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Oct 26, 2017 07:33AM
I just ran across this thread,wish I had seen it earlier. I was dx. Stage IV right out of the gate also. I am a bit older,yet considered young for this dx. I am now 48 dx at 46. I have a husband and three daughters. My youngest is 15 the oldest is 27. So quite a spread.
I was dx. With bone mets all over me,head to femurs. Also had marrow involvement. I was put on tamoxifen right away. I have taken the tamoxifen for 25 months now and I am NED!!! From taking tamoxifen and zometa infusions for my bones. My scans can find no cancer! Keep your head up and never lose hope!! Anything is possible.
Please let your wife’s doctor know all of her symptoms. There is much that can help her! I am stage IV and thriving! It has taken time to iron out the wrinkles. The se’s can be awful.
You are both still likely dealing with the big gut punch that you feel after dx. But it will diminish. I promise that it does get easier with time!
Don’t forget to tell her that I am NED on tamoxifen!! She can be too!!
Much love and hugs to your family,you are strong and can get through this
Dx stage IV de novo 9/10/2015 with bone mets.
9/10/2015, ILC/IDC, Both breasts, 2cm, Stage IV, Grade 2, ER+/PR+, HER2-
9/10/2015, ILC/IDC, Both breasts, Stage IV, metastasized to bone, ER+/PR+, HER2-
9/15/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)