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Topic: Stage 2 Sisters Club

Forum: Stage II Breast Cancer — Meet, share and support others with Stage II Breast Cancer

Posted on: Jul 27, 2013 02:13PM - edited Aug 8, 2013 12:34PM by NisaVilla

NisaVilla wrote:

Welcome to the newly formed Stage II Breast Cancer Club! And Thank You Mods for facilitating its creation.

Dx 3/22/2013, ILC/IDC, Left, 6cm+, Stage IIB, Grade 3, 0/3 nodes, ER+/PR-, HER2- Dx 3/22/2013, LCIS/DCIS, Right, 6cm+, Grade 2, 0/3 nodes, ER+/PR- Surgery 4/23/2013 Mastectomy: Left, Right Chemotherapy 6/23/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 9/30/2013 Arimidex (anastrozole) Surgery 12/26/2013 Reconstruction (left); Reconstruction (right) Surgery 12/4/2014 Reconstruction (left); Reconstruction (right) Surgery 9/23/2015 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Jan 8, 2018 02:05AM runor wrote:

I hate how cancer has turned me into a spastic fruitcake. Every stomach pain, every lump on my shin, every head ache, you know where your mind goes. It's back! It's in my (fill in the blank). I HATE that! So I think, no, no, I am going to ignore you, you stupid lump, I am going to just carry on like you're not there because I will NOT run to the doctor for every little thing. But wait. What if it IS something bad? And I don't respond and get it treated quickly. What if I ignore it and let it grow and then I'll be one of those stupid people who didn't get help when she needed it. So cancer makes you a) a hypochondriac b) neglectful of your own health so you don't look like a hypochondriac. There is no winning. No good option.

I used to look at my husband and think, oh dear god, throw out that ratty t-shirt. Now I look at him and wonder if his next wife will tolerate his ratty t-shirts. And I am SHOCKED by this thought. It is about as pleasant as being hit in the head with a dead fish.

I think, okay, if these are potentially the last 'good' years of my life, I better do something with my time that really matters. Really matters. Hmmm. What really matters? ( silence as crickets chirp in the background). You would think that some Big Life Truth would have made itself apparent through all this, but no! I do what I always did: the shopping, the cooking, the dishes, the floor dirt removal, picking sticky things out of the dog, toilet scrubbing, snow shovelling, lawn mowing, wood chopping, chicken hatching, feeding, egg gathering and butchering. Gardening. Quilting. It's that same damn thing day in and day out but I try to be all Zen about it, all 'the magic of life is in the mundane acts of caring for hearth and home and loved ones' and OH MY GOD HOUSEWORK IS SO BORING! No. You must LOVE housework. Must embrace it. Every day of your life is precious and you should savour each second. True. But not true. Precious, but boring. Is this what I'm meant to do with my time? And if not, then what? I don't know! I just don't know.

If I could travel the world, would I? Nah. I'm kind of a homebody and I do, at times, find the peace and stillness here restoring and soulful. Other times it's unbelievably lonely. See? I even sound crazy to myself! Like make up your mind! But my mind, slightly dulled by tamoxifen, can't remember anything for more that 18 seconds so any decision I come to I immediately forget!

So I want to live my best life, but my best life seems kind of dull. I want to embrace that dullness and make it holy and special only that's not really working for me. I want to feel well, but then I have an ache, but damnit I am NOT going to the doctor! Like I said, spastic fruitcake.

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 8, 2018 02:16AM marijen wrote:

runor you just did what you were meant to do. Write

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Jan 8, 2018 08:27AM - edited Jan 8, 2018 08:42AM by ruthbru

There is a dog thread, a cat thread and at least one furry friends thread.....all of which are fun.

Jay, this is what I think of the 'crap shot' phrase; it is and it isn't.......some people are going to have a recurrence no matter what they do or don't do, some aren't no matter what they do or don't do.......BUT then there is everyone else is the middle, who, in following the recommended treatments and making needed life style changes, really do have their lives saved. Since there is no way to tell which group any of us fall into, the smart thing is do what is recommended and expect the best (in my mind, if I do that, then whatever happens really, truly is out of my hands and I can let go of it).

Runor, if you think something is wrong (unless it is an emergency, of course), put it on your calendar for 2 weeks from the day you notice it and then do not let yourself think about it until then. If it still hurts or whatever on that date, then check with the doctor. (I was always poking my breasts looking for lumps, so put it on the calendar for the 1st of every month and ignore them until that one day). Yuck, I hate housework! I'd really be in trouble if I thought I needed to embrace it to be happy or find inner peace!!!! Forget the deep meaning for awhile, I think you need add some more FUN in your life! Dye your hair purple, buy some wildly age inappropriate clothes, take the dog for a long, long walk in the woods and notice how he/she enjoys sniffing everything, chasing twigs, relishing the moment, binge watch old Mary Tyler Moore shows (which I just did), take a friend to a very expensive restaurant and order rich desserts. Try adding some things that are fun to you and let the universal questions take care of themselves.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Jan 8, 2018 08:50AM ruthbru wrote:

runor, I just looked at your stats, and you aren't that far out. I couldn't even START to think about what happened until a full year after I was finished with treatment. I knew I was too emotionally fragile to make sense of any of it, so I allowed myself to go on autopilot and just live each day as it came. It was a full summer after I was done with 'active treatment' that I even tried to start processing what had happened. I did a lot of walking, walking, walking that summer, and it was long after that before I was able to put the experience into any kind of perspective. Be kind to yourself; give yourself time and space to heal both physically and emotionally.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Jan 8, 2018 09:42AM Indigo29 wrote:

Runor, that was so well put - thank you .

Dx 1/2017, IDC, Left, 1cm, Stage IIA, Grade 3, 1/3 nodes, ER+/PR+, HER2- Surgery 3/2/2017 Lumpectomy: Left; Lymph node removal: Left, Sentinel Chemotherapy 4/9/2017 AC + T (Taxol) Hormonal Therapy Femara (letrozole) Radiation Therapy Whole-breast: Breast
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Jan 8, 2018 01:14PM OCDAmy wrote:

Runor, gosh that was really helpful for me. I keep thinking I should just quit my job and travel the world if I don't have that much time left. Then the practical me comes up with reasons why I shouldn't do that. I will say one of the best things we did was hire a housekeeper and ordered one of those meal delivery clubs where they send you the ingredients and recipes in a box to your doorstep. I no longer spend my weekends cleaning, grocery shopping and figuring out what is for dinner. I do plan to take a trip to a beach and just relax as soon as I have some nice boobs. Thanks for sharing.

Dx 2/2017, IDC, Left, 4cm, Stage IIB, Grade 2, 2/13 nodes, ER+/PR+, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Reconstruction (left): DIEP flap Radiation Therapy Whole-breast Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery Lymph node removal; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Jan 8, 2018 01:23PM - edited Jan 8, 2018 01:28PM by grandma3X

runor - I loved everything about your post. I hope you write more.

On another note, I found this paper encouraging - it's a retrospective analysis of outcomes for people with low Oncotype dx recurrence scores (RS) at MD Anderson Cancer Center. Previous prospective studies had shown that RS 1-10 had good prognosis. This paper shows that RS 11-18 has the same good prognosis (although the numbers of participants are low). It also highlights the importance of compliance with endocrine therapy, but I wish that they had included the total number of patients who were not compliant.

click here for link

((Edited: I had originally written "you must write more" but changed it to "I hope you write more" - I don't want to pressure anyone into taking up an activity they are not interested in :) ))

Oncotype score 10. Married 35 years, 2 kids, 3 grands. Marine biologist/biochemist. No BC in my family tree. First diagnosed with multi focal ILC with 2 small tumors seen on MRI. Final pathology showed 1 large tumor measuring 5 cm! Dx 1/13/2016, ILC, Left, 5cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 1/13/2016 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement Surgery 5/17/2016 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 10/26/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 10/11/2017 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery 10/11/2017 Prophylactic ovary removal Hormonal Therapy Femara (letrozole)
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Jan 8, 2018 02:16PM PVM wrote:

runor i could not agree any more with what you wrote, sums up alot of my thoughts on a daily. I have a moment i am doing good then my thoughts turn back to is this going to come back & if so will it spread to other parts & how long do i have. I think of all that has happened last year & all that cancer has taken away from me, from all of us. BC does not only leave physical scars it leaves mental scars too. I not only think of it coming back i think will i end up with LE too from all the nodes removed. I think when it comes down to it we really don't know if or when it may or may not come back. Of all my friends or co workers that have had BC not one of them has had it come back. Some of them are over 10 years with positive nodes & some have not even changed their old lifestyles such as watching what they eat or drink. I try not to look at all the statistics as no one can really predict the future or what it holds. I think when it comes down to it, i wont let cancer rob me of living my life, i will enjoy every moment i am given & give thanks for every day i wake up & before i head back to work in March i shall take a tropical vacation as i am due for one :)

Chemo - FEC D / Tamoxifen / Stage III Dx 3/1/2017, Right, 6cm+, 8/14 nodes, ER+/PR-, HER2- Chemotherapy 4/3/2017 FAC Surgery 10/2/2017 Lymph node removal: Right, Underarm/Axillary Radiation Therapy 11/26/2017 Whole-breast: Breast, Lymph nodes
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Jan 8, 2018 06:15PM PauletteK wrote:

PVM I’m with you, I won’t let BC robs my life, will try my best to enjoy each days I have, I might not travel for the next few months since I have so many appointments to catch up, I know I will need to spend couple months with my LE PT then dentist appointment, more scans for my breasts.

Yes BC left mental scars on us, we live our regular life after all the treatments, and I will like to go back to my Travel again. Sure I will try to eat healthy and exercise, life has changed and I have to accept this change.


Dx 4/1/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 2/8 nodes, ER+/PR+, HER2- Surgery 6/15/2017 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 7/19/2017 AC + T (Taxol) Hormonal Therapy 2/11/2018 Arimidex (anastrozole) Radiation Therapy Whole-breast: Breast
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Jan 8, 2018 08:41PM PeachyJeanne wrote:

Thank you runor! That was awesome. Really. You are our Erma Bombeck!


"My theory on housework is, if the item doesn't multiply, smell, catch fire, or block the refrigerator door, let it be. No one else cares. Why should you?" - Erma Bombeck

More of her fun quotes at: https://www.brainyquote.com/authors/erma_bombeck

Dx 4/27/2017, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (FISH) Dx 5/26/2017, DCIS/IDC, Left, <1cm, Stage IIA, Grade 2, ER+/PR+, HER2- Chemotherapy 6/22/2017 AC + T (Taxol) Surgery 11/20/2017 Lymph node removal: Sentinel Surgery 11/20/2017 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 12/10/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 1/25/2018 Perjeta (pertuzumab) Targeted Therapy 1/25/2018 Herceptin (trastuzumab) Chemotherapy 1/25/2018 CMF
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Jan 9, 2018 11:43PM jaymeb wrote:

runor

Ditto!!!!!!!!!! I have had, and still have a lot of those thoughts. I agree with everything you said. I will admit however, the further out I am, it slowly gets better.
Dx 2/15/2017, IDC, Left, 1cm, Stage IIA, Grade 2, 1/13 nodes, ER+/PR+, HER2- (FISH) Dx 2/15/2017, IDC, Left, 1cm, Stage IIA, Grade 2, ER+/PR+, HER2- (FISH) Surgery 3/29/2017 Lymph node removal: Underarm/Axillary; Mastectomy: Left Hormonal Therapy 4/22/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 7/16/2017 Whole-breast: Breast, Lymph nodes, Chest wall
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Jan 9, 2018 11:56PM jaymeb wrote:

ruthbru




Thanks for your response, and letting me know there's a pet forum. I kinda was being fecious. Lol. So, there is one just for cats? I cannot find it. I cannot believe how many forums there are to read. I wonder how many? I'm currently on the forum for middle age women 40's - 60's. Mostly about hormone therapy, or anything else. I also appreciate what you have to say. You have a way of being realistic, factual, and most important, positive. I look forward to reading this site everyday, well almost.
Dx 2/15/2017, IDC, Left, 1cm, Stage IIA, Grade 2, 1/13 nodes, ER+/PR+, HER2- (FISH) Dx 2/15/2017, IDC, Left, 1cm, Stage IIA, Grade 2, ER+/PR+, HER2- (FISH) Surgery 3/29/2017 Lymph node removal: Underarm/Axillary; Mastectomy: Left Hormonal Therapy 4/22/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 7/16/2017 Whole-breast: Breast, Lymph nodes, Chest wall
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Jan 10, 2018 12:23AM dcbooklover wrote:

thanks all for your posts, your humor, and this community, I'm 46, and I was diagnosed on 12/27 with Stage 2a (I think) (there's a tumor in my R breast and one in one lymph node as well). I'm ER+/PR+/HER2-. I'm still waiting on the results of the oncotype test, the genetic test, and the results of an MRI-guided biopsy of an "enhanced area" the MRI showed on my R breast. The L breast is apparently all fine. I saw a MO today and he recommended doing chemo before surgery, to try to be sure the cancer hasn't spread anywhere else, and to potentially limit the lymph node excision surgery. I think the breast surgeon i saw last week is fine doing chemo first. I liked these docs, but do want to get a second opinion for both the surgery and the MO. I live in the Washington DC area, so there are lot of options. I really appreciate the chance to read everyone's stories; it's a crappy time, and this website and these forums are a real source of solace.

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Jan 10, 2018 12:31AM jaymeb wrote:

Ladies




I'm not sure where to start. I had my mammogram on my healthy breast today. Of course, it was the 3D. Before I was examined, I had to make sure my insurance would pay since it was last February. Apparently, some insurance companies require you wait exactly on the date as the year previous. In other words, I had to make sure I could do it before Feb 1st, since that's when I had it last year. So, they told me my insurance will pay, it has to do with the calendar year. So, I didn't have to wait exactly a full year. With a history of breast cancer for all of us, shouldn't insurance pay for a mammogram at least twice a year? I also asked the tech if I could have an ultrasound as well today. She said they solely go by the mammogram, and if all is ok, I won't need an ultrasound. This was my first mammogram since diagnosis last year. The tech had to take several pics, as my boob was being squeezed, and had to hold my breath. She commented, as we already knew how extremely dense my breast is. I'm so nervous about my results in a few days. I just don't trust mammograms alone. Has anyone just had a unilateral mascectomy, and gets a mammogram on the "healthy breast" every year? If so, are you ok with that choice? I see so many that have bilateral mastectomies, or have a prophylactic one later. My onco told me this past Friday he didn't think I needed the other breast taken off, however, it would be my ultimate decision. I've been thinking a great deal about it. I know surgery can have it's on complications, however it would be great never to have a mammogram again!!!!! Also, of course insurance plays a huge factor. This question goes to women who waited later to have the other breast removed. Are you glad you did it? Any complications? What about reconstruction? Also, I think if both breasts are removed, and reconstruction is part of that, the breasts would actually look better. Any thoughts, or advice would be appreciated. Thanks. What a pain in the ass this disease is!!!!
Dx 2/15/2017, IDC, Left, 1cm, Stage IIA, Grade 2, 1/13 nodes, ER+/PR+, HER2- (FISH) Dx 2/15/2017, IDC, Left, 1cm, Stage IIA, Grade 2, ER+/PR+, HER2- (FISH) Surgery 3/29/2017 Lymph node removal: Underarm/Axillary; Mastectomy: Left Hormonal Therapy 4/22/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 7/16/2017 Whole-breast: Breast, Lymph nodes, Chest wall
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Jan 10, 2018 01:01AM jaymeb wrote:

dcbooklover

Welcome, and this is a great forum with so many knowledgeable, and great women. I can't answer any chemo questions, many on here can. I had Stage 2a breast cancer with a 1.3 cm tumor. I'm premenopausal, and had one lymph node positive. I thought I would have chemo until my onco recommended I have the onco dx test to see if I needed it. I had never heard of it. Of course, as you know, only ER, PR positive, and Her2 negative qualify for this. I had a unilateral mascectomy of my left breast, 13 lymph nodes taken out, and one positive. Then all was sent to pathology to determine my stage. My understanding is if you have 1-3 positive lymph nodes, and your onco score is lower than 18, then chemo might not be needed. Of course, everyone's cancer is different. I've always thought the only time chemo is done before surgery is if there is a large tumor to shrink it. Usually, scans are done to rule out it has not spread. I had a CT scan before decisions were made. I liked my onco from the start, so I didn't get a second opinion. I did for radiation, and had 28 treatments due to the positive lymph node. So, hormone therapy is my saving grace. I'm on tamoxifen, and will be doing hormone therapy for at least 10 years. Even if you have chemo, I feel certain you'll be doing hormone therapy. I know many women do get second opinions. Are you having any scans? I know you're overwhelmed since this is all new. When you get a game plan, all will fall into place. Are you premenopausal? I hope I'm not overwhelming you.
Dx 2/15/2017, IDC, Left, 1cm, Stage IIA, Grade 2, 1/13 nodes, ER+/PR+, HER2- (FISH) Dx 2/15/2017, IDC, Left, 1cm, Stage IIA, Grade 2, ER+/PR+, HER2- (FISH) Surgery 3/29/2017 Lymph node removal: Underarm/Axillary; Mastectomy: Left Hormonal Therapy 4/22/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 7/16/2017 Whole-breast: Breast, Lymph nodes, Chest wall
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Jan 10, 2018 01:04AM jaymeb wrote:

Oh, my onco score was 14, so chemo was only going to benefit by 1-2%. So, onco said no to chemo

Dx 2/15/2017, IDC, Left, 1cm, Stage IIA, Grade 2, 1/13 nodes, ER+/PR+, HER2- (FISH) Dx 2/15/2017, IDC, Left, 1cm, Stage IIA, Grade 2, ER+/PR+, HER2- (FISH) Surgery 3/29/2017 Lymph node removal: Underarm/Axillary; Mastectomy: Left Hormonal Therapy 4/22/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 7/16/2017 Whole-breast: Breast, Lymph nodes, Chest wall
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Jan 10, 2018 08:05PM HoneyBeaw wrote:

Jaymed

I had 1 postive node, a 2.69 cm lump. I had chemo, no rad. My onco score was 11 with Chemo and Letrozole and 9 with just Letrozole. Yes Chemo raised my chances but because the lump was so big my Dr's felt it was critical that I have chemo, but due to only positive node rads were not needed.

I like you have read these boards and seen so many different treaments with same dx as mine so I get very confused. I know stage, size, age so many factors go into treatment decisions .

I had a mama on my healthy breast in Oct and like you a 3-d one. No I do not trust them at all after all first cancer was totally missed 2 mts before I found the lump.

We have to just be over cautious in checking our bodies and if we find anything weird we have to demand more testing .

Something I have noticed and really makes me mad is just how uneducated on breast cancer so many of he techs and nurses are that work in these Breast Centers. I do know while they can not talk to you about your test results they should beable to answer other questions concerning the test they are performing and just general questions .

Surgery 11/28/2016 Lumpectomy: Left Dx 12/5/2016, IDC, Left, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 12/26/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left Chemotherapy 1/16/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jan 10, 2018 08:38PM - edited Jan 10, 2018 09:19PM by ruthbru

Forum: Your Furry Friends → Topic: Cats, cats, cats

Jay, 3D mammograms are wonderfully thorough and, in most cases, with a 3D mammogram there is no need for an ultra sound (unless something shows up after one). A couple times ago, I had a little dark spot and the technician showed me how she could look down layer by layer and could see that spot was where some blood vessels came together....nothing bad (which, before 3D, would have taken further procedures to find out). It was very cool, and I feel it is one of the few REAL advances since my diagnosis and very encouraging. I asked my oncologist about having mammograms more than once a year, and he said that amount of radiation, that often, could cause problems in itself. I schedule my general physical and my oncology appointment 6 months apart & have my mammogram in between so feel that I am well checked out throughout the year.

dcbooklover, if they would have offered it back then, I would have had chemo first. I had a lumpectomy & could have possibly had less tissue removed if the tumor (which was pretty large) would have shrunk down. I have an acquaintance who HAD to have chemo first because her tumor was so large and so close to the chest wall that they didn't dare touch it. The chemo worked so well that by the time she had surgery, they couldn't even find it! It doesn't work that way for everyone, of course, but for her it was a god-send.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Jan 12, 2018 07:43AM Opt4Life wrote:

Hi ladies and Happy New Year! Dropped by to say hello and notice you are discussing the whole mammogram effectiveness topic. Perfect timing.

I had 3 'no change' mammograms since surgery and the completion of radiation (in September 2016). But my most recent mammogram before the holidays required more pictures as something new and suspicious was seen. Unfortunately, more pictures didn't uncover the suspicious area so an ultrasound was done. Again, the ultrasound didn't uncover the area in question either. Mind you this is all on the same mammogram visit.

My normal radiologist was on vacation that day and a young woman who looked no older than 20 came in to talk to me after I got dressed. She said that they took lots of pictures and only on one could she see an area of suspicion. She says she would normally let it go but because of my history, she couldn't and therefore called my breast surgeon while I was in the room.

My breast surgeon was of course in surgery but his PA immediately signed an order for an MRI. Now of course good ol' United Healthcare denied it twice because 'there was no evidence of malignancy'. Well of course dummies, that is what the MRI is for to get evidence.

In any event, finally got my MRI approved and done this week. The report indeed shows a new mass of about 1cm. I have a biopsy early next week to of course determine whether I should be worried or not. But at this point, I refuse to let cancer take anything more from me...peace of mind, time worrying instead of living, nothing.

No mammograms don't catch everything especially for women who have very dense breast like I do. But the radiologist who found my new lump says that as long as the technician arranges the breast at many different angles, that most suspicious areas would be uncovered.

For you praying gals, I ask for your prayers that this is not a recurrence.

Have a great weekend!

Dx 10/2015, DCIS/IDC: Mucinous, Left, 4cm, Stage IIB, Grade 2, 3/5 nodes, ER+/PR+, HER2- Chemotherapy 12/2/2015 AC + T (Taxol) Surgery 6/13/2016 Lumpectomy: Left; Lymph node removal: Left; Reconstruction (left) Hormonal Therapy 7/15/2016 Aromasin (exemestane), Femara (letrozole) Radiation Therapy 7/20/2016 Whole-breast: Breast, Lymph nodes Dx 1/19/2018, IDC, Left, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 3/7/2018 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 5/11/2018 Xeloda (capecitabine)
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Jan 12, 2018 09:10AM ruthbru wrote:

Let us know how it goes, Opt. Sending good thoughts and prayers your way.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Jan 12, 2018 09:55AM OCDAmy wrote:

I did it! Had my last rads, rang the bell, hugged my techs, my nurse, cried my eyes out and walked out of the place I've been going every morning for 6 weeks. Had to laugh, the song playing during my last rads was "I Ain't Missing You at All"! I brought donuts for everyone too. It's been the worst year of my life and I'm ready to be done with active treatment. I seen MO in two weeks to discuss hormone therapy. I'm so exhausted.

Dx 2/2017, IDC, Left, 4cm, Stage IIB, Grade 2, 2/13 nodes, ER+/PR+, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Reconstruction (left): DIEP flap Radiation Therapy Whole-breast Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery Lymph node removal; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Jan 12, 2018 12:06PM runor wrote:

Opt4Life, your story scares me.

I had a mamm this Dec 1, expecting to hear the all clear. Instead I heard "area of architectural distortion persists and carcinoma cannot be ruled out".

No one did a biopsy, no one suggested a biopsy. Typical protocol here at the local hospital is that is something weird shows up on the mamm of a cancer patient, they do not re-book you for a biopsy, they do one right then and there. My radiation oncologist told me that the fact no biopsy happened is very telling.

A second opinion of that same mammogram and ultrasound by another radiologist said "typical postsurgical findings".

So one of those readings rang all sorts of alarm bells for me and the second said don't worry. But I am worried.

It was pain in the breast that alerted me to a problem and the problem was cancer. Now after lumpectomy and rads, I am never not in pain. That boob hurts all the time. I WANT to feel reassured by the 2nd mamm that says this is typical. But I'm just not.

I am so sorry you find yourself in this situation. I dread it.

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 12, 2018 04:09PM Opt4Life wrote:

Thanks Ruth. Of course, will report findings.

Runor, I didn’t post to scare you or anyone. Doctors all have their own methods, gut feelings,etc....and never mind insurance companies who are always checking their bottom lines before approving procedures.

We all have to make decisions with the best information we have and our own guts.

If you still feel unsure though, talk to your doctor.


Dx 10/2015, DCIS/IDC: Mucinous, Left, 4cm, Stage IIB, Grade 2, 3/5 nodes, ER+/PR+, HER2- Chemotherapy 12/2/2015 AC + T (Taxol) Surgery 6/13/2016 Lumpectomy: Left; Lymph node removal: Left; Reconstruction (left) Hormonal Therapy 7/15/2016 Aromasin (exemestane), Femara (letrozole) Radiation Therapy 7/20/2016 Whole-breast: Breast, Lymph nodes Dx 1/19/2018, IDC, Left, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 3/7/2018 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 5/11/2018 Xeloda (capecitabine)
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Jan 13, 2018 03:42AM jaymeb wrote:

Opt4Life

I very much see your point. As I said in my earlier post, would have liked to have an ultrasound, however, unless there is good reason to do it, my insurance would'nt pay for it. Don't you just love insurance companies?😬😬. Of course, we can't be without it. Sorry you had to battle with your insurance, but at least it was approved. What a pain in the ass insurance companies are. I had my mammogram Monday, and have not heard a thing!!! They told me I would get my results in the mail. I'm out of town, so when I go back maybe my I'll have it. I'm a bit nervous, but I would think if something was suspicious, I would have had a call. My breasts are extremely dense as well, so it is so hard to trust mammograms, even if they are all 3D. I'm glad you're getting a biopsy, and I know it can be nerve racking. But, as you know, it could be many different things not related to cancer.
Dx 2/15/2017, IDC, Left, 1cm, Stage IIA, Grade 2, 1/13 nodes, ER+/PR+, HER2- (FISH) Dx 2/15/2017, IDC, Left, 1cm, Stage IIA, Grade 2, ER+/PR+, HER2- (FISH) Surgery 3/29/2017 Lymph node removal: Underarm/Axillary; Mastectomy: Left Hormonal Therapy 4/22/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 7/16/2017 Whole-breast: Breast, Lymph nodes, Chest wall
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Jan 13, 2018 03:46AM jaymeb wrote:

Oh yeah, Opt4Life


I was told exactly the same thing, that if my breast was arranged at many angles, it's easy to find anything suspicious.

Dx 2/15/2017, IDC, Left, 1cm, Stage IIA, Grade 2, 1/13 nodes, ER+/PR+, HER2- (FISH) Dx 2/15/2017, IDC, Left, 1cm, Stage IIA, Grade 2, ER+/PR+, HER2- (FISH) Surgery 3/29/2017 Lymph node removal: Underarm/Axillary; Mastectomy: Left Hormonal Therapy 4/22/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 7/16/2017 Whole-breast: Breast, Lymph nodes, Chest wall
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Jan 13, 2018 03:59AM jaymeb wrote:

ruthbru


That's a smart decision to get your physicals, and onco visits 6 months apart, and getting that mammogram in. I want to try to do it that way. It would help my piece of mind. Oh, I see you're more than 10 years out. That's great????👍👍👍. As you know, your chances of it coming back is very slim. I hope and pray I'll hit my 5 year mark. One year out, four more to go. Ughhhhhh. By the way, if it's ok to ask, did you have reconstruction after mascectomy

Dx 2/15/2017, IDC, Left, 1cm, Stage IIA, Grade 2, 1/13 nodes, ER+/PR+, HER2- (FISH) Dx 2/15/2017, IDC, Left, 1cm, Stage IIA, Grade 2, ER+/PR+, HER2- (FISH) Surgery 3/29/2017 Lymph node removal: Underarm/Axillary; Mastectomy: Left Hormonal Therapy 4/22/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 7/16/2017 Whole-breast: Breast, Lymph nodes, Chest wall
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Jan 13, 2018 04:07AM jaymeb wrote:

HoneyBeaw

Yes, we should always get our questions answered, and when the tech, or whoever can't answer, they need to find someone who can. I'm always full of questions, and persistent on getting answers. I'm curious, are you postmenopause?
Dx 2/15/2017, IDC, Left, 1cm, Stage IIA, Grade 2, 1/13 nodes, ER+/PR+, HER2- (FISH) Dx 2/15/2017, IDC, Left, 1cm, Stage IIA, Grade 2, ER+/PR+, HER2- (FISH) Surgery 3/29/2017 Lymph node removal: Underarm/Axillary; Mastectomy: Left Hormonal Therapy 4/22/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 7/16/2017 Whole-breast: Breast, Lymph nodes, Chest wall
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Jan 13, 2018 04:23AM jaymeb wrote:

OCDAmy

Yayyyyyyyy, congratulations on finishing rads. I did the same thing, rang a bell, hugged all the techs, who I actually miss. It seems like you just started. Lord, how fast. How are you feeling? My big side effect was fatigue during the last two weeks, and appetite loss. I lost weight, then the appetite came back with a vengeance!!! Of course, I gained that weight back.😂😂😂😂. I'm surprised you were not put on hormone therapy before rads. My onco wanted me to start before. It's funny how oncologists all do things differently. Are you pre, or postmenopausal? I take tamoxifen due to being premenopausal. I think there is more options for hormone therapy when you're postmenopausal.
Dx 2/15/2017, IDC, Left, 1cm, Stage IIA, Grade 2, 1/13 nodes, ER+/PR+, HER2- (FISH) Dx 2/15/2017, IDC, Left, 1cm, Stage IIA, Grade 2, ER+/PR+, HER2- (FISH) Surgery 3/29/2017 Lymph node removal: Underarm/Axillary; Mastectomy: Left Hormonal Therapy 4/22/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 7/16/2017 Whole-breast: Breast, Lymph nodes, Chest wall
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Jan 13, 2018 05:14AM jaymeb wrote:

ruthbru


Oops, 11 years, I keep forgetting we're in 2018

Dx 2/15/2017, IDC, Left, 1cm, Stage IIA, Grade 2, 1/13 nodes, ER+/PR+, HER2- (FISH) Dx 2/15/2017, IDC, Left, 1cm, Stage IIA, Grade 2, ER+/PR+, HER2- (FISH) Surgery 3/29/2017 Lymph node removal: Underarm/Axillary; Mastectomy: Left Hormonal Therapy 4/22/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 7/16/2017 Whole-breast: Breast, Lymph nodes, Chest wall
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Jan 13, 2018 08:05AM ruthbru wrote:

Jay, yes, 11 years in February (knocking on wood as I type). I had a lumpectomy, so I can't weigh in on any mastectomy questions (or I could, but I wouldn't know what I was talking about Loopy).

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-

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