Join Us

We are 224,391 members in 83 forums discussing 163,527 topics.

Help with Abbreviations

Topic: Newly diagnosed ovarian cancer

Forum: Breast Cancer with Another Diagnosis or Comorbidity — Meet others who have breast cancer but also have another health diagnosis/comorbidity such as diabetes, MS, bipolar disorder, HIV or AIDS, Parkinson's Disorder, schizophrenia, etc.

Posted on: Jun 12, 2021 08:47PM

Lynndeidre wrote:

brca negative, but diagnosed with ovarian cancer 3 weeks ago. Anyone else. Finished breast cancer treatment six years ago. Just got another port put in yesterday. Just really bummed and kind of mad that I have another cancer.

Dx 4/1/2014, Paget's, Stage 0, ER-/PR-, HER2+ Surgery 4/16/2014 Lumpectomy: Right Dx 4/18/2014, IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER-/PR-, HER2+ Surgery 5/6/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 6/9/2014 Herceptin (trastuzumab) Chemotherapy 6/9/2014 Taxol (paclitaxel) Surgery 6/25/2014 Reconstruction (right) Surgery 10/31/2014 Reconstruction (left)
Log in to post a reply

Page 1 of 1 (10 results)

Posts 1 - 10 (10 total)

Log in to post a reply

Jun 12, 2021 11:31PM AliceBastable wrote:

I haven't had ovarian cancer - had my ovaries removed with everything else when I had endometrial cancer - but I wanted to send you a "hang in there" from another cancer crap magnet. 🤗

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Hope it stays that way. Dx 5/2018, ILC, Left, 2cm, Stage IA, Grade 1, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
Log in to post a reply

Jun 13, 2021 07:50PM Monarchandthemilkweed wrote:

So sorry to hear this. Have you had a full panel genetic testing done? My sister and I are both chek2 positive and she was diagnosed with ovarian cancer this fall and I was diagnosed with breast cancer this March. We both had genetic testing prior to our cancer diagnosis due to family history of breast and ovarian cancer. What stage and type of ovarian cancer do you have? My sister has a very rare kind and unfortunately it’s stage

Sarah, Chek2 positive Dx 3/11/2021, IDC, Left, <1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/9/2021 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/27/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Log in to post a reply

Jun 13, 2021 09:11PM - edited Jun 13, 2021 09:12PM by Lynndeidre

that's a great term! Cancer crap magnet. STEALING!!!

Thanks for your good wishes kiss

Dx 4/1/2014, Paget's, Stage 0, ER-/PR-, HER2+ Surgery 4/16/2014 Lumpectomy: Right Dx 4/18/2014, IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER-/PR-, HER2+ Surgery 5/6/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 6/9/2014 Herceptin (trastuzumab) Chemotherapy 6/9/2014 Taxol (paclitaxel) Surgery 6/25/2014 Reconstruction (right) Surgery 10/31/2014 Reconstruction (left)
Log in to post a reply

Jun 13, 2021 09:20PM Lynndeidre wrote:

Hi Sarah,


I think your sisters stage got cut off, but using context, I’m guessing it’s not good 😞 I’m High grade serous and grade one or two (they’re not sure how to classify it, it was to go before the tumor board last week) it was in my right ovary and left tube, so some confusion.

I did the genetic testing that was available seven years ago with my breast cancer diagnosis, but my onco will do more now.

I’m originally from the ‘burgh :)

Hope you and your sister are doing well. I start my new chemo tomorrow.

Lynn

Dx 4/1/2014, Paget's, Stage 0, ER-/PR-, HER2+ Surgery 4/16/2014 Lumpectomy: Right Dx 4/18/2014, IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER-/PR-, HER2+ Surgery 5/6/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 6/9/2014 Herceptin (trastuzumab) Chemotherapy 6/9/2014 Taxol (paclitaxel) Surgery 6/25/2014 Reconstruction (right) Surgery 10/31/2014 Reconstruction (left)
Log in to post a reply

Jun 14, 2021 07:20PM Monarchandthemilkweed wrote:

yes she’s stage 4. She started out as stage 3 but her cancer advanced while on the chemo. They switched the chemo drugs and her cancer in her lymph nodes is shrinking and her numbers are down !! So fantastic news. She has a rare type and her presentation was very rare. Found 18 mounts after a hysterectomy. It’s very unfortunate but it is what it is!

I start chemo in a couple weeks but my cancer was found early.

I do intend to get a hysterectomy as soon as I can because I don’t trust this chek2 gene. Likewise if my sister gets in remission and stays there her onc says for her to get a masectomy

Good luck in your trea

Sarah, Chek2 positive Dx 3/11/2021, IDC, Left, <1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/9/2021 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/27/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Log in to post a reply

Jun 14, 2021 07:28PM Lynndeidre wrote:

I have the most common type. They staged me as 2A. I would have preferred 1B. I would definitely get everything cut out of me if I had that mutation. Good luck to you recovering from your mastectomy! It’s not fun, bu you’ll get through it. Glad your sister is responding to treatment. I just finished my first chemo. Went very well!

Dx 4/1/2014, Paget's, Stage 0, ER-/PR-, HER2+ Surgery 4/16/2014 Lumpectomy: Right Dx 4/18/2014, IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER-/PR-, HER2+ Surgery 5/6/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 6/9/2014 Herceptin (trastuzumab) Chemotherapy 6/9/2014 Taxol (paclitaxel) Surgery 6/25/2014 Reconstruction (right) Surgery 10/31/2014 Reconstruction (left)
Log in to post a reply

Jun 14, 2021 08:05PM Monarchandthemilkweed wrote:

oh 2a is very very hopeful!! I’m glad the first chemo went well. You’ve been through so much !

Sarah, Chek2 positive Dx 3/11/2021, IDC, Left, <1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/9/2021 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/27/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Log in to post a reply

Jun 14, 2021 09:14PM Lynndeidre wrote:

I know I shouldn’t be complaining, but I preferred my bc diagnosis of stage one. You mentioned having a hysterectomy. Will you get ovaries and the whole shebang out? I had tubes, ovaries, uterus, cervix and appendix. It’s like all my girl parts are rebelling!

Dx 4/1/2014, Paget's, Stage 0, ER-/PR-, HER2+ Surgery 4/16/2014 Lumpectomy: Right Dx 4/18/2014, IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER-/PR-, HER2+ Surgery 5/6/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 6/9/2014 Herceptin (trastuzumab) Chemotherapy 6/9/2014 Taxol (paclitaxel) Surgery 6/25/2014 Reconstruction (right) Surgery 10/31/2014 Reconstruction (left)
Log in to post a reply

Jun 15, 2021 12:26PM Monarchandthemilkweed wrote:

Oh I understand. It’s incredibly unfair you have to deal with two different cancers.

I haven’t had the hysterectomy yet- maybe in a year. After chemo and after my reconstruction surgery.

Have you started chemo yet for the ovarian cancer? My sister just got her results and her tumor markers are down again. That’s three times in a row. So thankful!!

I hate cancer! I’m so sorry you are dealing with this again. Can I ask you how old were you when diagnosed with BC? I was diagnosed at 4

Sarah, Chek2 positive Dx 3/11/2021, IDC, Left, <1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/9/2021 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/27/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Log in to post a reply

Jun 15, 2021 12:29PM Lynndeidre wrote:

I’m 53 now so 45. Another nice thing is all the doctors saying “oh you’re so young” 😂😂😂

I sure don’t feel young!

Dx 4/1/2014, Paget's, Stage 0, ER-/PR-, HER2+ Surgery 4/16/2014 Lumpectomy: Right Dx 4/18/2014, IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER-/PR-, HER2+ Surgery 5/6/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 6/9/2014 Herceptin (trastuzumab) Chemotherapy 6/9/2014 Taxol (paclitaxel) Surgery 6/25/2014 Reconstruction (right) Surgery 10/31/2014 Reconstruction (left)

Page 1 of 1 (10 results)