thinners, beta blocker for tachycardia, hizentra (high blood clot risk), glucophage for diabetes. I have a family history of blood clots.

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Jul 31, 2020 01:59AM BlueGirlRedState wrote:

No experience with this. But there are other drugs that target estrogen. Most taking Tamoxifen do not experience blood clots with Tamoxifen, but they are a known SE of tamoxifen. Has anyone mentioned alternatives pros/cons of alternatives to Tamoxifen, SEs etc. Aromatase Inhibitors help stop the production of estrogen (tamoxifen blocks receptor sites). Read about hormonal therapy breastcancerorgs main page. It might help you with questions you need to be asking the cancer specialist, cardiologist, primary care doctor. They are not all on the same page, which makes it even harder for you.

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Jul 31, 2020 02:04AM Spookiesmom wrote:

I’m on a beta blocker, and blood thinner, Coumadin. Had PEs, DVTs, at the same time. Waaaay before cancer, still on. Did 7 months of tamoxifen, quit because of severe joint pain. No clots.

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
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Jul 31, 2020 02:19AM - edited Jul 31, 2020 02:23AM by Cowgirl13

The oncologist and the neurologist out way anything your primary care doctor and cardiologist have to say, pure and simple. Your primary care doc and cardiologist simply do not have the expertise that your oncologist has. And I believe the neurologist's expertise is in stroke illness.

Be the kind of woman that when your feet hit the floor each morning the Devil says: 'Oh crap! She's up! Dx 5/28/2009, IDC, Left, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/18/2009 Chemotherapy 8/3/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/21/2009 Hormonal Therapy 2/23/2010 Arimidex (anastrozole)
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Jul 31, 2020 04:20AM flashlight wrote:

I just read this Blood thinners warning: If you're taking a blood thinner medication, tamoxifen can increase the amount of the drug in your body. This may make it easier for you to bleed. If you have ductal carcinoma in situ (DCIS) or a history of blood clots and you must take a blood thinner, you shouldn't use tamoxifen. I agree with Cowgirl13 they are the experts here.

Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/26/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 1/27/2019 Whole-breast: Breast, Lymph nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 31, 2020 06:04AM RbZebra wrote:

Thank you all for your help. I'm on plavix for the blood clot prevention. I have to agree with my oncologist and neurologist. My neurologist has been treating me for 30 years, and he knows me well. Oncologist and I discussed the other meds, he's concerned about the side effects of those as well (pain that our medical community can no longer treat is my concern) the oncologist , the neurologist and the cancer surgeon have agreed to stepped up monitoring. I had a complete hysterectomy, no ovaries so I'm menopausal. It's just nice to be able to talk with others in similar situations 😊

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Jul 31, 2020 10:15AM Cowgirl13 wrote:

RbZebra, good to hear that they will step up your monitoring. You have a great team.

Be the kind of woman that when your feet hit the floor each morning the Devil says: 'Oh crap! She's up! Dx 5/28/2009, IDC, Left, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/18/2009 Chemotherapy 8/3/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/21/2009 Hormonal Therapy 2/23/2010 Arimidex (anastrozole)

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