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Topic: Stage II w/Lymph Node Involvement

Forum: Stage II Breast Cancer — Meet, share and support others with Stage II Breast Cancer

Posted on: Nov 6, 2009 02:53PM - edited Nov 23, 2009 02:18PM by Warrior517

Warrior517 wrote:

I am so thrilled we finally have a place to call HOME here! I was diagnosed w/IDC last year at the age of 39. It was in 2/6 lymph nodes. I was also HER2 and Estrogen Positive.I had dbl mastectomy w/implants. This summer, one of the implants failed. So, I underwent a DIEP procedure w/Dr. Massey and Dellacroce in New Orleans. Great Outcome!! I did TCH for six rounds, rads and a year of Herceptin. I am currently on tamoxifen and Boniva (study). 

I just wanted to start this thread for those that had it spread to lymph nodes. I can't tell you how many threads I have read that said "thank God, my nodes were clear"...we all weren't as lucky. BUT I believe God puts people in our path when we need them most. Last year during Rads,I met an older lady(she was there for her hubby) who told me that she was a 30 year survivor and Yes..It was in her lymph nodes! The job of the lymph nodes is to catch that little sucker!

Dx 1/10/2008, IDC, Stage IIA, Grade 3, 2/6 nodes, ER+/PR+, HER2+
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Aug 21, 2018 09:18AM Warrior517 wrote:

Hi warriors! It’s me.....the original poster of this thread. Warrior517 aka Kathy. I wanted to give you an update..,.TEN YEARS AND CANCER FREE!!!!!! Hope is the best gift I want to give to the newbies. It was a journey and still can be at times. Don’t let fear rule you. Put your faith, family and friends in the forefront. I see my onco every 6 months and they are ready to stop Tamoxifen. I’m still pre menopausal so not ready For AI meds. Feel free to reach out anytime. Love & Prayer

Dx 1/10/2008, IDC, Stage IIA, Grade 3, 2/6 nodes, ER+/PR+, HER2+
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Aug 21, 2018 09:20AM Nas wrote:

Thanks for stopping by and giving us hope❤️❤️❤️Wish you 50 more years of health and lov ❤️ ❤️❤️❤️

Dx 12/5/2017, IDC, Right, 1cm, Stage IIA, Grade 1, 1/8 nodes, ER+/PR+, HER2- Surgery 12/13/2017 Mastectomy: Left, Right Radiation Therapy 2/6/2018 Breast, Lymph nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 21, 2018 09:51AM JaBoo wrote:

Warrior, that's wonderfull, congratulations!! Wish you many healthfull decades!!!

And especially thanks for coming here and sharing... as a person in the midst of chemo with dx similar to you - with node involvement and tripple positive AND grade 3 AND young - I am grateful for your message and for the hope you are sharing here... thank you so much, you've made my day!!

dx at 38 Dx 5/22/2018, IDC, Left, 2cm, Grade 3, 1/3 nodes, ER+/PR+, HER2+ (FISH) Surgery 6/14/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 6/19/2018 Lumpectomy: Left Chemotherapy 7/15/2018 AC + T (Taxol) Hormonal Therapy 7/16/2018 Zoladex (goserelin) Targeted Therapy 9/12/2018 Herceptin (trastuzumab) Hormonal Therapy 1/10/2019 Aromasin (exemestane) Surgery 1/21/2019 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 6/26/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 21, 2018 03:32PM Nancy2581 wrote:

I was stage 2B with lymph node involvement. Did the whole 9 yards - chemo, rads, hormone therapy. I'm 4 years out and feel great.



2.8 cm tumor with LVI Dx 6/11/2014, IDC, Right, 2cm, Stage IIB, Grade 1, 1/3 nodes, ER+/PR+, HER2- (IHC) Surgery 6/24/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 7/22/2014 AC + T (Taxol) Hormonal Therapy 1/28/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 1/29/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/17/2017 Femara (letrozole)
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Aug 21, 2018 03:35PM Nas wrote:

Great news Nancy, wish you many many years of health and love ❤️ doyou remember your er and pr percentage????

Dx 12/5/2017, IDC, Right, 1cm, Stage IIA, Grade 1, 1/8 nodes, ER+/PR+, HER2- Surgery 12/13/2017 Mastectomy: Left, Right Radiation Therapy 2/6/2018 Breast, Lymph nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 21, 2018 06:17PM Nancy2581 wrote:

Thank you - yes I was 100% ER and 58% PR.


2.8 cm tumor with LVI Dx 6/11/2014, IDC, Right, 2cm, Stage IIB, Grade 1, 1/3 nodes, ER+/PR+, HER2- (IHC) Surgery 6/24/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 7/22/2014 AC + T (Taxol) Hormonal Therapy 1/28/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 1/29/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/17/2017 Femara (letrozole)
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Aug 21, 2018 06:19PM LaughingGull wrote:

Thanks for the update! I am also triple positive and you just made my day!

ACx4, THPx4, HP (to complete 1y); Nerlynx (1y); AI (expected 10y), Surgery: BMX + ALND, Reconstruction, Oophorectomy. Radiation. Dx 10/26/2017, IDC, Right, 3cm, Stage IIB, Grade 3, 2/6 nodes, ER+/PR+, HER2+ (IHC)
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Aug 26, 2018 10:10PM Kelly-Anne wrote:

Just found this thread... nice to meet you all. I just squeezed into the IIb category. Before surgery I was told 3.1cm grade 2, likely no lymph involved. 3.5 weeks to surgery while we discussed if we could try chemo first to shrink the tumour. ER+ so we went to surgery first. Either the ultrasound lied or the tumour grew. Final result 5.6cm grade 3 and one sentinel node with micro inclusion. Surgeon was able to do lumpectomy as requested but the larger chunk made healing feel slow. I’ve just started chemo. I worry all the time. They said survival rate for mastectomy and lumpectomy was the same for me. I’m doing what they say, but the long term outlook for stage II is troubling me. If I’m able to return to work, statistics say I likely won’t live to retirement. I’m 45 now. Dr says 47% chance I survive 15 years.

I’m not a nervous person but I can’t deal with the stress. Acute stress disorder they called it. (Early form of PTSD). Each trip to the hospital is a new round of panic. One chemo down and 5 to go in 3 week cycles. Radiation to follow.

Is it all worth it? I can’t see the end of all this. I’d do anything for my daughter (15) but I don’t know how to survive this nightmare.
Dx 5/31/2018, IDC, Left, 5cm, Stage IIB, Grade 3, ER+/PR+, HER2- Surgery 6/25/2018 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 8/14/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
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Aug 27, 2018 12:21AM Warrior517 wrote:

Kelly Anne

I am sorry that fear is dominating you. I suggest trying to go to you tube to mediate. I think it’s completely false statistics you received! My onco said it’s about 1% risk of a reoccurrence each year. You are 45 now so at 80, you have a 35% chance of a reoccurrence. This is close to ANY woman at that age getting it. Get that statistic Out of your head. No physician should put that in your head! Think of this like a chronic disease like diabetes. Treat it, manage it and LIVE LIFE!!! You got this. I’m gong on 11 yeas in January and had it in numerous lymph nodes. You are healed. God has you in the palm of his hand. Much love ❤️

Dx 1/10/2008, IDC, Stage IIA, Grade 3, 2/6 nodes, ER+/PR+, HER2+
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Aug 27, 2018 09:01AM PreludeSing wrote:

agree with Nas...BUMP

Dx 6/2/2017, IDC, Left, 4cm, Stage IIB, Grade 2, 2/24 nodes, ER+/PR+, HER2- Surgery 6/6/2017 Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 6/26/2017 AC + T (Taxol) Radiation Therapy 11/27/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin)
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Aug 27, 2018 09:48AM HockeyChick_CA49 wrote:

Kelly-Anne,

I know how you feel. I am going through the same emotional roller coaster as you are. I am stage IIb, 1 axillary LN, add to that triple negative which has a higher rate of recurrence and fewer treatment options. I've completed 5 of 8 chemo treatments. I think I'm worn down from the pain from Taxol, as I'm struggling with anxiety. I'm 50 and have days where I can't see myself making it to 55 or 60. I'm having the same thoughts as you are. I don't know how I will move forward with the fear of recurrence always there. But for now i just need to get through the treatments and see where I end up on the other side. So far the chemo is working well and I try to hold on to that. I'm trying to stay positive but I know I will also have bad days.

I do find comfort in hearing stories on this board of women who are going on 10 plus years.

Warrior: Thank you for your words of encouragement. I think you are right about treating BC like a chronic disease. Congratulations on being 10 years cancer free!! And thank you for starting this thread. It has been a place of comfort for me.

Dx 6/8/2018, IDC, Right, 2cm, Stage IIB, Grade 3, 1/6 nodes, ER-/PR-, HER2- (FISH) Chemotherapy 6/21/2018 AC + T (Taxol) Surgery 10/31/2018 Lymph node removal: Underarm/Axillary; Mastectomy: Right Radiation Therapy 12/17/2018 Whole-breast: Breast, Lymph nodes Chemotherapy 2/20/2019 Xeloda (capecitabine)
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Aug 27, 2018 11:11AM Manc wrote:

Hi all what a great thread I'm stage 2b 2 nodes 1 underarm 1 an interpectoral node so all scary stuff. I've finished all treatment now diagnosed November 2016 except Anastrozole and six monthly bisposphonate infusion.

For the ladies struggling emotionally with recurrence fears i feel your pain. I never asked my stats but have entered them in the UK predict site. They aren't great and I've found it so hard to deal with. However to give you some hope I'm improving with this. I think time is the key here although my fear still lives with me daily it is easing and I'm actually finding i haven't thought of cancer for a few hours more and more i know this doesn't sound great but trust me for me it is .

Keep going trust your team and treatment and hopefully we'll be posting success stories soon .

Dec 2016 36 mm Grade 3 in 2 nodes Er6 Pr 4 Her-
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Aug 27, 2018 01:49PM Kelly-Anne wrote:

Warrior thank you for the encouragement! They say “early stage” but it comes with a message of aggressive treatment. Im just going to need to keep my chin up and plod along. It helps to find others with similar struggles.

Today’s adventure is soup. My sister brought a frozen batch before my first treatment and it was all I ate for days. Today I make my own to get ready for round 2 next week. Simple recipe: Organic Chicken, celery, onions and garlic. Cook overnight and voila something yummy to eat.

Dx 5/31/2018, IDC, Left, 5cm, Stage IIB, Grade 3, ER+/PR+, HER2- Surgery 6/25/2018 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 8/14/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
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Aug 27, 2018 02:28PM pcranky wrote:

Hi all, I'm also 2b. My doc only took 1 node because it looked non-suspicious and it came back positve with 9mm of cancer in it. argh.

I've stopped reading stats. predictions, r prognostications and the like. I was driving myself crazy with something I couldn't possibly know.

Just my favorite little piece of encouraging thought.

Every statistic you read is based on some period of time, often 10 years, that preceded it. Which means its out of date the second its published.

They improve treatment all the time. We will have, on average, better outcomes than the people those numbers are based on.






Dx 6/6/2018, DCIS/IDC, Right, 2cm, Stage IIB, Grade 3, 1/1 nodes, ER+/PR-, HER2- Surgery 7/16/2018 Lumpectomy: Right Chemotherapy 9/4/2018 AC + T (Taxol) Radiation Therapy 2/20/2019 Whole-breast: Breast, Lymph nodes
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Aug 30, 2018 11:43AM Lori_D73 wrote:

I’m new here and freaking out today. I’m stage 2b, finished 4 rounds of AC and 4 taxol. Had a lumpectomy and axillary dissection. Tumor shrunk fro 2.2 cm to 8mm, but had 3/7 positive lymph nodes...2 macro, 1 micro. I thought chemo would have taken care of the lymph nodes. Still have 2 weeks until I see my onco and am on pins and needles. Anyone else have positive lymph nodes after chemo? If so, what was you’re treatment

Dx 3/2/2018, IDC, Left, 2cm, Stage IIB, 3/7 nodes, ER+/PR+, HER2-
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Aug 30, 2018 03:39PM Moderators wrote:

Hi Lori, and welcome to Breastcancer.org!

We're so sorry for the reasons that bring you here, and that you're so very worried. We know someone will be by shortly to weigh in with their experiences with positive lymph nodes after chemo -- just hang in there and you're sure to get some great advice and support soon!

We look forward to hearing more from you soon!

--The Mods

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Aug 30, 2018 08:27PM Billb464 wrote:

hi Lori,

I had chemo before surgery also, knowing already that I had 2 nodes positive. During my surgery they got 6 nodes and the 2 positive nodes still showed some cancer. They also found DCIS along with the IDC, plus it was larger that we originally thought, even with all that, my oncologist said that the chemo worked about 80% on the cancer, which he considered good since chemo doesn’t always work as well on Hormone positive.

I had radiation and am currently taking tamoxifen. Every 6 months for mamagram and ultrasound. I am also currently enrolled in a clinical study with Ibrance. This might be something you could look into depending on the path your doctor guides you to.

Wishing you well on your journey

Dx 8/6/2017, IDC, Right, 1cm, Stage IIA, Grade 2, ER+/PR+, HER2- (IHC) Chemotherapy 8/23/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 1/8/2018 Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Reconstruction (right): Fat grafting, Latissimus dorsi flap Dx 1/10/2018, DCIS/IDC, Right, 2cm, Stage IIB, Grade 1, 2/6 nodes, ER+/PR+ Radiation Therapy 2/28/2018 Whole-breast: Breast, Lymph nodes Hormonal Therapy 4/4/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 7/7/2018 Ibrance (palbociclib) Hormonal Therapy
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Aug 30, 2018 08:59PM nowheregirl wrote:

To those of you who are terrified, just because your nodes are positive doesn't mean cancer has spread to your entire body. It's not a death sentence. I was stage IIB with a 3.5 cm tumor along with 2 positive nodes. But that was 13 years ago. Done 3 overseas holidays since the last treatment and been working full time. Trust me, I do get what you are going thru. When I heard cancer was in my nodes, I thought my life was over but it wasn't. I hardly think about cancer now and you will be where I am soon.

Smile

Dx 7/7/2005, IDC, Right, 3cm, Stage IIB, Grade 1, 2/9 nodes, ER+/PR+, HER2- Chemotherapy 7/9/2005 AC + T (Taxol) Hormonal Therapy 3/11/2006 Surgery 3/23/2006 Lumpectomy: Right Chemotherapy 4/8/2006 Taxol (paclitaxel) Radiation Therapy 8/22/2006 Breast, Lymph nodes
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Aug 30, 2018 10:39PM PreludeSing wrote:

Thank you nowheregirl...I wanna come back and post this exact same message in 13 years💐🙏.

may you stay blessedly well always 😘

Dx 6/2/2017, IDC, Left, 4cm, Stage IIB, Grade 2, 2/24 nodes, ER+/PR+, HER2- Surgery 6/6/2017 Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 6/26/2017 AC + T (Taxol) Radiation Therapy 11/27/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin)
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Aug 30, 2018 10:41PM OCDAmy wrote:

nowheregirl, nice to hear that, thanks. I am 1.5 years from diagnosis with a large tumor and 2 nodes. I've had it all BMX and ALND, chemo, rads, DIEP and AI and feel pretty good now, just the aches from AI. The worry lessens over time but I'm not sure it will completly go away. Hugs to everyone, we got this

Dx 2/2017, IDC, Left, 4cm, Stage IIB, Grade 2, 2/13 nodes, ER+/PR+, HER2- Surgery 11/15/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting, Silicone implant Surgery Lymph node removal; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole) Surgery Reconstruction (left): DIEP flap Radiation Therapy Whole-breast
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Aug 31, 2018 01:14AM PreludeSing wrote:

Hi Amy...will be following your journey since it seems a lot like mine :)

Take care!

Prelude


Dx 6/2/2017, IDC, Left, 4cm, Stage IIB, Grade 2, 2/24 nodes, ER+/PR+, HER2- Surgery 6/6/2017 Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 6/26/2017 AC + T (Taxol) Radiation Therapy 11/27/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin)
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Aug 31, 2018 09:54AM ctmbsikia wrote:

Howdy, after reading this forum a little just wanted to pop in and say hello.  I have good days and bad with anxiety.  I am having only minor issues from all the treatments:

Surgery:  Still have a seroma-has shrunk tremendously however what's left feels like a lump!  I'm sure it's normal could also be a scar tissue I feel

Radiation:  Breast healed very quick.  Have had and still have skin rashes on left arm and around my collarbone,  but cortisone cream and lotion is helping.  I go back to the RO in 2 weeks I hope it's gone by then.  Itching is annoying but I feel fine and will deal with it as long as I have to.

Hormone therapy:  I'm 60 days in and that little 1mg white pill is thinning my hair and I have minimal joint aches-it's funny the one spot it went was my right elbow.  Most days are fine.  EXERCISE helps greatly.  Must keep moving!!!  I slacked off being away last weekend at the beach and this week was too hot and humid, once back on schedule will be better and not feeling any of these SEs will rid me of some anxiety.

I also feel that once past the 1yr mark, getting through the next testing and follow ups the anxiety should lessen.  At least until Feb. '19 when I'm due to start Prolia injections!  LOL That's a long way off though.........There's fall, football, family, and holidays so no use worrying about that now.

Stay well everyone, stay defiant and tough!!!

Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/30/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/10/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)
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Aug 31, 2018 09:04PM - edited Aug 31, 2018 09:09PM by Lori_D73

Thank you so much for the information. I see my oncologist on the 13th and will ask about clinical trials.

It’s so inspirational to hear success stories. Can’t wait to post mine! For now...it’s time to quit worrying and LIVE

Prayers for all!

Dx 3/2/2018, IDC, Left, 2cm, Stage IIB, 3/7 nodes, ER+/PR+, HER2-
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Sep 1, 2018 12:24PM Kelly-Anne wrote:

Hi all, I have a question for some of our veterans... I had a lumpectomy, but the tumour had grown significantly since the ultrasound 3 weeks earlier. Removed a 56mm tumour. The breast looks better than I expected, but it is still really sore. Im just at 3 months since surgery and am wondering how long it is likely to ache for.

I hate to ask/complain to the Dr. I wanted to keep the breast, now complaining seems ungrateful.

Anyone have a larger lumpectomy with lingering soreness?

Dx 5/31/2018, IDC, Left, 5cm, Stage IIB, Grade 3, ER+/PR+, HER2- Surgery 6/25/2018 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 8/14/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
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Oct 31, 2018 09:48AM Mumof1 wrote:

my cancer has spread to one out of two lymph nodes and waiting for test and results to see if it’s soread anywhere else.. bricking it

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Oct 31, 2018 04:32PM Moderators wrote:

Mumof1, we are sorry to hear what you are going through, and the waiting can be very difficult!!

Please keep us posted.

We're here for you Medicating

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Dec 3, 2019 01:53PM ROAREUS wrote:

Hello...

I have not been here for a long time and unfortunately, it seems like I only come here when I am scared.. I am constantly feeling my breasts because I am afraid I will miss something. On Saturday Night, early Sunday Morning, I squeezed my left nipple and a drop of blood came out. Nothing on the cancer side, my right side. So, needless to say, I am worried about the worst. I am scared that it may be back. All I can think about is my elderly parents, husband, and my sweet 8 year old twins. I am going to see the NP tomorrow. HELP!!

Dx 9/11/2013, IDC, 1cm, Stage IIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- Surgery 9/24/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 10/24/2013 AC + T (Taxol) Hormonal Therapy
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Dec 7, 2019 08:29PM Anna-33 wrote:

How are you doing Roareus?

Dx 3/1/2017, IDC, Left, 3cm, Stage IIIA, Grade 3, 8/25 nodes, ER+/PR-, HER2-
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Dec 7, 2019 11:42PM ROAREUS wrote:

I saw the NP on Wednesday. She did a clinical breast exam and found nothing. I had a mammo and ultrasound. Both were normal. Given my history, the radiologist wants me to get a MRI to make sure we are not missing anything under the nipple. I am better but still terrified as i didn't have a MRI when i first got diagnosed. So, why now? They wouldn't lie to me about the normalcy of mammogram and ultra sound. Would they?


Dx 9/11/2013, IDC, 1cm, Stage IIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- Surgery 9/24/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 10/24/2013 AC + T (Taxol) Hormonal Therapy
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Dec 8, 2019 12:26AM Peregrinelady wrote:

No, they would not lie. My tumor did not show up on mammogram or ultrasound. It was near the nipple, as well. I think they are being very thorough, which is good.
Dx 4/24/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Surgery 5/17/2015 Mastectomy: Left Hormonal Therapy 6/1/2015 Liquid tamoxifen (Soltamox) Surgery 4/18/2016 Mastectomy: Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 7/31/2016 Arimidex (anastrozole) Hormonal Therapy 7/20/2020 Femara (letrozole)

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