A place where family members, caregivers, and loved ones of people having a Stage IV (metastatic) diagnosis can share, discuss, and support one another through the tough times unique to this diagnosis.
Posted on:
Feb 17, 2021 10:02AM
Joined:
Aug 2018
Posts:
24
Latest activity:
Feb 21, 2021
Birchbark26
wrote:
I haven’t been here for over a year. Today we were informed my daughter’s cancer has returned. She was diagnosed stage IV de novo almost 3 years ago
I guess I’m depressed and hoping someone can give me some good news
Thank
Dx
7/16/2018, IDC, Right, Stage IV, metastasized to bone/liver/other, ER-/PR-, HER2+
Targeted Therapy
Herceptin (trastuzumab)
Chemotherapy
AC + T (Taxol)
Targeted Therapy
Perjeta (pertuzumab)
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buttonsmach…
Joined:
Dec 2017
Posts:
736
Latest activity:
Feb 25, 2021
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Feb 18, 2021 07:30AM
buttonsmachine
wrote:
Birchbark, I'm sorry to hear of your news. How old is your daughter? My parents took it very hard when my cancer returned. It's hard for the patient but also for the family members.
Has her MO come up with a new treatment plan yet? Sending strength.
Diagnosed at 32. Local recurrences one year later. Now dealing with MBC.
Dx
8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2-
Surgery
10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel
Chemotherapy
10/31/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Radiation Therapy
2/1/2017 Whole-breast
Hormonal Therapy
3/31/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Dx
10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2-
Surgery
11/1/2017 Lymph node removal; Mastectomy: Right
Chemotherapy
11/30/2017 AC
Surgery
3/31/2018 Lymph node removal; Mastectomy: Right
Radiation Therapy
4/30/2018 External: Lymph nodes, Chest wall
Chemotherapy
6/30/2018 Xeloda (capecitabine)
Hormonal Therapy
7/30/2018 Zoladex (goserelin)
Hormonal Therapy
2/1/2019 Aromasin (exemestane)
Hormonal Therapy
9/30/2019 Faslodex (fulvestrant)
Dx
8/2020, IDC, Stage IV, metastasized to bone/liver/other, Grade 3, ER+/PR+, HER2-
Targeted Therapy
8/30/2020 Ibrance (palbociclib)
Chemotherapy
1/14/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine)
illimae
Houston
Joined:
Dec 2016
Posts:
4,179
Latest activity:
Feb 25, 2021
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Feb 18, 2021 07:34AM
illimae
wrote:
I think that the best news we have in this situation is that there are several treatments for HER2+ and more on the way.
Diagnosed at 41 Stage IV De Novo
Dx
11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC)
Targeted Therapy
1/1/2017 Perjeta (pertuzumab)
Chemotherapy
1/2/2017 Abraxane (albumin-bound or nab-paclitaxel)
Targeted Therapy
1/2/2017 Herceptin (trastuzumab)
Surgery
6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary
Radiation Therapy
8/10/2017 Breast, Lymph nodes
Dx
10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC)
Radiation Therapy
10/19/2017 External: Brain
Radiation Therapy
4/18/2018 External: Brain
Radiation Therapy
5/23/2019 External: Brain
Surgery
1/22/2020
Radiation Therapy
2/16/2020 External: Brain
Radiation Therapy
7/20/2020 External: Bone
Radiation Therapy
12/4/2020 External: Brain
Targeted Therapy
Tukysa (tucatinib)
Chemotherapy
Xeloda (capecitabine)
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Birchbark26…
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Aug 2018
Posts:
24
Latest activity:
Feb 21, 2021
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Feb 21, 2021 12:29PM
Birchbark26
wrote:
Hi Thank you for your kind words. She had a recurrence at the original location in the breast. She had a mammo, sono, and biopsy. The plan is not concrete but probably a lumpectomy and keep her on her current immunotherapy because she tolerates it well. She was also diagnosed at 32 but was stage IV from diagnosis. I try to find parents on this site but we are few Stay well!
Dx
7/16/2018, IDC, Right, Stage IV, metastasized to bone/liver/other, ER-/PR-, HER2+
Targeted Therapy
Herceptin (trastuzumab)
Chemotherapy
AC + T (Taxol)
Targeted Therapy
Perjeta (pertuzumab)
Birchbark26…
Joined:
Aug 2018
Posts:
24
Latest activity:
Feb 21, 2021
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Feb 21, 2021 12:32PM
Birchbark26
wrote:
Hi Thank you for your kind words. She had a recurrence at the original location in the breast. She had a mammo, sono, and biopsy. The plan is not concrete but probably a lumpectomy and keep her on her current immunotherapy because she tolerates it well. She was also diagnosed at 32 but was stage IV from diagnosis. I try to find parents on this site but we are few Stay well!
Dx
7/16/2018, IDC, Right, Stage IV, metastasized to bone/liver/other, ER-/PR-, HER2+
Targeted Therapy
Herceptin (trastuzumab)
Chemotherapy
AC + T (Taxol)
Targeted Therapy
Perjeta (pertuzumab)
Moderators
Joined:
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Posts:
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Latest activity:
Feb 25, 2021
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Feb 22, 2021 10:30AM
- edited
Feb 22, 2021 10:31AM
by
Moderators
Birchbark - We're so sorry your daughter is dealing with this again. You know you have all the support here, please let us know what we can do for you. For now, we thought this article could be of interest:
Six Tips for Caregivers From People Living With Metastatic Breast Cancer
Hope this helps! Please come back soon and let us know how you both are doing.
Warmly,
The Mods