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Topic: Daughter’ cancer has returned

Forum: Caring for Someone with Stage IV or Mets —

A place where family members, caregivers, and loved ones of people having a Stage IV (metastatic) diagnosis can share, discuss, and support one another through the tough times unique to this diagnosis.

Posted on: Feb 16, 2021 03:02PM

Birchbark26 wrote:

I haven’t been here for over a year. Today we were informed my daughter’s cancer has returned. She was diagnosed stage IV de novo almost 3 years ago

I guess I’m depressed and hoping someone can give me some good news

Thank

Dx 7/16/2018, IDC, Right, Stage IV, metastasized to bone/liver/other, ER-/PR-, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy AC + T (Taxol) Targeted Therapy Perjeta (pertuzumab)
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Feb 17, 2021 12:30PM buttonsmachine wrote:

Birchbark, I'm sorry to hear of your news. How old is your daughter? My parents took it very hard when my cancer returned. It's hard for the patient but also for the family members.

Has her MO come up with a new treatment plan yet? Sending strength.

Diagnosed at 32. Local recurrences one year later, probably due to needle seeding at inital biopsy. Now dealing with MBC. Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 10/31/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/31/2017 Whole-breast Hormonal Therapy 3/31/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lymph node removal; Mastectomy: Right Chemotherapy 11/30/2017 AC Surgery 3/31/2018 Lymph node removal; Mastectomy: Right Radiation Therapy 4/30/2018 External: Lymph nodes, Chest wall Chemotherapy 6/30/2018 Xeloda (capecitabine) Hormonal Therapy 7/30/2018 Zoladex (goserelin) Hormonal Therapy 2/1/2019 Aromasin (exemestane) Hormonal Therapy 9/30/2019 Faslodex (fulvestrant) Dx 8/2020, IDC, Stage IV, metastasized to bone/other, Grade 3, ER+/PR+, HER2- Targeted Therapy 8/30/2020 Ibrance (palbociclib) Dx 1/2021, IDC, Stage IV, metastasized to liver/lungs Chemotherapy 1/14/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine)
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Feb 17, 2021 12:34PM illimae wrote:

I think that the best news we have in this situation is that there are several treatments for HER2+ and more on the way.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/20/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 20, 2021 05:29PM Birchbark26 wrote:

Hi Thank you for your kind words. She had a recurrence at the original location in the breast. She had a mammo, sono, and biopsy. The plan is not concrete but probably a lumpectomy and keep her on her current immunotherapy because she tolerates it well. She was also diagnosed at 32 but was stage IV from diagnosis. I try to find parents on this site but we are few Stay well!

Dx 7/16/2018, IDC, Right, Stage IV, metastasized to bone/liver/other, ER-/PR-, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy AC + T (Taxol) Targeted Therapy Perjeta (pertuzumab)
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Feb 20, 2021 05:32PM Birchbark26 wrote:

Hi Thank you for your kind words. She had a recurrence at the original location in the breast. She had a mammo, sono, and biopsy. The plan is not concrete but probably a lumpectomy and keep her on her current immunotherapy because she tolerates it well. She was also diagnosed at 32 but was stage IV from diagnosis. I try to find parents on this site but we are few Stay well!


Dx 7/16/2018, IDC, Right, Stage IV, metastasized to bone/liver/other, ER-/PR-, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy AC + T (Taxol) Targeted Therapy Perjeta (pertuzumab)
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Feb 21, 2021 03:30PM - edited Feb 21, 2021 03:31PM by Moderators

Birchbark - We're so sorry your daughter is dealing with this again. You know you have all the support here, please let us know what we can do for you. For now, we thought this article could be of interest:

Six Tips for Caregivers From People Living With Metastatic Breast Cancer

Hope this helps! Please come back soon and let us know how you both are doing.

Warmly,

The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Sep 7, 2021 09:07AM Tiffany214 wrote:

My beautiful daughter was diagnosed in June of this year with stage 4 Metastatic Breast Cancer, ER/PR+HER2+. She is 34 years old, married with 2 beautiful children, ages 14 and 8. As a mother, I am completely devastated. The day we found out I felt as though my life was sucked out of me, it was an intense physical feeling, as well as emotional. The shock is still there, I cannot believe that my daughter is going through this. The reality of the situation is too much to handle at times, and I have to find ways to cope and not allow my thoughts to overwhelm me. I have to be her strength through it all. I have to be her hope on those days she is going to want to give up. And I have to be there for my grandchildren as we start this journey. But every day, when I come home from taking care of her and those kids, I sob like a baby. I hold it in, I won't break down in front of her. I wait until I am alone to let myself feel the fear, grief, anger, and deep deep sadness. My daughter, my beautiful spirited, opinionated, loud, funny and wonderful daughter. How did this happen? How can this be our reality?

As mothers, nobody can ever understand the hurt we feel over this unless they have been through the same. I am sending love and prayers to you and your daughter.


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Sep 7, 2021 10:29AM Birchbark26 wrote:

I’m so sorry you and your family are going through this

Prayers and love being sent for you all I’m here if you need to private message me and want to vent. There aren’t a lot of parents on here with children that have stage IV cancer so it can be isolating

Our lives will never be the same, the pain and hopelessness is unbearable at times as a mother we expect to be able to shelter our children and now we have no power to do anything. It’s out of our hands

Dx 7/16/2018, IDC, Right, Stage IV, metastasized to bone/liver/other, ER-/PR-, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy AC + T (Taxol) Targeted Therapy Perjeta (pertuzumab)

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