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Topic: Stage IIb and 5+ years out, anyone?

Forum: Stage II Breast Cancer — Meet, share and support others with Stage II Breast Cancer

Posted on: Oct 9, 2011 05:55PM

sundermom wrote:

I am quickly approaching the one year mark here and have my first round of scans post treatment in a couple of weeks. However, the local newspaper has been running stories left and right this month in which the focus is young women like myself (I was 37 at dx). In both stories today the women were stageIIb and eventually developed mets. I know I chose a very aggressive treatment plan (BMX, AND, chemo, rads and Tamoxifen) and there is not really anything else I can do, but hope and pray. Pinkoctober is really bringing me down and I could really use some encouragement. :(

Dx 11/8/2010, IDC, 2cm, Stage IIB, 2/32 nodes, ER+/PR+, HER2-
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Apr 8, 2017 11:48PM HoneyBeaw wrote:

Bumping again, We need ladies that are Stage 2 posting how they are doing , we need to here your stories and know that it will get better .......

Surgery 11/27/2016 Lumpectomy: Left Dx 12/5/2016, IDC, Left, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 12/26/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left Chemotherapy 1/16/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Apr 28, 2017 09:21PM shorty123 wrote:

Stage 2b here with extranodal extension and lymphnode invasion its almost 2 years a nd i must say some times i think about reoccurrance since theni have changed my diet, I look and feel better other than the SE from arimedex which are tolerable and the thinning of my hair. small price to pay i'm ok with it.

Dx 7/7/2015, IDC, Left, 1cm, Stage IIB, Grade 2, 1/18 nodes, ER+/PR+, HER2- (IHC) Surgery 8/19/2015 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): DIEP flap Radiation Therapy 10/27/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/30/2015 Arimidex (anastrozole)
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May 15, 2017 11:33PM AKJ wrote:

Stage 2b here also and three years out! Feeling pretty good! Keep going ladies

Dx 12/2/2013, IDC, Left, 4cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 1/21/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 2/27/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 5/18/2014 Lymph nodes, Chest wall Hormonal Therapy 7/5/2014 Arimidex (anastrozole)
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May 17, 2017 07:04AM ThinkingPositive wrote:

AKJ... congrats and I am right behind you! Doing okay and feeling good as well.

Dx 9/2014, DCIS/IDC, Left, 1cm, Stage IIA, Grade 3, 1/17 nodes, ER+/PR+, HER2- Surgery 10/23/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant Chemotherapy 12/5/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Femara (letrozole)
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May 17, 2017 08:50AM - edited May 17, 2017 08:53AM by duckee

My sister was dx with Stage IIb 24 yrs ago and she's still very much alive! It's been so long ago that we can't remember if she was ER+/PR+ or not, just know she was not started on Tamoxifen. I don't even know if HER2 was even tested for back then. She did have a mastectomy (her choice, was given option of lumpectomy) and chemo. That was it. She didn't lose her hair and didn't have any neuropathy. I think I'll have what she's having! AS soon as I figure out how to add my stats, I will. I was diagnosed 2 yrs ago with triple negative Stage 1.

DX 3/2015 1.2 cm Stage 1 0/1 nodes mastectomy TC chemo x 4 every 3 wks er-/pr- her2-
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May 21, 2017 07:50PM Houston2016 wrote:

hello everyone, it seemed like everyone con this board has had surgery as the first part of their treatment. My MO, on the other hand, opted for neoadjuvant chemo, which I now regretted. Is there anyone on this group started out with chemo first? I would like to know your outcome. Thanks.

Dx 4/5/2016, IDC, Left, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 4/14/2016 AC + T (Taxol) Surgery 10/5/2016 Mastectomy: Left Radiation Therapy 12/12/2016 Whole-breast: Lymph nodes, Chest wall
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May 26, 2017 07:35PM Tpralph wrote:

gteat to read all the inspiring stories and words of hope. Just got my final pathology back from my BMX and snb stage 2 b 1 node. Have appt. With my bs in two weeks. Not sure if they'll take more nodes now or what the NXT step it. But it really helped today reading this thread. Kept me from feeling too sorry for myself. Thank u

Dx 3/10/2017, IDC, Right, 2cm, Stage IIB, Grade 2, 1/21 nodes, ER+/PR+, HER2- (IHC) Dx 4/10/2017, IDC, Right, <1cm, Grade 1, ER+/PR+, HER2- Surgery 5/18/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 6/28/2017 AC + T (Taxol) Surgery 11/29/2017 Lymph node removal: Underarm/Axillary Radiation Therapy 1/15/2018 Whole-breast: Lymph nodes, Chest wall
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May 31, 2017 10:37AM TaniaE wrote:

Stage 2b here also. Going on almost 4 years now and doing well apart from the hot flashes and fatigue caused by Tamoxifen but it is a small price to pay

Dx 10/31/2013, ILC, 3cm, Stage IIB, Grade 2, 2/17 nodes, ER+/PR+, HER2- Surgery 11/18/2013 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 1/7/2014 AC Radiation Therapy 4/7/2014 Breast Hormonal Therapy 6/10/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 2, 2017 06:06PM momand2kids wrote:

Not 2B but 2 A--almost 9 years out--just had a clear mammogram on Friday!

Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/25/2008 Lumpectomy: Right Chemotherapy 1/16/2009 Adriamycin (doxorubicin) Radiation Therapy 3/23/2009 Breast Hormonal Therapy 6/15/2009 Femara (letrozole)
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Jul 3, 2017 12:22AM SA8PG wrote:

I will be 3 years out on July 26th. Triple negative while pregnant. Hang in there everyone!!!!

Hugs

Until God opens the next door praise Him in the hallway! Diagnosed at 39 while pregnant. Chemotherapy 8/21/2014 AC + T (Taxol) Surgery 12/17/2014 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 12/8/2015 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Sep 26, 2017 08:10AM - edited Sep 26, 2017 08:13AM by Roisin

Hi i was Stage 2b Grade 3 with a 3.3cm tumor and 2 nodes involved (1 under arm and 1 in the breast). I had chemo first 4 AC and then 4 Taxol. I am ER+ and PR+ and HER -. During my chemo the oncologists advised me based on physical examinations that the tumor was shrinking. I then had a lumpectomy and got clear margins but my pathology report advised that the tumor only shrunk to 3cm but the nodes shrunk.

Im so worried this was such a bad response. Im starting rads in the next few weeks but are there any stories where people have not had great responses to chemo and it hasnt reoccured ?

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Sep 26, 2017 03:39PM fd1 wrote:

I posted last year at this time - I'll post again! It's now six years. I have officially finished the first five years of hormonals and about a month ago my MO gave me permission to pause to try for a baby. After that I will continue on tamoxifen only, quite a relief since I've been having Zoladex shots all this time. Those shots are a pain as they are monthly, have to be administered by a nurse, and are rather expensive (~$110 a month out of pocket for me). A new chapter feels like a wonderful and exhilarating thing!

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Sep 29, 2017 10:26PM GwennyMD wrote:

Hi, I was Stage 2b

I had small tumors (1.4 cm and 1.6 cm) in each breast and a 2 cm tumor in one of my lymph nodes. I had LX to get rid of them and then 6 months of chemo to complete the process. Because of family history, I then had BMX. I have been on femara for 4 years and everything is good so far.

Dx 12/2012, IDC, 1cm, Stage IIB, 2/8 nodes, ER+/PR+, HER2- Surgery 2/6/2013 Lumpectomy: Left, Right; Lymph node removal: Left, Right, Sentinel, Underarm/Axillary Chemotherapy 3/18/2013 Cytoxan (cyclophosphamide), Doxil (doxorubicin), Taxotere (docetaxel) Surgery 10/14/2013 Prophylactic mastectomy: Left, Right; Reconstruction (left): DIEP flap, Free TRAM flap; Reconstruction (right): DIEP flap, Free TRAM flap
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Sep 30, 2017 12:29AM - edited Sep 30, 2017 12:44AM by Colt45

Roisin,

My 2 cents:

I think what we've been learning is that BC tumors/ masses aren't comprised of identical cells throughout. Some cells are more aggressive than others within what typically gets identified as the same tumor. It's entirely possible (and probably frequently the case) that the parts of the tumor that didn't respond optimally to the chemo were the less aggressive ones that were slow to migrate far and as a result were completely excised with surgery. The more aggressive cells that found their way to the nodes were more susceptible and responded well to the chemo. And if there were any other rogue cells that were on the move---chemo should wipe those out as they are likely more susceptible.

All strength to you as you complete your treatment and move forward.

God bless you

Husband Dx 10/9/2012, IDC, 2cm, Stage IIB, Grade 1, 1/21 nodes, ER+/PR+, HER2- Surgery 11/6/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/12/2012 AC Chemotherapy 2/6/2013 Taxol (paclitaxel)
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Nov 6, 2017 03:15PM Colt45 wrote:

I am delighted to announce that my wife is celebrating 5 years today

Husband Dx 10/9/2012, IDC, 2cm, Stage IIB, Grade 1, 1/21 nodes, ER+/PR+, HER2- Surgery 11/6/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/12/2012 AC Chemotherapy 2/6/2013 Taxol (paclitaxel)
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Nov 6, 2017 03:40PM Tri-lady7 wrote:

Colt45 that is wonderful news! It's so reassuring to hear these stories for a newbie. I have a question for the group. I had two tumors one 2.2 and one 1.5 and two out of two nodes test positive. I also had a lumpectomy. My BS did not want to go back to do an axillary dissection as I will be getting chemo and rads. So now I am in the middle of chemo and thinking of my situation. I have read that with ER/PR + HER- tumors chemo doesn't always respond so now I'm thinking by the time I finish chemo and get rads it will be a couple of months. To long in my opinion. My BS and MO said that the chemo will kill the cells and at least stop them from traveling. I am still nervous there are positive nodes even with doing chemo. Has anyone completed an axillary dissection during chemo? I don't know what to think anymore!

Dx 8/3/2017, IDC, Right, 2cm, Stage IIB, Grade 2, 2/2 nodes, ER+/PR+, HER2- Surgery 9/11/2017 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 10/16/2017 AC + T (Taxol) Radiation Therapy 3/26/2018 Whole-breast: Breast, Lymph nodes Hormonal Therapy 4/16/2018 Zoladex (goserelin) Hormonal Therapy 5/15/2018 Arimidex (anastrozole)
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Nov 6, 2017 08:01PM Colt45 wrote:

Tri-lady7,

My wife had 21 nodes removed with ALND. She had the same Chemo regimen as you. No twocases are precisely the same, though.

Husband Dx 10/9/2012, IDC, 2cm, Stage IIB, Grade 1, 1/21 nodes, ER+/PR+, HER2- Surgery 11/6/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/12/2012 AC Chemotherapy 2/6/2013 Taxol (paclitaxel)
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Nov 6, 2017 08:34PM Maureen1 wrote:

Colt45 - Congratulations to you and your lovely wife🤗 Hugs, Maureen

Dx 7/31/2012, IDC, Left, 1cm, Stage IIA, Grade 2, 3/11 nodes, ER+/PR+, HER2- Surgery 8/5/2012 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 9/18/2012 AC + T (Taxol) Surgery 3/3/2013 Prophylactic mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Hormonal Therapy 3/18/2013 Aromasin (exemestane) Hormonal Therapy 7/21/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/22/2013 Reconstruction (left): Silicone implant
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Nov 6, 2017 08:55PM Colt45 wrote:

Tri-lady7,

I apologize. I just noticed your Tx plan includes rads. This is likely why ALND was not recommended. I don’t know if many folks have both ALND and rads. My wife had ALND, but not rads. Treatment is so case sensitive. I would think rads would clean up any local or loco-regional issue. And the chemo is insurance against any distant issue.

Husband Dx 10/9/2012, IDC, 2cm, Stage IIB, Grade 1, 1/21 nodes, ER+/PR+, HER2- Surgery 11/6/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/12/2012 AC Chemotherapy 2/6/2013 Taxol (paclitaxel)
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Nov 6, 2017 08:57PM Colt45 wrote:

Thank you Maureen1!!

Husband Dx 10/9/2012, IDC, 2cm, Stage IIB, Grade 1, 1/21 nodes, ER+/PR+, HER2- Surgery 11/6/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/12/2012 AC Chemotherapy 2/6/2013 Taxol (paclitaxel)
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Nov 7, 2017 07:39AM Tri-lady7 wrote:

Hi Colt- thank you so much for your response. That is exactly what my BS and MO said. I think I just need to trust that is the best practice for my case. It's so nice how much information you have researched on behalf of your wife. My husband has been my rock and is always there for me at every appt .

Dx 8/3/2017, IDC, Right, 2cm, Stage IIB, Grade 2, 2/2 nodes, ER+/PR+, HER2- Surgery 9/11/2017 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 10/16/2017 AC + T (Taxol) Radiation Therapy 3/26/2018 Whole-breast: Breast, Lymph nodes Hormonal Therapy 4/16/2018 Zoladex (goserelin) Hormonal Therapy 5/15/2018 Arimidex (anastrozole)
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Nov 7, 2017 10:51AM - edited Nov 12, 2017 11:18PM by Colt45

Tri-lady7,

At some point, my wife decided she was going to trust the team she had assembled. I know that it helped that her doctors really were addressing her individual case and not treating her like a number. Initially, we researched as best we could. I was up all night many nights. I would have stacks of notes and articles printed out when we would meet with her MO and the other MOs and the ROs we consulted with. Eventually, her MO grabbed my hands and said “you need to put this down". And he was right. We made the best decisions for treatment for my wife's cancer based on the best information available. And that's all any of us can do. Assemble a team you trust. Then trust your team to do what they have been educated and trained to do. Do your best to endure treatment. Then move forward and live your life. God bless

Husband Dx 10/9/2012, IDC, 2cm, Stage IIB, Grade 1, 1/21 nodes, ER+/PR+, HER2- Surgery 11/6/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/12/2012 AC Chemotherapy 2/6/2013 Taxol (paclitaxel)
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Nov 7, 2017 07:01PM HoneyBeaw wrote:

Tri-Lady

I understand your concern, I to worried about treatment and if I was getting the correct treatment. Because I had 1 positive node and large mass 2.69 cm I fully expected chemo and rad

I also had a lumpectomy and they didn't get good margins so were going to have to go in again. First I was given the dye to find how what nodes were involved if any, The dye did not work right and ended up going under my breast bone so I had to wait another 2 weeks to get a pet scan to find out if I had nodes involved By the time we found out I had 1 positive node I was a complete and total mess and was not taking any chances of them not getting everything this time . I ended up having a single mx

In the end I was really shocked that I would not be getting rads, even after the dr explained that the chemo I was getting would kill anything that may have escaped and that there is a lifetime max on Rad , I still seriously feared I may not have been given enough or correct treatment.

While I still have my days of doubt and fear I have learned I have to trust my Dr and then I pray I have made the right decision

Colt45, so happy for your wife, 5 yrs is a milestone and its wonderful

Surgery 11/27/2016 Lumpectomy: Left Dx 12/5/2016, IDC, Left, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 12/26/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left Chemotherapy 1/16/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Nov 14, 2017 02:37PM Colt45 wrote:

Thanks, Honey Beaw. You’ll get there, too

Husband Dx 10/9/2012, IDC, 2cm, Stage IIB, Grade 1, 1/21 nodes, ER+/PR+, HER2- Surgery 11/6/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/12/2012 AC Chemotherapy 2/6/2013 Taxol (paclitaxel)
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Jan 17, 2018 10:15PM bcincolorado wrote:

Had my 7 year "cancerverary" (mx anniversary) on the 7th. Still kicking. Still on hormonal meds but no recurrence so far.

Dx 8/2009, IDC, Left, 5cm, Stage IIA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 1/7/2010 Lumpectomy: Left; Lymph node removal: Left Hormonal Therapy 1/15/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/30/2016 Femara (letrozole)
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Jan 20, 2018 04:08PM Hope99 wrote:

congratulations dear!! hope we will be NED for whole life. pray for us to finish the first chapter of this journey ❤ and don't forget, our chances more than 93%.

Dx 9/14/2017,IDC, Right, 2.5 - 3 cm, stage 2, ER+/PR+, HER2- chemo: 12/11/2017 ( FEC-T protocol ) crying solve a lot of problems in this life.
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May 14, 2018 09:29PM farmerjo wrote:

Bump.

ATM gene mutation, Lynch Syndrome, On HRT for 17 years at dx. Oncotype 19, MammaPrint high-risk. Ki67 29.1% ER 90% PR 5% False-negative sentinel node biopsy Dx 1/26/2015, IDC, Left, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 2/12/2015 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 2/13/2015, DCIS, Left, <1cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 4/12/2015 Femara (letrozole) Dx 5/31/2016, IDC, Left, Stage IIB, Grade 2, 1/11 nodes, ER+/PR+, HER2- Surgery 6/17/2016 Lymph node removal: Left Chemotherapy 7/31/2016 AC + T (Taxol) Hormonal Therapy 12/20/2016 Aromasin (exemestane) Surgery 1/17/2017 Prophylactic ovary removal
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May 25, 2018 02:14AM DG10004 wrote:

I was diagnosed at at 24 with stage IIB IDC involving lymph nodes. Biopsy came back benign (P.A.S.H) but I opted for a lumpectomy anyway.. so glad I did. The pathology came back as IDC and so began my cancer journey. After surgery I began chemo. I have one more treatment left (yay!!) before I move on to radiation and targeted therapies.

I just want to thank all the amazing ladies who have responded to this thread for providing a sense of hope. It's so scary to be facing BC at age 25, especially with so much life left to live! My pathetic ex boyfriend dumped by the DAY of my diagnosis and I don't have any children so I'm ready to get kick cancer's butt and get on with my life. I'm hoping to find a much better man and have children some day :) Hearing from those of you have had stage 2 IDC who are doing well years out is a huge comfort.. thank you!

- Danielle

Surgery 1/11/2018 Lumpectomy: Right Dx 1/17/2018, IDC, Right, 2cm, Stage IIB, Grade 3, 1/2 nodes, ER-/PR-, HER2+ Chemotherapy 2/28/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
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May 25, 2018 05:45AM duckee wrote:

Hi DG10004:

Just wanted to let you know, my sister was dx with stage 2B at age 33 and it will be 25 yrs this August. She had a mastectomy and chemo and that was it. Best of luck to you.


DX 3/2015 1.2 cm Stage 1 0/1 nodes mastectomy TC chemo x 4 every 3 wks er-/pr- her2-
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May 30, 2018 03:57PM Djohn wrote:

I was diagnosed in 2016 with ILC and positive nodes. Had a lumpectomy, chemo, a re-excisional lumpectomy, and then radiation. Am now 1 year out from chemo and got an all clear on my mammogram yesterday. This experience is not yet in the rear view mirror, but each day gets a little bit better. Dealing with some SEs from treatment and Tamoxifen, but am becoming more hopeful with each passing day. Thank you to all you brave ladies for sharing your experiences.


-DJohn

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