Jul 1, 2018 09:44PM cccmc2 wrote:
for those who have gotten dose dense ac and taxol, did the taxol make you feel as sick and as drained as the ac?
Posted on: Jul 27, 2013 03:13PM - edited Aug 8, 2013 01:34PM by NisaVilla
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Jul 1, 2018 09:44PM cccmc2 wrote:
for those who have gotten dose dense ac and taxol, did the taxol make you feel as sick and as drained as the ac?
Jul 2, 2018 09:50PM MexicoHeather wrote:
Well, it depends on the person. Taxol #3 gave me CIPN (neuropathy), which I still have in my fingers and toes. By the 4th Taxol, I was not doing well and they had to postpone it for a few days because of neutropenia. Basically both types kicked me down. I was very glad I wasn't working.
Jul 2, 2018 10:30PM wlo002 wrote:
Hi everyone! New to the thread...I've been active on my chemo thread, but just found you-all tonight. It's very encouraging seeing your stories and outcomes!
I'm half-way through chemo, which has been a little rough, and making decisions about upcoming surgery. My MO and BS both say I'm the perfect candidate for lumpectomy and oncolplasty or mastectomy. Either way, radiation is a must because of my tumor size. They are completely leaving it up to me and while it's nice to have options, I wish they would just say "do this".
Jul 2, 2018 11:02PM - edited Jul 2, 2018 11:06PM by ruthbru
Beesie is one of the resident experts on the boards. I am copying a very well thought out post she did awhile ago on the lumpectomy/mastectomy topic. Maybe you will find it helpful.
"Some time ago I put together a list of considerations for someone who was making the surgical choice between a lumpectomy, mastectomy and bilateral mastectomy. I've posted this many times now and have continued to refine it and add to it, thanks to great input from many others. Some women have gone through the list and decided to have a lumpectomy, others have chosen a single mastectomy and others have opted for a bilateral mastectomy. So the purpose is simply to help women figure out what's right for them - both in the short term but more importantly, over the long term.
Before getting to that list, here is some research that compares long-term recurrence and survival results. I'm including this because sometimes women choose to have a MX because they believe that it's a more aggressive approach. If that's a big part of someone's rationale for having an MX or BMX, it's important to look at the research to see if it's really true. What the research has consistently shown is that long-term survival is the same regardless of the type of surgery one has. This is largely because it's not the breast cancer in the breast that affects survival, but it's the breast cancer that's left the breast that is the concern. The risk is that some BC might have moved beyond the breast prior to surgery. So the type of surgery one has, whether it's a lumpectomy or a MX or a BMX, doesn't affect survival rates. Here are a few studies that compare the different surgical approaches:
Now, on to my list of the considerations:
.I hope that this helps. And remember.... this is your decision. How someone else feels about it and the experience that someone else had might be very different than how you will feel about it and the experience that you will have. So try to figure out what's best for you, or at least, the option that you think you can live with most easily, given all the risks associated with all of the options. Good luck with your decision!"
Jul 3, 2018 07:09AM MexicoHeather wrote:
That was such a thoughtful post Ruthbru.
We have decisions to make. Sometimes we use statistics, sometimes we acknowledge our emotions.
I especially liked that part about the UMX. I decided that I could keep the other breast after I had a stereostatic biopsy and enough ultrasounds to convince myself that the breast tissue was healthy. If I develop any future problems, I will know that I am 'grateful for the extra time' I had with my breast. I took all the action I could at the time with the information that I had to go on.
Jul 3, 2018 05:05PM wlo002 wrote:
Thanks for all the great info Ruthbru!
Jul 3, 2018 08:51PM Tpralph wrote:
Ccmc2. I had the DD taxol. Didn't feel as sick but boy did I ever get body pain! Had to take Tylenol 3 s before I tried loratidine (Claritin) which really helped
Jul 3, 2018 10:30PM Calee65 wrote:
hello, I just found this group, ruthbru, very informative postI
have a comment and questions....please
1) comment.. cccmc2: dr told me it takes a couple weeks for AC side effects to get out if your system...I found the severe nausea I had with AC did hang on very slightly, for 2 weeks, when I started Taxol right after. Then no nausea..yahoo!
2) question..I had a bilateral mastectomy...and have nerve pain(neuropathy) from the surgery, on the left chest, underarm and arm. Each Taxol treatment makes it increasingly painful, where it feels like I have a tight band around whole chest area.... does anyone else have this? I take Gabapentin, but it doesn’t help completely. I was just changed to Abraxane, first treatment today because of the pain. This was 9/12 treatment. If you have same symptoms...what do you do to help relieve the pain. Oh, I also go for massage therapy for chest each week after chemo. I’m hoping Abraxane doesn’t have the same side effect..if so I may have to stop treatments...don’t want this to become permanent.
3) question..and has anyone stopped treatment early? Any encouraging thoughts about this?
4) question.. dr today said I should think about not doing radiation as it can cause permanent damage to the nerves and since I’m already having nerve issues I may not want to add to the pain. Anyone skip radiation..positive thoughts about this?
Thanks. I am Stage IIA, Grade 2, Onco 22
Jul 4, 2018 02:15AM - edited Jul 4, 2018 02:24AM by Hope99
really I don't know why the doctors said if you are high er+ pr+ with her2 negative is good sign to your cancer cells!! my chances to be cancer-free is highest when we compared with other types according to the doctors. I think this is not true. by quick check to the signatures of the patient here you will find out the er+ pr+ are the highest aggresive cancer ( grade 3 ), highest growth speed of cells ( ki67 ). and a lot of research said the chances to develope new cancer in the future higher than triple negative after 5 years. the chemo not working well with er+ pr+ compared with er- pr- and her2+ . mose of the grades of other types of cancers are low, ki67 also low with good reaction and high complete respond Pcr with chemo. you will never find Pcr with er+ pr+ !
so why they said er+ pr+ is the best for treatment? and why they said the survival rate is 93% and my chance to recurrence rate is 20-30% ?
Jul 4, 2018 02:53AM Peregrinelady wrote:Hope, I don’t know where you are getting your information, but Er+ is considered a better prognosis because you can treat it with antihormonals for many years and usually it is not as aggressive as triple negative and HER2+. Those types are best fought with chemo and Herceptin, etc. and have improved prognoses from past years. In general, 20% - 30% of all types may recur, but that does not speak specifically to your cancer. I believe that you said where you live the Oncotype is not available. I see that you have had chemo. Are you on a antihormonal drug such as Tamoxifen or Arimidex? They are considered your best defense with an ER+ cancer. And yes, the rate of recurrence goes down for triple negative after 5 years, but the chances of recurrence within the 5 years is higher. There are positives and negatives for any type of cancer. We just need to do what we can to fight ours and have faith that we have done all that we can, including exercising daily.
Jul 4, 2018 06:22AM - edited Jul 4, 2018 06:26AM by Hope99
Peregrinelady, onco test is available but my consultant said it's useless in my case due to lymph node involved. that's why I took 6 cycles chemo to clear up any escape cells. in my case, one lymph node metastasized, size 3mm in one node after chemo ( he said if cancer reached to lymph nodes with 0.001 mm looks same with 2 cm reached. no different!) . my oncology said the recurrence rate in your stage is 20-30% in general of er+ pr+ and her2 negative because there is no study classify the recurrence rate by stage 2a or 2b . as I understood him, if you are stage lla with minimum lymph nodes and tumour size mean your recurrence rate is 20%, if you are with maximum size of tumour and lymph node involved " 3 positive lymph nodes" , your recurrence will be 30% .
Jul 4, 2018 07:09AM PreludeSing wrote:
Hi Hope...where are you from? The 20 to 30% of early breast cancers that recur are inclusive of stages 1-3 (all considered early). Your chance for recurrence depends on many things apart from general statistics...pathology is an art - your pathology report is only as good as the pathologist who looks at your cells under the microscope so ki67, grades are all somewhat subjective measures...
My Onco also told me that with 2 lymph nodes involved that Oncotype or Mammaprint would not change his mind about chemo but he did say that anti-hormonals (Arimidex or Aromasin or Femara) would be the most important weapon against this cancer - much more so than chemo or radiation (I had both).
Anyway, do pm me if you want to discuss further :)
Jul 4, 2018 07:53AM InnaB2018 wrote:
My radiation oncologist told me that radiation after chemo drops recurrence rate to 5% from 20%. I am going to to radiation because of it. And of course, Tamoxifen. Hope, cheer up, we are in a good place right now. Or will be after the treatments.
Jul 4, 2018 08:43AM MexicoHeather wrote:
I am having nerve issues under the radiated armpit area one year out from treatment. It is interesting that calee55 mentioned her nerve issues with Taxol, and her doctor's concerns about compounding nerve issues, as I have lingering CIPN from the Taxol, too.
I would still recommend going forward with radiation, especially if your cancer was near the chest wall like mine was.
Jul 4, 2018 08:49AM ruthbru wrote:
When I had just finished 'active treatment' and was obsessing about my own 'statistics', my very wise oncologist said, "You have done all the recommended medical treatments and are exercising, keeping your weight down and following a healthy lifestyle. You are doing everything you can, the rest you have to leave to God." (You can insert 'a higher power', 'fate', 'luck'....whatever fits into your belief system). The point is that there is nothing you can do about your pathology report, it is what it is. Once you've used it to make treatment decisions, it is better to never think of it again. And, very bluntly, cancer is either not going to recur (and it shouldn't for us), or it is. If it doesn't, then whatever time I've spent worrying about it has been wasted time; and if it does, then I REALLY better be out doing all the things I want to do RIGHT NOW! (Which is what everyone in the world should be doing anyway, cancer or no cancer.)
Jul 4, 2018 08:50AM - edited Jul 4, 2018 09:09AM by MexicoHeather
This is the best article I found on the site because it breaks down recurrance by the number of lymph nodes that had cancer.
cccmc2: I agree that taking Claritin prior to the Taxol chemo treatment is very helpful. It reduces body pain.
Jul 4, 2018 08:57AM PreludeSing wrote:
Ruthbru - very wise words...thank you for sharing 🙏
Mexico Heather - thanks for the link!
Jul 4, 2018 11:28AM - edited Jul 4, 2018 02:53PM by InnaB2018
Ruthbru, I think along the same lines! Thanks for being positive. P.S.The link doesn't work
Jul 5, 2018 10:00AM jo6359 wrote:
ruth-I agree with you. My oncologist asked why I am always smiling? I told him I'm happy most of the time. I have control over my nutrition, my exercise and my attitude. I don't have control over a recurrence of my cancer. I don't dwell on it. My life is forliving
Jul 5, 2018 05:35PM - edited Jul 5, 2018 05:36PM by nonomimi5
Totally agree! I feel and look better than I did before DX. I lost 5 lbs, I eat healthy, I exercise, I drink Tumeric and Ginger shots or green smoothies everyday,( juice bars are everywhere here) and I am happier because I am grateful for my life. My husband tries not to stress me out, and kids are helpful too. Dog is happier now that I walk her everyday.Life is beautiful.
Jul 5, 2018 06:17PM cccmc2 wrote:
Having a really hard couple of days. Out of the blue. Not sure where it’s coming from.... my diagnosis is scaring the hell out of me.... i keep thinking what if they missed something...I hope this feeling passes. I am generally a happy and positive person but I’ve ive been letting my mind goto negative places. I guess I am just venting?
Jul 5, 2018 07:55PM InnaB2018 wrote:cccmc2, I am like that sometimes as well. It’s very easy to move me to tears these days. My integrative physician encouraged me to do expressive writing every day for a few minutes. I’ve been doing it for 3 days now, and I find it really helps. Here’s what you should do: just get a pen and a paper or Sit at a laptop, and write whatever comes into your head. Don’t edit, don’t even read what you wrote if you don’t want to (I don’t). Even if it doesn’t make much sense, write it out. She called it mental detox. Apparently there were studies that compared people who did it vs. people who didn’t, and the ones who wrote were doing better mentally and health-wise, than the ones who didn’t. Basically, the idea is to allow yourself a few minutes of bitching and venting (or crying) every day, and once it’s done, you can move on with your life. All the negativity will stay on the paper.
Jul 5, 2018 08:00PM ruthbru wrote:
I watched 'The Best of Carson' when doing chemo, and last year when I had a hysterectomy, I watched all 7 seasons of Mary Tyler Moore. A great distraction plus a good use of the 'down time' as some of those old series are classics and really, really funny.
Jul 5, 2018 08:02PM cccmc2 wrote:
yes I start my taxol in 2 weeks. I will try the writing! It can only help. Thank you so much for your thoughtful response it means a lot💕
Jul 5, 2018 08:03PM cccmc2 wrote:
and ok. It will be hard but I’ll put down my murder mystery shows and try a comedy!!
Jul 5, 2018 10:11PM - edited Jul 6, 2018 07:09PM by MexicoHeather
Jul 6, 2018 10:31AM GoKale4320 wrote:
CCCM2 - I hope you are feeling better. When I was still doing chemo, I found myself to be rather emotional and easily overwhelmed. I distracted myself with sports on tv, and fun reading and steered clear of troubling news reports or heavy topics in books - just anything sad or violent. One Saturday when I was home alone, I watched one of those reality shows about people shopping for RVs.
MexicoHealth - thank you for the link - rather interesting to read. These lifestyle changes are for the long haul so better to ease into the changes and find the ones that you can stick with.