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Topic: My mother diagnosed with stage 4 Breast cancer Grade 3 Her2+

Forum: Caring for Someone with Stage IV or Mets —

A place where family members, caregivers, and loved ones of people having a Stage IV (metastatic) diagnosis can share, discuss, and support one another through the tough times unique to this diagnosis.

Posted on: May 24, 2021 07:12AM - edited May 24, 2021 07:14AM by Vinay13

Vinay13 wrote:

Hi All,

I was living in US from last 2 years when I can to know this news of my mother's MBC stage 4 , grade 3 ,her2+ cancer in late march 2021, I need to understand what option do I have.

My mother lives in India and I am currently with her. I need to know if there is some new experimental treatment available in US ? how I can avail ? those treatments.

I will be very grateful if anyone has any good suggestions for me.


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May 24, 2021 07:27AM Olma61 wrote:

for HER2 positive, her first line of treatment in the USA would be a chemo (usually a taxane) plus Herceptin and Perjeta. Is she receiving that in India

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
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May 26, 2021 01:20AM Vinay13 wrote:

Hi olma,


Thanks for response ,Yes she is getting this.

what's the next step in the process ?

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May 26, 2021 10:56AM - edited May 26, 2021 10:58AM by ShetlandPony

Hello, Vinay. I would expect your mom to have regular blood tests to see how her body is handling treatment, and a scan every few months to see how the treatment is working. If there if progression (more cancer) then a change of treatment.

If you want to see the treatment guidelines for the USA, they can be found here. There are versions for patients and versions for physicians:

https://www.nccn.org/guidelines/guidelines-detail?category=1&id=1419

If you would like a thoroughly researched guide to treatment options, there is a great book called The Insider's Guide to Metastatic Breast Cancer, available at the usual online store. Or download a PDF here:

https://www.mbcalliance.org/the-insiders-guide-to-metastatic-breast-cancer

And of course there is a lot of info here on BCO.

How is your mom doing, how is she feeling? Where are the mets? Are you two able to do some enjoyable things like walking in a pretty place, playing music or games, etc?

2011 Stage I ITCs sn, premenopausal, Oncotype 16. 2014 Stage IV mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD Dx 2011, ILC, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 2014, ILC, 2cm, Stage IV, metastasized to liver/other, Grade 2, ER+/PR+, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast Surgery Lumpectomy
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May 26, 2021 01:31PM illimae wrote:

vinay13, there are several drugs for HER2+ but “next steps” may be farther off than you think, lots of women do well on Herceptin for years before the next step. Personally, I’d focus on getting through the emotional parts of the next few months and you and your mom should find a sort of balance soon.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/20/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 29, 2021 05:08AM Vinay13 wrote:

Thanks for a such a nice response , Yes trying to spend some good time together.

Really find this information very useful

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May 29, 2021 05:13AM Vinay13 wrote:

Thanks illimae for your response. Really appreciate

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