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All TopicsForum: Stage II Breast Cancer → Topic: Stage 2 Sisters Club

Topic: Stage 2 Sisters Club

Forum: Stage II Breast Cancer — Meet, share and support others with Stage II Breast Cancer

Posted on: Jul 27, 2013 03:13PM - edited Aug 8, 2013 01:34PM by NisaVilla

NisaVilla wrote:

Welcome to the newly formed Stage II Breast Cancer Club! And Thank You Mods for facilitating its creation.

Dx 3/22/2013, ILC/IDC, Left, 6cm+, Stage IIB, Grade 3, 0/3 nodes, ER+/PR-, HER2- Dx 3/22/2013, LCIS/DCIS, Right, 6cm+, Grade 2, 0/3 nodes, ER+/PR- Surgery 4/24/2013 Mastectomy: Left, Right Chemotherapy 6/24/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 10/1/2013 Arimidex (anastrozole) Surgery 12/27/2013 Reconstruction (left); Reconstruction (right) Surgery 12/5/2014 Reconstruction (left); Reconstruction (right) Surgery 9/24/2015 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Posts 4111 - 4137 (4,137 total)

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Jul 23, 2018 06:49PM Wildcolonialgirl wrote:

hi Hope!  I agree - the radiotherapy is also an important part of our treatment.  I have done 23 sessions and have 9 more to go.  Looking forward to finishing up!

Dx 1/2018, IDC, Left, 4cm, Stage IIB, Grade 3, 1/1 nodes, ER+/PR+, HER2- (FISH) Surgery 1/25/2018 Mastectomy: Left; Reconstruction (left): Silicone implant Chemotherapy 2/28/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 6/17/2018 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy
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Jul 23, 2018 09:17PM ruthbru wrote:

Do what the doctors recommend, hang tough through treatment; there's a wonderful life on the other side!

Here's what I just got back from doing with the ladies of my family (everyone lives far apart, so we do a Girls Trip every summer).

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Jul 24, 2018 07:26AM MexicoHeather wrote:

Lovely photo, RuthBru.

Today I am having a EMG and nerve conduction study on my right arm. I have been complaining on and off about my shoulder for about a year. The surgeon said take care of it with your GP. By March, it hurt like an SOB! Eventually, the GP did and xray and scan and they found a torn rotator cuff. I went to an orthopedic surgeon who was a big dork. 

The GP sent me to PT and they said, "Hey! There's some minor CORDING in there! No wonder you hurt like an SOB and lost your range of motion!" (Haha, they didn't quite put it that way.) 

So, basically, it took a PT to look under my arm to figure out it was related to not having any lymph nodes and cancer.

PT was somewhat helpful. However, now I have referred pain from the shoulder and I cannot feel my right hand. The Dork Doctor transferred me to a Pain Specialist, who turned out to be a fantastic doctor!

So, we will see where my nerve is stuck. I think it will be next to the cording.

Please Note: Cording can come up well after surgery.

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/5/2016 Lymph node removal: Right; Mastectomy: Right Surgery 12/5/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Chemotherapy 1/19/2017 AC + T (Taxol) Radiation Therapy 5/10/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/10/2017 Prophylactic ovary removal Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 24, 2018 08:30AM GoKale4320 wrote:

Mexicoheather - I hope you do not need surgery for the torn rotator cuff. Or is it not torn, just cording? Either way, hope the PT puts everything right. I just wanted to add that I wear KT tape on my arm to help with lymphedema. I few weeks ago, I stopped wearing it and thought everything was fine until I felt cording when I stretched my arm. So I am back to wearing the tape all the time. I wear tape or a compression sleeve and glove, but I love the KT tape.

Dx: January 2017, IDC, Stage IIa, 1/23 nodes, Dx 1/2017, IDC, Right, <1cm, Stage IIA, Grade 2, 1/23 nodes, ER+/PR+, HER2-
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Jul 24, 2018 07:17PM MexicoHeather wrote:

I have taped it before and it helped. The test results were not definitive enough, so I am now turning my gaze to Arimidex -- numb and tingling hand is a known side effect. I have a call out to the Oncologist, as orthopedic doctor would have me do nothing for 3 to 6 months. Ugh.

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/5/2016 Lymph node removal: Right; Mastectomy: Right Surgery 12/5/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Chemotherapy 1/19/2017 AC + T (Taxol) Radiation Therapy 5/10/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/10/2017 Prophylactic ovary removal Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 25, 2018 09:59PM pink_is_my_colour wrote:

Ruthbru: Pretty scary stuff! I'm scared even looking at the photo. What a great thing to do.

pink_is_my_colour Dx 4/4/2017, IDC, Left, 1cm, Stage IIA, Grade 1, 2/6 nodes, ER+/PR+, HER2- Dx 4/4/2017, DCIS, Right, <1cm, Stage 0, Grade 1, ER+/PR+, HER2- Surgery 4/24/2017 Lumpectomy: Left, Right; Lymph node removal: Left, Sentinel Chemotherapy 6/16/2017 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Chemotherapy 8/18/2017 Taxotere (docetaxel) Radiation Therapy 10/23/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy Femara (letrozole)
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Jul 25, 2018 10:50PM ruthbru wrote:

We had a GREAT guide who made it really, really fun.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Jul 26, 2018 02:18AM runor wrote:

MexicoHeather, I don't know if this helps....

After lumpectomy I worked hard at getting full range of motion back. There was some serious pain involved in this as I discovered that all sorts of things had bound up and seized over my ribs and up into my shoulder. But I did stretches on the floor and things were improving vastly.

Then one day I had terrible pain in my shoulder and could all of a sudden no longer get my arm over my head! The pain was in the joint and I thought, oh brother, is this arthritis? I have done nothing wild and crazy to cause a sudden injury, no reason for motion that was there one day to be gone the next! It made no sense.

It took WEEKS of laying on the floor every night and easing my arm, through the pain, into positions that I had a hard time getting in to. Sometimes I had Husband pull on my arm, or press on it, or whatever I needed. It took a lot of time but the problem resolved and full motion came back.

The moral of the story is that I suspected cording as the problem. I have had it flare up in different places, like guitar strings under my skin, so gross! If this IS cording that you are having, PT should help resolve it. It won't be quick. But it's not hopeless. I think maybe your cording is a bigger problem than anyone seems to be realizing. If it is that, you can work through it, and that is good news!

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/4/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 26, 2018 09:08AM jo6359 wrote:

we had another night filled with thunder and lightning. So the dogs and I finally fell asleep about 4 a.m. this morning. I was awake at 6. My radiation appointment. I dressed in the dark because I didn't want to wake up the dogs. When I arrived the radiation department one of the girls looked at me and started laughing. She said" your shoes don't match. I had on one Skechers sandal and 1 gardening flip flop. I just laughed and went to my car and put on my sneakers. I always keep sneakers in my car because when I finish radiation I have to go to work. It's easier to wear sandals and yoga pants for radiation. Lesson here do not dress in the dark.

Dx 1/29/2018, DCIS, Right, Stage 0 Dx 1/29/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/18 nodes, ER-/PR-, HER2+ (FISH) Targeted Therapy 2/15/2018 Perjeta (pertuzumab) Targeted Therapy 2/16/2018 Herceptin (trastuzumab) Chemotherapy 2/16/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Jul 29, 2018 04:49PM cccmc2 wrote:

other than bone pain, did anyone have pelvic possibly ovarian pains after taxol? I have had pelvic type pain all day today. It's 3days past my first taxol treatment. Don't remember being warned about it. Just curious.

Dx 3/30/2018, IDC, Right, 2cm, Stage IIA, Grade 3, ER-/PR-, HER2- (IHC) Surgery 4/10/2018 Lymph node removal: Sentinel; Mastectomy: Right Chemotherapy AC + T (Taxol)
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Aug 3, 2018 12:04PM jo6359 wrote:

my Mo did tell me pelvic pain was a possible side effect from Taxotere. I would still check with my doctor to be on the safe side. I never experienced bone pain and only occasional muscle pain. Taxotere really affected my close vision. Even though it's been 8 weeks post chemo my close vision is slowly returning to normal. I did have several sores on my hands and forearms. They would disappear after 2 or 3 days and then within a week three or four sores would pop up again. No itching or pain associated with them. They were ugly though.

Dx 1/29/2018, DCIS, Right, Stage 0 Dx 1/29/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/18 nodes, ER-/PR-, HER2+ (FISH) Targeted Therapy 2/15/2018 Perjeta (pertuzumab) Targeted Therapy 2/16/2018 Herceptin (trastuzumab) Chemotherapy 2/16/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Aug 3, 2018 01:20PM InnaB2018 wrote:

cccmc2, I have the pain you describe. It might be that it’s only happening on DD Taxol schedule. Today is my day 5 after the first dose, and it’s receding slowly. I felt like my period is going to start any moment now, or am on day 2 of my period. I am in a lot of pain from this drug. Had to call the doctor yesterday. She prescribed Tramadol, which helped. Had an acupuncture too, waiting to see the results. I felt much better on AC.

Dx 3/26/2018, IDC, Right, 3cm, Stage IIA, Grade 3, 1/18 nodes, ER+/PR+, HER2- Surgery 4/24/2018 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/1/2018 AC + T (Taxol)
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Aug 5, 2018 05:32PM MexicoHeather wrote:

Yay! I was accepted on a retreat team for Little Pink Houses of Hope. The retreat is in Orange Beach, Alabama, and is for an entire week.

It feels good to be one year out of treatment and doing this for other families facing breast cancer issues.

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/5/2016 Lymph node removal: Right; Mastectomy: Right Surgery 12/5/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Chemotherapy 1/19/2017 AC + T (Taxol) Radiation Therapy 5/10/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/10/2017 Prophylactic ovary removal Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 5, 2018 06:43PM cccmc2 wrote:

thank you ladies. The severe pelvic pain hit me day 3 and 4 and subsided day 5. I was also called In tramadol which did help, my onc also suggested taking a dose of my dexamethasone which I did. So I don’t Know which helped more but I’ll be taking them both for next round. Other than those 2 days i have really not had any other adverse side effects. It makes sense that the DD taxol would have harder side effects. My onc did confirm it is common. So far I have much better energy than when on AC, and i havent needed any zofran. Not one!

Dx 3/30/2018, IDC, Right, 2cm, Stage IIA, Grade 3, ER-/PR-, HER2- (IHC) Surgery 4/10/2018 Lymph node removal: Sentinel; Mastectomy: Right Chemotherapy AC + T (Taxol)
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Aug 6, 2018 10:58PM TaRenee wrote:

MexicoHeather. That is pretty cool. Orange Beach is beautiful. When do you go? Where did you hear about this?

I’m one year out from diagnosis and one days I feel like it was just yesterday and I get scared and freak out. Then I remember that I’m doing okay. I hate this disease.

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Aug 7, 2018 10:05AM MexicoHeather wrote:

TaRenee: You are so right. There are so many cascading changes to my body that I can't keep up some days. No estrogen, ugh.

Little Pink Houses of Hope came up because I was looking for a compression sleeve so I could go on an airplane (I have no lymph nodes left on the right, so there is a higher lymphedema risk). LPHH had a similar name to the nonprofit organization that had the sleeve! I started reading about it and decided, YES, I would volunteer. I leave August 18. Pray for NO HURRICANE.

Breastcancer.org has such a great educational and supportive mission. In comparison, LPHH is a very small step to helping woman who have breast cancer.

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/5/2016 Lymph node removal: Right; Mastectomy: Right Surgery 12/5/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Chemotherapy 1/19/2017 AC + T (Taxol) Radiation Therapy 5/10/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/10/2017 Prophylactic ovary removal Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 7, 2018 10:06AM Wildcolonialgirl wrote:

Mexico Heather, what a wonderful thing to be doing!  Hope you have great weather and it is a rewarding experience for you.

Dx 1/2018, IDC, Left, 4cm, Stage IIB, Grade 3, 1/1 nodes, ER+/PR+, HER2- (FISH) Surgery 1/25/2018 Mastectomy: Left; Reconstruction (left): Silicone implant Chemotherapy 2/28/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 6/17/2018 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy
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Aug 8, 2018 03:08PM Benji44 wrote:

So many more of you had surgery before chemo. I am doing 6 months of chemo first starting next week and the delay makes me nervous. I have several large affected lymph nodes and I hear and believe their plan to shrink them first but I am old (69 1/2) and impatient. Any advice

Dx 7/17/2018, IDC, Left, 5cm, Stage IIB, Grade 1, ER+/PR+, HER2- (IHC) Chemotherapy 8/16/2018 AC + T (Taxol)
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Aug 8, 2018 03:26PM GoKale4320 wrote:

Benji44 - I think your situation is common. One positive aspect of doing chemo first is that there is no waiting for recovery from surgery before you start chemo. Also, maybe chemo will be easier because you will be rested going in, and your arm won't be stiff. Once my surgery was done, I had to wait for the drain to come out before I could start chemo - that delayed chemo several weeks. So probably either way, there is some waiting involved. Best of luck and try not to worry.

Dx: January 2017, IDC, Stage IIa, 1/23 nodes, Dx 1/2017, IDC, Right, <1cm, Stage IIA, Grade 2, 1/23 nodes, ER+/PR+, HER2-
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Aug 8, 2018 03:52PM Legomaster225 wrote:

Benji, I had chemo first. The intent was to rid the one confirmed positive lymph node of cancer and shrink my 3.5cm tumor. It worked great. Lymph node was clean on surgical pathology and very scant viable cells in the tumor bed. The good think about chemo before surgery is that you know for sure that it worked. I think chemo first is more common than we think. Good luck with your treatment next week.
Oncotype score 39. One node positive at diagnosis negative after preadjuvent chemo. Bilateral cancer discovered at BMX. Left breast was supposed to be prophylactic. :-( Dx 12/3/2016, IDC, Right, 3cm, Stage IIB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Chemotherapy 1/19/2017 AC + T (Taxol) Surgery 6/21/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 6/22/2017, IDC, Left, <1cm, Stage IB, Grade 1, 0/0 nodes, ER+/PR+, HER2- Dx 6/22/2017, DCIS, Left, <1cm, Stage 0, Grade 1 Radiation Therapy 8/21/2017 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 10/16/2017
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Aug 8, 2018 04:32PM Benji44 wrote:

Thank you both for your helpful and encouraging information. It really helps me

Dx 7/17/2018, IDC, Left, 5cm, Stage IIB, Grade 1, ER+/PR+, HER2- (IHC) Chemotherapy 8/16/2018 AC + T (Taxol)
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Aug 8, 2018 05:38PM ruthbru wrote:

That wasn't a choice when I was diagnosed; but had it been I would have definitely had chemo first. I had a lumpectomy and I probably wouldn't be as lopsided had that been an option. (I look fine in clothes and don't really care, but still....)


"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Aug 11, 2018 01:44PM MexicoHeather wrote:

When I asked about the order, the Oncologist made the decision and the surgeons plan was always to take all the lymph nodes because of Grade 3 and the size of the 3 tumors in the lymph nodes. He said why bother to shrink them? It not changing your chemo treatment plan. I have also noticed that here in the South more doctors operate first and remove more lymph nodes by comparison to other parts of the U.S..

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/5/2016 Lymph node removal: Right; Mastectomy: Right Surgery 12/5/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Chemotherapy 1/19/2017 AC + T (Taxol) Radiation Therapy 5/10/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/10/2017 Prophylactic ovary removal Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 12, 2018 06:58AM InnaB2018 wrote:

My MO said they usually do a neoadjuvant chemo for hormone negative cancers,or if there are big tumors and the patient chooses a lumpectomy, or if there are no tumors, but the diffuse bed of cancer cells. Otherwise they always do surgery first.

Dx 3/26/2018, IDC, Right, 3cm, Stage IIA, Grade 3, 1/18 nodes, ER+/PR+, HER2- Surgery 4/24/2018 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/1/2018 AC + T (Taxol)
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11 hours ago Kimmer33 wrote:

Hi Ladies!

Just wondering if any of you have the same issues I am currently experiencing.

I switched from Tamoxifen to Letrozole in February of this year and have had an escalation of pain in my left foot, along with hardly able to walk each morning when I get up and if I’ve been sitting for too long. Once I get going I am fine and I know this is due to lack of estrogen in my body. Anyone find any relief?

Also, I have yellowish discharge every day and it’s starting to piss me off - I thought menopause came with vaginal dryness???

Thanks for any info you’ve got!

Kim

Dx 7/31/2015, IDC, Left, 2cm, Stage IIB, Grade 1, 1/17 nodes, ER+/PR+, HER2- Surgery 8/31/2015 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 10/9/2015 AC + T (Taxol) Hormonal Therapy 2/3/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/15/2016 Whole-breast: Breast, Lymph nodes Surgery 6/8/2016 Prophylactic mastectomy: Right Hormonal Therapy 5/14/2018 Femara (letrozole)
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6 hours ago MexicoHeather wrote:

I am not sure what to peg the foot pain on. I have had it through each AI, and even during this 2 weeks off, there was still foot pain. Hmmm.

I have been touching base with the GYN. I like Replense, and use it every three days. There's been no discoloration since then. I was worried on my last visit, but it's the New Normal. I think might add some urinary tract health med in there, too.

Estrogen, I miss you!Heart

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/5/2016 Lymph node removal: Right; Mastectomy: Right Surgery 12/5/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Chemotherapy 1/19/2017 AC + T (Taxol) Radiation Therapy 5/10/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/10/2017 Prophylactic ovary removal Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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5 hours ago Kimmer33 wrote:

LOL, what a thought - missing estrogen?!?!?!?!?!?

Thanks for responding, vag discharge for you too mexicoheather

Dx 7/31/2015, IDC, Left, 2cm, Stage IIB, Grade 1, 1/17 nodes, ER+/PR+, HER2- Surgery 8/31/2015 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 10/9/2015 AC + T (Taxol) Hormonal Therapy 2/3/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/15/2016 Whole-breast: Breast, Lymph nodes Surgery 6/8/2016 Prophylactic mastectomy: Right Hormonal Therapy 5/14/2018 Femara (letrozole)

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