Join Us

We are 218,061 members in 84 forums discussing 160,867 topics.

Help with Abbreviations

Topic: Anyone with bladder cancer after breast cancer?

Forum: Breast Cancer with Another Diagnosis or Comorbidity — Meet others who have breast cancer but also have another health diagnosis/comorbidity such as diabetes, MS, bipolar disorder, HIV or AIDS, Parkinson's Disorder, schizophrenia, etc.

Posted on: Aug 24, 2020 03:54PM

comingtoterms wrote:

I was just diagnosed with bladder cancer eleven years after ACT chemo for breast cancer.

I’ve been doing some reading about the increased risk of bladder cancer when exposed to this particular chemo.

Anyone else? I don’t fit the typical bladder cancer profile. 🤷🏻♀️

Thanks!

Tammy

Dx 1/9/2009, DCIS/IDC/IDC: Tubular/IDC: Mucinous/IDC: Cribriform, Left, 2cm, Stage IIB, Grade 2, 1/27 nodes, ER+/PR+, HER2-
Log in to post a reply

Page 1 of 1 (11 results)

Posts 1 - 11 (11 total)

Log in to post a reply

Sep 23, 2020 03:44PM CharlotteMe wrote:

Hello Tammy,

I know it has been a few weeks since you posted about your bladder cancer diagnosis but I wanted to respond and say how very sorry I am to hear of your recent diagnosis. Once through cancer treatment for BC is already one time too much! Please continue to let us know how you are doing as your treatment plan comes together.

The way that I found your post was through searching for Cyclophosphamide/Cytoxan and bladder issues.I was diagnosed in late 2009 with Stage 3 invasive breast cancer with four positive lymph nodes. Consequently in 2010 I underwent surgery followed by seven months of Adrimyacin, Cytoxan/Cyclophosphamide, Taxol chemo and then five weeks of radiation. I am currently still on Femara letrozole.

I also have experienced bladder problems recently and will be seeing a urologist on Monday of next week. Of course I am fearful and am aware of the possibility of serious complications including bladder cancer from the months of oral Cytoxan I received in 2010.

My heart goes out to you!

Charlotte

Dx 11/23/2009, IDC, 1cm, Stage IIIA, Grade 3, 4/16 nodes, ER+/PR+, HER2- Surgery 1/9/2010 Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy 2/14/2010 AC + T (Taxol) Hormonal Therapy 9/30/2010 Femara (letrozole) Radiation Therapy 10/31/2010 Breast, Lymph nodes
Log in to post a reply

Sep 23, 2020 09:29PM comingtoterms wrote:

Charlotte,

Will you please stay in touch?

I, too was diagnosed w Breast Cancer in 2009.

I had no symptoms of Bladder Cancer. It was found y accident when I had a trans -vaginal ultrasound on my ovaries and uterus.

My Bladder Cancer is high grade T1, which means it hasn't gotten to the muscle but it was in the wall.. I had two TURBTs, which are procedures to remove and stage the bladder cancer.

Tomorrow I start BCG, which is Immunotherapy placed directly into the bladder for 6 weeks, take a break and then a cystoscopy to check the bladder again. It seems that ongoing immunotherapy is protocol. Years of it.

Bladder cancer is a sneaky beast. It has a significant recurrence rate, especially if it is high grade.

Thank you for your response. I was starting to think I was the only one....

I send positive prayers for strength to you.

Let me know how your appointment with the Urologist goes.

Dx 1/9/2009, DCIS/IDC/IDC: Tubular/IDC: Mucinous/IDC: Cribriform, Left, 2cm, Stage IIB, Grade 2, 1/27 nodes, ER+/PR+, HER2-
Log in to post a reply

Sep 29, 2020 05:11AM comingtoterms wrote:

....checking in on you, Charlotte.

Dx 1/9/2009, DCIS/IDC/IDC: Tubular/IDC: Mucinous/IDC: Cribriform, Left, 2cm, Stage IIB, Grade 2, 1/27 nodes, ER+/PR+, HER2-
Log in to post a reply

Sep 30, 2020 01:30PM Delaine60 wrote:

I was diagnosed with bladder cancer one year ago. My breast cancer surgery and subsequent chemotherapy was in 2009. I also had CT chemo.

So far I have had one cystocopy pre TURBT . My last cystoscopy, one week ago, resulted in a biopsy and I am still waiting for the pathology from my urologist. My bladder cancer was deemed low grade after the TURBT. I am on an "every three month" schedule for cystoscopy, got the all clear until this past week when the urologist saw a suspicious red mark Ugh..

Log in to post a reply

Sep 30, 2020 02:29PM comingtoterms wrote:

Is it a coincidence that all three of us were diagnosed with Breast Cancer and treated with ACT chemo in 2009?


And then, eleven years later, diagnosed with Bladder Cancer?

Hmmmm....

Dx 1/9/2009, DCIS/IDC/IDC: Tubular/IDC: Mucinous/IDC: Cribriform, Left, 2cm, Stage IIB, Grade 2, 1/27 nodes, ER+/PR+, HER2-
Log in to post a reply

Sep 30, 2020 02:58PM Delaine60 wrote:

Not sure about coincidence of timing because I had microscopic hematuria for 4 years and could not get referral to uro. clinic because I did not "meet their criteria" so I likely had bladder cancer all that time. It was found when my pcp finally sent me for an ultrasound and the tumour was quite clearly seen. In any case, it was likely due to the chemo.

Log in to post a reply

Oct 7, 2020 01:12PM CharlotteMe wrote:

Tammy,

I am so very sorry it has taken me so long to get back to reply! Thank you, thank you for checking in and asking about me. These past several days have been a blur of tests, doc appointments, updates to family and on and on!

Well, first the good news...after CT with contrast and cystoscope and multiple urine samples it has been determined that I do not have Bladder Cancer. BUT...CT scan revealed a questionable issue with the blood vessel at left kidney and other areas of concern with left kidney and ureter. So, urologist has me scheduled for a ureteroscopy with IV sedation next and talked about a ureteral stent. I was lying in the procedure room after the cystoscope when I was told about this so I really couldn't take it all in and understand what he was saying about the stent. I did hear him clearly say he wanted a better look at my left kidney and ureter. Will ask more questions when I see him next.

Then, urologist talked to my medical oncologist and she has me scheduled for an MRI because CT scan also revealed a small area of "Low Density" on my pancreas. After MRI I am to meet with an abdominal oncology surgeon at the cancer center for his take on the MRI results. Med oncologist did say that it could be a cyst but they need to look further because one of the ducts is also dilated and that can signal something more.

So, the long and short of it so far is that I don't have bladder cancer but a whole new can of worms, or two, have been opened! Since I was stage III at BC diagnosis and I have a maternal aunt that died of pancreatic cancer I am terrified of what may be found. But I do know that whatever it is it is better to know earlier than later. I have no jaundice or abdominal symptoms and my labs have been great. I am trying to keep busy and keep things from spinning our of control in my head until I have more answers.

I hope you both are tolerating treatments OK. I thought of you Tammy as I was having my cystoscopy and how it seems like one primary cancer should be enough for a lifetime! Now we have to worry about things "down there" in addition to our BC.

I will post an update when I have more information. Prayers to you both, Tammy and Delaine, for strength for the journey and effectiveness of the treatments!

❤️ Charlotte

Dx 11/23/2009, IDC, 1cm, Stage IIIA, Grade 3, 4/16 nodes, ER+/PR+, HER2- Surgery 1/9/2010 Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy 2/14/2010 AC + T (Taxol) Hormonal Therapy 9/30/2010 Femara (letrozole) Radiation Therapy 10/31/2010 Breast, Lymph nodes
Log in to post a reply

Oct 7, 2020 07:06PM comingtoterms wrote:

Delaine, is your BC T0LG? So you won’t need to do BCG?


Charlotte, sometimes cancer likes to hide in other areas connected to the bladder.

Please stay in touch, both of you.

Dx 1/9/2009, DCIS/IDC/IDC: Tubular/IDC: Mucinous/IDC: Cribriform, Left, 2cm, Stage IIB, Grade 2, 1/27 nodes, ER+/PR+, HER2-
Log in to post a reply

Oct 9, 2020 01:12PM Delaine60 wrote:

Tammy, yes my bc was low grade. Had a telephone conversation with my urologist two days ago, after a biopsy done during my cystoscopy about two weeks ago. It is cancer again but still low grade. He did say we might have a conversation about BCG at some point. Not sure why he got on to that since I don't think it is standard for low grade but I didn't ask.

My TURBT was last November and I thought I was on a path to maybe moving on to six month intervals between cystoscopy appts. but since cancer was found again on my third post TURBT cystoscopy I will be checked every three months again so I am booked again for cysto. in December.

I did have a urine cytopathology test about one week before the biopsy and it was negative for cancer cells but he said that happens fairly often.

I had 4 tumours removed in November. Only one showed on the ultrasound so it was quite a jolt to see 4 during the cystoscopy. One tumour, the largest one, looked completely different from the other three. This last biopsy was different, as well, as it was just a small, red dot.

I had ILC, 4 cm. Stage 2, Grade 2, node neg. Er+ Pr+ Her 2 neg. 2009. Had CT chemo., no radiation. Tamoxifen for 2 years, Arimidex for 3 years.

Charlotte, thank you for your kind thoughts.

Log in to post a reply

Oct 9, 2020 05:54PM - edited Oct 9, 2020 05:54PM by comingtoterms

Delaine60, are you being seen by an oncologist at a cancer center or just a urologist?

From all the reading I have done, bladder cancer has the highest recurrence rate of any cancer. If you've already had a recurrence between TURBTs, I don't understand why they aren’t discussing BCG with you. 😞

Dx 1/9/2009, DCIS/IDC/IDC: Tubular/IDC: Mucinous/IDC: Cribriform, Left, 2cm, Stage IIB, Grade 2, 1/27 nodes, ER+/PR+, HER2-
Log in to post a reply

Oct 10, 2020 04:13PM Delaine60 wrote:

Hi Tammy

I am not being seen by an oncologist at a cancer centre. I believe most bladder cancers in my city are handled by a large group of urologists affiliated with a hospital here. I am in Canada. It is my understanding that most often, with low grade tumours, they take a somewhat wait and see position before they decide to administer BCG.

I have read that BCG is not as effective on low grade tumours as it is with other types of bladder cancer. That said, now that I have had a recurrence I am assuming that we might have that discussion at my next cystoscopy in December. Any BCG instillations would be given in the urology clinic at the hospital.

I am not sure about this but I would assume that if any progression leads to needing chemo. then that would be handled by the Cancer Centre and oncologists there.

How are you feeling after your BCG installation?


Feel free to PM me any time.




Page 1 of 1 (11 results)