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Mar 15, 2016 04:57AM
I had a modified radical mastectomy in 2012. I too went to the "top" team in my area and thought I researched everything. I was told a few cells could be left behind but a bmx was the most aggressive form of treatment I could choose. Because of the course of treatment, I did not have to do radiation or chemo. They did ask my to take tamoxifen which I declined.
2016 I am diagnosed with a recurrence. Have now been to 4 doctors at different hospitals. I am supposedly seeing the top ones again in our area. Saw one last week at a major research hospital. She told me I had excessive tissue left after my bmx!! Said even though I had a modified bmx the surgeon left way too much tissue in the area! She recommends a 2nd mastectomy to remove my DIEP flaps and more breast tissue.
I am ticked, mad and frustrated. I had no idea I should have asked to see how much breast tissue was left behind after surgery. BTW, the new MRI I had done in 2016 showed it clearly. Pretty scary stuff when I saw all the tissue with calcifications that matched my mammograms in 2012. Now I realize I should have been doing mammograms every year. Thought it was stupid without real breasts so I didn't ever push getting them done.
1/19/2012, DCIS, <1cm, Stage I, 0/16 nodes, ER+/PR+, HER2-
1/19/2012, ILC, Stage I, Grade 2, 0/16 nodes, ER+/PR+, HER2-
1/19/2012, IDC, 1cm, Stage I, Grade 2, 0/16 nodes, ER+/PR+, HER2-
2/13/2012 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
7/26/2012 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction
12/14/2012 Reconstruction (left): DIEP flap, Nipple reconstruction; Reconstruction (right): DIEP flap, Nipple reconstruction
1/19/2016, IDC, Right, <1cm, Stage IA, Grade 1, ER+/PR+, HER2-