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Nov 8, 2009 04:18PM
Nov 8, 2009 04:19PM
Hi everyone, I was dx a little shy of a year ago. My journey has had some unusual twists and turns and now I kinda feel like I could write a book on bc. I had a 1.7cm sub areola lump I found myself when I was 35 years old. As soon as I felt it- I just thought "WHAT. THE. HELL. IS. THAT!!!"
exam, mammogram, ultrasound, biopsy. A call from my doc the next day- wants me to come in asap. Infiltrating ductal carcinoma. I chose to have a mx bc of the tumor location near my nipple meant it had to go too, plus at the time I had hoped I could be done with treatment after surgery. The idea of chemo scared the hell out of me. I had a SNB that was a false negative- so for two days I was one of those "thank god my nodes were negative! people" Until the final pathology came back and there was a 2.4mm spot.
They wanted to do further lymph node dissection of course. I had had an immediate skin sparing TRAM recon- the blood supply to my flap was over in my armpit which complicated doing a dissection. I was told my chances of nerve damage and lymphedema were good. The only reason to do it was to determine whether I should have radiation.
so I did more research- there are a lot of factors to determine whether to have radiation after a mx. Number of nodes (> 3- its automatic), tumor size, grade, and And newer research has indicated there is a benefit to having radiation if you have any positive nodes, esp for premenopausal women. So I refused further dissection and had radiation. For me another deciding factor was tumor location- inner quadarant/nipple area tumors are more likely to have undiagnosed spread into the intramammary node chain (runs up the inside of the sternum). So I had that area radiated as well. I am glad I had the false negattive now- lymphedema scares the hell out of me. I like to do active outdoor things-which seems to include all the things they tell you to avoid to avoid LE- exercise,scratches, bug bites, sunburn.
I finished TAC x 6 in June and now I am sporting about half an inch of hair. Today I felt my hair blowing in the wind for the first time in months! I started Tamoxifen about a month ago and so far I am doing okay on it so far with some natural supplements to help counteract some of its negative effects.
12/8/2008, IDC, 1cm, Stage IV, Grade 2, 1/1 nodes, ER+, HER2-
3/22/2012, IDC, 1cm, Stage IV, Grade 2, 1/1 nodes, mets, ER+/PR+, HER2-